Four year anniversary stage 4

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mymom
Posts: 1299
Joined: Fri Aug 12, 2011 11:07 pm
Location: Connecticut

Four year anniversary stage 4

Postby mymom » Wed May 13, 2015 5:49 am

four years ago today on Friday the 13th no less my mom was diagnosed with stage 4 colon cancer...mets to liver. A year later stage 1 breast cancer. Four years later she is going strong and is NED after several reoccurrences. Here is to hoping for another clean scan in a few weeks after she goes camping! and I know if it's not we will attack it again. Here is to a wonderful summer and a great Jamaica vacation together. I love her with all my heart. She has handled it with grace and determination and somehow never makes it about her although it should be at times. I continue to hope. I continue to think of each and every one of you. We have adjusted to a new normal and we live our lives to the fullest no matter what. She is my best friend. I love you mom.
Stage 4 CC DX 5/11
colon/livr rsct 5/11(1 met)
Folfox July-11/11
NED to 5/12
New Primry BC-4/12,Stage 1
2 livermet 5/2012
Liver rsct,HAI 6/12,Folfiri
NED to 10/13,1 liver met,ablation, Folfiri
NED to 12/14, another spot
3/15 NED
Ablation 1 liver met 10/15
1/16-current NED
6/22- small spot liver again, ablation oct 2023

jillbugs4110
Posts: 266
Joined: Thu Jul 31, 2014 3:36 pm

Re: Four year anniversary stage 4

Postby jillbugs4110 » Wed May 13, 2015 8:40 am

Yay so happy thanks for the good news and loving your mom so much!! Sending you both good thoughts
Live One Day At A Time
I Abandon myself to God
46 6 yo.....9yo...
stage 1V liver mets :-(
my one prayer to got to sustain me to raise my two babies this is my only wish then take me out if needed.

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Bev G
Posts: 5856
Joined: Thu Jan 07, 2010 11:19 pm
Facebook Username: Bev Golde
Location: Quechee, VT

Re: Four year anniversary stage 4

Postby Bev G » Wed May 13, 2015 8:42 am

Thanks for posting this wonderful and encouraging update on your dear mom. She is so fortunate to have such a loving and compassionate daughter. I hope the next scan proves her to still be residing in NEDsvile.

All the best to both of you!

Bev
58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo

9/13 ^17th clean PET/CT NED for now

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vilca11
Posts: 730
Joined: Fri Feb 14, 2014 11:19 am
Location: Moscow, Russia; Baltimore, USA 1992; Vilcabamba, Ecuador 2012

Re: Four year anniversary stage 4

Postby vilca11 » Wed May 13, 2015 9:00 am

I am very happy for you and your mom, dear girl! My daughter feels the same and I am too fixing it as it comes for 3.5years since mets in liver... It will be all right, do not worry - we will hang in until immunotherapy for us is ready, be sure of that....
Hugs to you and your courageous mom.
Vilca
11/2005 CC stage 1, F,50yo@dx
Mod dif adenocar, MSS, APC, TP53, CEAs1.6-4.8
1/12 1met liver@Vena Cava, RFA, 3oxi,11 5FU
8/13 2 mets same place,SBRT
4/14 2 Xeliri+Avastin
5/14 Nano Knife liver same 2 mets
6/14 2 Xeliri, ADAPT
4/15 PET, 2 same mets,Cryo Liver
5/15 MJ Oil, Herbs, Suppl, ADAPT
10/15 PET, same area, doubled in size, high SUV
10/15 RH, HAI, visceral involv., no LN
2/16 red FF, 50% red dose FUDR, CEA trends up
3/16 CT, PET, MRI L.Lobe all in small tumors
4/16 No acceptable options, going home

Stanfordmom
Posts: 612
Joined: Wed May 14, 2014 1:32 am

Re: Four year anniversary stage 4

Postby Stanfordmom » Wed May 13, 2015 9:43 am

You and your mom are both heroes to me!

have a great summer!

Sha
DX 4/2/2014 at 44, stage 4, mets liver and ovaries
Mom to 2 boys
Three surgeries, HAI pump and lots of chemo
fighting!

Kiwi Debz
Posts: 167
Joined: Fri Aug 22, 2014 9:42 am
Facebook Username: Deb Goldby

Re: Four year anniversary stage 4

Postby Kiwi Debz » Wed May 13, 2015 9:53 am

Such a great story .... I hope it lasts a long time if not always.

Hugs to you and your mum.

Deb
6/14 DX mCrc stage 4
7/14 R. hemicolectomy; 4/17 LN; liver res. peri met; repair to illiac artery
8/14 FOLFOX
10/14 PET recurrence LN; liver ? Peri met Continue FOLFOX
12/14 PET: stable .Liver only! FOLFOX
02/15 Liver resection. NED
03/15 foundation One testing - BRAF mutant
05/15 progression; Hilum node; both lungs?
08/15 NED !!!!
Age 51 Mum to Tom (RIP) and Jose 18
KIA KAHA - Be strong!

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juliej
Posts: 3114
Joined: Thu Aug 05, 2010 12:59 pm

Re: Four year anniversary stage 4

Postby juliej » Wed May 13, 2015 3:17 pm

Doing a fist pump for your mom! She rocks! :D
Stage IVb, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/2011
LAR, liver resec, HAI pump 11/2011
Adjuvant Irinotecan + FUDR
Double lung surgery + ileo reversal 2/2012
Adjuvant FUDR + Xeloda
VATS rt. lung 12/2012 - benign granuloma!
VATS left lung 11/2013
NED 11/22/13 to 12/18/2019, CEA<1

mom_2_3
Posts: 361
Joined: Sat Nov 29, 2008 8:09 pm

Re: Four year anniversary stage 4

Postby mom_2_3 » Wed May 13, 2015 3:22 pm

Great news! Here's hoping for a great scan and then a fantastic and loving summer.
CC discovered during c-section (11/4/08)
Diagnosed Stage IV 11/10/08 -- Happy 39th Birthday! 5 bilobar liver mets
02/09: Colectomy, liver resection, HAI pump implanted, 7 of 42 nodes
7 months of FUDR and 5FU ended 11/2/09
10 years NED.

mymom
Posts: 1299
Joined: Fri Aug 12, 2011 11:07 pm
Location: Connecticut

Re: Four year anniversary stage 4

Postby mymom » Thu May 14, 2015 6:51 am

Thanks to all for the wonderful comments. I pray and think of you everyday. My mom is a huge comfort in my life (found out some crazy news these past few weeks that has rocked me and puts the past three years of my life in a new light with my marriage, i bet if you all thought hard enough you can figure it out. Mom and I suspected but I finally got proof). I have leaned on her so much and I said to her I feel bad that during the end of this NED stretch she has had to deal with this stress and not enjoy the last few weeks before the next scan and she said it doesn't matter that life isn't perfect and I am her daughter. I told her at least it gives us even more interesting stuff to talk about:-) She is ALWAYS there for me.
Stage 4 CC DX 5/11
colon/livr rsct 5/11(1 met)
Folfox July-11/11
NED to 5/12
New Primry BC-4/12,Stage 1
2 livermet 5/2012
Liver rsct,HAI 6/12,Folfiri
NED to 10/13,1 liver met,ablation, Folfiri
NED to 12/14, another spot
3/15 NED
Ablation 1 liver met 10/15
1/16-current NED
6/22- small spot liver again, ablation oct 2023


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