Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Sept/2018

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CRguy
Posts: 9613
Joined: Sun Feb 10, 2008 6:00 pm

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Feb/2018

Postby CRguy » Sun Feb 25, 2018 11:28 pm

Backatcha' homies
thanks for YOUR good wishes and support !

Cheers :mrgreen:
CRguy
Caregiver x 3
Stage IV A rectal cancer/lung met
11 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

Joannerogers
Posts: 259
Joined: Tue Jun 16, 2015 4:50 pm

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Feb/2018

Postby Joannerogers » Thu Mar 01, 2018 8:45 pm

Thank you for sharing!
53yo married 27 years, 2 children, 24 and 25
Diagnosed april 23,2015 rectosigmoid
Starting CEA 1845
Port placement and liver bx April 27
Folfox started april 29
Avastin added on May 6
Stage IV crc with mets to 50% of liver

10/13/15 dc'd transfusion #12...toxic
Pet/ct scan on 11/3/15
20% liver resected all margins clear 11/30/15
8/18/15 cea 21.
9/15/15 cea 13.9
10/13/15 cea 14.4
1/22/2016 cea 2.5
LAR 02/15/16 all clear

User avatar
CRguy
Posts: 9613
Joined: Sun Feb 10, 2008 6:00 pm

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Sept/2018

Postby CRguy » Tue Sep 25, 2018 9:15 pm

Ok so just a preliminary teaser :shock:
All regular bloods and markers are good as of today

Doing follow up on an isolated incident SVT ( tachyardia issue )
planned CRC monitoring imaging (xrays and U/sound ) to be done before Christmas
CT later in 2019 along with my 3 year c-scope

Had a GREAT 45 minute appt with my GP this morning

Did I ever tell y'all ......... I LUVS ME MY GP !!!!!!!!!
Well I luvs me my GP

We set up another 2 year prospective follow up regimen with all the usual tests and a few new ones.
All is SOFA' SOGOOD in CR land :mrgreen:

The SVT thing does not bother me ... BUTT my doc NEEDS to know it is no concern, not just my non-concern
so she recommended a cardiologist consult just to be sure !

Did I ever tell y'all ......... I LUVS ME MY GP !!!!!!!!!

Will update asap when I have more info BUTT the top 2 referreral Docs she referred me to are
Managing Director and Clinical Director of our local Regional Trauma Go To Emerg Hosp who run their own clinical trials
and have patents on wireless implantable pacemakers and A-fib treatments !!!! :shock:

I don't need one of those BUTT damn straight I am happy to be getting their level of care
( a friend of mine is getting radio-ablation for A-fib thru the same guys and apparently they are THE guys to go to around here )

WORD !

Cheers y'all
more later
CR on the journey
Caregiver x 3
Stage IV A rectal cancer/lung met
11 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far


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