Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Nov/2018

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CRguy
Posts: 9638
Joined: Sun Feb 10, 2008 6:00 pm

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Feb/2018

Postby CRguy » Sun Feb 25, 2018 11:28 pm

Backatcha' homies
thanks for YOUR good wishes and support !

Cheers :mrgreen:
CRguy
Caregiver x 3
Stage IV A rectal cancer/lung met
11 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

Joannerogers
Posts: 259
Joined: Tue Jun 16, 2015 4:50 pm

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Feb/2018

Postby Joannerogers » Thu Mar 01, 2018 8:45 pm

Thank you for sharing!
53yo married 27 years, 2 children, 24 and 25
Diagnosed april 23,2015 rectosigmoid
Starting CEA 1845
Port placement and liver bx April 27
Folfox started april 29
Avastin added on May 6
Stage IV crc with mets to 50% of liver

10/13/15 dc'd transfusion #12...toxic
Pet/ct scan on 11/3/15
20% liver resected all margins clear 11/30/15
8/18/15 cea 21.
9/15/15 cea 13.9
10/13/15 cea 14.4
1/22/2016 cea 2.5
LAR 02/15/16 all clear

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CRguy
Posts: 9638
Joined: Sun Feb 10, 2008 6:00 pm

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Sept/2018

Postby CRguy » Tue Sep 25, 2018 9:15 pm

Ok so just a preliminary teaser :shock:
All regular bloods and markers are good as of today

Doing follow up on an isolated incident SVT ( tachyardia issue )
planned CRC monitoring imaging (xrays and U/sound ) to be done before Christmas
CT later in 2019 along with my 3 year c-scope

Had a GREAT 45 minute appt with my GP this morning

Did I ever tell y'all ......... I LUVS ME MY GP !!!!!!!!!
Well I luvs me my GP

We set up another 2 year prospective follow up regimen with all the usual tests and a few new ones.
All is SOFA' SOGOOD in CR land :mrgreen:

The SVT thing does not bother me ... BUTT my doc NEEDS to know it is no concern, not just my non-concern
so she recommended a cardiologist consult just to be sure !

Did I ever tell y'all ......... I LUVS ME MY GP !!!!!!!!!

Will update asap when I have more info BUTT the top 2 referreral Docs she referred me to are
Managing Director and Clinical Director of our local Regional Trauma Go To Emerg Hosp who run their own clinical trials
and have patents on wireless implantable pacemakers and A-fib treatments !!!! :shock:

I don't need one of those BUTT damn straight I am happy to be getting their level of care
( a friend of mine is getting radio-ablation for A-fib thru the same guys and apparently they are THE guys to go to around here )

WORD !

Cheers y'all
more later
CR on the journey
Caregiver x 3
Stage IV A rectal cancer/lung met
11 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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CRguy
Posts: 9638
Joined: Sun Feb 10, 2008 6:00 pm

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Nov/2018

Postby CRguy » Thu Nov 08, 2018 12:04 am

Well as promised ... details to follow ... are following !

Here I go again = great song and a fave from Manny Cabo on the Voice a while back
BUTT also ..... Here I go again :shock: :twisted: :roll:

My homemade CRC follow up plan and newly minted cardio plan seem to be as follows :
Cardio : change statins, regular bloods, good stress test results, booked echo
but cardio honcho is not concerned about imminent issues and just wants to cover the bases and manage risk factors.
I am good with that

CRC imaging : abdominal U/sound all normal ( including liver )
survey xrays of abdomen and pelvis all no change with just a bit of arthritis

Chest xrays NOT CT just an xray :
" 5 mm nodular density, lower left lung field superimposed upon anterior 5th rib
which may represent summation artifact versus a true pulmonary nodule. In light of patient's history,
further assessment with CT of chest is suggested. "


SO .... Here I go again

as charter member and co-founder of the Lung Thang Gang here, I know the drill.
ALWAYS keep looking and if you find something GET ON IT ... NOW !

Scheduling CT as we speak
living life " scan to scan "

my resolve is STRONG

it's never weak
survival is my PLAN


depending on what we get when we get it ... I shall update this UPDATE ! :mrgreen:

Cheers and Harmony
ON the Journey

CRguy
Caregiver x 3
Stage IV A rectal cancer/lung met
11 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

stu
Posts: 875
Joined: Sat Aug 17, 2013 5:46 pm

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Nov/2018

Postby stu » Thu Nov 08, 2018 2:55 am

Thinking of you and know you will “Nip It In The Bud” if required but sincerely hoping you don’t have to . :wink:
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

zephyr
Posts: 136
Joined: Thu Aug 18, 2016 7:31 am

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Nov/2018

Postby zephyr » Thu Nov 08, 2018 3:11 am

Thanks for the update. Keeping you in my thoughts.
Nov-2009 Early stage CRC found during routine colonoscopy
2010, 2011, 2014 Follow up colonoscopies, all clear
Jun-2016 CRC found during routine follow up colonoscopy, surgery, Stage 4, KRAS, inoperable lung mets
Aug-2016-May-2018 Folfox, 5FU & Avastin, 5FU, Folfiri & Cyramza
Aug/Sep-2018 YAG laser surgeries (Germany) on both lungs, 11 nodules (9 mets) removed

Brearmstrong
Posts: 67
Joined: Sun Mar 26, 2017 3:24 pm
Location: CT

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Nov/2018

Postby Brearmstrong » Thu Nov 08, 2018 8:45 am

Here's to that 5mm being NOTHING!!! Keep us posted!
45 F Jan 17 Mom- two boys
tumor in appendix into colon
Muc Adeno 4cm
mod diff G2 T4aN2
nodes 8/50
CEA 4.6 after surgery < .05
KRAS G12D MSS
FOLFOX Apr-sep 17
Clean CT scan Jul 2017 watching lung nodule 4mm, clean CT oct 17, CEA 3.4, nov 17 CEA 8.1. May 18 2.3 Jul 18 1.0
Oct 2017 clean CT 4mm lung nodule stable,3 new 2 mm nodule.
Nov 17 PET para aortic nodes uptake. Stage IV
Folfori w/avastin Dec 17 CEA 7.1
May 18- surgery to remove nodes- 5 positive. xeloda 2000mg/day
Aug 18-CT NED!

Nohogirl
Posts: 73
Joined: Sun Oct 14, 2018 12:15 am

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Nov/2018

Postby Nohogirl » Thu Nov 08, 2018 10:09 am

What?? No CRguy!!. Please no. That can't be happening to you. I hope and i mean i pray, and i am sure thats just a scarring, volume or something non relevant and not an actual nodule.
You are one of the few long term survivors i got to know when I first entered this forum. You are a survivor model for me and your survivorship is a huge inspiration and encouragement for me and I am sure for many others.
Your story along with few other really long term survivors' stories are what is giving me hope that cancer is not necessarily a death sentence, as I used to think.

I am really praying that this lung thing is nothing serious and I can't wait to hear the good news soon.

Good Bless you.
04/18 DH 49 diag.stage 2A T3N0M0 rectal cancer moderately differentiated.
05/18 chemorad. (Xeloda) 28 days
08/18 Surgery- 24 cm including entire rectum out
Stage II T2N0M0 moderate to poorly diff. adenocarcinoma
0 of 15 lymph nodes
No PNI
No LVI
Clear margins
Regression Grade 3
10/29 Started Folfox

Punky44
Posts: 79
Joined: Mon Oct 01, 2018 4:29 pm

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Nov/2018

Postby Punky44 » Thu Nov 08, 2018 11:20 am

Praying it is nothing..when is your CT scheduled?
Caregiver to my amazing mom (68)
10/1/18 DX with rectal cancer; CEA 17
MRI/CT/PET puts staging at T3N2M0
Trying total neoadjuvant therapy—chemo first, then short course radiation, then surgery
11/5/18 started Folfox—1 down, 7 to go!

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juliej
Posts: 2870
Joined: Thu Aug 05, 2010 12:59 pm

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Nov/2018

Postby juliej » Thu Nov 08, 2018 7:09 pm

Hopefully, a closer examination via CT scan will show it to be just a "summation artifact" due to the angle of the x-ray and not a true nodule.

CRguy wrote:
my resolve is STRONG

it's never weak
survival is my PLAN[/i]

YES!!!!!! Survival is the plan!

I always tell people that I am fearless because I've been afraid. Afraid means rally the troops, get the immune system fired up, get my mind/body connection in perfect harmony. You are a bad-ass Zen cat balancing on the jagged edge of the world. I've got your back, always!

xo,
Juliej
Stage IV, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/11
LAR, liver resec, HAI pump 11/11
Double lung surgery + ileo reversal 2/12
Adjuvant Xeloda 3-9/12
VATS rt. lung 12/21/12 - benign granuloma!
NED 3/17/12 to 7/13/2018, CEA<1

User avatar
CRguy
Posts: 9638
Joined: Sun Feb 10, 2008 6:00 pm

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Nov/2018

Postby CRguy » Fri Nov 09, 2018 1:01 am

I've got your back, always!
Backatcha' sista'
HARMONY !

AND ... gratitude for all the other posi vibes folks, both here and via emails

seriously, I am not freaked about this
BTDT
got a great Doc and setting up a plan

we keep lookin'
'cos not what if

BUTT

only what IS
... matters


WORD !

CR on the Journey
Caregiver x 3
Stage IV A rectal cancer/lung met
11 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

User avatar
mobrouser
Posts: 95
Joined: Wed Apr 11, 2018 1:44 pm
Location: Ontario

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Nov/2018

Postby mobrouser » Fri Nov 09, 2018 11:44 am

As a kid I remember watching the TV show with David Carradine, I think it was called Kung Fu, then a few years later watching The Karate Kid.
It is so encouraging to see the teachings of mental strength, determination, and resolve play out in real life in this thread.
Thanks CRguy for the gentle lesson.

Cheers,
8) mob
CC Dx Oct 2017 @ age 58
Laparoscopic hemi-colectomy Dec 2017
Adenocarcinoma ascending colon – 6cm x 6cm x 2cm, Low Grade, penetrates to peritoneum
T4a N2a M0, Stage IIIC
lymph nodes 6 positive out of 18
FOLFOX started Jan 16 2018; finished Aug 2 2018 (felt like a year)
CEA - 01/15/18 - 2.8; 07/29/18 - 5.3
CT scan Aug 8 2018 - Clear
PET scan Sept 6 2018 (thought about bringing the cat :wink: ) - Clear

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bitchslapped
Posts: 1502
Joined: Tue Sep 09, 2014 3:23 pm
Location: PNW/USA

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Nov/2018

Postby bitchslapped » Fri Nov 09, 2018 12:36 pm

CRguy wrote: Scheduling CT as we speak
living life " scan to scan "

my resolve is STRONG

it's never weak
survival is my PLAN


And so it goes
Another prose...
Keep kickin the "CAN"
On down the road...

Best Wishes Bro
BS
DSS,35YO,unresect mCRC DX 7/'14,lvr,LN,peri,rib
FOLFOX+Avstn 4 Rnds d/c 10/'14
Stent 9/'14
FOLFIRI+Avstn 10/'14
Gone From My Sight 2/20/15
Me:garden variety polyps + precancerous polyp, diverticulitis
Carergver x2 DH,DM dbl occupancy,'03-'10
DH dx 47YO mCRC,'04-'07 fried x HAI
DM dx CC 85YO,CC,CHF,stroke,dementia,aphasia


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