Hey everyone,
I know I haven't been on here much since christmas but I thought I would catch you up on my cancer. So at christmas I was put in hospital with an obstruction after my pouch surgery. I was opened up and there was cancer all over my small bowel. I tried to get HIPEC but was turned down. Since then I have been doing high dose vitamin C and a very low dose of the ADAPT protocol. I had my scan on Monday and today I got the results that gave me a clear scan. WTF!!!
Now I know this doesn't mean I'm cancer free but what it does mean I either have a very very slow growing cancer or the vitamin C is keeping everything at bay, possibly got rid of the cancer??? Now suddenly I'm a candidate for HIPEC. Vitamin C is worth a try I don't think it is the magic bullet but it gives me back a lot of energy. I am also in the process of making my own oil to give that a try also.
I just might make 40 yet.
Clear Scan
Clear Scan
Last edited by Cherie on Wed May 13, 2015 3:56 am, edited 1 time in total.
36Yo F
2000 UC
2013 Stage 4 CC 15/126 LN spread to the omentum
June Collectomy all visible cancer removed
July Folfox + Avastin
2/14 clean scan
8/14 Ileo-anal pouch surgery still NED
1/15 Emergency illeostomy spread to peritoneum and small bowel
2000 UC
2013 Stage 4 CC 15/126 LN spread to the omentum
June Collectomy all visible cancer removed
July Folfox + Avastin
2/14 clean scan
8/14 Ileo-anal pouch surgery still NED
1/15 Emergency illeostomy spread to peritoneum and small bowel
Re: Clear Scan
GREAT news Cherie !!!!
Keep pushing forward with your plan
CRguy
Keep pushing forward with your plan
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far
Re: Clear Scan
F'ing awesome! Get that HIPEC train rolling. So stoked for your good scan, I think I'll have a beer. Admittedly I was already drinking one... but now I have a reason! 
11-13 Dx CC
SPS T4b(touched stomach organ),N1(3/23),M0(Stage 3B)
11-13: resect + partial gastrect
2-14: 1 Tx Cape + Oxy; renal failure, colitis
4-14: 7 Tx Capecitabine
1-15: clear CT
7-15: clear scope
1-16: clear CT
3-17: clear CT
10-17: clear scope (5 year gap now!)
CEA@dx: 8.4 / 6-15: 4.0 / 10-15: 4.2 / 2-16: 4.9 / 7-16: 4.9 / 11-16: 5.0 / 6-17: 4.5
NED since resection
SPS T4b(touched stomach organ),N1(3/23),M0(Stage 3B)
11-13: resect + partial gastrect
2-14: 1 Tx Cape + Oxy; renal failure, colitis
4-14: 7 Tx Capecitabine
1-15: clear CT
7-15: clear scope
1-16: clear CT
3-17: clear CT
10-17: clear scope (5 year gap now!)
CEA@dx: 8.4 / 6-15: 4.0 / 10-15: 4.2 / 2-16: 4.9 / 7-16: 4.9 / 11-16: 5.0 / 6-17: 4.5
NED since resection
Re: Clear Scan
What great news. Congrats:)
wife of DH (04/24/15 dx: age 43) Low RC T3N0M0 stage 2
4/27/15 clear CT
5/18 - 6/25 chemo/rad (ended xeloda on 6/19 due to side effects)
8/12/15 - ULAR scheduled - APR performed due to location - path showed T1N0M0
9/25 begin 5 rounds of xelox
10/30/15 - switch to xeloda only due to allergic reaction
1/22/16- last xeloda!
3/27/16 - post treatment CT - clear except soft tissue presacral area (possibly scar tissue) CEA .5
4/20/16 - post treatment colonoscopy
4/27/15 clear CT
5/18 - 6/25 chemo/rad (ended xeloda on 6/19 due to side effects)
8/12/15 - ULAR scheduled - APR performed due to location - path showed T1N0M0
9/25 begin 5 rounds of xelox
10/30/15 - switch to xeloda only due to allergic reaction
1/22/16- last xeloda!
3/27/16 - post treatment CT - clear except soft tissue presacral area (possibly scar tissue) CEA .5
4/20/16 - post treatment colonoscopy
Re: Clear Scan
Wow great news ! So pleased for you .
Vit c def seems
Worth a a try x
Vit c def seems
Worth a a try x
Dad diagnosed stage 3 cc nov 13
Bowel resection march 14
Started xeloda
1 liver met and 1 node ( small)
Started irinotecan - failed
Poss nano knife now and oxyplatin
Hope the chem works !
Bowel resection march 14
Started xeloda
1 liver met and 1 node ( small)
Started irinotecan - failed
Poss nano knife now and oxyplatin
Hope the chem works !
Re: Clear Scan
Awesome news!
Cathy
Diagnosed 10/14 low rectal cancer age 43
Clinical T2NXMX
Radiation/xeloda 12/14-1/15
LAR with temp Ileo 3/15
pT2N0M0, lymphatic invasion 0/37 nodes
4 xelox, 1 xeloda only
Reversal 9/15
Mom to 9&11 year olds
Diagnosed 10/14 low rectal cancer age 43
Clinical T2NXMX
Radiation/xeloda 12/14-1/15
LAR with temp Ileo 3/15
pT2N0M0, lymphatic invasion 0/37 nodes
4 xelox, 1 xeloda only
Reversal 9/15
Mom to 9&11 year olds
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midlifemom
- Posts: 1358
- Joined: Wed Jan 15, 2014 10:58 am
- Location: NJ
Re: Clear Scan
Awesome! Awesome! Awesome!
Thanks for letting us know.
Thanks for letting us know.
Stage 3 cc - dx Jan '14 age 53, cea 2.9
t2n2m0, KRAS mutant, MSS
Folfox Feb - Aug '14
Nov '14 cea 27.7 -2 liver masses
Dec '14 left lobectomy and HAI
Jan '15 FUDR and FOLFIRI
Aug '15 fudr done, liver clear, add avastin for lungs. Cea 4.3
Feb '16 CEA rising
May '16 2 wk break then drop Iri for 6 weeks.
Jul '16 cancer grew, constricted main bile duct. Stent inserted. On break till jaundice clears. CEA climbing. Doing reduced Folfox. Allergic to Oxali.
Sep'16 chemo failed. Trial or hospice?
t2n2m0, KRAS mutant, MSS
Folfox Feb - Aug '14
Nov '14 cea 27.7 -2 liver masses
Dec '14 left lobectomy and HAI
Jan '15 FUDR and FOLFIRI
Aug '15 fudr done, liver clear, add avastin for lungs. Cea 4.3
Feb '16 CEA rising
May '16 2 wk break then drop Iri for 6 weeks.
Jul '16 cancer grew, constricted main bile duct. Stent inserted. On break till jaundice clears. CEA climbing. Doing reduced Folfox. Allergic to Oxali.
Sep'16 chemo failed. Trial or hospice?
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canadiandaughter
- Posts: 676
- Joined: Sun Aug 17, 2014 11:19 am
Re: Clear Scan
That is awesome news! Congrats.
DD to 81 year old father
dx 24/07/14 iv cc mets liver/lung
folifiri started 19/07/14
shrinkage of all mets
growth in the liver,started folfox/avastin 80% 13/01/16
reduced to 70% due to side effects 27/01/16
First scan on folfox shows shrinkage in lungs, but liver just stable
6 rounds of vectibix-fail. 3cm growth and new spots showing Waiting for panel recommendations
At peace January 8, 2017
dx 24/07/14 iv cc mets liver/lung
folifiri started 19/07/14
shrinkage of all mets
growth in the liver,started folfox/avastin 80% 13/01/16
reduced to 70% due to side effects 27/01/16
First scan on folfox shows shrinkage in lungs, but liver just stable
6 rounds of vectibix-fail. 3cm growth and new spots showing Waiting for panel recommendations
At peace January 8, 2017
Re: Clear Scan
Cherie, I've thought of you so often and this is fantastic news! What a great way to start the day.
Jean
Jean
Dx Rectal Cncr 5/12
Stage III
5 weeks Chemo (5FU) & Radiation completed
LAR with temporary ileostomy 9/12, complete response
Began FOLFOX 10/12. oxil reduced after tx 1, eliminated after tx 2. Now 5FU.
Finished 1/13
Ileostomy reversal 5/13
Stage III
5 weeks Chemo (5FU) & Radiation completed
LAR with temporary ileostomy 9/12, complete response
Began FOLFOX 10/12. oxil reduced after tx 1, eliminated after tx 2. Now 5FU.
Finished 1/13
Ileostomy reversal 5/13
Re: Clear Scan
Such great news! Happy, happy, happy! XXOXO, Delinda
63 yrs,wife & mom
4/14 dx colon cancer,3C,9/22 nodes
Lymphatic,venous,&perineural invasion
<1cm margin,poorly differentiated
6/14 colostomy take down
7/14 FOLFOX w/9 Nulasta shots
2/16 dx new primary of sigmoid colon
6/16 surgery-rescection on sigmoid, total hysterectomy, temp ileo, stage 4
"I AM the storm."
4/14 dx colon cancer,3C,9/22 nodes
Lymphatic,venous,&perineural invasion
<1cm margin,poorly differentiated
6/14 colostomy take down
7/14 FOLFOX w/9 Nulasta shots
2/16 dx new primary of sigmoid colon
6/16 surgery-rescection on sigmoid, total hysterectomy, temp ileo, stage 4
"I AM the storm."
Re: Clear Scan
Talk about things going your way. How fuckin cool is that? Praise be to vitamin C
But not to be a downer but the last stuff didn't show up on scans did it? Just curious as my Cea party is standing room only and nothing new showing up.
But not to be a downer but the last stuff didn't show up on scans did it? Just curious as my Cea party is standing room only and nothing new showing up.
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jillbugs4110
- Posts: 266
- Joined: Thu Jul 31, 2014 3:36 pm
Re: Clear Scan
Hi
What kind of vitamin c is it shots? ? Well any hoo this.news made me really happy and my heart jumped for joy in love good news that's hopeful yaya!!!!
What kind of vitamin c is it shots? ? Well any hoo this.news made me really happy and my heart jumped for joy in love good news that's hopeful yaya!!!!
Live One Day At A Time
I Abandon myself to God
46 6 yo.....9yo...
stage 1V liver mets
my one prayer to got to sustain me to raise my two babies this is my only wish then take me out if needed.
I Abandon myself to God
46 6 yo.....9yo...
stage 1V liver mets
my one prayer to got to sustain me to raise my two babies this is my only wish then take me out if needed.
-
vilca11
- Posts: 730
- Joined: Fri Feb 14, 2014 11:19 am
- Location: Moscow, Russia; Baltimore, USA 1992; Vilcabamba, Ecuador 2012
Re: Clear Scan
Fantastic, Cherie!!!! Have been thinking of you...Just make sure you do not stop Vit C IVs - when you start them, usually you should not stop, very rapid decline (unless, it really killed all the cancer in the body). I am happy to hear that you will be doing oil. And I wounder if you can do without HIPEC, eventually - do not rash with it for now, imo.... If next time you do PET (not CT) may be nothing will light up, may be all peritoneal stuff is burned by Vit C? And now oil... I would wait. While PET does not always show well the peritoneal spread. Anyway, when you do oil, do not digest it or use suppository. Tack it in your front lower jaw until it is gone from the finger. Stay away from teeth. If you have questions, pm me and we'll Skype. The key is to get cannabinoids into your brain receptors without digesting any, that way you will never get high, no matter what the dose is.... Btw, what dose of Vit C you are doing? And how is your CEA?
Hugs and congrats, Vilca
Hugs and congrats, Vilca
11/2005 CC stage 1, F,50yo@dx
Mod dif adenocar, MSS, APC, TP53, CEAs1.6-4.8
1/12 1met liver@Vena Cava, RFA, 3oxi,11 5FU
8/13 2 mets same place,SBRT
4/14 2 Xeliri+Avastin
5/14 Nano Knife liver same 2 mets
6/14 2 Xeliri, ADAPT
4/15 PET, 2 same mets,Cryo Liver
5/15 MJ Oil, Herbs, Suppl, ADAPT
10/15 PET, same area, doubled in size, high SUV
10/15 RH, HAI, visceral involv., no LN
2/16 red FF, 50% red dose FUDR, CEA trends up
3/16 CT, PET, MRI L.Lobe all in small tumors
4/16 No acceptable options, going home
Mod dif adenocar, MSS, APC, TP53, CEAs1.6-4.8
1/12 1met liver@Vena Cava, RFA, 3oxi,11 5FU
8/13 2 mets same place,SBRT
4/14 2 Xeliri+Avastin
5/14 Nano Knife liver same 2 mets
6/14 2 Xeliri, ADAPT
4/15 PET, 2 same mets,Cryo Liver
5/15 MJ Oil, Herbs, Suppl, ADAPT
10/15 PET, same area, doubled in size, high SUV
10/15 RH, HAI, visceral involv., no LN
2/16 red FF, 50% red dose FUDR, CEA trends up
3/16 CT, PET, MRI L.Lobe all in small tumors
4/16 No acceptable options, going home
Re: Clear Scan
Vilca.... Girlfriend, http://www.420magazine.com/forums/canna ... orial.html
Re: Clear Scan
Awesome!!!!!!!! So happy for you!
If you want to come to San Diego in July, maybe we can get a two for one HIPEC deal!
If you want to come to San Diego in July, maybe we can get a two for one HIPEC deal!
Last edited by rwightman on Wed May 13, 2015 10:07 am, edited 1 time in total.
10/9/14 DX Age 50 - MSS
10/23/14 - Colon Resection - Stage II - 0/15 lympth nodes
12/30/14 - Stage IV - 1 liver met 2cc - Liver Resection - No lymph nodes and margins clear
3/10/15 - peri mets
3/15 - Folfox with Avastin - 7 tx
7/15 - HIPEC - 2 peri mets
10/14 - resection of abdominal met
11/12 - 5FU
10/23/14 - Colon Resection - Stage II - 0/15 lympth nodes
12/30/14 - Stage IV - 1 liver met 2cc - Liver Resection - No lymph nodes and margins clear
3/10/15 - peri mets
3/15 - Folfox with Avastin - 7 tx
7/15 - HIPEC - 2 peri mets
10/14 - resection of abdominal met
11/12 - 5FU
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