Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Feb/2018

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peanut_8
Posts: 2219
Joined: Sun May 25, 2014 1:31 pm
Location: Capital of Texas

Re: Review of my Journey so far -> NEW Update

Postby peanut_8 » Wed Jan 20, 2016 7:54 pm

skeptical baby is skeptical

Image
Terri aka peanut
diagnosed Jan 14, RC stage 2a, age 56
permanent colostomy
MSS
April 14, 28 chemo/rad with Xeloda
June 14 adjuvant Xeloda 6 rounds
currently NED

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Nik Colon
Posts: 5210
Joined: Thu Jan 08, 2015 3:35 pm
Location: MN

Re: Review of my Journey so far -> NEW Update

Postby Nik Colon » Sat Jan 23, 2016 2:49 am

CRguy wrote:my story and I am sticking to it ....

https://youtu.be/BewKY_BpVXg

COLLIN RAYE LYRICS

"That's My Story"

I came in as the sun came up.
She glared at me over her coffee cup.
She said, "Where you been?"
So I thoguht real hard and said,
"I fell asleep in that hammock in the yard."
She said, "You don't know it boy, but you just blew it."
And I said, "Well that's my story and I'm sticking to it.

That's my story.
Oh, that's my story.
Well, I ain't got a witness, and I can't prove it,
but that's my story and I'm stickin' to it."

I got that deer-in-the-headlight look.
She read my face like the cover of a book and said,
"Don't expect me to believe all that static,
'cause just last week I threw that hammock in the attic."
My skin got so thin so you could see right through it,
and I stuttered, "Well that's my story and I'm stickin t-t-to it.

That's my story.
Well, that's my story.
I ain't got a witness, and I can't prove it,
but that's my story and I'm stickin' to it."

You know the time comes when a wise man knows
the best thing that he can do is just look her in the eye
and beg for mercy and face the bitter truth...

Well honey me and the boys played cards all night.
There wasn't no hanky-panky, not a woman in sight.
I know I should called, and baby I.. I'm really sorry,
but get a cellular phone and then you won't have to worry.
You know how much I love ya, darling, and I'm ready to prove it.
And that's my story and I'm sticking to it.

That's my story,
oh, that's my story.
Well I ain't got a witness and ya know I can't prove it.
But that's my story and I'm stickin' to it.

You know I ain't gonna do a thing darling unless you approve it.
And that's my story and I'm sticking to it.
KRAS-mut G12V,MSS
Stage IVa Sig CC 2 lvr mets 1/12 Ln
(3, =<3 lng spots at dx til 5/16)
=T3N1aM1a 4cmX4mm (lng not included)
dx 12/2014 at age 39
CEA 1/15-4.9, 12/16-4.9 again
neoadj FOLFOX 1/15-3/15 (4tx, 3w/1wo oxi)
Col/Lvr surg 4/23/15 NED
adj FOLFIRI start 6/15-9/15 (8tx, 5w/3wo iri)
1 sml lvr spot/cyst
12/6/16 multi lung spots/mets?
No longer NED :(
My tx ongoing-start 1/20/15
Adding your SIGNATURE, etc

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CRguy
Posts: 9486
Joined: Sun Feb 10, 2008 6:00 pm

ⓊⓟⒹⒶⓉⒺ June 13/2016

Postby CRguy » Mon Jun 13, 2016 6:06 pm

ⓊⓟⒹⒶⓉⒺⒹ
Image

can you update an existing update ???? isn't it just another update :roll:

SO.... it appears my Onc has finally been satisfied with his "curative intent" treatment of my lung met with pseudoadjuvant chemo following met resection !
AND is happy I am no longer bugging him for more CT radiation :twisted:
Ya see that was my plan all along ... get enough CT radiation SO if there were any more micromets lurking we'd nuke'em with the CT radiation :twisted:
(...just kidding BUTT actually coulda' been a plan ! )

He is now happy to release me back into the "general population"
THAT my friends is a good thing :mrgreen: 'cos he is a great Onco and will be there if I need referring back.

The less good thing is, now ... I have been summarily kicked to the curb :shock: and lose that safety net .......

Results :
CRC related things are all stable, no new disease, good bloods and CT, => 9 years out from initial CRC diagnosis / 6 years out from lung met treatment.

non CRC issues still on the watch list : thoracic benign bronchial cyst, hepatic fatty infiltration, degenerative scarring/arthritis lower spine....
and the usual old age related shit like cholesterol levels, FBS tests, rehabbing knee surgery, tinnitus, chemo induced neuropathy :twisted:

Am I happy ? generally Yes

Should I be happier ? Yes

Am I gonna sweat it ? No

Still gonna take one step at a time, one foot in front of the other and keep on, keepin' ON
.....On the Journey

Cheers all
CRguy
Caregiver x 3
Stage IV A rectal cancer/lung met
11 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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ANDRETEXAS
Posts: 573
Joined: Fri Feb 14, 2014 11:01 am
Location: Austin, Texas

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ June 13/2016

Postby ANDRETEXAS » Mon Jun 13, 2016 6:31 pm

Congratulations CRguy !!! Great news !!!
2014
2/10 - Colon resect
2/13 - DX- Stg IIIb
3/7 - Port placed
3/11 - FOLFOX (12 rds w/full oxi)
8/14 - Chemo finish
8/25 - CT- Inc
9/5 - clean PET
12/10- clean CT
2015
3/2 - Clean colonoscopy & port removed
3/4- clean CT
9/21- clean CT
2016
3/23- clean CT
2017
2/22- clean CT
2018
3/21 - clean CT
4/11 - clean colonoscopy

ONE DAY AT A TIME !

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juliej
Posts: 2814
Joined: Thu Aug 05, 2010 12:59 pm

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ June 13/2016

Postby juliej » Mon Jun 13, 2016 6:40 pm

Halle-frickin'-lujah, CRguy! :D :D :D

Time to turn up the Alice Cooper on your ipod and sing some slightly modified lyrics!

BECAUSE YOU MADE CANCER YOUR BITCH!

Scan's out for summer!
Scan's out forever!
Scan's been blown to pieces...

No more needles
No more contrast
No more oncologist's dirty looks

Scan's out for summer!
Scan's out forever!
Scan's been blown to pieces...
Stage IV, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/11
LAR, liver resec, HAI pump 11/11
Double lung surgery + ileo reversal 2/12
Adjuvant Xeloda 3-9/12
VATS rt. lung 12/21/12 - benign granuloma!
NED 3/17/12 to 3/19/2018, CEA<1

ams5796
Posts: 2275
Joined: Fri Feb 06, 2009 10:07 am

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ June 13/2016

Postby ams5796 » Mon Jun 13, 2016 6:56 pm

That's great news! You're my CR idol, CRGuy!


Congrats!

Ann
Stage 3C (or 4?) Rectal Cancer 01/07
2/10 lung mets
3/11 VATS
6/11 VATS
7/13 lung met
2/14 SBRT
NED 8/14
5/17 scan and MRI found treated spine met

Lee
Posts: 5522
Joined: Sun Apr 16, 2006 4:09 pm

Re: ⓊⓟⒹⒶⓉⒺ June 13/2016

Postby Lee » Mon Jun 13, 2016 7:07 pm

CRguy wrote:ⓊⓟⒹⒶⓉⒺⒹ
Image


non CRC issues still on the watch list : thoracic benign bronchial cyst, hepatic fatty infiltration, degenerative scarring/arthritis lower spine....
and the usual old age related shit like cholesterol levels, FBS tests, rehabbing knee surgery, tinnitus, chemo induced neuropathy :twisted:


Cheers all
CRguy


Preddy colors in your updata :D .

Happy dance, happy dance for your most recent news. Always nice to be released, butt scary too.

I can so relate to your list of I'm getting old issues.

Congratulations :D

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

Joannerogers
Posts: 259
Joined: Tue Jun 16, 2015 4:50 pm

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ June 13/2016

Postby Joannerogers » Mon Jun 13, 2016 7:17 pm

Wow fabulous news! Congratulations!!!
53yo married 27 years, 2 children, 24 and 25
Diagnosed april 23,2015 rectosigmoid
Starting CEA 1845
Port placement and liver bx April 27
Folfox started april 29
Avastin added on May 6
Stage IV crc with mets to 50% of liver

10/13/15 dc'd transfusion #12...toxic
Pet/ct scan on 11/3/15
20% liver resected all margins clear 11/30/15
8/18/15 cea 21.
9/15/15 cea 13.9
10/13/15 cea 14.4
1/22/2016 cea 2.5
LAR 02/15/16 all clear

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Nik Colon
Posts: 5210
Joined: Thu Jan 08, 2015 3:35 pm
Location: MN

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ June 13/2016

Postby Nik Colon » Mon Jun 13, 2016 9:23 pm

Congrats! :mrgreen: 8)
KRAS-mut G12V,MSS
Stage IVa Sig CC 2 lvr mets 1/12 Ln
(3, =<3 lng spots at dx til 5/16)
=T3N1aM1a 4cmX4mm (lng not included)
dx 12/2014 at age 39
CEA 1/15-4.9, 12/16-4.9 again
neoadj FOLFOX 1/15-3/15 (4tx, 3w/1wo oxi)
Col/Lvr surg 4/23/15 NED
adj FOLFIRI start 6/15-9/15 (8tx, 5w/3wo iri)
1 sml lvr spot/cyst
12/6/16 multi lung spots/mets?
No longer NED :(
My tx ongoing-start 1/20/15
Adding your SIGNATURE, etc

jhocno197
Posts: 817
Joined: Mon May 11, 2015 9:33 pm

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ June 13/2016

Postby jhocno197 » Mon Jun 13, 2016 9:27 pm

Woot woot!!!
DH - dx Dec 2014, stage IV with bladder & peritoneal involvement - non-resectable
Colostomy
FOLFOX failed
FOLFIRI failed
Tumor actually distending pelvic skin
Not a candidate for last-ditch pelvic exenteration
Stivarga finally begun 2/19/16
Tumor growing/fungating
Lonsurf started 11/18/16
Died 3/10/17

DarknessEmbraced
Posts: 2975
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ June 13/2016

Postby DarknessEmbraced » Mon Jun 13, 2016 10:23 pm

Congratulations!! :D
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17

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wrend
Posts: 27
Joined: Wed Dec 23, 2015 7:46 pm
Location: Los Angeles

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ June 13/2016

Postby wrend » Tue Jun 14, 2016 12:25 am

That's awesome news!
Wendy
Dx: RC 12/15/15, Age 57
Stage IIIB T3N1M0, 2 lymph nodes
G2: moderately differentiated
6 cm mass, 50% circumferential
7-13 cm from anal verge
Adenocarcinoma, MSS
CEA 5
Xeloda/IMRT 1/25/16 -2/26/26
uLar 5/11/16
pT3N0M0
0/13 lymph nodes
8 rounds Oxi/Fu5 6/16/16-9/21/16
CEA 1.2 10/15/16
Reversal 11/10/16

manders
Posts: 51
Joined: Sat Jul 13, 2013 7:32 pm
Location: Pacific Northwest

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ June 13/2016

Postby manders » Tue Jun 14, 2016 1:14 am

This is great news!
Mom to 1
Diagnosed at 34, 7/9/2013
Sigmoid colon resection 7/24/2013; Stage 3b; T3 N2a; 4/14 lymph nodes
Folfox 8/28/2013 - 2/7/2014

AussieAssCancer
Posts: 246
Joined: Sat May 21, 2016 10:16 am

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ June 13/2016

Postby AussieAssCancer » Tue Jun 14, 2016 2:00 am

Fu@&ing BOOM! Great news mate, very happy for you!
Dx Oct '15 w/ Stage 3c RC
Nov '15 - Jan '16: 3x FOLFOX and 5wks Chemoradiation w/ Xeloda
March '16: ULAR w/ temp ileostomy
Complete pathological response incl 0/12 nodes
April '16: Clear CT (NED)
May - Aug '16: 9x FOLFOX (dropped Oxaliplatin for final Rd due to neuropathy)
Dec '16: Clear CT (NED)
Feb '17: Ileostomy reversed
Aug '17: Clear CT (NED)
Feb ‘18: Clear CT (NED)

Blog: kickingrectalcancerintheassblog
https://kickingrectalcancerintheassblog.wordpress.com/

Pita
Posts: 637
Joined: Wed Feb 10, 2016 3:48 pm
Location: So Calif

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ June 13/2016

Postby Pita » Tue Jun 14, 2016 3:51 am

Congrats! Was interesting reading your journal.
70yo Fem DX: 1/21/2016 RC Stage IV-Nodules lungs
MSS-Kras Wild-Lynch Synd Neg-Lung Biopsy 1/27/16-Port 2/19/16
MRI 7/7/16 Endometrial polyp found, watching LAR 7/19/16, No Ileostomy, Stage ypT3 N1
CT 11/7/16: Most mets stable,1 shrunk,1 new??
CEA Tests: 1/21/16=20, 12/22/16=5.3, 1/20/17=4.8, 2/15/17=6.2
9/20/16-1/24/17 Folfuri & Avastin
#10/10 Done
PET/CT 2/10/16-1/31/17=Some shrunk & growth to 2, Avastin failing ??? :evil:
2/21/17 Folfuri & Avastin


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