Really??!!?? UNEXPECTED GOOD NEWS!

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NZJay
Posts: 640
Joined: Mon Dec 16, 2013 3:00 pm
Location: NZ

Re: Really??!!??

Postby NZJay » Tue May 12, 2015 4:29 pm

Sending 105% of my positive thoughts in your direction. May the outcome be as good as possible.
11-13 Dx CC
SPS T4b(touched stomach organ),N1(3/23),M0(Stage 3B)
11-13: resect + partial gastrect
2-14: 1 Tx Cape + Oxy; renal failure, colitis
4-14: 7 Tx Capecitabine
1-15: clear CT
7-15: clear scope
1-16: clear CT
3-17: clear CT
10-17: clear scope (5 year gap now!)
CEA@dx: 8.4 / 6-15: 4.0 / 10-15: 4.2 / 2-16: 4.9 / 7-16: 4.9 / 11-16: 5.0 / 6-17: 4.5
NED since resection

Deborah Ann
Posts: 30
Joined: Mon Dec 01, 2014 2:13 pm

Re: Really??!!??

Postby Deborah Ann » Tue May 12, 2015 11:00 pm

Still thinking about you and praying for some decent news...my first CT scan was not read right...said my cancer was already in my lymph nodes...it was not...but that news devastated me until it was proven wrong. Hope there is some better news for you with a PET scan...
Hang in there..

ammthere 4mom
Posts: 218
Joined: Tue Sep 07, 2010 8:37 pm

Re: Really??!!??

Postby ammthere 4mom » Wed May 13, 2015 12:04 am

Bev,

So sorry that you are dealing with this and waiting on scans. I am sending you tons of good vibes and know that you are in my thoughts and prayers!

Much love to you!

Anne-Marie
Daughter and caregiver to mom, 72 @ dx in 7/09
Stage IV with mets to liver and lung
8/09-7/12: 24 rounds of Folfiri + 12 rounds Folfox
2013: Zeloda and Stivarga, then 36 rounds of 5FU
10/2014 back to Folfiri

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Annemiek
Posts: 304
Joined: Tue Apr 07, 2015 4:05 am
Location: The Hague, Netherlands

Re: Really??!!??

Postby Annemiek » Wed May 13, 2015 1:30 am

Bev,
Hope you get some decent results with a good outcome plan. I don't get the chicken thing but I'm happy to swing a "kip" ( dutch) or to, does it need to be in your direction?
Only free range ones though!!!

Hug
Annemiek

43 yr mum of a girl aged 7
10/2014 coloncancer stage IIIc
11/2014 HIPEC, tumor removed + 12 positive out of 60 ln
hysterectomy, abdominal lining partly removed
Peridonitus, stoma fitted, 6 abcesses drained in abdomen
MSS, kras
3/2015 Folfox, someones playing kill Bill inside me
9/2015 finished 12 rounds,
First scan results: NED!!!!!!!!!
4/2016 ct scan: NED!!!
7/2016 ultrasound: NED
10/2016 cr scan: NED
5/2017 ultrasound: NED 2,5 yrs!
CEA 8/2017 1.8 stable.
CT scan 11/2017 NED! 3 yrs
CEA 1.9

Delinda2
Posts: 483
Joined: Fri Jan 16, 2015 6:28 pm
Location: Washington state

Re: Really??!!??

Postby Delinda2 » Wed May 13, 2015 7:41 am

Swinging chickens all day long. XXOXO, Delinda
63 yrs,wife & mom
4/14 dx colon cancer,3C,9/22 nodes
Lymphatic,venous,&perineural invasion
<1cm margin,poorly differentiated
6/14 colostomy take down
7/14 FOLFOX w/9 Nulasta shots
2/16 dx new primary of sigmoid colon
6/16 surgery-rescection on sigmoid, total hysterectomy, temp ileo, stage 4
"I AM the storm."

KWT
Posts: 3214
Joined: Thu Jul 11, 2013 7:22 pm

Re: Really??!!??

Postby KWT » Wed May 13, 2015 8:26 am

Annemiek wrote:Bev,
Hope you get some decent results with a good outcome plan. I don't get the chicken thing but I'm happy to swing a "kip" ( dutch) or to, does it need to be in your direction?
Only free range ones though!!!

Hug
Annemiek


Anne, they're are many ways to swing a chicken.

Image
Image

Regan
Posts: 249
Joined: Sun Mar 02, 2014 11:58 pm

Re: Really??!!??

Postby Regan » Wed May 13, 2015 10:35 am

Bev????
DH dx 7/12
Stg IV RC liver mets
11/12 Hrt Attk by Folfox
1/13 Liver resct
4/13 LAR-Temp
NED
1/14 revrsal
4/14 Hrnia surg 4/14
1/15 local recur, liver, lung, aortocaval region of retroperitoneum, anterior wall of distal abdominal aorta
2/15 Irinotecan
1/16 Lonsurf (fail--just zapped. Strength)
Aug 10, 2016 at rest

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Bev G
Posts: 5856
Joined: Thu Jan 07, 2010 11:19 pm
Facebook Username: Bev Golde
Location: Quechee, VT

Re: Really??!!??

Postby Bev G » Wed May 13, 2015 11:40 am

Hi kids,

I apologize in advance if I've already posted this here. I get confused about what I've posted on Facebook or what I've posted here.

I had the PET/CT yesterday, butt won't get any results until next Monday when I will get pulmonary function tests, meet the new oncologist and have a bronchoscopy/biopsy. BIG day coming up!

I was finally able to read the CT results from last week, and am feeling very reassured. I almost certainly DO NOT have lung cancer. What I do have is a large mediastinal node located directly adjacent and in between two major arteries (can't remember which ones right now). Node was characterized as "mild" (don't know what that means). There is nothing abnormal in my abdomen (despite what my husband said my onc said!!??!) I've got all my lab work back and it is just fine (CEA 4.2--stable for me). My white count was very slightly elevated which might reflect some sort of infectious thing---so maybe this is just a node doing what it's supposed to do if I have a low grade infection. :D

My feeling is that if indeed represents a new cancer that it would most likely be a lymphoma. The PET/CTs I've had over the years represent the equivalent radiation of >13,000 chest x-rays. That's A LOT of radiation, and lymphomas can be a consequence of that. I'm not that scared of lymphoma. I got lots of experience with it after DH was diagnosed with stage IV lymphoma, and he's doing well after his bone marrow transplant. I love ironic things, and while this would be the ultimate irony, I'm not looking forward to the possibility.

Anyhow, I'm feeling much less scared and am pretty calm waiting for these results. I'm sleeping a lot, butt that's my main defense in coping with the wait.

Love you all,

Bev
58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo

9/13 ^17th clean PET/CT NED for now

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Annemiek
Posts: 304
Joined: Tue Apr 07, 2015 4:05 am
Location: The Hague, Netherlands

Re: Really??!!??

Postby Annemiek » Wed May 13, 2015 11:43 am

ah kenny,
I was more thinking along this line, think bev might like some distraction of a different kind,
Image
Image

:lol:
Anne

43 yr mum of a girl aged 7
10/2014 coloncancer stage IIIc
11/2014 HIPEC, tumor removed + 12 positive out of 60 ln
hysterectomy, abdominal lining partly removed
Peridonitus, stoma fitted, 6 abcesses drained in abdomen
MSS, kras
3/2015 Folfox, someones playing kill Bill inside me
9/2015 finished 12 rounds,
First scan results: NED!!!!!!!!!
4/2016 ct scan: NED!!!
7/2016 ultrasound: NED
10/2016 cr scan: NED
5/2017 ultrasound: NED 2,5 yrs!
CEA 8/2017 1.8 stable.
CT scan 11/2017 NED! 3 yrs
CEA 1.9

Steph20021
Posts: 553
Joined: Sat Dec 27, 2014 4:58 pm
Location: Ontario, Canada

Re: Really??!!??

Postby Steph20021 » Wed May 13, 2015 11:46 am

Hi Bev, I don't know much about lymphoma bug it sounds like you are quite familiar with it already. I'm happy to hear you are sleeping and resting up, and you seem to be coping and handling this remarkably well. I'll be praying that it's just a node doing what nodes do. You are in my thoughts. Thanks for sharing the update with us.
DX 1/31/14 @ 33- SPS-T4a(invades visceral peri), N2a(6/106 LN), M1a(ovary) (Stage 4a) MSS; BRAF V600E
2/1/14-subtotal col, lost R ovary, temp ileo
3/14-9/14- folfox; sepsis
11/14-CT/PET: L ovary met, pelvic met, (?)ghost liver met(?)
12/14-folfiri -13 rds kept me stable from 3/15-6/15
8/15-HIPEC, NED
09/15- cea 0.9
05/16- recurrence in abdo wall and lymph nodes
01/17- pulmonary embolism
02/17- 1 wk radiation to abdo wall
08/16- on folfiri
01/18-folfox
11/18- Beacon trial-encorafenib & cetuximab

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Annemiek
Posts: 304
Joined: Tue Apr 07, 2015 4:05 am
Location: The Hague, Netherlands

Re: Really??!!??

Postby Annemiek » Wed May 13, 2015 11:48 am

I'm so glad for you Bev!! It seems like good news, although I'm not sure what you're supposed to do with a mild node ? Hope you will find out soon with the Petscan!
Glad you are reassured though!!
Sorry to clutter up your topic in reply to Kenny's chicken, couldn't resist..

Anne

43 yr mum of a girl aged 7
10/2014 coloncancer stage IIIc
11/2014 HIPEC, tumor removed + 12 positive out of 60 ln
hysterectomy, abdominal lining partly removed
Peridonitus, stoma fitted, 6 abcesses drained in abdomen
MSS, kras
3/2015 Folfox, someones playing kill Bill inside me
9/2015 finished 12 rounds,
First scan results: NED!!!!!!!!!
4/2016 ct scan: NED!!!
7/2016 ultrasound: NED
10/2016 cr scan: NED
5/2017 ultrasound: NED 2,5 yrs!
CEA 8/2017 1.8 stable.
CT scan 11/2017 NED! 3 yrs
CEA 1.9

peanut_8
Posts: 2340
Joined: Sun May 25, 2014 1:31 pm

Re: Really??!!??

Postby peanut_8 » Wed May 13, 2015 11:50 am

Really glad to hear that, Bev. Maybe this swinging chickens has some value after all. We could start our own clinical trial. :shock:
peanut
female, diagnosed Jan 14, RC stage 2a, age 56
MSS
April 14, 28 chemo/rad with Xeloda
June 14 adjuvant Xeloda 6 rounds
currently NED

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NZJay
Posts: 640
Joined: Mon Dec 16, 2013 3:00 pm
Location: NZ

Re: Really??!!??

Postby NZJay » Wed May 13, 2015 1:38 pm

Sounds promising! So were the several large mediastinal masses a communication error? One "mild?!" sounds a lot less scary than several.
Fingers crossed for standard node function causing a very scary false alarm :-)
11-13 Dx CC
SPS T4b(touched stomach organ),N1(3/23),M0(Stage 3B)
11-13: resect + partial gastrect
2-14: 1 Tx Cape + Oxy; renal failure, colitis
4-14: 7 Tx Capecitabine
1-15: clear CT
7-15: clear scope
1-16: clear CT
3-17: clear CT
10-17: clear scope (5 year gap now!)
CEA@dx: 8.4 / 6-15: 4.0 / 10-15: 4.2 / 2-16: 4.9 / 7-16: 4.9 / 11-16: 5.0 / 6-17: 4.5
NED since resection

vickitwo
Posts: 696
Joined: Thu Apr 26, 2012 9:56 am
Location: USA

Re: Really??!!??

Postby vickitwo » Wed May 13, 2015 2:22 pm

So glad that it is sounding better than expecting. I sure do like Kenny's chicken on a swang thang. Will keep those chickens swinging for you.
Vicki

DH Dx 1/2012 @ age 52
stage IV CC
transverse colon,omentum, cecum,liver,lungs,L5
9 rounds of Folfox, Avastin,
5FU/Leucovorin/Avastin
radiation tx to L5 and hips
Folfiri/Zaltrap
12/13/13 Folfox/Avastin
1/4/2014 passed away @ Hospice House- age 54

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dianetavegia
Posts: 2724
Joined: Sat May 16, 2009 8:47 pm
Facebook Username: Diane Weldy Tavegia
Location: Villa Rica, Georgia

Re: Really??!!??

Postby dianetavegia » Wed May 13, 2015 2:45 pm

This sounds like REALLY good news! Praying that some virus thingy has caused that swelling or that it was a mis reading.

Oh I am so happy to see this! I am just thrilled.

Now praying still and praying for Kathi M!!
Stage III cc surgery 1/7/09. 12 tx FOLFOX
Stage IV PET = 1.5cm liver met. HR 4/11/12

11 years since dx and 7 3/4 years post liver resection.
Pronounced CURED and discharged by onc

“O Lord my God, I cried out to You, And You healed me.” Psalms 30:2


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