Good morning new friends,
My DH will have the port installed on Thursday and FOLFOX will be begin the following week. The oncologist said it's 2b possibly 2c. Will ask him for clarification. Onc also mentioned genetic marker and something about satellite. Again, I will ask he to explain. DH said he's ready for it ! I'm not.
Port and FOLFOX
Re: Port and FOLFOX
I hope the port surgery went well. It may take a while for him to get used to it. Mine still bugs me from time to time.
Good luck with the FOLFOX next week. If you haven't already, you may want to get copies of pathology and radiology reports for your own records/peace of mind. Most hospitals have online patient portals now, where you can go to download written reports.
Celine
Good luck with the FOLFOX next week. If you haven't already, you may want to get copies of pathology and radiology reports for your own records/peace of mind. Most hospitals have online patient portals now, where you can go to download written reports.
Celine
my blog: Cancer Riot
NED since April 2016!
April 2016: lower left lung lobectomy. NED
8 mo. f/u: 1 of 7 tumors progressed.
6 mo. f/u PR confirmed (Jan 2016)
Jul 2015: NIH TIL trial NCT01174121 NCI/NIH Surgery Branch FAQ
Dec 2014 confirmed stage IV w/bilateral lung mets
FOLFOX + Radiation (bladder)
KRAS G12D :: MSS
dx Sep 2013 @47yo: IIIc T4b N2b MX [bladder invasion, 17/21 lymph nodes]
Married 34 yrs. kids: 28, 25, 21, 16, 14
SE Michigan home schooler, unemployed mechanical engineer, and programmer.
NED since April 2016!
April 2016: lower left lung lobectomy. NED
8 mo. f/u: 1 of 7 tumors progressed.
6 mo. f/u PR confirmed (Jan 2016)
Jul 2015: NIH TIL trial NCT01174121 NCI/NIH Surgery Branch FAQ
Dec 2014 confirmed stage IV w/bilateral lung mets
FOLFOX + Radiation (bladder)
KRAS G12D :: MSS
dx Sep 2013 @47yo: IIIc T4b N2b MX [bladder invasion, 17/21 lymph nodes]
Married 34 yrs. kids: 28, 25, 21, 16, 14
SE Michigan home schooler, unemployed mechanical engineer, and programmer.
Re: Port and FOLFOX
Get it on the right side as to not interfere with seatbelt.
Re: Port and FOLFOX
kennytwisted wrote:Get it on the right side as to not interfere with seatbelt.
Doesn't that change depending on if your driving or the passenger?
Age 53 dx 2a CC 0/21 LN Oncotypedx score: 11
Sigmoidectomy 5/8/14
MSS No lymphovasular involvement,
6/14 PET - NED, 12/14 CT NED, 7/15 CT - NED
6/14-12/9/14 Xeloda 8 cycles
2/12/15 incisional hernia repair - Boooo!
Sigmoidectomy 5/8/14
MSS No lymphovasular involvement,
6/14 PET - NED, 12/14 CT NED, 7/15 CT - NED
6/14-12/9/14 Xeloda 8 cycles
2/12/15 incisional hernia repair - Boooo!
Re: Port and FOLFOX
Valorie wrote:kennytwisted wrote:Get it on the right side as to not interfere with seatbelt.
Doesn't that change depending on if your driving or the passenger?
Real men always drive.lol
Re: Port and FOLFOX
My first was in the right, mostly because I'm lefthanded. When I had to have it replaced they put it on the left. That's been 2 1/2 yrs and hadn't bothered me a bit. I'm very happy with it because the first one never worked right. The new one hasn't given any trouble at all. I sometimes forget it's there.
Male Age 53. Dx CC with numerous liver mets 6/23/12. Colon res 6/24/12. Started folfox 7/24/12. Added avastin 8/27/12. CT 12/27/12 still showing shrink. Took 17 rounds of FOLFOX. Then 5-FU + Avastin. Switched to Irinotecan for 1 yr. CEA rose to >400. Switched to Vectibix 2/18/15. CEA decreasing. Scans show some growth in liver mets. Lung Mets stable to shrinking.
https://www.facebook.com/michael.stults2/about?ref=home_edit_profile§ion=work
https://www.facebook.com/michael.stults2/about?ref=home_edit_profile§ion=work
-
bjones1128
- Posts: 43
- Joined: Tue May 12, 2015 12:07 pm
- Facebook Username: barbslife
- Location: South Carolina
Re: Port and FOLFOX
Valorie wrote:kennytwisted wrote:Get it on the right side as to not interfere with seatbelt.
Doesn't that change depending on if your driving or the passenger?
You're right, it can change depending on if you are the driver or passenger. Better to get the one you think will be most beneficial. I am a single mom and drive myself back and forth to chemo and doc appointments, as well as driving kids everywhere, so it was a no brainer for me.
Single mom of two wonderful boys
Dx June 2014 Stage IVB Colon (sigmoid) @ age 38
Mets in brain, lungs, adrenal gland, nodes, ovary
July 2014 stereotactic radiosurgery to brain
July 2014 craniotomy, brain met removed!
Aug 2014 Folfiri
Feb 2015 Xeloda & Avastin didn't work
May 2015 mets to spine & knee, more mets to lungs, airspace disease
May 2015 Folfox, Avastin, Zemota
May 2015 radiation to knee
Dx June 2014 Stage IVB Colon (sigmoid) @ age 38
Mets in brain, lungs, adrenal gland, nodes, ovary
July 2014 stereotactic radiosurgery to brain
July 2014 craniotomy, brain met removed!
Aug 2014 Folfiri
Feb 2015 Xeloda & Avastin didn't work
May 2015 mets to spine & knee, more mets to lungs, airspace disease
May 2015 Folfox, Avastin, Zemota
May 2015 radiation to knee
Re: Port and FOLFOX
Jones, I didn't do it right and it is a pain at times.
Re: Port and FOLFOX
They didn't give me an option. I really hate the thing.
Celine
Celine
my blog: Cancer Riot
NED since April 2016!
April 2016: lower left lung lobectomy. NED
8 mo. f/u: 1 of 7 tumors progressed.
6 mo. f/u PR confirmed (Jan 2016)
Jul 2015: NIH TIL trial NCT01174121 NCI/NIH Surgery Branch FAQ
Dec 2014 confirmed stage IV w/bilateral lung mets
FOLFOX + Radiation (bladder)
KRAS G12D :: MSS
dx Sep 2013 @47yo: IIIc T4b N2b MX [bladder invasion, 17/21 lymph nodes]
Married 34 yrs. kids: 28, 25, 21, 16, 14
SE Michigan home schooler, unemployed mechanical engineer, and programmer.
NED since April 2016!
April 2016: lower left lung lobectomy. NED
8 mo. f/u: 1 of 7 tumors progressed.
6 mo. f/u PR confirmed (Jan 2016)
Jul 2015: NIH TIL trial NCT01174121 NCI/NIH Surgery Branch FAQ
Dec 2014 confirmed stage IV w/bilateral lung mets
FOLFOX + Radiation (bladder)
KRAS G12D :: MSS
dx Sep 2013 @47yo: IIIc T4b N2b MX [bladder invasion, 17/21 lymph nodes]
Married 34 yrs. kids: 28, 25, 21, 16, 14
SE Michigan home schooler, unemployed mechanical engineer, and programmer.
-
trbiggins
- Posts: 163
- Joined: Mon Dec 09, 2013 7:20 pm
- Facebook Username: Richard Biggins
- Location: North Carolina
Re: Port and FOLFOX
Since they implanted the hockey puck-sized HAI pump in my belly, I don't even think about my port anymore. It's all about perspective.
Richard
Richard
42 male at DX
Husband, father (girls 13 and 16)
Stage IV mets to liver Oct 2013
Xelox Dec 13-Apr 14
Avastin, Xeloda Apr-July 2014
Vectibix July
Vectibix/Irinotecan Dec 2014
Colon resect/ HAI pump Jan 2015
Folfiri/Vectibix/FUDR ongoing
Husband, father (girls 13 and 16)
Stage IV mets to liver Oct 2013
Xelox Dec 13-Apr 14
Avastin, Xeloda Apr-July 2014
Vectibix July
Vectibix/Irinotecan Dec 2014
Colon resect/ HAI pump Jan 2015
Folfiri/Vectibix/FUDR ongoing
-
Daddy's girl
- Posts: 13
- Joined: Wed Apr 29, 2015 8:21 pm
Re: Port and FOLFOX
Just a thought, but there's a lambs wool seat belt cover to put on the strap to protect the port...they're about $10.. Check Walmart, Target in the automotive sections. I got my Dad's at the car wash! Good luck with your treatments...
Dad's bowel resection 4/10/15
Stage IIIC; Chemo "cocktail" to start 5/15
Canceled due to PET scan results 5/15
Lung Biopsy 5/21-lung surgery 6/4/15
Started Avastin 7/15 for lungs...ignore colon
Colon surgery 11/16 again..
Clot in port..new port installed 2/17
5-FU pump, Avastin, Oxaliplatin started 2/17...and here we go again.
Stage IIIC; Chemo "cocktail" to start 5/15
Canceled due to PET scan results 5/15
Lung Biopsy 5/21-lung surgery 6/4/15
Started Avastin 7/15 for lungs...ignore colon
Colon surgery 11/16 again..
Clot in port..new port installed 2/17
5-FU pump, Avastin, Oxaliplatin started 2/17...and here we go again.
Re: Port and FOLFOX
Very sore shoulder for 24 hours and now feeling pretty good. DH drives so it's a good thing it's on his right side. Chemo starts on the 15th. Thanks everyone.
PS. I'm reading Tom Brokaw's new book about his experience with cancer. Let you know what I think.
PS. I'm reading Tom Brokaw's new book about his experience with cancer. Let you know what I think.
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