Hey Voxx
You do what is right for you, period. Enjoy your month off.
I have just had a couple n scanning again next week and have enjoyed my time of healthy denial for a bit.
Deb
doctor's appt general update
Re: doctor's appt general update
6/14 DX mCrc stage 4
7/14 R. hemicolectomy; 4/17 LN; liver res. peri met; repair to illiac artery
8/14 FOLFOX
10/14 PET recurrence LN; liver ? Peri met Continue FOLFOX
12/14 PET: stable .Liver only! FOLFOX
02/15 Liver resection. NED
03/15 foundation One testing - BRAF mutant
05/15 progression; Hilum node; both lungs?
08/15 NED !!!!
Age 51 Mum to Tom (RIP) and Jose 18
KIA KAHA - Be strong!
7/14 R. hemicolectomy; 4/17 LN; liver res. peri met; repair to illiac artery
8/14 FOLFOX
10/14 PET recurrence LN; liver ? Peri met Continue FOLFOX
12/14 PET: stable .Liver only! FOLFOX
02/15 Liver resection. NED
03/15 foundation One testing - BRAF mutant
05/15 progression; Hilum node; both lungs?
08/15 NED !!!!
Age 51 Mum to Tom (RIP) and Jose 18
KIA KAHA - Be strong!
Re: doctor's appt general update
I wish there was something else out there. Hell cheries post makes me want a vit C infusion 
tas-102 should be out soon. Does everyone get the nasty side effects of vectibix? Don't forget to pick up a tas 102 dispenser Michael.
tas-102 should be out soon. Does everyone get the nasty side effects of vectibix? Don't forget to pick up a tas 102 dispenser Michael.
Re: doctor's appt general update
Kenny, my Vectibix rash for pretty bad at one point but I had still rather deal with that than the diarrhea. It was clearing up just after my infusions so I suspect Dex was helping. Then it came back for about a week. 2 weeks ago I was prescribed oral antibiotics, then last week antibiotic ointment. They, or something else has worked great. I'm completely clear right now. Incidentally, I read that the severity of the rash indicated that the drug was working. I'll find out next week with a scan. My CEA has already started down.
Male Age 53. Dx CC with numerous liver mets 6/23/12. Colon res 6/24/12. Started folfox 7/24/12. Added avastin 8/27/12. CT 12/27/12 still showing shrink. Took 17 rounds of FOLFOX. Then 5-FU + Avastin. Switched to Irinotecan for 1 yr. CEA rose to >400. Switched to Vectibix 2/18/15. CEA decreasing. Scans show some growth in liver mets. Lung Mets stable to shrinking.
https://www.facebook.com/michael.stults2/about?ref=home_edit_profile§ion=work
https://www.facebook.com/michael.stults2/about?ref=home_edit_profile§ion=work
Re: doctor's appt general update
mstults wrote:Kenny, my Vectibix rash for pretty bad at one point but I had still rather deal with that than the diarrhea. It was clearing up just after my infusions so I suspect Dex was helping. Then it came back for about a week. 2 weeks ago I was prescribed oral antibiotics, then last week antibiotic ointment. They, or something else has worked great. I'm completely clear right now. Incidentally, I read that the severity of the rash indicated that the drug was working. I'll find out next week with a scan. My CEA has already started down.
I was wanting to ask about your Cea,nothing new popped up? Just mystery rise? Mine is now at 99 prior to first Folfiri. So I'm wondering if next test things will decrease.
Heck, I guess that rash would make it possible to pickup high school chicks
how's that for a bucket list item?I guess I told myself after Folfiri probably not going for any more hard stuff either, butt maybe one hit and see.
Re: doctor's appt general update
kennytwisted wrote:
I was wanting to ask about your Cea,nothing new popped up? Just mystery rise? Mine is now at 99 prior to first Folfiri. So I'm wondering if next test things will decrease.
When I started Vectibix CEA was 373. It had gone up over a 4 month period. After 3 Vectibix treatments it was down 148. That was 3/31. Was the last one I've had. Probably get another in 2 weeks. Last CT was in Jan. Was inconclusive. Report said tumors were hard to measure but impression was growth. I'm anxious about next weeks CT. Then get colonoscopy the following week.
Mike
Male Age 53. Dx CC with numerous liver mets 6/23/12. Colon res 6/24/12. Started folfox 7/24/12. Added avastin 8/27/12. CT 12/27/12 still showing shrink. Took 17 rounds of FOLFOX. Then 5-FU + Avastin. Switched to Irinotecan for 1 yr. CEA rose to >400. Switched to Vectibix 2/18/15. CEA decreasing. Scans show some growth in liver mets. Lung Mets stable to shrinking.
https://www.facebook.com/michael.stults2/about?ref=home_edit_profile§ion=work
https://www.facebook.com/michael.stults2/about?ref=home_edit_profile§ion=work
Re: doctor's appt general update
Good luck, Mike.
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Steph20021
- Posts: 553
- Joined: Sat Dec 27, 2014 4:58 pm
- Location: Ontario, Canada
Re: doctor's appt general update
Voxx this just appeared in my news feed....thought of you.
http://www.eurekalert.org/pub_releases/ ... 051215.php
http://www.eurekalert.org/pub_releases/ ... 051215.php
DX 1/31/14 @ 33- SPS-T4a(invades visceral peri), N2a(6/106 LN), M1a(ovary) (Stage 4a) MSS; BRAF V600E
2/1/14-subtotal col, lost R ovary, temp ileo
3/14-9/14- folfox; sepsis
11/14-CT/PET: L ovary met, pelvic met, (?)ghost liver met(?)
12/14-folfiri -13 rds kept me stable from 3/15-6/15
8/15-HIPEC, NED
09/15- cea 0.9
05/16- recurrence in abdo wall and lymph nodes
01/17- pulmonary embolism
02/17- 1 wk radiation to abdo wall
08/16- on folfiri
01/18-folfox
11/18- Beacon trial-encorafenib & cetuximab
2/1/14-subtotal col, lost R ovary, temp ileo
3/14-9/14- folfox; sepsis
11/14-CT/PET: L ovary met, pelvic met, (?)ghost liver met(?)
12/14-folfiri -13 rds kept me stable from 3/15-6/15
8/15-HIPEC, NED
09/15- cea 0.9
05/16- recurrence in abdo wall and lymph nodes
01/17- pulmonary embolism
02/17- 1 wk radiation to abdo wall
08/16- on folfiri
01/18-folfox
11/18- Beacon trial-encorafenib & cetuximab
Re: doctor's appt general update
Sorry to hear that, Voxx. I hope you find some options that are workable.
11/14 Dx sigmoid CC @ 45yo
12/14 Colectomy + hysterectomy
Stage IIIB, T3N1bM0, 2/20 nodes, MSS, G2, KRAS(A146T), TP53, SMAD4, ERBB2, CEA 1.0
2/15-7/15 XELOX & celecoxib
2/19 clean scope
11/19 clean CT
Ongoing cimetidine & other targeted supplements
Mom to a 6 & 8yo
12/14 Colectomy + hysterectomy
Stage IIIB, T3N1bM0, 2/20 nodes, MSS, G2, KRAS(A146T), TP53, SMAD4, ERBB2, CEA 1.0
2/15-7/15 XELOX & celecoxib
2/19 clean scope
11/19 clean CT
Ongoing cimetidine & other targeted supplements
Mom to a 6 & 8yo
Re: doctor's appt general update
Hate to imagine how you're feeling man. But enjoy that month off and roll on tas-102 and hopefully some good news for you.
11-13 Dx CC
SPS T4b(touched stomach organ),N1(3/23),M0(Stage 3B)
11-13: resect + partial gastrect
2-14: 1 Tx Cape + Oxy; renal failure, colitis
4-14: 7 Tx Capecitabine
1-15: clear CT
7-15: clear scope
1-16: clear CT
3-17: clear CT
10-17: clear scope (5 year gap now!)
CEA@dx: 8.4 / 6-15: 4.0 / 10-15: 4.2 / 2-16: 4.9 / 7-16: 4.9 / 11-16: 5.0 / 6-17: 4.5
NED since resection
SPS T4b(touched stomach organ),N1(3/23),M0(Stage 3B)
11-13: resect + partial gastrect
2-14: 1 Tx Cape + Oxy; renal failure, colitis
4-14: 7 Tx Capecitabine
1-15: clear CT
7-15: clear scope
1-16: clear CT
3-17: clear CT
10-17: clear scope (5 year gap now!)
CEA@dx: 8.4 / 6-15: 4.0 / 10-15: 4.2 / 2-16: 4.9 / 7-16: 4.9 / 11-16: 5.0 / 6-17: 4.5
NED since resection
Re: doctor's appt general update
Just remember, Cherie is using chemo and celecoxib too. In the right combinations, IV vitamin C appears to improve the anticancer effects of some drugs. IV vitamin C by itself is more limited in its cancer static and cidal capabilities, although reducing inflammation and destroying excess histamines that signal for more VEGF-A and angiogenisis.
watchful, active researcher and caregiver for stage IVb/c CC. surgeries 4/10 sigmoid etc & 5/11 para-aortic LN cluster; 8 yrs immuno-Chemo for mCRC; now no chemo
most of 2010 Life Extension recommendations and possibilities + more, some (much) higher, peaking ~2011-12, taper chemo to almost nothing mid 2018, IV C-->2021. Now supplements
most of 2010 Life Extension recommendations and possibilities + more, some (much) higher, peaking ~2011-12, taper chemo to almost nothing mid 2018, IV C-->2021. Now supplements
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Frenchie's Wife
- Posts: 959
- Joined: Sat May 04, 2013 1:01 pm
- Location: Alberta, Canada
Re: doctor's appt general update
Voxx, it may be time to have a little private chat. I will PM you.
Caregiver to DH 59 yr, male, Stage IV at Dx
Dx Sept 2009
Liver,bladder mets, 5 surgeries
Lots of chemo
Inoperable lung mets nov 2013
Stopped all treatments in February 2014 due to QOL issues
I am in God's hands now !!
Feb 2015 - too many new mets to count !
At peace July 9, 2017
Dx Sept 2009
Liver,bladder mets, 5 surgeries
Lots of chemo
Inoperable lung mets nov 2013
Stopped all treatments in February 2014 due to QOL issues
I am in God's hands now !!
Feb 2015 - too many new mets to count !
At peace July 9, 2017
Re: doctor's appt general update
Voxx- I'm so sorry, but I understand your decision to stop treatment for now. My DH is in the same boat....onc. doesn't recommend more chemo b/c Mack's QOL is really good right now. He's been off chemo for 2 months, and we've made some great memories during that time. Hard to think about more chemo right now. Stivarga is the option on the table, but I think DH will nix it. Grateful for good moments in the midst of a sad season. I wish you the very best in the days ahead. Pattie
Husband IIIC;
7/12 - resection; 12 rounds folfox
CT/PET scans 4/13, 9/13 - NED
CT scan 3/14 - liver/LN mets
5/2/14- failed liver resection - peri. mets.
6 rounds of iri/avastin
8/26/14 - failed liver resect/HIPEC. dse. progression
9/14 - 3/15 - progression on chemo
3/23/15 - treatment stopped; working the bucket list
7/12 - resection; 12 rounds folfox
CT/PET scans 4/13, 9/13 - NED
CT scan 3/14 - liver/LN mets
5/2/14- failed liver resection - peri. mets.
6 rounds of iri/avastin
8/26/14 - failed liver resect/HIPEC. dse. progression
9/14 - 3/15 - progression on chemo
3/23/15 - treatment stopped; working the bucket list
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jillbugs4110
- Posts: 266
- Joined: Thu Jul 31, 2014 3:36 pm
Re: doctor's appt general update
Hope your feeling well 
Live One Day At A Time
I Abandon myself to God
46 6 yo.....9yo...
stage 1V liver mets
my one prayer to got to sustain me to raise my two babies this is my only wish then take me out if needed.
I Abandon myself to God
46 6 yo.....9yo...
stage 1V liver mets
my one prayer to got to sustain me to raise my two babies this is my only wish then take me out if needed.
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midlifemom
- Posts: 1358
- Joined: Wed Jan 15, 2014 10:58 am
- Location: NJ
Re: doctor's appt general update
Enjoy your month off. 
Stage 3 cc - dx Jan '14 age 53, cea 2.9
t2n2m0, KRAS mutant, MSS
Folfox Feb - Aug '14
Nov '14 cea 27.7 -2 liver masses
Dec '14 left lobectomy and HAI
Jan '15 FUDR and FOLFIRI
Aug '15 fudr done, liver clear, add avastin for lungs. Cea 4.3
Feb '16 CEA rising
May '16 2 wk break then drop Iri for 6 weeks.
Jul '16 cancer grew, constricted main bile duct. Stent inserted. On break till jaundice clears. CEA climbing. Doing reduced Folfox. Allergic to Oxali.
Sep'16 chemo failed. Trial or hospice?
t2n2m0, KRAS mutant, MSS
Folfox Feb - Aug '14
Nov '14 cea 27.7 -2 liver masses
Dec '14 left lobectomy and HAI
Jan '15 FUDR and FOLFIRI
Aug '15 fudr done, liver clear, add avastin for lungs. Cea 4.3
Feb '16 CEA rising
May '16 2 wk break then drop Iri for 6 weeks.
Jul '16 cancer grew, constricted main bile duct. Stent inserted. On break till jaundice clears. CEA climbing. Doing reduced Folfox. Allergic to Oxali.
Sep'16 chemo failed. Trial or hospice?
Re: doctor's appt general update
rp1954 wrote:Just remember, Cherie is using chemo and celecoxib too. In the right combinations, IV vitamin C appears to improve the anticancer effects of some drugs.
Agree, it's a combination.
Voxx, I have your back %100 on QOL. Let's see what's up with TAS. I'm happy that you date and enjoy life, right now.
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