Hi there
My husband Bill passed away on May 6, 2015...one day after our 31st Anniversary. He battled this nasty disease for over 6 years. I am beyond heartbroken, but I wanted to thank this community for the support, encouragement and information you have all shared with me over the past several years. I truly believe there will be a cure, and that it is not long away. Blessings to you all.
Pamela
Devastated Wife
Re: Devastated Wife
I am so so sorry. I can't imagine what you are going through, I have been married 32 years myself. Hugs and Love
DS 26 yrs old diagnosed 6/13 T3N2aM1b
Resection 6/13
6 rounds chemo folfax
12/13 Fissure
hernia surgery 12/13
5 months break
Maintenance chemo 3/14
Crazy growth. Liver failing. Folfox and vectibex 7-29-14
Chemo failure Hospice 8/26
Left us 8/28
Resection 6/13
6 rounds chemo folfax
12/13 Fissure
hernia surgery 12/13
5 months break
Maintenance chemo 3/14
Crazy growth. Liver failing. Folfox and vectibex 7-29-14
Chemo failure Hospice 8/26
Left us 8/28
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canadiandaughter
- Posts: 676
- Joined: Sun Aug 17, 2014 11:19 am
Re: Devastated Wife
So sorry to hear this. So glad you were able to find some support on this board. It is an amazing place with awesome people. I will keep you in my thoughts and prayers and I hope you can find the strength to help you get through each day.
DD to 81 year old father
dx 24/07/14 iv cc mets liver/lung
folifiri started 19/07/14
shrinkage of all mets
growth in the liver,started folfox/avastin 80% 13/01/16
reduced to 70% due to side effects 27/01/16
First scan on folfox shows shrinkage in lungs, but liver just stable
6 rounds of vectibix-fail. 3cm growth and new spots showing Waiting for panel recommendations
At peace January 8, 2017
dx 24/07/14 iv cc mets liver/lung
folifiri started 19/07/14
shrinkage of all mets
growth in the liver,started folfox/avastin 80% 13/01/16
reduced to 70% due to side effects 27/01/16
First scan on folfox shows shrinkage in lungs, but liver just stable
6 rounds of vectibix-fail. 3cm growth and new spots showing Waiting for panel recommendations
At peace January 8, 2017
Re: Devastated Wife
I'm so sorry.
DH - dx Dec 2014, stage IV with bladder & peritoneal involvement - non-resectable
Colostomy
FOLFOX failed
FOLFIRI failed
Tumor actually distending pelvic skin
Not a candidate for last-ditch pelvic exenteration
Stivarga finally begun 2/19/16
Tumor growing/fungating
Lonsurf started 11/18/16
Died 3/10/17
Colostomy
FOLFOX failed
FOLFIRI failed
Tumor actually distending pelvic skin
Not a candidate for last-ditch pelvic exenteration
Stivarga finally begun 2/19/16
Tumor growing/fungating
Lonsurf started 11/18/16
Died 3/10/17
Re: Devastated Wife
Please accept my condolences on the passing of your husband. 32 years is a lot of memories, I hope in time they bring you comfort.
Teddi
Teddi
47 at diagnosis
Colonoscopy, biopsy, CT, PET 6/14
Rectal cancer (tentatively) Stage III-b, MSS
Xeloda and radiation 25x finished 8/14
FOLFOX 5 cycles
Surgery 1/23/14 ~ T1N0MX ~ temp illeostomy
FOLFOX 3 cycles = total of 8
Illeostomy reversal 4/8/15
Clean scans x2, clear colonoscopy 9/15
Colonoscopy, biopsy, CT, PET 6/14
Rectal cancer (tentatively) Stage III-b, MSS
Xeloda and radiation 25x finished 8/14
FOLFOX 5 cycles
Surgery 1/23/14 ~ T1N0MX ~ temp illeostomy
FOLFOX 3 cycles = total of 8
Illeostomy reversal 4/8/15
Clean scans x2, clear colonoscopy 9/15
Re: Devastated Wife
I'm so sorry to read about your loss, words at this time are difficult to describe the emotions one goes through following the passing of a loved one, I have no words other than you are in my thoughts and prayers, I hope you find comfort in the cherished memories, I know this has helped me at times.
Dad Stage IV 15/03/14
r heimocolectomy blockage
liver+peri mets
17/06 folfori/cetuximab for 24 weeks
Oct 14, ct partial response, all else clear
Dec 14, chemo break and ct 17/12
Jan 15 folfiri 4 on/2 off x 2
March cancer progression+jaundice
Treatment stopped, near liver failure, pallative f/u
At rest 26/04 angel of heaven
r heimocolectomy blockage
liver+peri mets
17/06 folfori/cetuximab for 24 weeks
Oct 14, ct partial response, all else clear
Dec 14, chemo break and ct 17/12
Jan 15 folfiri 4 on/2 off x 2
March cancer progression+jaundice
Treatment stopped, near liver failure, pallative f/u
At rest 26/04 angel of heaven
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Kathleen808
- Posts: 1761
- Joined: Sun Feb 08, 2009 12:49 am
- Location: Hawaii
Re: Devastated Wife
Oh Pamela, I am so truly sorry for the loss of your husband. We are still here for you. My heart breaks for you.
Aloha,
Kathleen
Aloha,
Kathleen
Kathleen
DH 1/09 3c 51yr rsct
Folfx 3/09
1 l nd 9/09 Flfri Avstn
PET clr 6/10
Folfri Avstn 7/10
ND 10/10
1/11 lng mets Flfri Avastn
ND 2/12
9/12 Flfri Avastn
10/12 grwth lng mts Erbtx Avstn Irintcn
1/13 stabl
9/13 grwth
8/16/14 passed into eternal peace
DH 1/09 3c 51yr rsct
Folfx 3/09
1 l nd 9/09 Flfri Avstn
PET clr 6/10
Folfri Avstn 7/10
ND 10/10
1/11 lng mets Flfri Avastn
ND 2/12
9/12 Flfri Avastn
10/12 grwth lng mts Erbtx Avstn Irintcn
1/13 stabl
9/13 grwth
8/16/14 passed into eternal peace
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TheLadySkye
- Posts: 269
- Joined: Thu Oct 24, 2013 1:40 pm
Re: Devastated Wife
I am so very sorry 
My prayers and sympathy to you and your family.
My prayers and sympathy to you and your family.TheLadySkye
Stage 2b (T4N0M0) small intestine (jejunum) 8/13
Small bowel resection 9/13
CT 10/13 - NED
FOLFOX chemotherapy 11/13 - 4/14
CT 6/14 - NED and my nemesis (the power port) out!
Clean colonoscopy and endoscopy 9/14
CT 12/14, 6/15 - NED!!!
Stage 2b (T4N0M0) small intestine (jejunum) 8/13
Small bowel resection 9/13
CT 10/13 - NED
FOLFOX chemotherapy 11/13 - 4/14
CT 6/14 - NED and my nemesis (the power port) out!
Clean colonoscopy and endoscopy 9/14
CT 12/14, 6/15 - NED!!!
Re: Devastated Wife
Pamela,
I am so sorry for your loss. This is so hard.
Bill
I am so sorry for your loss. This is so hard.
Bill
Husband Dx with Stage 3 CC in Dec 07
Xelox Jan-July 08
Lung mets Jan 09
Folfiri plus Avastin Mar-May 10
5FU plus Avastin May 10-current
2 liver mets March 13, continue 5 FU & Avastin
liver RFA Oct 13, hospice June 14, at peace Sept 2, 2014
Xelox Jan-July 08
Lung mets Jan 09
Folfiri plus Avastin Mar-May 10
5FU plus Avastin May 10-current
2 liver mets March 13, continue 5 FU & Avastin
liver RFA Oct 13, hospice June 14, at peace Sept 2, 2014
Re: Devastated Wife
So sorry to read of your husband's passing. May you find comfort in the memories you built together.
Re: Devastated Wife
So sorry about the loss of your husband. May you have wonderful memories of all the years you had together.
Jackie
Jackie
70 male stage 3b cc
Dx 5/9/14
Resection 7/1/14
dx 9/14
65 yr wife DLCl
Sct 3/21/19 Ned last 8 mo.
Dx 5/9/14
Resection 7/1/14
dx 9/14
65 yr wife DLCl
Sct 3/21/19 Ned last 8 mo.
Re: Devastated Wife
So so sorry to hear this. You were by his side for the battle, and I am sure it made the end of his life so much better. I hope you find some solace in that, and that you are surrounded by friends and family during this time of pain and loss.
Partner of L
2/2015: Dx @ 41 yrs rectal cancer T3,N2,M1a (Stage IVa, mets in pelvic and abdominal lymph nodes)
KRAS mutant
3/16/15: Start first treatment: FOLFOX
3/19/15: Heart failure
4/6/15: Switch to FLOX
5/15/15: PET/CT: reduction of main tumor & 4 of 8 malig lymph nodes.
Rx: 2 more chemo
7/20/15 L starts treatment arm of immune-stimulant trial: interferon, Celebrex & rintatolimod for 5 days, then resection of rectal tumor & all lymph nodes in pelvis, peri-rectal & abdomen.
2/2015: Dx @ 41 yrs rectal cancer T3,N2,M1a (Stage IVa, mets in pelvic and abdominal lymph nodes)
KRAS mutant
3/16/15: Start first treatment: FOLFOX
3/19/15: Heart failure
4/6/15: Switch to FLOX
5/15/15: PET/CT: reduction of main tumor & 4 of 8 malig lymph nodes.
Rx: 2 more chemo
7/20/15 L starts treatment arm of immune-stimulant trial: interferon, Celebrex & rintatolimod for 5 days, then resection of rectal tumor & all lymph nodes in pelvis, peri-rectal & abdomen.
Re: Devastated Wife
You have my sympathy and understanding. May you find moments of peace and gentle memories that grow more frequent in the weeks and months to come.
"Sweet dreams till sunbeams find you.
Sweet dreams that leave all worries behind you."
Sweet dreams that leave all worries behind you."
Re: Devastated Wife
I'm so sorry for your loss. It must be very difficult after so many years together. May the years you spent together bring you peace in the future and please make sure you take care of yourself.
Peace, Kristi
Peace, Kristi
4/24/12 RC T3N1M0 age 53
5/23-7/2 - 26 chemorad - Xeloda
7/16 Lynch- MSH2
8/28 LAR w/ temp ileo, CR, 0/11,M0, hysterectomy
10/13 6 cycles Xeloda - completed only 1 1/2 due to HFS
3/12/13 - reversal
8/13 NED
6/15 - HFS gone!
5/23-7/2 - 26 chemorad - Xeloda
7/16 Lynch- MSH2
8/28 LAR w/ temp ileo, CR, 0/11,M0, hysterectomy
10/13 6 cycles Xeloda - completed only 1 1/2 due to HFS
3/12/13 - reversal
8/13 NED
6/15 - HFS gone!
Re: Devastated Wife
I'm so sorry, Pamela.
Celine
Celine
my blog: Cancer Riot
NED since April 2016!
April 2016: lower left lung lobectomy. NED
8 mo. f/u: 1 of 7 tumors progressed.
6 mo. f/u PR confirmed (Jan 2016)
Jul 2015: NIH TIL trial NCT01174121 NCI/NIH Surgery Branch FAQ
Dec 2014 confirmed stage IV w/bilateral lung mets
FOLFOX + Radiation (bladder)
KRAS G12D :: MSS
dx Sep 2013 @47yo: IIIc T4b N2b MX [bladder invasion, 17/21 lymph nodes]
Married 34 yrs. kids: 28, 25, 21, 16, 14
SE Michigan home schooler, unemployed mechanical engineer, and programmer.
NED since April 2016!
April 2016: lower left lung lobectomy. NED
8 mo. f/u: 1 of 7 tumors progressed.
6 mo. f/u PR confirmed (Jan 2016)
Jul 2015: NIH TIL trial NCT01174121 NCI/NIH Surgery Branch FAQ
Dec 2014 confirmed stage IV w/bilateral lung mets
FOLFOX + Radiation (bladder)
KRAS G12D :: MSS
dx Sep 2013 @47yo: IIIc T4b N2b MX [bladder invasion, 17/21 lymph nodes]
Married 34 yrs. kids: 28, 25, 21, 16, 14
SE Michigan home schooler, unemployed mechanical engineer, and programmer.
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