Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Dec 4 /2018

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Utwo
Posts: 226
Joined: Mon May 23, 2016 10:14 am
Location: T.O.

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Nov/2018

Postby Utwo » Sat Nov 17, 2018 10:59 pm

CRguy wrote:
Cardio : change statins, regular bloods, good stress test results, booked echo
but cardio honcho is not concerned about imminent issues and just wants to cover the bases and manage risk factors.
...
CRguy, why do you need statins?
Do you see calcified plaques in your coronary arteries (on CT scans)?
58 yo male at diagnosis: T1bN0M0, 0/15 nodes, low grade/moderately differentiated adenocarcinoma
03/2016 colonoscopy #1: 2 small polyps removed in left colon; CEA = 1.3
04/2016 colonoscopy #2: caecum sessile 3.5 cm polyp piecemeal removed with kind of clear margins
05/2016 "prophylactic" laparoscopic right hemicolectomy - bleeding, leak, infection
06/2017 CT scan, colonoscopy OK; CEA = 1.6
A lot of funny stuff discovered by CT scans in liver, kidney, lungs, arteries, gallbladder and a lymph node

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CRguy
Posts: 9673
Joined: Sun Feb 10, 2008 6:00 pm

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Nov/2018

Postby CRguy » Sun Nov 18, 2018 1:25 pm

heredity dyslipidemia and family CVD risks
so Docs and I are just fine tuning / triaging the risk management metric
Cheers
CR
Caregiver x 3
Stage IV A rectal cancer/lung met
11 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

weisssoccermom
Posts: 5883
Joined: Thu May 10, 2007 2:32 pm
Location: Pacific NW

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Nov/2018

Postby weisssoccermom » Sun Nov 18, 2018 8:43 pm

Just saw this.....hope things continue to go in the right direction.
Keep us informed about that lung thang.
Sending you positive thoughts!!!
Dx 6/22/2006 IIA rectal cancer
6 wks rad/Xeloda -finished 9/06
1st attempt transanal excision 11/06
11/17/06 XELOX 1 cycle
5 months Xeloda only Dec '06 - April '07
10+ blood clots, 1 DVT 1/07
transanal excision 4/20/07 path-NO CANCER CELLS!
NED now and forever!
Perform random acts of kindness

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CRguy
Posts: 9673
Joined: Sun Feb 10, 2008 6:00 pm

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Nov/2018

Postby CRguy » Sun Nov 18, 2018 9:17 pm

thanks Jaynee
moving ahead one step at a time .... cos' WE know the drill here !

focussed right now on GrandPuppy = severe lameness
setting up xrays / bloods etc. tomorrow and giving laser Tx today

if issues ... I will get HIM in for a CT as well !!!!!
Hey we can be CT buddies :shock: :mrgreen:

local Vet Specialist Clinic owners are mostly my classmates and colleagues SO
.... they have a 64 slice CT for critters !!!
maybe I should bark a little louder and get in THERE !!!! :mrgreen:

We are ...
So Far => SO GOOD !!!

Cheers
CR
Caregiver x 3
Stage IV A rectal cancer/lung met
11 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

Utwo
Posts: 226
Joined: Mon May 23, 2016 10:14 am
Location: T.O.

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Nov/2018

Postby Utwo » Sun Nov 18, 2018 9:42 pm

CRguy, what is your planned ratio of X-Rays to CT scans?
How often do you have X-Rays and how often CT scans?
58 yo male at diagnosis: T1bN0M0, 0/15 nodes, low grade/moderately differentiated adenocarcinoma
03/2016 colonoscopy #1: 2 small polyps removed in left colon; CEA = 1.3
04/2016 colonoscopy #2: caecum sessile 3.5 cm polyp piecemeal removed with kind of clear margins
05/2016 "prophylactic" laparoscopic right hemicolectomy - bleeding, leak, infection
06/2017 CT scan, colonoscopy OK; CEA = 1.6
A lot of funny stuff discovered by CT scans in liver, kidney, lungs, arteries, gallbladder and a lymph node

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CRguy
Posts: 9673
Joined: Sun Feb 10, 2008 6:00 pm

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Nov/2018

Postby CRguy » Mon Nov 19, 2018 12:03 am

This far out I have just gone with annual survey xrays (C-A-P) and full abdominal u/sound,
then move to further imaging as required and C-scope every 3 years.

Bloods are every 3-6 months depending upon what we are looking at and looking FOR !

NO ratio of one versus other.

Those who know me here ... AND my docs know the drill :

" I would rather die from too much radiation ... THAN
a cancer met we missed because we DID NOT LOOK on regular imaging. "

I think they all get my "message" now.

Cheers
CRguy
Caregiver x 3
Stage IV A rectal cancer/lung met
11 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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GreenLakeGirl
Posts: 765
Joined: Mon Jan 18, 2010 5:55 am
Location: Pacific NW

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Nov/2018

Postby GreenLakeGirl » Tue Nov 20, 2018 1:08 am

High fives up the I-5 to ya, CRguy.
2009, age 37 with a 2yo: CC, IIIB (T4N1M0). IBD history
2010-11: FOLFOX, 12 rounds. 5 surgeries (3-step Ileal j-pouch, infection, VATS)
Currently NED.
Mom, you can go the hard way if you want, but the easy way is much easier. ~my 3yo

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CRguy
Posts: 9673
Joined: Sun Feb 10, 2008 6:00 pm

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Nov/2018

Postby CRguy » Tue Nov 20, 2018 4:37 pm

I-fives back atcha' sista !

Cheers
CR
Caregiver x 3
Stage IV A rectal cancer/lung met
11 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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CRguy
Posts: 9673
Joined: Sun Feb 10, 2008 6:00 pm

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Nov/2018

Postby CRguy » Tue Nov 20, 2018 8:48 pm

NOT that this is epic info ....

BUTT ....
dealing with Grand puppy bloods and scans right now = "emotionally" ... worse than dealing with my OWN stuff 'cos I AM A VET !!!! :shock: :twisted:
so far heading towards advanced imaging and consults (( a few of my classmates run THE specialist consulting Hosp around here = WORD !!! ))

we needs MORE info = always good
had some rads with +/- good interpretations
Bloods and urine = some minor ??? OK lets dig deepers !!

We have access to a 64 slice CT scanner FOR PETS !!!!!!
I luvs me my homie classmates !!!!

This dog IS my project as a Grandpuppy
been a Vet since 1981 and he IS the best dog I have ever met, seen, treated, been with ......
AND he is our homie

ALL STOPS being pulled
kicking ASS and taking names

oh yeah I have my own CT for a possible met on friday ... :shock: :shock:
whoopee shit ... woteva'
I will get back to y'all when I know the grandpuppy is A- OK !!!!

WORD !

THIS is what keeps me alive and GOING

Harmony friends

CR on the Journey
Caregiver x 3
Stage IV A rectal cancer/lung met
11 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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peanut_8
Posts: 2314
Joined: Sun May 25, 2014 1:31 pm
Location: Capital of Texas

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Nov/2018

Postby peanut_8 » Tue Nov 20, 2018 9:37 pm

Best Wishes to you and your Grand Pup, CRGuy.
peanut
Terri aka peanut
diagnosed Jan 14, RC stage 2a, age 56
permanent colostomy
MSS
April 14, 28 chemo/rad with Xeloda
June 14 adjuvant Xeloda 6 rounds
currently NED

weisssoccermom
Posts: 5883
Joined: Thu May 10, 2007 2:32 pm
Location: Pacific NW

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Nov/2018

Postby weisssoccermom » Tue Nov 20, 2018 10:28 pm

CR....you know me and my pups....nothing was or is out of bounds. Well, I say that and a few weeks ago, my 14 year old (last one) beagle was dxd with transitional cell carcinoma. Small lesion in her vaginal canal that was causing some minor spotting at night (she wears a diaper so as not to tinkle on the floor....amazing as soon as we put it on she doesn't wake up OR potty anywhere!!) was what caused us to seek an opinion. Our vet removed a small piece for a biopsy. Ultrasound didn't show anything else anywhere....he was worried about it spreading to her rectum and or her urethra. The lesion was relatively small....the size of a small pea and seemed to be more of a cyst but path came back as transitional cell. Anyway, episiotomy done two weeks ago to open up the area....vet couldn't find it. Three other vets were there as well....no one could find it?????? We opted out of the CT...simply because she's 14...doesn't appear to be in any distress. Still runs around....particularly for her Greenie. Stitches out....still teeny amount of spotting. Piroxicam started today. This pooch has already had a liver resection for a honking tumor.....April 2016.

Cancer in our pooches is HARD. Remember my beloved Lesley? Salivary Gland carcionoma....two surgeries. Benign (thank goodness) tumors on her spleen. I just HATE it when my furbabies have to suffer.

Glad to hear that your CT is scheduled and you'll hopefully get an ANSWER soon!

++++ thoughts and prayers for your grandpups. I totally understand.....give the pooch a big HUG from my pooch and me!

Jaynee
Dx 6/22/2006 IIA rectal cancer
6 wks rad/Xeloda -finished 9/06
1st attempt transanal excision 11/06
11/17/06 XELOX 1 cycle
5 months Xeloda only Dec '06 - April '07
10+ blood clots, 1 DVT 1/07
transanal excision 4/20/07 path-NO CANCER CELLS!
NED now and forever!
Perform random acts of kindness

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CRguy
Posts: 9673
Joined: Sun Feb 10, 2008 6:00 pm

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Nov/2018

Postby CRguy » Tue Nov 20, 2018 11:24 pm

Thanks homies !!!
They just emailed me his rads and bloods, so I am in doctor mode right now :mrgreen:

Oh and since he weighs 142 lbs. :shock:
BIG hugs are the only ones that work !!!

Cheers all
CR
Caregiver x 3
Stage IV A rectal cancer/lung met
11 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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CRguy
Posts: 9673
Joined: Sun Feb 10, 2008 6:00 pm

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Dec/2018

Postby CRguy » Sun Dec 02, 2018 1:35 am

OK so here's the thing ......

The dog appears to be doing well for a geriatric Bullmastiff !
Got a bunch of labs back, had a consult with the specialist ( great guy BTW !!! )
treating a urinary tract infection, few pain meds and .....
AND ... no real indications of bone tumours !
will follow up with rechecks / reculture and reassess in 2-3 weeks
=>>>> ALL good in grand puppy land !!!

NOW here is my sitrep .....
picked up the Disc and report of my CT scan.
No signs of mets or local / distal recurrences = I am good with that.
No changes in other areas of "note" = BUTT .... NOT concern

SO apparently for the time being ...
" Here I DON'T ... go again "

taking the wins where I get them
Cheers and Harmony homies

ALWAYS ....
ALWAYS ON THE JOURNEY with y'all

CRguy
Caregiver x 3
Stage IV A rectal cancer/lung met
11 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

weisssoccermom
Posts: 5883
Joined: Thu May 10, 2007 2:32 pm
Location: Pacific NW

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Dec/2018

Postby weisssoccermom » Sun Dec 02, 2018 2:24 am

Hey CR,
Glad to hear that all is well on BOTH fronts. Always good news when our CT scans come out clean. I take it the lung thingies were of no concern??
Also glad to hear that the pups is doing well.

I'd write more but I am tired. Lots of things to get done today...getting close to Christmas and all!

How is your weather up there? Any snow yet?

Seriously happy to hear that after all this time, NO mets/recurrences....nada is the RIGHT thing to hear!

I'm trying to schedule my 5 year scope....not looking forward to it and a little nervous about what it may/won't show. Physical coming up the end of this month....already stressed about my annual CEA.

You think that you get far enough out and no more worries = WRONG!

Happy for you that everything is good.
Take care,
Jaynee
Dx 6/22/2006 IIA rectal cancer
6 wks rad/Xeloda -finished 9/06
1st attempt transanal excision 11/06
11/17/06 XELOX 1 cycle
5 months Xeloda only Dec '06 - April '07
10+ blood clots, 1 DVT 1/07
transanal excision 4/20/07 path-NO CANCER CELLS!
NED now and forever!
Perform random acts of kindness

Punky44
Posts: 121
Joined: Mon Oct 01, 2018 4:29 pm

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Dec/2018

Postby Punky44 » Sun Dec 02, 2018 11:04 am

Great news! I’ve been thinking about you since your scan. Glad to hear all is well for you (and the puppy). :)
Caregiver to my amazing mom (68)
10/1/18 DX with rectal cancer; CEA 17
MRI/CT/PET puts staging at T3N2M0
Trying total neoadjuvant therapy—chemo first, then short course radiation, then surgery
11/5/18 started Folfox—3 down, 5 to go!

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.


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