5 years post chemo

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Molly23MN
Posts: 77
Joined: Sun Jan 03, 2010 3:50 pm
Location: Eden Prairie MN

5 years post chemo

Postby Molly23MN » Tue May 26, 2015 12:37 am

Hi everyone - I found this wonderful forum in the fall of 2009 when my husband was diagnosed with stage IIIc colon cancer. He was 39. We had a two-year-old daughter and a three-week-old son at that time. I was feeding my son and writing thank-you notes when his colonoscopy unexpectedly ended much more quickly than expected. He had some bleeding and other relatively minor symptoms for a few months beforehand. Doctors suggested more fiber and a few other things before finally saying ok let's wait until the baby's born and then do a colonoscopy to ease your mind.

The colonoscopy ended quickly because they found a big tumor. Steve was still fairly groggy when I pushed the stroller back to the room and he blurted out, "I have cancer."

My mind didn't stop swirling for several weeks. Steve has the ability to look at things in a very straightforward way. He figured out what he needed to do and set out to do it. He had a colon resection a couple weeks later. They needed to do a full incision just because of the way he's built. The surgery was successful but more invasive and more recovery time than he had hoped for. Steve and I met several friends for a Jerry Seinfeld show on his 40th birthday a few days after the surgery. I still remember when we entered the restaurant before the show. We were late between getting a sitter for two small kids and Steve needing to walk very slowly from the car. Our friends had nervous looks on their faces. It ended up a nice evening aside from Steve trying not to laugh at a comedy show due to his stitches.

Steve went on to have six months of FOLFOX6. He was unplugged for the last time on May 26, 2010.

I share this story because I always found it extremely encouraging to read stories of others who had gone through similar colon cancer situations. We are thankful every day that Steve has remained NED with clear scans, now for five years post the end of treatment, which is supposed to be a key date. It's always stuck in my head so here I am writing. Steve isn't 100% but he's in very good health. Once this cancer has been in your body and you've gone through surgery and treatment, you never know when the smallest wrong food choice might set off a bad day (or sometimes for no apparent reason at all). Ultimately, though, we remain very thankful and hopeful the status quo will continue. To others going through colon cancer now and your families, we think of you and pray for your continued strength and medical breakthroughs. I hate that several people I followed and interacted with on this board are gone but I'm excited that I still see many familiar names, too. The Colon Club is a wonderful community that has helped us immensely. Thank you!
wife of steve, dx stage IIIc CC 10/20/09 @ age 39
2 kids - now 9.5 and 12. 9 yo was 20 days old at diagnosis
Thankful.
11/09 colon resection
5/26/10 Folfox 6 complete
7/2010 Port removed
Clear CT scans since 6/10

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Annemiek
Posts: 304
Joined: Tue Apr 07, 2015 4:05 am
Location: The Hague, Netherlands

Re: 5 years post chemo

Postby Annemiek » Tue May 26, 2015 2:21 am

You brightend my day, I am 3c and halfway through chemo and sometimes the future seems dark and clouded. So good to know anything is still possible!

Thanks for posting,
Annemiek

43 yr mum of a girl aged 7
10/2014 coloncancer stage IIIc
11/2014 HIPEC, tumor removed + 12 positive out of 60 ln
hysterectomy, abdominal lining partly removed
Peridonitus, stoma fitted, 6 abcesses drained in abdomen
MSS, kras
3/2015 Folfox, someones playing kill Bill inside me
9/2015 finished 12 rounds,
First scan results: NED!!!!!!!!!
4/2016 ct scan: NED!!!
7/2016 ultrasound: NED
10/2016 cr scan: NED
5/2017 ultrasound: NED 2,5 yrs!
CEA 8/2017 1.8 stable.
CT scan 11/2017 NED! 3 yrs
CEA 1.9

Teddi
Posts: 241
Joined: Thu Jul 31, 2014 1:44 pm
Facebook Username: teddimcfarland

Re: 5 years post chemo

Postby Teddi » Tue May 26, 2015 2:37 am

Thank you for taking the time to post. I am always happy to hear stories like this. Congratulations to you and your husband on riding out the storm.

Teddi
47 at diagnosis
Colonoscopy, biopsy, CT, PET 6/14
Rectal cancer (tentatively) Stage III-b, MSS
Xeloda and radiation 25x finished 8/14
FOLFOX 5 cycles
Surgery 1/23/14 ~ T1N0MX ~ temp illeostomy
FOLFOX 3 cycles = total of 8
Illeostomy reversal 4/8/15
Clean scans x2, clear colonoscopy 9/15

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Bev G
Posts: 5856
Joined: Thu Jan 07, 2010 11:19 pm
Facebook Username: Bev Golde
Location: Quechee, VT

Re: 5 years post chemo

Postby Bev G » Tue May 26, 2015 7:50 am

I'm really happy for you to read this wonderful news! Thanks for checking in with your CC pals.

Bev
58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo

9/13 ^17th clean PET/CT NED for now

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horizon
Posts: 1608
Joined: Tue Apr 12, 2011 10:10 pm

Re: 5 years post chemo

Postby horizon » Tue May 26, 2015 8:18 am

Reading updates like this helped me so much when I was going through treatment. Thanks for sharing.
I'm just a dude who still can't believe he had a resection and went through chemo (currently 9 years NED). Is this real life?

Delinda2
Posts: 483
Joined: Fri Jan 16, 2015 6:28 pm
Location: Washington state

Re: 5 years post chemo

Postby Delinda2 » Tue May 26, 2015 9:04 am

Dear Molly, thank you so much for sharing your success with us. I'm also IIIC and you have given me renewed hope for a positive outcome. I'm so happy for your family! We need to hear that it's not all doom & gloom. Congrats to a NED family! XXOXO, Delinda
63 yrs,wife & mom
4/14 dx colon cancer,3C,9/22 nodes
Lymphatic,venous,&perineural invasion
<1cm margin,poorly differentiated
6/14 colostomy take down
7/14 FOLFOX w/9 Nulasta shots
2/16 dx new primary of sigmoid colon
6/16 surgery-rescection on sigmoid, total hysterectomy, temp ileo, stage 4
"I AM the storm."

Badass
Posts: 1171
Joined: Sun Jan 15, 2012 11:42 am

Re: 5 years post chemo

Postby Badass » Tue May 26, 2015 11:03 am

Excellent! Thanks for posting!
R.C. 12/23/11 at age 52 T3N0M0
3/1/12 completed Xeloda and radiation
5/4/12 LAR & Ileostomy
6/7/12-10/4/12 6 rounds Xelox
11/27/12 Reversal
7/13/13 1 liver met
8/13 Met resection /hai pump
4/14 Chemo completed (Irinotecan/5fu/fudr in pump)

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nitebreez
Posts: 79
Joined: Sun Mar 24, 2013 3:37 pm
Location: West Central Florida
Contact:

Re: 5 years post chemo

Postby nitebreez » Tue May 26, 2015 11:28 am

Molly23MN,...

thanks so much for posting that! Encouraging stories go a loooooooooong ways.

And Annemiek,..

I love the part in your sig that says something like "someone is playing Kill Bill" in your insides. :lol:
T4a-Nx-M0 cc (perforated colon) Septic shock
2/19/13 emergency surgery/colostomy
4/13/13 colostomy reversed (reconnected!)
1/22/14 folfox completed
3/3/14 CT Scan NED
4/15/16 CEAs still low

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rwightman
Posts: 211
Joined: Sat Jan 17, 2015 6:50 pm
Location: Southwest

Re: 5 years post chemo

Postby rwightman » Tue May 26, 2015 1:26 pm

What a great success story for you and your kids! Here's hoping many more people on this forum will be able to write a similar update at 5 years. Good luck to you.
10/9/14 DX Age 50 - MSS
10/23/14 - Colon Resection - Stage II - 0/15 lympth nodes
12/30/14 - Stage IV - 1 liver met 2cc - Liver Resection - No lymph nodes and margins clear
3/10/15 - peri mets
3/15 - Folfox with Avastin - 7 tx
7/15 - HIPEC - 2 peri mets
10/14 - resection of abdominal met
11/12 - 5FU

cathy123
Posts: 665
Joined: Sat Nov 08, 2014 3:36 pm

Re: 5 years post chemo

Postby cathy123 » Tue May 26, 2015 1:30 pm

Thanks for sharing. So happy for your great news.
Cathy

Diagnosed 10/14 low rectal cancer age 43
Clinical T2NXMX
Radiation/xeloda 12/14-1/15
LAR with temp Ileo 3/15
pT2N0M0, lymphatic invasion 0/37 nodes
4 xelox, 1 xeloda only
Reversal 9/15
Mom to 9&11 year olds


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