Postby bjones1128 » Thu May 14, 2015 7:36 pm
Megan,
I am in a similar position. Nearly one year into my stage IV diagnosis and it is spreading into weird areas. When I was diagnosed, I had the usual mets in my lungs, nodes, adrenal gland, ovary, brain, etc. The weird thing is that my liver is clean and the onc said that is usually one of the first places it spreads to. Did yours go into your liver? For the past three months I have been complaining to my onc about pain in my right knee, but he said it was "highly unlikely" that I had a met in the knee, as colon cancer rarely goes down that far. He finally did an MRI and guess what? A large tumor on the knee, which I am now having radiation for.
Because I have too many tumors in too many places, I am not a candidate for surgery at all. I tried Xeloda but that is when the cancer spread to my knee, so it obviously didn't work. I am back on Folfox but my question to my onc at next week's appointment will be "how long can I take this chemo?" I've already been on one form or another for almost a year. When it stops working, am I just out of luck?
Sorry, I didn't mean to try and make your post about me... I am just so frustrated and you seem to be in a similar situation. If your onc comes up with any great ideas, let us know... I will do the same. In the meantime, I'll be praying for you!
Barbara
Single mom of two wonderful boys
Dx June 2014 Stage IVB Colon (sigmoid) @ age 38
Mets in brain, lungs, adrenal gland, nodes, ovary
July 2014 stereotactic radiosurgery to brain
July 2014 craniotomy, brain met removed!
Aug 2014 Folfiri
Feb 2015 Xeloda & Avastin didn't work
May 2015 mets to spine & knee, more mets to lungs, airspace disease
May 2015 Folfox, Avastin, Zemota
May 2015 radiation to knee