The Daily Enema

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Jachut
Posts: 1130
Joined: Mon Sep 26, 2011 11:16 pm
Facebook Username: hutchinson@aanet.com.au

Re: The Daily Enema

Postby Jachut » Wed Jan 18, 2012 2:42 am

Oh, groan. I know. Most of my fear is that they wont be able to accomodate my desire for a single room and someone else is going to have to share my nightly toilet routine - im at a new school, with people i dont know. I wonder, is it safe to tke enogh immodium that ypu just dobt shit at all for four days?

frances
Posts: 341
Joined: Wed Jun 22, 2011 5:54 am

Re: The Daily Enema

Postby frances » Wed Jan 18, 2012 2:56 am

Is the camp really remote or like could you request to stay in a nearby motel? I know yr duty as teacher is to be on site but maybe you could say you had recent surgery and need this. I can't see how you can pull this off to be honest w share or campsite or tents etc. The immodium is NOT a solution!

Delphi
Posts: 12
Joined: Wed Aug 17, 2011 6:56 am

Re: The Daily Enema

Postby Delphi » Wed Jan 18, 2012 3:29 am

I have been doing a daily enema/colonics in the last 3 months. I use tap water and fill an inverted mineral water bottle (1.5ltrs) with base cut off and carry it out in the bathroom seated on the toilet seat. I top up the water when it runs out and continue until my body tells me it is clear. I had my initial reservations about electrolyte imbalances and lazy colons but I was tearing my hair out 18 months post takedown and thought I should give it a try before surgery for a colostomy. In the last 3 months it seemed to be working. I seldom need to do it more than once in a 24 hour interval. I am not sure if 3 months is sufficient to recommend this to anyone else but it has accorded me with a semblance of normality for which I am grateful.
Dx rectal cancer August 2008 (Stage I)
Surgery in August 2008
Recurred April 2009 (Stage IV)?
8 sessions Xeloda and Avastin
Temp ileo
Radiation 25 fractions
Surgery in June 2009 did not find malignancy so staging is questionable
Bowel issues post reversal

sudeha
Posts: 32
Joined: Tue Apr 05, 2011 4:52 am

Re: The Daily Enema

Postby sudeha » Wed Jan 18, 2012 12:28 pm

Hi Delphi

can you please tell me where you buy this inverted mineral water bottle. i have not heard of this. only the usual red plastic oblong enema bag you get at a drug store. i would so appreciate this

thank you
rectal tumor 9/10
5 wks chemo/rad
12/10 lymp nodes, 2 ft lrg intest, rectum removed, temp illiostomy
2/11 illiostomy reversed ,scar tissue cut(wrapped around sm bowels & attached bladder)
sm bowel blockage
8 months-80-100 stools a day w/no sleep

Peloton

Re: The Daily Enema

Postby Peloton » Wed Jan 18, 2012 1:58 pm

CRP wrote: At the request of other members of this forum, I wrote a detailed description of the program in a pdf file and have shared it with many members. The response has been overwhelming positive and the program is making a difference in some lives. Drop me a private message with your email address and I will send you the program. Before you start the program you should discuss it with your doctor. Whatever you do, don’t get a colostomy before you give this program a serious try. I think it is better to have your bag hanging in the shower than on your side. Think about it.


CRP -

I am not registered user, but a frequent lurker. I am in remission for stage 3c rectal cancer and have no rectum. While I am doing "alright" for being six months post my ileo reversal, I am interested in the program. Daily enemas is an option my colorectal mentioned as well. He said he has other patients who have done very well mangaing their bowels with such a routine.

If you don't mind, I would really appreciate it if you send the pdf to cingrassia (at) court.state.il.us

Thanks.

sudeha
Posts: 32
Joined: Tue Apr 05, 2011 4:52 am

Re: The Daily Enema

Postby sudeha » Wed Jan 18, 2012 5:26 pm

If you get a reply about this enema procedure would you be willing to send me a copy of it? i can do the same for you. i really hope we get a response from someone!
Thanks so much

Sudeha
rectal tumor 9/10
5 wks chemo/rad
12/10 lymp nodes, 2 ft lrg intest, rectum removed, temp illiostomy
2/11 illiostomy reversed ,scar tissue cut(wrapped around sm bowels & attached bladder)
sm bowel blockage
8 months-80-100 stools a day w/no sleep

CRP
Posts: 25
Joined: Sun Jun 24, 2007 4:15 pm

Re: The Daily Enema

Postby CRP » Wed Jan 18, 2012 8:10 pm

The daily enema is a real option for those of us who have had an ultra low rectal anastomosis. The simple truth is that a properly functioning rectum is key to normal bowel functions. The rectum was the cancerous organ that you agreed to have removed. Everyone who is reading this site knows the functional problems.

The goal after any cancer experience is to get back to normal as soon as possible and try to forget the entire experience. This is one reason rectal cancer is extra cruel. You hope and your doctors say that the body will “heal” and it will get better. To a degree they are right. But after about the first 6 months “what you see is what you get”. It is now up to you to not let your bowels become the focus of your life forever. The daily enema is indeed a very real option.

You can get all of the information about the daily enema on http://www.lowrectalcancer.com I wrote this site about 4 years ago. It gets about 8000 visits per year.

If you can imagine and accept living the rest of your life with your current bowel function, you probably are not a good candidate for the daily enema. If you can enter into the daily enema experience with enthusiasm, excitement, acceptance and knowledge (see site) it could change your life forever. Good luck.

frances
Posts: 341
Joined: Wed Jun 22, 2011 5:54 am

Re: The Daily Enema

Postby frances » Wed Jan 18, 2012 8:37 pm

My post on this topic has been deleted. I guess that answered my question of was this a promotion. However I raised real medical issues to do with this and valid info on colonics. Maybe an explanation could be provided here on the forum. Lol :D

rickker20
Posts: 116
Joined: Sat Apr 17, 2010 1:55 pm
Location: Houston Texas

Re: The Daily Enema

Postby rickker20 » Wed Jan 18, 2012 9:31 pm

I was having so many prolems with clustering and pain because of so much cleaning. My surgeon told me do a water enema in the morning and it has change my life totally. I can go out all day with any problems at all. I sleep great. Every morning I get up and do my enema in the shower.
Rectal Cancer 6/09
Stage 1 T2
9 days of 5fu
2 days of Avastin
5 weeks of Radiation
Lar 9/09 failed
Pull thru surgery 10/09
Rectum Removel,38 lymph nodes remove all cancer free
6 weeks of 5fu & Folfox
Bag reversal 6/10 & Port remove
Cancer free

sudeha
Posts: 32
Joined: Tue Apr 05, 2011 4:52 am

Re: The Daily Enema

Postby sudeha » Thu Jan 19, 2012 1:43 am

rickker20 wrote:I was having so many prolems with clustering and pain because of so much cleaning. My surgeon told me do a water enema in the morning and it has change my life totally. I can go out all day with any problems at all. I sleep great. Every morning I get up and do my enema in the shower.


Hi Rick

wow this is really really amazing you have had such a change with doing the daily enema. I am literally at my wits end trying to deal with going most days up to 80 times a day. really this is true. i get absolutely no sleep as i am continually running to the bathroom. i need some serious change and help.

would you at all be willing to talk with me on the phone at all? I am trying to find if there is a way to post a private message to you so i could give you my email but am not seeing how. i would be so very very grateful to have a conversation with you if you are open to this.

Thanks so much
Julie
rectal tumor 9/10
5 wks chemo/rad
12/10 lymp nodes, 2 ft lrg intest, rectum removed, temp illiostomy
2/11 illiostomy reversed ,scar tissue cut(wrapped around sm bowels & attached bladder)
sm bowel blockage
8 months-80-100 stools a day w/no sleep

Von
Posts: 1
Joined: Thu May 31, 2012 10:37 am

Re: The Daily Enema

Postby Von » Thu May 31, 2012 11:47 am

After my colon & liver surgery, and started on my chemo treatments, my doctor advised me that I probably would experience (among other side effects) considerable bowl discomfort and diarrhea or constipation. So he had me pick up a bunch of medicine for both .... which I never ended up using.
The first few day following my first chemo infusion, I began cramps and burning sensations. My nurse told me on the QT that I might want to try a daily enema (colonic) to flush the harsh chemicals and to hydrate the colon. Having had some experience at doing this in my younger years as a competitive swimmer (done to free the body of that sluggish feeling before a race) I immediately began giving myself an enema every morning. As my nurse friend advised, I used a warm solution of brewed tea and coffee. Wow, what a natural aid that was to dealing with the chemo treatments. In 7 months of chemo, I only lost one day of work. Sure... I had a few other side effects like hand and foot tingling ... but my doctor was amazed at how mild the side effects were and especially that I did not experience bowl cramping, diarrhea or constipation.
I have now been almost a year cancer free and still continue with my colonics as it helps me to feel good, stay very healthy, energetic and seems to help me keep my weight under control. I would be happy to answer any questions any of you may have. Von

User avatar
John72
Posts: 337
Joined: Fri Jan 28, 2011 3:06 am
Location: Los Angeles

Re: The Daily Enema

Postby John72 » Thu May 31, 2012 12:26 pm

rickker20 wrote:I was having so many prolems with clustering and pain because of so much cleaning. My surgeon told me do a water enema in the morning and it has change my life totally. I can go out all day with any problems at all. I sleep great. Every morning I get up and do my enema in the shower.


Same thing with me. Reversal in June 2011.

Prior to this...I was not having incontinence problems...I could hold stuff in for even hours if I needed too. But there were be a constant feeling of urgency.

Every morning was 2-3 hours of clustering...nothing horrible, but just needed that long for everything to come out. Basically I would just poop a small poop every 10-15 minutes over a few hours. Obv could not even leave the house until I was done.

About a week and a half ago I started doing one fleet bottle of water. Just over the toilet. Now clearing out takes MAYBE 30 minutes(soemtimes less). Yeah, 30 minutes every day...but that really isn't much time at all. At least not compared to 2-3 hours a day like it was before. And if you think about it, even prior to diagnosis, you still have to go #2 every day, and it takes 5-15 minutes. So 30 minutes is just whatever. And I generally don't have to go the rest of the day. Its made a drastic difference.
7/13/10 CC
7/23/10 -3C RC, 7cm,15/33 lymph nodes
8/31/10 5 1/2 weeks of radiation + Xeloda
11/12/10 6 rounds Oxy + Xeloda
3/25/11 Finished chemo
6/15/11 Colostomy reversal followed by infections
9/05/14 Clear CT scan

sudeha
Posts: 32
Joined: Tue Apr 05, 2011 4:52 am

Re: The Daily Enema/Clustering

Postby sudeha » Thu May 31, 2012 1:30 pm

Hello
I too post illiostomy reversal surgery have had the most awful clustering. for me John i would go every 3-5 minutes for hours and hours and also had to be right next to a toilet. this was on top of taking lots of anti diarrhea meds too. a few months ago, i started to do enemas every day and it has TOTALLY changed my life big time!. i do more of a lavage as opposed to lying on my left side and retaining it and all. i also just sit on the toilet and do more of a wash out. i seem to have it worse than everyones else’s posting i have read on any chat line. so when ever i start a poop cycle now i go do an enema/lavage. so i often need to do 5-7 in a day. it takes me about 15-20 minutes. it is a lot of bowel maintenance but it sure beats going the usual
60-80 times in a day every few minutes. my big question that i have is why do we all have this clustering. what happened to our stools being able to form and just go once or twice a day? i have asked 4 different colorectal specialists and 4 different GI doctors and my physical therapist who works with pelvic floor dysfunction. and not one doctor or anyone has any answer for this. does anyone else happen to know? had anyone ever had clustering here and then it stopped one day. i am at one year 4 months now post illiostomy. I have tried bulking stuff like psyllium and eating the brat diet, rice, dry toast, bananas, and apple sauce. and i am also wondering if anyone here had to have their rectum removed and then regained control again.
so i want to encourage anyone who is going to the toilet many times a day to consider doing enemas. i have so much more security if i need to leave my house and i am finally sleeping more hours in the night! i am eternally grateful to this support forum and others because this is where i learned about this from. What an enormous journey it has been. Bless us all for our full recovery and healing!
rectal tumor 9/10
5 wks chemo/rad
12/10 lymp nodes, 2 ft lrg intest, rectum removed, temp illiostomy
2/11 illiostomy reversed ,scar tissue cut(wrapped around sm bowels & attached bladder)
sm bowel blockage
8 months-80-100 stools a day w/no sleep

Peloton

Re: The Daily Enema

Postby Peloton » Thu May 31, 2012 5:52 pm

John and sudeha -

I am so glad you guys are finding relief from bowel-management issues by using a daily enema. Things were manageable for me (had my entire rectum removed and radiation for stage 3c rectal cancer), but I had the typical unpredictable clustering issues. I would typically spend 2-3 hours a day dealing with my bowels. But a daily enema has worked wonders for me.

For example, I was on a trip a few weeks back and did enemas in a hotel room each morning. I felt great the entire time. Today, I attended a luncheon with a number of federal appeals court judges. I had the privilege of sitting next to a judge who was recently on the short list for the U.S. Supreme Court. I ate a healthy serving of pasta, bread, and coffee for dessert. The thought of having to get up and run to the bathroom didn't even cross my mind. It's simply remarkable compared to where I was two short months ago.

sudeha wrote:my big question that i have is why do we all have this clustering. what happened to our stools being able to form and just go once or twice a day? i have asked 4 different colorectal specialists and 4 different GI doctors and my physical therapist who works with pelvic floor dysfunction. and not one doctor or anyone has any answer for this. does anyone else happen to know? had anyone ever had clustering here and then it stopped one day.


I'm not an expert, but I my personal opinion is that rectums do not get the credit they deserve compared to other parts of the humans body. My surgeon told me that rectums (a) allow stool to form; and (2) allows a push function to get a complete evacuation. Take away ability for those two things to function, and things become difficult. While I know that many people have very good function without a rectum, I think that some level of clustering will always be present for most people once the rectum is removed.

I hope things continue to go well for the both of you.

sudeha
Posts: 32
Joined: Tue Apr 05, 2011 4:52 am

Re: The Daily Enema

Postby sudeha » Thu May 31, 2012 7:14 pm

Hi There

wow this is so great to hear your success as well! I want to be perfectly honest too that i do still have accidents and i have to do several enema’s in a day. but i have another whole layer of stuff going on. I had C-Diff over a year ago in the hospital and it has been very very difficult to get rid of. so i still have lots and lots of diarrhea. so i have yet to experience what it might feel like to have more formed stools without a rectum. in the few times i have more formed stools from taking lots of meds, i still have no control at all. i still have to run to the toilet all the time. Also as soon as i start eating, it kick starts me to start going again. But i still stand by the enemas and am beyond grateful to a woman i met here on this site that encouraged me to keep trying it when i thought it was not going to work for me. so you know who you are! THANK YOU!!!
rectal tumor 9/10
5 wks chemo/rad
12/10 lymp nodes, 2 ft lrg intest, rectum removed, temp illiostomy
2/11 illiostomy reversed ,scar tissue cut(wrapped around sm bowels & attached bladder)
sm bowel blockage
8 months-80-100 stools a day w/no sleep


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