Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Nov/2018

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AussieAssCancer
Posts: 248
Joined: Sat May 21, 2016 10:16 am

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Feb/2018

Postby AussieAssCancer » Thu Feb 15, 2018 4:50 am

10yrs... HUZZAH!!!

Great milestone CRguy!

Here’s to another 10!!!
Dx Oct '15 w/ Stage 3c RC
Nov '15 - Jan '16: 3x FOLFOX and 5wks Chemoradiation w/ Xeloda
March '16: ULAR w/ temp ileostomy
Complete pathological response incl 0/12 nodes
April '16: Clear CT (NED)
May - Aug '16: 9x FOLFOX (dropped Oxaliplatin for final Rd due to neuropathy)
Dec '16: Clear CT (NED)
Feb '17: Ileostomy reversed
Aug '17: Clear CT (NED)
Feb ‘18: Clear CT (NED)

Blog: kickingrectalcancerintheassblog
https://kickingrectalcancerintheassblog.wordpress.com/

henry123
Posts: 138
Joined: Sun Oct 08, 2017 3:25 am

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Feb/2018

Postby henry123 » Thu Feb 15, 2018 11:38 am

Congratulations CRGuy

Stay blessed. :D
46yo M
5/16 lap AR 14/21 L nodes +ve
T4N2M1
7/16 Capox 9 cyc
9/16 cea 2
1/17 550
PET CT mets in lung & peri
iri+ avast fail
3/17 10577
msi-h Lynch
4/17 regro fail
5/17 cea 28800
5/17 CT inc in size of mes nodes , new onset of multi nodules in liver.
6/17 Opdivo start
7/17 26754
8/17 5623
9/17 497
10/17 52
11/17 12
CT all clear exc a nodule in Lung. liver normal
1/18 3.6
2/18 2.3
4/18 2.0
opdivo continue
Aspirin start
6/18 1.5 CT clear
8/18 1.3
NED
Vegan yoga juicing apricot

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CRguy
Posts: 9638
Joined: Sun Feb 10, 2008 6:00 pm

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Feb/2018

Postby CRguy » Thu Feb 15, 2018 5:47 pm

Thank you both for the posi+++VIBES !

Taking the wins where I find them
and keeping all phalanges and appendages crossed for luck !

Cheers
CR
Caregiver x 3
Stage IV A rectal cancer/lung met
11 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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O Stoma Mia
Posts: 1450
Joined: Sat Jun 22, 2013 6:29 am

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Feb/2018

Postby O Stoma Mia » Fri Feb 16, 2018 4:21 am

In 2010, CRguy wrote:... The "toughest" people I know (I am a 2nd degree Black Belt and know at least a few !) are the most humble and gentle folks on the outside...

It's good to see that you have reached this important ColonTalk milestone. It must be hard being a Moderator, especially one that has to maintain the "In Memoriam" list.

I appreciate the fact that you can be both tough and gentle at the same time. Take care of yourself now and on the Journey ... we need people like you around here.

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CRguy
Posts: 9638
Joined: Sun Feb 10, 2008 6:00 pm

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Feb/2018

Postby CRguy » Fri Feb 16, 2018 12:18 pm

Thank you OSM
We need people like you, too ! ...always willing to dig into some facts and research to assist other members.

I have tried to balance the Yin and Yang over the years and still hopin' to get it right :mrgreen:

Cheers and Harmony
CRguy
Caregiver x 3
Stage IV A rectal cancer/lung met
11 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

justin case
Posts: 4214
Joined: Sun Sep 04, 2011 8:26 am
Location: Katy, Texas

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Feb/2018

Postby justin case » Fri Feb 16, 2018 3:52 pm

What's this about a 10 year survivor, I'm going on 6 bro, and that Social Security will kick in my homie. I wasn't so sure 6 years ago, and blessed be this forum, to help me get through the situation I was dealt.
Bro Nut
7/11 diagnosed Stage 2 colon and rectal cancer
chemo/rad
lar/temp ilio
Reversal & port removal
21 round of chemo Folfox 9tx, 5fu 12 tx
Last treatment July 2012

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CRguy
Posts: 9638
Joined: Sun Feb 10, 2008 6:00 pm

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Feb/2018

Postby CRguy » Fri Feb 16, 2018 4:17 pm

Amen Bro' Nut
let's just keep on tickin' as best we can

CR Nut !
Caregiver x 3
Stage IV A rectal cancer/lung met
11 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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bitchslapped
Posts: 1502
Joined: Tue Sep 09, 2014 3:23 pm
Location: PNW/USA

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Feb/2018

Postby bitchslapped » Fri Feb 16, 2018 4:37 pm

O Stoma Mia wrote:I appreciate the fact that you can be both tough and gentle at the same time.


Just enough piss & vinegar w/a tsp of sugar for good measure = CRguy STILL PAYING IT FORWARD after TEN years. I know so many of us appreciate/admire your dedication, accessibility, generosity & investment of your time through your contributions, support & maintenance of this website & its members.

In the last several months, I have had reason to visit other cancer forums & I can say unequivocally there is no match for this one in user friendliness, features (thanks Sergei), i.e. sticky threads, signatures, bookmarks, search functions, basic layout in ease of visibility page to page, you name it. Let's not forget our comic relief, off topic threads as therapeutic to the membership as a whole to those who choose to join in! Makes me realize just how spoiled we are here on this site. One can still come to the cancer forum & join in topics other than cancer if needed. We've got it covered on all fronts here on The Colon Club! :D

Thank YOU CRguy.

Most Sincerely,
BS aka Ethel

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CRguy
Posts: 9638
Joined: Sun Feb 10, 2008 6:00 pm

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Feb/2018

Postby CRguy » Fri Feb 16, 2018 10:18 pm

Thanks homie
ya' knows I luvs ya' :D

My take on US here is :

IT IS ALL OF US.... HERE, collectively which make this forum great, as I have said many times.
The Mod/Admin side just keep this place running and give US a place to keep it great.
We have great webhosts, a great Board of Directors and many "activist" members who take it to the streets
par excellance

AND .... there is also another Mod who keeps things moving forward with great positivity and dedication :
Jaynee = weisssoccermom
She has been here longer than I have and spends a whole lotta time keeping us going

CHEERS to Jaynee and many thanks.
We both miss Eric ( the third Mod ) BUTT Jaynee has never missed a beat in spending hours on forum to do more than her fair share.
She also pays it WAY forward and is a trooper in the CClubber ranks !!!!!

So yes, BS
THIS forum really does have it covered.

WORD

Love Peace and Harmony
Always on the Journey
CRguy
Caregiver x 3
Stage IV A rectal cancer/lung met
11 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

weisssoccermom
Posts: 5878
Joined: Thu May 10, 2007 2:32 pm
Location: Pacific NW

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Feb/2018

Postby weisssoccermom » Fri Feb 16, 2018 11:55 pm

Ohhhh, that was nice. Having a REALLY bad day today...and that was just something nice and positive+++

THANK YOU CrGuy....much appreciated and very touching.

Yep, this forum has a very special place in my heart. Coming up on 12 years since diagnosis....over 10 on this forum.. Mods have come and gone and yes, like CrGuy, I miss Eric. I like these days lately when the drama is non-existent and the biggest worry seem to be those pesky spammers! Hugs to you all

weisssoccermom
Dx 6/22/2006 IIA rectal cancer
6 wks rad/Xeloda -finished 9/06
1st attempt transanal excision 11/06
11/17/06 XELOX 1 cycle
5 months Xeloda only Dec '06 - April '07
10+ blood clots, 1 DVT 1/07
transanal excision 4/20/07 path-NO CANCER CELLS!
NED now and forever!
Perform random acts of kindness

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CRguy
Posts: 9638
Joined: Sun Feb 10, 2008 6:00 pm

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Feb/2018

Postby CRguy » Sat Feb 17, 2018 2:05 am

Hope you're having a better day !!!

Cheers Jaynee
CR
Caregiver x 3
Stage IV A rectal cancer/lung met
11 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

justin case
Posts: 4214
Joined: Sun Sep 04, 2011 8:26 am
Location: Katy, Texas

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Feb/2018

Postby justin case » Sat Feb 17, 2018 5:17 pm

CRguy wrote:Hope you're having a better day !!!

Cheers Jaynee
CR

What, am I supposed to know Jaynee, the one who greeted me seven years ago, and told me to call her at home, if I needed more advice ???? I will never forget that moment, and it is placed well into my heart. I had only made 2 posts !
Cheers to both of you !
Michael
7/11 diagnosed Stage 2 colon and rectal cancer
chemo/rad
lar/temp ilio
Reversal & port removal
21 round of chemo Folfox 9tx, 5fu 12 tx
Last treatment July 2012

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GreenMonkey
Posts: 336
Joined: Wed Jun 12, 2013 5:43 am
Contact:

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Feb/2018

Postby GreenMonkey » Sat Feb 24, 2018 5:02 pm

WHAT A WILD RIDE! Glad you're here. You have been such a help to all of us!
RC - T3NXMX depth of invasion 3mm - diagnosed 5/26/13 age 53
High Dose, Internal Radiation at Johns Hopkins resulted in a PCR
LAR 9/10/13 - 0-26 nodes. CEA 1.9 post surgery
XELOX started 10/21/13(8 rounds)
11/14 NED
greenmonkeytales.blogspot.com

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chrissyrice
Posts: 1170
Joined: Thu Sep 23, 2010 8:44 am
Location: Atlanta, Georgia

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Feb/2018

Postby chrissyrice » Sat Feb 24, 2018 9:52 pm

I am just 2 years and a couple of surgeries behind you!
Love you CR Guy :D

Chrissy
DX 10-31-09 Surgery 12-1-09 Sigmoid Colon
Stage IIIb T3,N2,MX; Chemo Feb 2010-Aug 2010; 4 rounds Folfox; 8 rounds 5FU +LV
12/2010 PET/CT Scan, Cancer Free
7/2012 CT Scan NED 2 years
10/2013 NED 3 years
8/2014 NED 4 years
Recurrence 6/2015: iliac lymph node(s)
8/2015 Surgery: 3 cm tumor removed+iliac artery graft
3/2016 CT Scan Stable
6/2016 Stable
9/2016 Stable
12/2016 Stable
3/2017 Stable
Recurrence 6/2017
12/2017 Surgery removed all cancer w/ clean margins
07-27-2018 Cancer-free for 7 months

DarknessEmbraced
Posts: 3155
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Feb/2018

Postby DarknessEmbraced » Sun Feb 25, 2018 10:50 am

Congratulations! 10 years, wow!!!
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17


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