Another CRC Risk Factor that Doesn't Apply to Me

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BrownBagger
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Location: Central NYS

Another CRC Risk Factor that Doesn't Apply to Me

Postby BrownBagger » Tue May 26, 2015 3:11 pm

http://www.bbc.com/news/health-32849977

Along with eating lots of red meat and leading a sedentary lifestyle.

Genetics, folks. That's my best guess.
Eric, 58
Dx: 3/09, Stage 4 RC
Recurrences: (ongoing, lung, bronchial cavity, ribs)
Major Ops: 6/ RFA: 3 /bronchoscopies: 8
Pelvic radiation: 5 wks. Bronchial radiation—brachytheray: 3 treatments
Chemo Rounds (career):136
Current Chemo Cocktail: Xeloda & Erbitux & Irinotecan biweekly
Current Cocktail; On the Wagon (mostly)
Bicycle miles post-dx 10,477
Motto: Live your life like it's going to be a long one, because it just might, and then you'll be glad you did.

trbiggins
Posts: 163
Joined: Mon Dec 09, 2013 7:20 pm
Facebook Username: Richard Biggins
Location: North Carolina

Re: Another CRC Risk Factor that Doesn't Apply to Me

Postby trbiggins » Tue May 26, 2015 4:56 pm

Really. I was 6'2 and 160 pounds when I graduated high school. All these risk factors make me laugh. There's no reason I should have colon cancer. I just do and I deal with it. I don't think there's anything I could have done to stop it except for maybe early screening. We were simply dealt a bad hand.

Richard
42 male at DX
Husband, father (girls 13 and 16)
Stage IV mets to liver Oct 2013
Xelox Dec 13-Apr 14
Avastin, Xeloda Apr-July 2014
Vectibix July
Vectibix/Irinotecan Dec 2014
Colon resect/ HAI pump Jan 2015
Folfiri/Vectibix/FUDR ongoing

PainInTheAss
Posts: 668
Joined: Tue Jul 02, 2013 3:08 am

Re: Another CRC Risk Factor that Doesn't Apply to Me

Postby PainInTheAss » Tue May 26, 2015 5:15 pm

I agree.

As for genetics, I must have mutant genes because my grandmother and grandfather both had 10 brothers and sisters. German farmers with lots of kids and unhealthy high fat diets. With literally hundreds of relatives (I have 21 first cousins alone), I only have one great aunt who had colon cancer in her 70s. No one under age 50. Just me. Non smoker. No red meat. High fiber diet. No drugs. Very little alcohol. Blah blah blah.

The only risk factor I can acknowledge is stress. Being a single mother of four kids and working a high stress job, yeah, I had way too much stress. I remember worrying about how this could affect my health when my stress was almost at a breaking point.

So, don't know. Just tired of people trying to find something to blame cancer on so we who have it look like we got what we deserved.

I was surprised to find out that the majority of people with primary lung cancer are non smokers. They must also feel a lot of resentment for the common belief that lung cancer is preventable as well.
47yo single mom of 4 (24, 21, 18, 16) at Dx
6/13 - RC T4b IIIc 5LNs on PET CEA 5.4
8/13 - Finish chemorad
10/13 - APR/hyst+ovaries/perm colostomy 2/12 nodes+
6/14 - Finish Xelox 6 rds
1/15 - CT clear CEA 0.2
10/15 - CT/MRI clear CEA 0.7
4/16 - CT clear
10/16 - CT/MRI clear CEA 0.6
5/17 - PET clear? Follow up MRI to verify inflammation

andy21
Posts: 376
Joined: Tue Jun 26, 2012 4:07 pm
Location: N California

Re: Another CRC Risk Factor that Doesn't Apply to Me

Postby andy21 » Tue May 26, 2015 5:18 pm

25 CRC Risk factors:

1-20 : Genes
21 onwards: Diet obesity etc.
Caregiver: To 67 Yr father
diag. Stage IV, 5/12, liver mets
6 cycles Xelox/Avastin, Start 06/12
Stage 1 of Two Stage Resection Surgery in Dec, 12. 2nd line fails.
T Cell Trial May-Jul, 2013
Becomes a Heavenly Angel in August, 2013

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juliej
Posts: 3114
Joined: Thu Aug 05, 2010 12:59 pm

Re: Another CRC Risk Factor that Doesn't Apply to Me

Postby juliej » Tue May 26, 2015 5:43 pm

I don't have any of the so-called risk factors either. No one in my family has ever even had cancer. :? Which is why when I went to the gastroenterologist he said, "Don't worry. I can promise you this isn't colon cancer. You don't have the symptoms." Too young, too healthy, too physically active -- and they don't look.
Stage IVb, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/2011
LAR, liver resec, HAI pump 11/2011
Adjuvant Irinotecan + FUDR
Double lung surgery + ileo reversal 2/2012
Adjuvant FUDR + Xeloda
VATS rt. lung 12/2012 - benign granuloma!
VATS left lung 11/2013
NED 11/22/13 to 12/18/2019, CEA<1

kiwiinoz
Posts: 1156
Joined: Thu Jan 03, 2013 11:44 pm

Re: Another CRC Risk Factor that Doesn't Apply to Me

Postby kiwiinoz » Tue May 26, 2015 5:59 pm

Eric

I think that these studies just look at the general population and not specifics. I didn't have any of the risk factors and I still got bowel cancer. I took a lot of online tests to ascertain if I had any of the risks for bowel cancer of I was diagnosed and I didn't so I don't think you can look at specifics.

Like Andy said, most of it just comes down to your genes and luck.

And talking of your Jeans, are they getting easier to fit into now that you are back on your bike?

I've been running heaps (I have done about 35 miles since Sunday running) and I really have to concentrate on eating enough to not lose weight. Mrs Kiwi did a 1/2 Marathon with me 2 weekends ago and has had a week off and is slowly getting back into running. She has been living the good life, eating LOTS and LOTS of chocholate, eating out, drinking a lot of wine, and after 2 weeks she has lost weight.....now that shows me that her genes are better than mine :roll: Just the luck of the draw huh?

Kiwi
Stage IV Rectal Cancer (39 Year old male at dx)
pT3N0M1 (wish that was M0)
Diagnosed 05 Dec 2012
LAR 05 Jan 2013
VATS 27 Feb 2013
FOLOFX April 2013 - Sep 2013
Clear Scan 03 Dec 2013 - 22 May 2019
Port Out 26 March 2015

jillbugs4110
Posts: 266
Joined: Thu Jul 31, 2014 3:36 pm

Re: Another CRC Risk Factor that Doesn't Apply to Me

Postby jillbugs4110 » Tue May 26, 2015 6:04 pm

It's bull I maintained healthy weight worked out no drinking smoking (cigs) healthy healthy still have now I have this fucking horrid disease.
Live One Day At A Time
I Abandon myself to God
46 6 yo.....9yo...
stage 1V liver mets :-(
my one prayer to got to sustain me to raise my two babies this is my only wish then take me out if needed.

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CRguy
Posts: 10285
Joined: Sun Feb 10, 2008 6:00 pm

Re: Another CRC Risk Factor that Doesn't Apply to Me

Postby CRguy » Tue May 26, 2015 9:09 pm

I was a little too tall
Could've used a few pounds -Bob Seger "Night Moves"

never sat still
no bad food habits
no booze
no drugs ….. then

If I believed every new "study" with all the things we SHOULD NOT do to avoid cancer,
then I would NOT be here 'cos I did none of them !

I am here in spite of them and myself …..
luck of the draw
genetics
… oooops !

well maybe red meat :shock: BUTT so did the rest of my "genetic" family and wait for it !!!!…
NONE of them are here are they ????

LIVE your life
live large
go BIG or go home

JMO
CR on the Journey
Caregiver x 4
Stage IV A rectal cancer/lung met
14 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

lpas
Posts: 1010
Joined: Wed Nov 19, 2014 11:11 pm

Re: Another CRC Risk Factor that Doesn't Apply to Me

Postby lpas » Tue May 26, 2015 9:29 pm

This is the kind of crap that drives me nuts. I know I shouldn't let it bother me, but it does.
11/14 Dx sigmoid CC @ 45yo
12/14 Colectomy + hysterectomy
Stage IIIB, T3N1bM0, 2/20 nodes, MSS, G2, KRAS(A146T), TP53, SMAD4, ERBB2, CEA 1.0
2/15-7/15 XELOX & celecoxib
2/19 clean scope
11/19 clean CT
Ongoing cimetidine & other targeted supplements
Mom to a 6 & 8yo

hummingbird3
Posts: 56
Joined: Sat Sep 14, 2013 5:11 pm

Re: Another CRC Risk Factor that Doesn't Apply to Me

Postby hummingbird3 » Tue May 26, 2015 10:34 pm

Genetics, environmental and how we as individuals deal with stress is what I believe. (I think there is a lot more to the second one than anyone knows right yet)
Diet .. umm not so much ..
exercise .. lol .. didn't work for me either ... still recurred. But, I did try it! Also cut out red meat. Never drank or drugs, cut out processed foods and watched sugar intake (didn't cut it out completely) .. so there is that! Exercise did make me feel better after chemo to gain strength back .. but cancer came back also.
9/11 dx CRC, colectomy/ileostomy, Stage IIIC :shock:
11/11 - 6/12 FOLFOX/nulasta
7/12 watching possible cyst on ovary ... 8/12 it grew
10/12 hysterectomy, oophorectomy, complications/blockage, TPN
Stage IVa
12/12 small bowel resection
3/13 -9/13 FOLFIRI/nulasta
NED
10/14 - 2/15 close monitoring
4/15 it grew
PET/biopsy .. local recurrence
8/15 surgery
NED ... No chemo!

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rwightman
Posts: 211
Joined: Sat Jan 17, 2015 6:50 pm
Location: Southwest

Re: Another CRC Risk Factor that Doesn't Apply to Me

Postby rwightman » Tue May 26, 2015 10:39 pm

Total bullshit. My grandma is still alive at 100, other grandparents lived into their 70's or late 80's and not one of them watched their diets. No cancer history anywhere, but interesting that after my diagnosis my brother and sister both went and got colonoscopies. Brother who is 44 had 3 polyps that doc said would have turned cancerous in the 4 - 5 years. Sister had a flat polyp that I guess always leads to cancer if not found, so I guess I saved two people from the dreaded diagnosis. I think it has to be something that has changed in our environment or food supply. How does a family with zero history get to my generation and have the potential to strike all three of us? Nothing else makes sense to me.
10/9/14 DX Age 50 - MSS
10/23/14 - Colon Resection - Stage II - 0/15 lympth nodes
12/30/14 - Stage IV - 1 liver met 2cc - Liver Resection - No lymph nodes and margins clear
3/10/15 - peri mets
3/15 - Folfox with Avastin - 7 tx
7/15 - HIPEC - 2 peri mets
10/14 - resection of abdominal met
11/12 - 5FU

jjlist
Posts: 654
Joined: Fri Jan 21, 2011 11:56 pm

Re: Another CRC Risk Factor that Doesn't Apply to Me

Postby jjlist » Tue May 26, 2015 10:46 pm

We don't know what cancer is. We don't know how to cure it. Ultimately it is down right silly to try and identify a risk factor for,cancer. We don't choose our hair color. We don't know why somoene slams home runs better than others, why Whitney Houston has an unforgettable singing talent. Cancer is a genetic disease. If that ever becomes fully understood what that means. Only then maybe Possibly could we identify some kind of messed up gene in a piece of bacon that is not good for a previously identified human susceptible and would not be able to handle that gene. i fear we are a long ways away from that secret of life. Sadly risk factor stories I think ultimately are used to sell something.
age 56
11/16/09 DIAG low rectal tumor ST II T3N0M0
12/21/09 chemopump radiation
3/18/10 suregry colo-anal anastomosis, no nodes,.
4/29/10 Abcess infection
6/3/10 started 12 folfox sessions completed 10.
1/11/11 ileostomy takedown

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horizon
Posts: 1608
Joined: Tue Apr 12, 2011 10:10 pm

Re: Another CRC Risk Factor that Doesn't Apply to Me

Postby horizon » Wed May 27, 2015 12:16 am

BrownBagger wrote:http://www.bbc.com/news/health-32849977

Along with eating lots of red meat and leading a sedentary lifestyle.

Genetics, folks. That's my best guess.


Makes me shake my head also. None of those apply to me either.
I'm just a dude who still can't believe he had a resection and went through chemo (currently 9 years NED). Is this real life?

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BrownBagger
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Location: Central NYS

Re: Another CRC Risk Factor that Doesn't Apply to Me

Postby BrownBagger » Wed May 27, 2015 8:31 am

Both my maternal grandparents died of this disease (49/72). My mom, 80, has never had so much as a polyp.

I guess it skips generations, too.

Dad died of metastasized prostate cancer, so I guess I should start worrying about that.

Kiwi: It's proving remarkably hard to lose that weight. I'm getting plenty of excercise in the garden (pics to follow) and the wood pile--and I'm only eating good stuff and not too much of it--and still I can't shake that last 5 pounds.

All I can say is, I never had this problem when I was younger. Guess my daddy was right after all.
Eric, 58
Dx: 3/09, Stage 4 RC
Recurrences: (ongoing, lung, bronchial cavity, ribs)
Major Ops: 6/ RFA: 3 /bronchoscopies: 8
Pelvic radiation: 5 wks. Bronchial radiation—brachytheray: 3 treatments
Chemo Rounds (career):136
Current Chemo Cocktail: Xeloda & Erbitux & Irinotecan biweekly
Current Cocktail; On the Wagon (mostly)
Bicycle miles post-dx 10,477
Motto: Live your life like it's going to be a long one, because it just might, and then you'll be glad you did.

KWT
Posts: 3214
Joined: Thu Jul 11, 2013 7:22 pm

Re: Another CRC Risk Factor that Doesn't Apply to Me

Postby KWT » Wed May 27, 2015 8:40 am

BrownBagger wrote:Both my maternal grandparents died of this disease (49/72). My mom, 80, has never had so much as a polyp.

I guess it skips generations, too.

Dad died of metastasized prostate cancer, so I guess I should start worrying about that.


My grandmother her brother and father all died from this as well. My mom could win a smoking and drinking contest doesn't eat well and hasn't exercised in 40 years and she's still good to go.

Life causes cancer.


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