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Re: Really??!!??

Postby mom_2_3 » Wed May 06, 2015 12:48 pm


I read all the time but hardly post. Your thread just brought me to my knees and I felt compelled to login and write. This just really sucks. I can't, no I refuse, to believe it. Please know that someone way south of you in NJ is thinking of you and praying that this is truly nothing.

Sending you virtual hugs,
CC discovered during c-section (11/4/08)
Diagnosed Stage IV 11/10/08 -- Happy 39th Birthday! 5 bilobar liver mets
02/09: Colectomy, liver resection, HAI pump implanted, 7 of 42 nodes
7 months of FUDR and 5FU ended 11/2/09
10 years NED.

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Facebook Username: Betsy Lindh Williams
Location: Maryland - outside DC

Re: Really??!!??

Postby betsydoglover » Wed May 06, 2015 1:10 pm

Bev -

I'm so very sorry. :cry: Hopefully it will turn out to be something that is manageable. It seems we can never be really free of the cancer worry.

Good luck with PET scan,
diag. Stage IV, 5/05, liver met
lap sigmoid colectomy, 6/05
6 cycles Xeloda/oxaliplatin/Avastin (NED after 2)
11/08 9x13mm right lower lobe lung nodule; removed via VATS 4/09
6 cycles Xeloda + Avastin
Avastin only 10/09-5/11
Still NED 06/18

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Bev G
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Facebook Username: Bev Golde
Location: Quechee, VT

Re: Really??!!??

Postby Bev G » Wed May 06, 2015 1:11 pm

Thank you all! This board and my board "family" has never ceased to bring me peace and strength--didn't quite think I'd need it this late in the game, butt whatever :-)

Love you all.
58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo

9/13 ^17th clean PET/CT NED for now

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Location: The Hague, Netherlands

Re: Really??!!??

Postby Annemiek » Wed May 06, 2015 1:30 pm

Oh boy oh boy oh boy, I so hope that it's something different! Fingers crossed you don't have to be back in the trenches!


43 yr mum of a girl aged 7
10/2014 coloncancer stage IIIc
11/2014 HIPEC, tumor removed + 12 positive out of 60 ln
hysterectomy, abdominal lining partly removed
Peridonitus, stoma fitted, 6 abcesses drained in abdomen
MSS, kras
3/2015 Folfox, someones playing kill Bill inside me
9/2015 finished 12 rounds,
First scan results: NED!!!!!!!!!
4/2016 ct scan: NED!!!
7/2016 ultrasound: NED
10/2016 cr scan: NED
5/2017 ultrasound: NED 2,5 yrs!
CEA 8/2017 1.8 stable.
CT scan 11/2017 NED! 3 yrs
CEA 1.9

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Location: Central NYS

Re: Really??!!??

Postby BrownBagger » Wed May 06, 2015 1:37 pm

Well, Bev--you know the routine. Don't panic until you have to.

This sucks on so many levels. When I think about beating this disease, you're always the first one to come to mind. Right before Fletch and Juliej.

Not a whole lot of us left from the "Class of '09." Most of us who didn't get cured, got killed.

Seriously, wishing you all the best and that this is all about nothing. Could be that Vermont water, you know. ... ients.html
Eric, 58
Dx: 3/09, Stage 4 RC
Recurrences: (ongoing, lung, bronchial cavity, ribs)
Major Ops: 6/ RFA: 3 /bronchoscopies: 8
Pelvic radiation: 5 wks. Bronchial radiation—brachytheray: 3 treatments
Chemo Rounds (career):136
Current Chemo Cocktail: Xeloda & Erbitux & Irinotecan biweekly
Current Cocktail; On the Wagon (mostly)
Bicycle miles post-dx 10,477
Motto: Live your life like it's going to be a long one, because it just might, and then you'll be glad you did.

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Location: Columbus, OH

Re: Really??!!??

Postby Jack&KatiesMommy » Wed May 06, 2015 1:39 pm

Oh Bev...I am so sorry. I am praying that these are benign.
Mommy to Jack (8) now (17) and Katie (4) now (13)
(My Most Precious Things)
Dx 8/11 Stage IV CRC (liver mets) CEA 2,600+
9/11 Folfiri 2/12: Failed Liver Resection
5/12 HAI pump/removed primary
4/13 Liver Resection
8/13-12/15 (10) RFAs lungs
5/17: Upper Left Lobe of lung resected.
02/18: 3 new lymph mets lung
05/18: Keytruda (MSS w/Intermediate TMB): NED CEA: 66.4, 39.2, 23.8, 13, 3.5 1.8, 1.0, 2.8 3.9, 5.0, 5.6, 1.5, .8,

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Re: Really??!!??

Postby wifenurse » Wed May 06, 2015 1:58 pm

I haven't been on this website for quite awhile and for some reason today I thought I should take a look. So very sorry to see this post. Will be saying my prayers for you as you move forward in your workup. Cancer is never a good thing, but I remember a thoracic surgeon years ago telling me that a new primary would be better news for the patient than metastatic disease as if you can catch primary cancer early it can be very cureable. Will be praying for positive news for you!
Wife of Jayson, diagnosed Oct 2009 CRC - age 39
Radiation & Chemotherapy Nov-Dec 2009
Colon & Liver resection Feb 2010 - Stage IV
Folfox + Avastin X 12 treatments - finished Aug 2010
NED 10/10, 1/11, 7/11, & 12/11

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Joined: Sun Aug 28, 2011 5:25 pm

Re: Really??!!??

Postby lauragb » Wed May 06, 2015 2:26 pm

Bev, I saw your post on Facebook too. This is just wrong. I'm surprised whatever it is has grown so quickly and hope that means it is just inflammation. My oncologist also stated what Christy said, that if it is an early detected primary, that is better than having mets. I was supposed to have my PET yesterday to check my nodules, but long story, it didn't happen. So, I am also in the waiting game. I hope you can try not to worry too much until you know what you're dealing with and that your tests are soon. I know you'll keep everyone posted. So many people care about you.
RC 3B 7/2011 @ 53
Chemoradiation 5 weeks 8/11
LAR-Hysterect-temp ileo
pCR, 0/23 nodes
Folfox 1/12, Xeloda 2/12 to 5/12
Reversal 5/12
SBO,lysis of adhesions 12/12
NED 11/12, 11/13, 6/16

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Location: PNW/USA

Re: Really??!!??

Postby bitchslapped » Wed May 06, 2015 2:30 pm

Bev, Best wishes to you! I'm w/Vilca, till the tests are in, you just don't know. Very hard to hear just the same.

DSS,35YO,unresect mCRC DX 7/'14,lvr,LN,peri,rib
FOLFOX+Avstn 4 Rnds d/c 10/'14
Stent 9/'14
FOLFIRI+Avstn 10/'14
Gone From My Sight 2/20/15
Me:garden variety polyps + precancerous polyp, diverticulitis
Carergver x2 DH,DM dbl occupancy,'03-'10
DH dx 47YO mCRC,'04-'07 fried x HAI
DM dx CC 85YO,CC,CHF,stroke,dementia,aphasia

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Joined: Sun Jan 15, 2012 11:42 am

Re: Really??!!??

Postby Badass » Wed May 06, 2015 2:50 pm


This completely and totally sux, even if it turns out to be nothing (which I deeply hope); that your world is turned upside down over cancer for even another second is totally WRONG!!!! :evil:
R.C. 12/23/11 at age 52 T3N0M0
3/1/12 completed Xeloda and radiation
5/4/12 LAR & Ileostomy
6/7/12-10/4/12 6 rounds Xelox
11/27/12 Reversal
7/13/13 1 liver met
8/13 Met resection /hai pump
4/14 Chemo completed (Irinotecan/5fu/fudr in pump)

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Facebook Username: Phuong Ly Gallagher

Re: Really??!!??

Postby Phuong » Wed May 06, 2015 3:12 pm

You would think that after all these years, I'd have learned not to check posts at work. I am so angry that you have to go through all the stress and anxiety again, especially when you were supposed to get your all clear. Well, you know the drill. We're here for you with love, hugs, prayers and good mojo. XOXO
dx'd Stage III Rectal (T3 N1 M0)
Now Stage IV mCRC

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Joined: Mon Apr 21, 2014 8:39 pm

Re: Really??!!??

Postby cmrl » Wed May 06, 2015 3:49 pm

What can I say....I'm hoping this turns out to be a false alarm. You deserve a break.
Resection of splenic flexure 7/24/13
T3N2BM0, Stage 3c,12/29 nodes
Folfox x12 9/13-3/14
CT scan 4/14, enlarged spleen, otherwise clear
CT 4/15, spleen WNL.
6/17 3 cm benign polyp at ileocecal valve, awaiting removal

Posts: 2598
Joined: Mon Dec 17, 2012 12:12 pm

Re: Really??!!??

Postby skypup » Wed May 06, 2015 4:03 pm

No. No. No. No. No. I will not believe this until I have to. Bev, I'm holding you close.

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Re: Really??!!??

Postby CRguy » Wed May 06, 2015 4:26 pm

Sucknitude having to face the challenges again Bev, and the hurry up and wait routine for tests and stuff.

Sending POSI ++++ VIbes for Negative results.

Harmony my friend
Caregiver x 4
Stage IV A rectal cancer/lung met
14 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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Joined: Sat Dec 17, 2011 7:17 am
Location: New Jersey

Re: Really??!!??

Postby esk2poo » Wed May 06, 2015 4:46 pm

This really does suck and I'm down here in Jersey too saying prayers and swinging those chickens so hard their feet are coming off.
Dx 8/23/11 stage 3b crc
3 of 11 LN's
resection 9/15/11
folfox start 10/31/11 12 sessions
De-ported 6/2012
clear CT 7/2012
Clear colonoscopy 9/2012

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