Update kpjpmom

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kpjpmom
Posts: 197
Joined: Sat Nov 26, 2011 10:27 pm

Update kpjpmom

Postby kpjpmom » Mon May 18, 2015 2:41 pm

Saw the oncologist today. My lab work was good. My CEA has gone down to 113 from 400 in March when this all began. Dr. Wants to drop the 5-fu and reduce Ironateacan to 120. He says he wants to give this a try before he scraps the plan and has to come up with another. He wants me to get fluids if non stop diarrhea begins and also use Lomital and Immodium. He mentioned that he may have to go to Vectibux. Anyone have information on how this went for them? I will have treatment tomorrow. Swing some chickens that this works(dropping 5 FU) and I keep my fluids up and stop dehydration from rapid elimination.

Blessings,
Kpjpmom
Last edited by kpjpmom on Mon May 18, 2015 3:17 pm, edited 1 time in total.
DX March 2011 stg 3 cc
Kidney cancer May 2011
Folfox 6months (12 rnds)
It's Back! October 2012 colon resection, kidney removed.FOLFIRI/Erbitux starts Jan.2013
Completed FOLFIRI June 2013, Erbitux continues
March 2015 Met to spine. Radiation 15 treatments
Folfri, 5fu dropped after 3x, Erbitux and Iri continued CEA rising. Moved to
Folfox, Xeloda,Avastin until Feb. 2016 oxilap. Neuropathy returns.
Xeloda,Avastin continues.

skypup
Posts: 2598
Joined: Mon Dec 17, 2012 12:12 pm

Re: Update kpjpmo

Postby skypup » Mon May 18, 2015 2:49 pm

My docs dropped 5-FU and went to 100mg/m2 for the irinotecan, plus 20% reduction on Erbitux. it's working pretty well at keeping me mostly stable. Will know more in a couple of months. Side effects are still troublesome, but better than with full dose. Hope you do well with it!

kpjpmom
Posts: 197
Joined: Sat Nov 26, 2011 10:27 pm

Re: Update kpjpmom

Postby kpjpmom » Mon May 18, 2015 3:16 pm

Thanks Skypup
I weigh 160 PDs so I hope this is enough of a reduction to help also. What problems do you have and are they controllable with the Immodium and Lomital? Thanks for the feedback. Do you get the rash? So far I have not with my first treatments.

Kpjpmom
DX March 2011 stg 3 cc
Kidney cancer May 2011
Folfox 6months (12 rnds)
It's Back! October 2012 colon resection, kidney removed.FOLFIRI/Erbitux starts Jan.2013
Completed FOLFIRI June 2013, Erbitux continues
March 2015 Met to spine. Radiation 15 treatments
Folfri, 5fu dropped after 3x, Erbitux and Iri continued CEA rising. Moved to
Folfox, Xeloda,Avastin until Feb. 2016 oxilap. Neuropathy returns.
Xeloda,Avastin continues.


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