John and sudeha -
I am so glad you guys are finding relief from bowel-management issues by using a daily enema. Things were manageable for me (had my entire rectum removed and radiation for stage 3c rectal cancer), but I had the typical unpredictable clustering issues. I would typically spend 2-3 hours a day dealing with my bowels. But a daily enema has worked wonders for me.
For example, I was on a trip a few weeks back and did enemas in a hotel room each morning. I felt great the entire time. Today, I attended a luncheon with a number of federal appeals court judges. I had the privilege of sitting next to a judge who was recently on the short list for the U.S. Supreme Court. I ate a healthy serving of pasta, bread, and coffee for dessert. The thought of having to get up and run to the bathroom didn't even cross my mind. It's simply remarkable compared to where I was two short months ago.
sudeha wrote:my big question that i have is why do we all have this clustering. what happened to our stools being able to form and just go once or twice a day? i have asked 4 different colorectal specialists and 4 different GI doctors and my physical therapist who works with pelvic floor dysfunction. and not one doctor or anyone has any answer for this. does anyone else happen to know? had anyone ever had clustering here and then it stopped one day.
I'm not an expert, but I my personal opinion is that rectums do not get the credit they deserve compared to other parts of the humans body. My surgeon told me that rectums (a) allow stool to form; and (2) allows a push function to get a complete evacuation. Take away ability for those two things to function, and things become difficult. While I know that many people have very good function without a rectum, I think that some level of clustering will always be present for most people once the rectum is removed.
I hope things continue to go well for the both of you.