Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ NOV/2017

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CRguy
Posts: 9323
Joined: Sun Feb 10, 2008 6:00 pm

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ June 13/2016

Postby CRguy » Tue Jun 14, 2016 10:02 am

Many thanks for all the shouts here ma' homies !!!

Yes … it has been "interesting" :shock:

Thinking back …. first started having issues in August of 2006 so I've been dealing with CRC for 10 years
and in active diagnosis, treatment or follow up for 9 years.

I'm sure I coulda' found a better way to spend a decade of my life :twisted:
BUTT then I would not have met all you great folks :mrgreen:

aside :
when I was picking up my disc of the latest CT, I ran into a high school friend and his wife.
He was there for X-ray 'cos he'd had chemo interrupted due to pneumonia …… lung cancer.
He was already 3 treatments into a clinical trial with immunotherapy + chemo. I told him all the great work that is now being done and how the BCCA is at the edge of some immunotherapies.

Thinking back, when I started, Xeloda was the latest and greatest = FU in a pill !!!!
NOW with all the research and advances we are hearing about from DK37 and others ….
The future is looking like HERE and NOW.
Can't wait to see what the future holds.

Cheers and Harmony to all on the Journey
CRguy
Caregiver x 3
Stage IV A rectal cancer/lung met
10 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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peanut_8
Posts: 2168
Joined: Sun May 25, 2014 1:31 pm
Location: Capital of Texas

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ June 13/2016

Postby peanut_8 » Tue Jun 14, 2016 10:37 am

I do not think that I've ever congratulated anyone for being kicked to the curb before. :shock:

Hooray!

Image
Terri aka peanut
diagnosed Jan 14, RC stage 2a, age 56
permanent colostomy
MSS
April 14, 28 chemo/rad with Xeloda
June 14 adjuvant Xeloda 6 rounds
currently NED

NedPlease
Posts: 525
Joined: Fri Mar 23, 2012 3:56 pm

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ June 13/2016

Postby NedPlease » Tue Jun 14, 2016 11:14 am

The best of updates! :D
F-54- St 4- Ascend Colon, 2 Liver mets, Poorly dif, Mutant
6/10- Folfox
9/10- R Liver Resect/Colon/Gall/Appendix
11/10-3/11- Folfox
11/11- R Lung, 1 met, VATS
3/12- 9/12- Xeloda
2/12- 7/17 Clear Scans
Today- NED

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bitchslapped
Posts: 1360
Joined: Tue Sep 09, 2014 3:23 pm
Location: PNW/USA

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ June 13/2016

Postby bitchslapped » Tue Jun 14, 2016 11:17 am

CRguy wrote:Thinking back, when I started, Xeloda was the latest and greatest = FU in a pill !!!!
NOW with all the research and advances we are hearing about from DK37 and others ….
The future is looking like HERE and NOW.
Can't wait to see what the future holds.


No kidding, CRguy...that sure puts things in perspective. In 2004 Avastin was the new tumor buster.
Getting your walking papers can be a little unsettling as docs & tests become a way of life. Kind of like being caged for years & all of a sudden the door opens, I would imagine.
My brother developed screeching tinnitis a couple of years ago, one ear, now in both. He replicated the sound on his computer for me & I could not believe how loud the sound. Enough to drive a person insane. Wrenched his neck lifting a TV out of the car, went to the chiropractor, came out w/tinnitis.

Congrats, Best Wishes
BS
DSS,35YO,unresect mCRC DX 7/'14,lvr,LN,peri,rib
FOLFOX+Avstn 4 Rnds d/c 10/'14
Stent 9/'14
FOLFIRI+Avstn 10/'14
Gone From My Sight 2/20/15
Me:garden variety polyps + precancerous polyp
Carergver x2 DH,DM dbl occupancy,'03-'10
DH dx 47YO mCRC,'04-'07 fried x HAI
DM dx CC 85YO,CC,CHF,stroke,dementia,aphasia

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chrissyrice
Posts: 1151
Joined: Thu Sep 23, 2010 8:44 am
Location: Atlanta, Georgia

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ June 13/2016

Postby chrissyrice » Tue Jun 14, 2016 2:58 pm

So awesome
:D :) :D :mrgreen: :D :P :) :) :)
Dx 10-31-09 Surgery 12-1-09 Sigmoid Colon Stage IIIb; Chemo Feb 2010-Aug 2010; 4 rounds Folfox; 8 rounds 5FU & Leucovorin;12-16-2010 PET/CT Scan Cancer Free;7-05-2012 CT Scan NED 2 years;10-13-2013 NED 3 yrs; 08-01-2014 NED 4 yrs; 06-30-2015 Stage 4 iliac lymph node(s) 08-11-2015 Surgery 3 cm tumor and iliac artery graft done. Positive margins in the abdominal aorta, No chemo. 03-16-2016 CT Scan Stable,06-16-2016 CT Scan Stable,09-21-2016 CT Scan Stable,12-2016 Stable,03-31-17 Stable,
Recurrence 6-30-17

nicola smith
Posts: 1039
Joined: Thu Oct 07, 2010 9:06 am

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ June 13/2016

Postby nicola smith » Tue Jun 14, 2016 3:39 pm

:D
UC history
11/09: Dx, CEA 2.9
02/10: colectomy, temp ileo; pT3N1Mx
10/10: 12 Folfox6
03/11: jpouch
2010/11/12/13/14: 6 PET and/or CT's - NED
quarterly 03/2010- 03/2015: CEA range 0.8-1.3
03/2015: discharged to GP :D

justin case
Posts: 4188
Joined: Sun Sep 04, 2011 8:26 am
Location: Katy, Texas

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ June 13/2016

Postby justin case » Tue Jun 14, 2016 6:18 pm

:roll: :roll: :roll: :roll: :roll: :roll: :shock:
:roll:
7/11 diagnosed Stage 2 colon and rectal cancer
chemo/rad
lar/temp ilio
Reversal & port removal
21 round of chemo Folfox 9tx, 5fu 12 tx
Last treatment July 2012

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CRguy
Posts: 9323
Joined: Sun Feb 10, 2008 6:00 pm

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ June 13/2016

Postby CRguy » Tue Jun 14, 2016 10:52 pm

OMG :shock:

I have been reduced to an emoji !!!!! :?: :?: :?:

BUTT I luvs me emojis :mrgreen: :mrgreen: :mrgreen:

Thank you my friends

luv y'all
CR

Cathilia
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Joined: Fri Sep 02, 2016 11:30 am
Facebook Username: Cathilia Flores

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ June 13/2016

Postby Cathilia » Fri Sep 02, 2016 12:13 pm

This somewhat gives me hope.
Just diagnosed with stage IV mCRC 3 months ago and was handling FOLFOX pretty well until now. Makes me worry that (since it only gets worse) I won't be able to handle it for long---and this is too soon to not be able to handle it. My onc says I'll need chemo for the rest of my life (every two weeks). Not sure how to handle this and live 9 more years like you. Don't know how you did it. But I'd like to know how.

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CRguy
Posts: 9323
Joined: Sun Feb 10, 2008 6:00 pm

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ June 13/2016

Postby CRguy » Fri Sep 02, 2016 2:08 pm

Cathilia wrote:Not sure how to handle this and live 9 more years like you. Don't know how you did it. But I'd like to know how.

First ...... welcome !
second ..... keep reading the great folks here, AND if you want the Iron Man version of chemo,
PLEASE pay attention to my bro' BrownBagger ( Eric )
Eric, 58
Dx: 3/09, Stage 4 RC
Recurrences: (ongoing, lung)
Major Ops: 5/ RFA: 3 /bronchoscopies: 2
Chemo Rounds (career): 123
Current Chemo Cocktail: Xeloda & Erbitux biweekly
Current Cocktail; Bombay Gin & tonic
Bicycle miles post-dx 10,477
Motto: Live your life like it's going to be a long one, because it just might, and then you'll be glad you did.


Wish I had a secret I could share :oops:
I think mostly good genes ... to help with the survival thing .. BUTT not so perfect I didn't get hit in the first place :twisted:

Keeping as positive and pro-active as I could.
Finding good docs but still being prepared to advocate for myself and push them when needed.
Great family and support network.
Being able to share, rant and just BE .... here on the forum with all the great folks and friends who KNOW wazzup.
Wanting to do my part to keep this whole CRC bullshit "in the news" and on the minds of folks who can help on the battle lines.
Not taking myself too seriously most of the time, but reloading with both barrels and letting loose when needed.
Being grateful for being able to still be here.
Not expecting I should really be any different than all my friends here and at home ...
SO I keep on keeping ON, living the adage : "Sometimes life is what it is ... BUTT may not always be what it seems"

sorry for the philosophy vent ... BUTT that is pretty much where I feel I am right now.

Best wishes on YOUR Journey
you have found a great place to be .. if you need to be here !

Harmony
CRguy
Caregiver x 3
Stage IV A rectal cancer/lung met
10 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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BrownBagger
Posts: 7954
Joined: Fri Jul 24, 2009 2:56 pm
Location: Central NYS

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ June 13/2016

Postby BrownBagger » Fri Sep 02, 2016 2:12 pm

The longer I manage to hang in there, the more optimistic I get. Generally.
Eric, 58
Dx: 3/09, Stage 4 RC
Recurrences: (ongoing, lung, bronchial cavity, ribs)
Major Ops: 6/ RFA: 3 /bronchoscopies: 8
Pelvic radiation: 5 wks. Bronchial radiation—brachytheray: 3 treatments
Chemo Rounds (career):136
Current Chemo Cocktail: Xeloda & Erbitux & Irinotecan biweekly
Current Cocktail; On the Wagon (mostly)
Bicycle miles post-dx 10,477
Motto: Live your life like it's going to be a long one, because it just might, and then you'll be glad you did.

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CRguy
Posts: 9323
Joined: Sun Feb 10, 2008 6:00 pm

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ June 13/2016

Postby CRguy » Fri Sep 02, 2016 2:19 pm

WORD bro'
....... hoisting a G+T in your honor !

WORD !!!!!!
Caregiver x 3
Stage IV A rectal cancer/lung met
10 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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BeansMama
Posts: 957
Joined: Thu Jan 28, 2016 1:38 am
Location: North Carolina

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ June 13/2016

Postby BeansMama » Sat Sep 03, 2016 7:15 pm

Congratulations!!
41 yrs old
Tumor found 9/2015
Surgery 1 - 11/2015 LAR and colostomy
Surgery 2 - 11/2015 wound vac
Surgery 3 - 12/2015 revise resection, move colostomy
Mets to liver - tumor inoperable - one add'l met destroyed
Stage IVa (T3 N2a M1a)
Primary tumor 9 cm x 7.5 cm x 2 cm
Beginning Folfox 1/2016 - Failed
Beginning Folfiri and vectibix 8/2016 — Failed
Beginning Folfirinox + Avastin 11/2016 - Failed
Beginning Keytruda 1/2017
CEA drop from 345 to 7.3 after starting immunotherapy
Lynch positive 3/2016

Ron50
Posts: 628
Joined: Fri Feb 10, 2006 7:04 pm

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ June 13/2016

Postby Ron50 » Sat Sep 03, 2016 7:56 pm

Congrats, keep hanging in , Ron.
dx 1/98
st 3 c 6 nodes
48 sessions 5Fu/levamisole
no recurrence cea <.5
numerous l/t side effects of chemo

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mypinkheaven
Posts: 432
Joined: Fri May 20, 2016 4:29 pm
Facebook Username: Sally Cunningham
Contact:

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ June 13/2016

Postby mypinkheaven » Sun Sep 04, 2016 3:31 pm

I missed this update in June. I'm very happy for you CRguy!!! Please don't leave the forum. OK? OK! 8)
MSS, KRAS Wild
9/2012 Colon Cancer IIB Lft Colectomy 0 lymph nodes 0 Chemo
10/2013 CT clear
11/15 CEA 2.7 to 4.6
11/15 Metastasis to uterus. Hysterectomy
2/16 Pelvic radiation - 25, brachytherapy - 3.
4/16 - 6/16 Xeloda
6/16 CT Several lung nodules less than 5 mm.
8/16 CT Nodules still present. Most stable. Some growth
10/16 CT Same ^. Onc recommends no tx :evil:
11/16 Transfer to UCSD Moores Cancer Center
12/16 Folfox + Avastin failed
2/17 Folfiri + Erbitux
8/17 5FU+Erbitux No 5FU bolus


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