Mouth sores

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KWT
Posts: 3214
Joined: Thu Jul 11, 2013 7:22 pm

Mouth sores

Postby KWT » Tue Jun 02, 2015 9:53 pm

What wonderful drug causes the lovely mouth sores? I have a nice one on the side of my tongue and it sucks.

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ktwmn
Posts: 350
Joined: Tue Aug 02, 2011 9:41 am

Re: Mouth sores

Postby ktwmn » Tue Jun 02, 2015 9:58 pm

They all do. And they all suck.
Dx 7/11, Stage IIIc CC
12 txs Folfox 8/2011-2/2012
MSS, KRAS-mut G12D
NED until 3/2015, mets to liver and peritoneum
April-December 2015: 15 txs folfiri+avastin
Liver mets resolved; pelvic met remains
January-May 2016: folfox+avastin; allergic rxn to oxi
June-August 2016: 5FU+avastin
October 2016: looking into immuno trial
January 2017: maintenance chemo xeloda + avastin

KWT
Posts: 3214
Joined: Thu Jul 11, 2013 7:22 pm

Re: Mouth sores

Postby KWT » Tue Jun 02, 2015 10:10 pm

ktwmn wrote:They all do. And they all suck.


It's my first, what a treat indeed. I thought I was coming out of this crap for this round.

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exaussie
Posts: 618
Joined: Sun Jan 19, 2014 1:19 am
Location: Silverton OR
Contact:

Re: Mouth sores

Postby exaussie » Tue Jun 02, 2015 10:11 pm

Hey Kenny Yeah that's common. Have you tried the mouthwash from the Pharmacy? Its called Magic Mouthwash it works pretty well. They mix it up at the pharmacy for you.
Magic mouthwash usually contains at least three of these basic ingredients:
•An antibiotic to kill bacteria around the sore
•An antihistamine or local anesthetic to reduce pain and discomfort
•An antifungal to reduce fungal growth
•A corticosteroid to treat inflammation
•An antacid that helps ensure the other ingredients adequately coat the inside of your mouth
DS 26 yrs old diagnosed 6/13 T3N2aM1b
Resection 6/13
6 rounds chemo folfax
12/13 Fissure
hernia surgery 12/13
5 months break
Maintenance chemo 3/14
Crazy growth. Liver failing. Folfox and vectibex 7-29-14
Chemo failure Hospice 8/26
Left us 8/28

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ktwmn
Posts: 350
Joined: Tue Aug 02, 2011 9:41 am

Re: Mouth sores

Postby ktwmn » Tue Jun 02, 2015 10:22 pm

Hey Kenny

It's my first, what a treat indeed.


You never forget your first...

Exaussie has good tips, the Magic Mouthwash is the ticket.

(And...this is probably TMI, the MM also helps on the other end of the spectrum, as in 'rhoids. I was out of Prep H and grabbed the nearest bottle during my last bout with Folfox).
Dx 7/11, Stage IIIc CC
12 txs Folfox 8/2011-2/2012
MSS, KRAS-mut G12D
NED until 3/2015, mets to liver and peritoneum
April-December 2015: 15 txs folfiri+avastin
Liver mets resolved; pelvic met remains
January-May 2016: folfox+avastin; allergic rxn to oxi
June-August 2016: 5FU+avastin
October 2016: looking into immuno trial
January 2017: maintenance chemo xeloda + avastin

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mstults
Posts: 1327
Joined: Fri Nov 30, 2012 11:23 am

Re: Mouth sores

Postby mstults » Tue Jun 02, 2015 10:31 pm

Fool fox is the only one that actually caused me sores. Some of the otjers made my tongue and mouth sensitive. The magic mouthwash is good but doesn't last long. I have more luck with hydrogen peroxide. Most recommendations say dilute it with water but I use it full strength. It will heal them in a day or two for me. Just be sure not to swallow.
Male Age 53. Dx CC with numerous liver mets 6/23/12. Colon res 6/24/12. Started folfox 7/24/12. Added avastin 8/27/12. CT 12/27/12 still showing shrink. Took 17 rounds of FOLFOX. Then 5-FU + Avastin. Switched to Irinotecan for 1 yr. CEA rose to >400. Switched to Vectibix 2/18/15. CEA decreasing. Scans show some growth in liver mets. Lung Mets stable to shrinking.

https://www.facebook.com/michael.stults2/about?ref=home_edit_profile&section=work

KWT
Posts: 3214
Joined: Thu Jul 11, 2013 7:22 pm

Re: Mouth sores

Postby KWT » Tue Jun 02, 2015 10:48 pm

Thanks guys, I'll call doc tomorrow for mouthwash and give the hydrogen peroxide as well.

jhocno197
Posts: 817
Joined: Mon May 11, 2015 9:33 pm

Re: Mouth sores

Postby jhocno197 » Tue Jun 02, 2015 10:54 pm

My husband started getting mouth sores after being switched from FOLFOX to FOLFIRI + Avastin. Magic Mouthwash seems to help a lot, as does me remembering to not feed him spicy food when he has one :oops:.
DH - dx Dec 2014, stage IV with bladder & peritoneal involvement - non-resectable
Colostomy
FOLFOX failed
FOLFIRI failed
Tumor actually distending pelvic skin
Not a candidate for last-ditch pelvic exenteration
Stivarga finally begun 2/19/16
Tumor growing/fungating
Lonsurf started 11/18/16
Died 3/10/17

megan120
Posts: 127
Joined: Mon Jun 16, 2014 10:54 pm

Re: Mouth sores

Postby megan120 » Wed Jun 03, 2015 2:15 am

I agree with the magic mouthwash. I would also swish with salt and baking soda as well. Not as much relief as the mouthwash, but I think it helped them heal faster.

I hope it clears up soon, those sores on your tongue are the worst!
36 year old mama to 3 (8,5,3)
Dx May 2014
Stage IV cc with met to cervix
2/134 pos LN
partial colectomy with temp ileostomy
folfox with avastin 6/14
Oct 14, hyst-mets to uterus, rt ovary implants
1/6/15 6 rounds of folfox
5/4/15 done with 28 tx chemo-rad
7/24/15 completion colectomy, NED!

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Annemiek
Posts: 304
Joined: Tue Apr 07, 2015 4:05 am
Location: The Hague, Netherlands

Re: Mouth sores

Postby Annemiek » Wed Jun 03, 2015 5:03 am

Weird as it may sound, applesauce helped me when it was only one or two, a spoonfull in your mouth, leaving it there for a few minutes.
The acid from the apples helps. Can't hurt either :P

Annemiek

43 yr mum of a girl aged 7
10/2014 coloncancer stage IIIc
11/2014 HIPEC, tumor removed + 12 positive out of 60 ln
hysterectomy, abdominal lining partly removed
Peridonitus, stoma fitted, 6 abcesses drained in abdomen
MSS, kras
3/2015 Folfox, someones playing kill Bill inside me
9/2015 finished 12 rounds,
First scan results: NED!!!!!!!!!
4/2016 ct scan: NED!!!
7/2016 ultrasound: NED
10/2016 cr scan: NED
5/2017 ultrasound: NED 2,5 yrs!
CEA 8/2017 1.8 stable.
CT scan 11/2017 NED! 3 yrs
CEA 1.9

KWT
Posts: 3214
Joined: Thu Jul 11, 2013 7:22 pm

Re: Mouth sores

Postby KWT » Wed Jun 03, 2015 7:50 am

I've been doing the salt and B.S. (Baking soda that is) helps a little. Applesauce coming in hot.

trbiggins
Posts: 163
Joined: Mon Dec 09, 2013 7:20 pm
Facebook Username: Richard Biggins
Location: North Carolina

Re: Mouth sores

Postby trbiggins » Wed Jun 03, 2015 8:31 am

OTC Biotene helps my mouth. I'm so dumb I always thought it was what people were talking about when they mentioned magic mouthwash. I guess I know better now.

Richard
42 male at DX
Husband, father (girls 13 and 16)
Stage IV mets to liver Oct 2013
Xelox Dec 13-Apr 14
Avastin, Xeloda Apr-July 2014
Vectibix July
Vectibix/Irinotecan Dec 2014
Colon resect/ HAI pump Jan 2015
Folfiri/Vectibix/FUDR ongoing

KWT
Posts: 3214
Joined: Thu Jul 11, 2013 7:22 pm

Re: Mouth sores

Postby KWT » Wed Jun 03, 2015 8:33 am

It's the worst SE for me so far. I seem to be able to hurl and just move on. A nap is a good SE. No diareah thus far. I'm thinking a month long surf trip,to Costa Rica is calling my name plenty of saltwater rinses.


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