Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ December /2023

[bitchslapped]

'Bout time you donned that mask, Kemosabe
There is no Lone Ranger here!

Thx for sharing. I'll cop to being slightly curious myself.

Seriously, as if taking on the role as caregiver twice wasn't enough...

And that's No...
BS

[lpas]

Thanks for posting, CRguy. I've often wondered about the details of your history.

[Sleen]

Thanks for the CRGuy Review. 16 CT scans...that is a LOT of oral contrast.

Celine

[CRguy]

Only two with oral .... rest IV
BUTT as I've said ... lotsa folks here have been through a lot more.

Cheers All
CR

[O Stoma Mia]

CRguy -

Thanks for putting together all the info about your journey and for providing a link to it in your signature. It's very helpful for us to see how a CRC journey unfolds over time.

[CRguy]

ⓊⓟⒹⒶⓉⒺ

"Just when you thought it was safe to go back in the water..." - Jaws

"It's like my father always said to me, he said to me, he said, Roseanna Roseanadana, it's always something
If it isn't one thing--it's another! It's always something." - Gilda Radner

"Dear Whatever Doesn't Kill Me :
I'm strong enough now. Thanks." - somεεcards

SO here we go again, back in the saddle, and had to throw a few good quotes in here for the segue.

16 th CT June 5 --->>> report, disc and Onc appt today :
" There is something we are not concerned about .... BUTT .... Yada ..... Yadda ...... YaDDDa .....
Radiologist says we could rescan in about 6 months. "

polite conversation ensues and the freshfaced newbie resident is summarily dispatched and told to send in the real ONC
( for those who have not followed me the past 8 years .... I like challenging and stressing out new residents. I throw in a few recent ASCO referenced questions, comment on what they might do at MSK or Dana Farber and ask how this impacts what was done / happened with me in 2009 ?????? which usually SENDS them scurrying out anyway 'cos while they MAY have read my entire file at some point ... I doubt that they "know" what's in it for the purposes of my visit today )

Yes, I can be a bit of an asshole .... BUTT if you are sitting across from me with your doctor hat on you better be prepared to bring your best game.... 'cos this is my LIFE and it AIN'T no EFFIN' game. -->>> never saw resident again !

Real Dr.ONC walks in after suitable "debrief" with Dr. FreshFace ..... actually liked her immediately ... NOT a usual response for me !

We chatted, she re-iterated the essential take home from the FreshFaced review and I stopped her and said :
"NO I am not waiting 6 months for anything at this point."
I reviewed my history with her, questioned further details from the imaging report, and told her what we were going to do.
( did I mention I can be a real asshole sometimes ? .... again MY LIFE .... MY CHOICE ... newbies take note ! )

She laid out 3 possible plans, I chose one, tweaked it as to timelines, and we moved ahead and got along quite well.

SO : my choice is for U/Sound in a few weeks, reassess and move to CT/PET as warranted by 3 months, then back to 6 month CT monitoring if it is nothing.
IF I gots me a liver thingie something ... then I have a whole different plan.

Once again " It's always something, Roseanna. " and hurry up, wait and see.... still TBA it seems

...and that, as they say is today's news !

Cheers all
CR on another "something" Journey

[Sleen]

I had a liver u/s the month after I was dx. No needles, and no oral contrast either. My kind of test.
I hope yours shows nothing to be concerned about!

Very wise to not wait six months--who has got that kind of time?!

Celine

[justin case]

I like your style. I got transferred to an underling, the appointment before last butt briefly saw my onc. My last appointment I was told I was the underling's patient and never saw the onc. After I got the normal meds I get, basically my bp medicine, I waited a couple of days, and fired the facility.
I figure, if I have to go somewhere else to see a real onc, I might as well go to the best facility available. With insurance, it all cost's the same

[andy21]

CRguy,

I like your hands on approach.

Doctors have been trained to treat a median/mean patient but only the lucky 10-20% fit into that category.

For rest 90% all, each body is unique and may need a custom solution which doctor usually does not have time to provide or think.
So one has to be one's own advocate as you rightly did.

[lpas]

Yes--good for you for taking charge! Here's hoping that, "something they're not concerned about" is confirmed to be nothing.

[ams5796]

It sounds like you have a good plan in place. I'm sending out lots of good thoughts to you. It really seems like the worrying never ends.



Ann

[chrissyrice]

CRguy,
I am gearing up for the "next journey" and your newest post has given me "the balls" to fight for my life if what I am facing is some new thingie in the lymph nodes and distal ileum.



Chrissy

[horizon]

Note to self: never mess with CRguy!

[bitchslapped]

In other words, you turned on your natural charm. Look, they're not going to be thinking about you over the weekend, but you will...on second thought, maybe they will.

Your message is clear: Gotta look out for Number One. It could be this, it could be that. What it is...is that all too familiar game of:



Regardless, if you've got to be back in the game, all I can say is: Well Done, my Dear Watson.

Best Wishes
bs

[MamaN]

CR
Thanks for sharing your journey. I would love to tell my story but it would be so long to put it all down . Was a long crazy journey.