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Re: Really??!!??

Postby ams5796 » Wed May 06, 2015 9:00 pm

Keeping you in my thoughts, Bev. Wishing you the best.

Stage 3C (or 4?) Rectal Cancer 01/07
2/10 lung mets
3/11 VATS
6/11 VATS
7/13 lung met
2/14 SBRT
NED 8/14
5/17 scan and MRI found treated spine met

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Location: Portland, OR

Re: Really??!!??

Postby teachpdx » Wed May 06, 2015 9:07 pm

I'm so so sorry Bev. Keeping you in my happy happy thoughts. (((((( :) )))))))
4/24/12 RC T3N1M0 age 53
5/23-7/2 - 26 chemorad - Xeloda
7/16 Lynch- MSH2
8/28 LAR w/ temp ileo, CR, 0/11,M0, hysterectomy
10/13 6 cycles Xeloda - completed only 1 1/2 due to HFS
3/12/13 - reversal
8/13 NED
6/15 - HFS gone!

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Posts: 1604
Joined: Tue Apr 12, 2011 10:10 pm

Re: Really??!!??

Postby horizon » Wed May 06, 2015 9:44 pm

Feeling angry for you. Please keep us posted.
I'm just a dude who still can't believe he had a resection and went through chemo (currently 9 years NED). Is this real life?

michelle c
Posts: 1912
Joined: Wed Dec 02, 2009 3:58 am

Re: Really??!!??

Postby michelle c » Wed May 06, 2015 10:44 pm

No!!!! I hate that you received this news Bev. I hoping that it's benign. Please keep us informed - in the meantime I'll be thinking about you. Sending you much love, peace and strength across the miles. Love you Bev ❤️❤️
Last edited by michelle c on Wed May 06, 2015 10:49 pm, edited 1 time in total.
25 May 09 Dx with CC (sigmoid colon) 2 days after my 44th b'day
CEA prior to surgery 4.7
3 Jun 09 LAR - Stage III 3/10 lymph nodes
6 Jul - 10 Dec 09 12 cycles FOLFIRI
Genetic testing - inconclusive for Lynch
Jul 12 port removed & hernia repair

Posts: 612
Joined: Wed May 14, 2014 1:32 am

Re: Really??!!??

Postby Stanfordmom » Wed May 06, 2015 10:48 pm


sorry to hear this. Hope it is not malignant.

keeping you in my thoughts and prayers.

DX 4/2/2014 at 44, stage 4, mets liver and ovaries
Mom to 2 boys
Three surgeries, HAI pump and lots of chemo

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Joined: Tue Feb 12, 2013 7:06 pm

Re: Really??!!??

Postby j'swife » Wed May 06, 2015 10:54 pm

I'm joining the branch of your CC 'family' that is opting for denial until proven malignant and simultaneously outraged and hurting that your ''cured' milestone has been blown up by this terror and disappointment.
Try to let us carry some of the worrying.
DH 63 12/12 unresectable liver mets. 2/13 Ffx-Avstn fail. 4/13 HAI pump@MSK. 8/13 mets 50%;Resectn & LAR 10/13.NED! Folfiri & FUDR. reversal 4/14. 3 lvr spots 10/14. 5FU+FUDR. 5/15 resectn/IRE . 7/15 lung 'thingy' 9/15. FUDR, Xeloda. HFS. 2/16 RFA of lung met. FUDR/IRI. 4/16 2 lung 1pelv spots. XEL, stop FUDR. 6/16 RFA 2of 3 mets. XEL. D.10/3/2016 of infection post surgery to remove aortic clots (rare Budd-Chiari syndrome) in local hospital. HAI success! then blindsided...

Deborah Ann
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Joined: Mon Dec 01, 2014 2:13 pm

Re: Really??!!??

Postby Deborah Ann » Wed May 06, 2015 11:03 pm

Oh no words....I'm hoping maybe someone just misread the CT scan...Don't panic to much until at least all the tests come back...

Nik Colon

Re: Really??!!??

Postby Nik Colon » Thu May 07, 2015 1:21 am

So sorry for the news :( hoping for the best! (((Hugs)))

Iitg ritesh
Posts: 173
Joined: Mon Aug 25, 2014 7:11 am
Location: WA

Re: Really??!!??

Postby Iitg ritesh » Thu May 07, 2015 2:49 am

This cann't be true :x
32yo Dx@rectal cancer 05/10/13, CEA 3.4
chemoradiation, xeloda finished on 02/12/13
LAR surgery 22/01/14, pT3N0, 0/3 nodes, folfox 02/14--06/14 , 8 cycles folfox, 4 cycles of xeloda
Stricture due to radiation, diversion colitis
Reversal 14/10/14

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Facebook Username: Trilly

Re: Really??!!??

Postby trillium50 » Thu May 07, 2015 5:27 am

Sorry to hear Bev, this bloody disease is damn unpredictable ! All the best and hope they get the nasty buggers out x

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Facebook Username: Diane Weldy Tavegia
Location: Villa Rica, Georgia

Re: Really??!!??

Postby dianetavegia » Thu May 07, 2015 7:11 am

I saw your Facebook post after church last night and just was so upset and still am BUT I did a lot of searching and saw where a huge number of pages say these can be benign yet in areas where they must be removed for safety.

I'm praying these ARE benign growths! You and your family have just gone through so much and it's time for all good news, so I'm going to pray and pray that these are totally benign, easily removed and that you have NO problems at all with your sugar or any other conditions during this time.

I actually read one report/ paper of a 71 year old man who presented with a CT showing huge masses that turned out to be scar tissue growth from surgery 55 years previous. We can HOPE!!

We love you sweetie! You're always so strong for us and made it through such an awful time with your husband's illness, moving and all that paperwork. I want this to be an easy fix for you.

Big hugs and lots of love,
Stage III cc surgery 1/7/09. 12 tx FOLFOX
Stage IV PET = 1.5cm liver met. HR 4/11/12

11 years since dx and 7 3/4 years post liver resection.
Pronounced CURED and discharged by onc

“O Lord my God, I cried out to You, And You healed me.” Psalms 30:2

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Re: Really??!!??

Postby cashmere » Thu May 07, 2015 7:22 am

Bev, I am so sorry to hear this news….

You so deserved to hear "you are cured"!!!!!

I will be thinking of you and please keep us updated.

Love to you
Stage III
Diagnosed 4/07 at 51
36 rad/24/7 chemo bag
surg 9/07
6 mon chemo w/48 hr bag
ileo reversal 5/08
NED since 9/07!!
Just resolved my 13th blockage
Been able to control blockage issues with fiber supplements!!

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Joined: Thu May 13, 2010 5:58 pm
Location: Midwest

Re: Really??!!??

Postby Cj51 » Thu May 07, 2015 7:35 am

Oh, Bev. I feel angry and sad and...ANGRY. What the heck. You deserve a break from cancer. I'm so sorry to hear this, but like everyone, I'm hoping it turns out to be nothing to worry about.
DX Stage IIIb RC, T3N1M0, April 2010, 51
6 wks Xelox/rad 6/10
resection, temp illeostomy 8/10 Complete response!
12 rounds FOLFOX for clean up 9/10, Allergic to Oxi, started Xeloda only 12/10
Ileo takedown 9/28/11
4/2020 NED

Posts: 263
Joined: Fri Aug 17, 2012 7:11 pm
Location: Atlanta, Ga.

Re: Really??!!??

Postby mackswife » Thu May 07, 2015 8:16 am

Bev - I cannot wrap my mind around this news. I have no words other than you are very much in my thoughts and prayers.
May all the encouragement, strength and support you've given to others on this board come back to you, 1,000 times over.

Husband IIIC;
7/12 - resection; 12 rounds folfox
CT/PET scans 4/13, 9/13 - NED
CT scan 3/14 - liver/LN mets
5/2/14- failed liver resection - peri. mets.
6 rounds of iri/avastin
8/26/14 - failed liver resect/HIPEC. dse. progression
9/14 - 3/15 - progression on chemo
3/23/15 - treatment stopped; working the bucket list

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Facebook Username: lori wert bekefi

Re: Really??!!??

Postby lorezluved » Thu May 07, 2015 8:20 am

I have no words to speak. Just shocked!! Hope it is not the dreaded C. WE will keep the faith until we get concrete news!!
june 2009 dx stage 3
May 2011 mets lungs
Mom to 3

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