Really??!!?? UNEXPECTED GOOD NEWS!
Re: Really??!!??
Just so heart sick over your potential news. You have such an amazing heart and spirit. Everything in me is screaming NO!!! I'm very sorry and very much hoping its a scare and nothing more.
Daughter to Mom, age 71
Dx 10/14 RC - T3bN1bM0
Chemoradiation til 1/15
Surgery 2/15
Temp ileostomy
Failed Xelox round 4/15
1 round straight Xeloda 5/15 - discontinued
Ileo reversal 5/15
8/15 more Xeloda
Dx 10/14 RC - T3bN1bM0
Chemoradiation til 1/15
Surgery 2/15
Temp ileostomy
Failed Xelox round 4/15
1 round straight Xeloda 5/15 - discontinued
Ileo reversal 5/15
8/15 more Xeloda
Re: Really??!!??
Just checking in today Bev after being AWOL a few days and saw your post 
Crap, crap, crap. Aside from the cancer bullshit, don't be taking no bullshit from your husband either! As you said to him...."shut up or get the f... out!" I'm paraphrasing of course!
Best to you from your old neck of the woods in Pa.
Rob
Crap, crap, crap. Aside from the cancer bullshit, don't be taking no bullshit from your husband either! As you said to him...."shut up or get the f... out!" I'm paraphrasing of course!
Best to you from your old neck of the woods in Pa.
Rob
dx 11/07 crc IIIb @ 39
Xelox/Rad/ temp colostomy
LAR/J-pouch/ temp ileo
Folfox-8
Failed reversal
2/09 liver mets; liver resect/ileo reversal
Folfiri/Avastin - 12
2/11 5 lung mets
Folfiri/Avastin 2011
SBRT 3/12
Lung met 5/13/ said NO to more chemo
SBRT 8/13
2 lung mets 5/14, VATS 8/14, NED
Xelox/Rad/ temp colostomy
LAR/J-pouch/ temp ileo
Folfox-8
Failed reversal
2/09 liver mets; liver resect/ileo reversal
Folfiri/Avastin - 12
2/11 5 lung mets
Folfiri/Avastin 2011
SBRT 3/12
Lung met 5/13/ said NO to more chemo
SBRT 8/13
2 lung mets 5/14, VATS 8/14, NED
Re: Really??!!??
I hate this Bev,
There are no words.
Cancer sucks and pisses me off!
Kpjpmom
There are no words.
Cancer sucks and pisses me off!
Kpjpmom
DX March 2011 stg 3 cc
Kidney cancer May 2011
Folfox 6months (12 rnds)
It's Back! October 2012 colon resection, kidney removed.FOLFIRI/Erbitux starts Jan.2013
Completed FOLFIRI June 2013, Erbitux continues
March 2015 Met to spine. Radiation 15 treatments
Folfri, 5fu dropped after 3x, Erbitux and Iri continued CEA rising. Moved to
Folfox, Xeloda,Avastin until Feb. 2016 oxilap. Neuropathy returns.
Xeloda,Avastin continues.
Kidney cancer May 2011
Folfox 6months (12 rnds)
It's Back! October 2012 colon resection, kidney removed.FOLFIRI/Erbitux starts Jan.2013
Completed FOLFIRI June 2013, Erbitux continues
March 2015 Met to spine. Radiation 15 treatments
Folfri, 5fu dropped after 3x, Erbitux and Iri continued CEA rising. Moved to
Folfox, Xeloda,Avastin until Feb. 2016 oxilap. Neuropathy returns.
Xeloda,Avastin continues.
-
tammylayne
- Posts: 2177
- Joined: Fri Jul 16, 2010 9:24 am
Re: Really??!!??
No. Nope. Not Happening. Nada.
Not gonna believe it Miss Bev....hugs, hugs and more hugs.....
Not gonna believe it Miss Bev....hugs, hugs and more hugs.....
51 F
'06 Stage 1 CC,
'10 Stage 3 Rectal
"You never know how strong you are until you have to become your own hero."
'06 Stage 1 CC,
'10 Stage 3 Rectal
"You never know how strong you are until you have to become your own hero."
-
thiemanndi
- Posts: 79
- Joined: Fri Feb 06, 2009 9:49 pm
- Facebook Username: Dianne Bottomley Thiemann
- Location: Canada
Re: Really??!!??
Dear Bev, I am waiting, watching and praying with all my heart!!
09/2003 Dx Rectal Ca
10/2003 surgery & temp ileo
extremely low anastamosis
12/2003-06/2004 Chemo (5fu) & chemo/radiation
multiple obstructions beginning Oct 2011
Not coping so well anymore!
Reconstructive Surgery Scheduled for October 13 2016
10/2003 surgery & temp ileo
extremely low anastamosis
12/2003-06/2004 Chemo (5fu) & chemo/radiation
multiple obstructions beginning Oct 2011
Not coping so well anymore!
Reconstructive Surgery Scheduled for October 13 2016
Re: Really??!!??
Hi Bev,
No. Just no. Hoping that there is an 'easy' way to sort answer for this latest turn of events. You've been through way more than your share of crap over the last few years...
Will be thinking of you and sending you positive thoughts.
Georgie
No. Just no. Hoping that there is an 'easy' way to sort answer for this latest turn of events. You've been through way more than your share of crap over the last few years...
Will be thinking of you and sending you positive thoughts.
Georgie
Nuclear Medicine/PET Tech
Stage 3 T4N1M0 Rectal Ca diag 1/11 at age 29
Clinical trial (chemoradiation) 12 wks incl FOLFOX
Surgery 14 June '11
Post op infection
Iliostomy reversal 12 Sept '11
NED 6 years!
2017 Stage II Breast cancer triple positive
BRCA2 mutation
Bilateral mastectomy, chemo, herceptin
Stage 3 T4N1M0 Rectal Ca diag 1/11 at age 29
Clinical trial (chemoradiation) 12 wks incl FOLFOX
Surgery 14 June '11
Post op infection
Iliostomy reversal 12 Sept '11
NED 6 years!
2017 Stage II Breast cancer triple positive
BRCA2 mutation
Bilateral mastectomy, chemo, herceptin
Re: Really??!!??
Dear Bev
Thinking of you ! Sending love and prayers your way.
Thinking of you ! Sending love and prayers your way.
Dx@45 stage t3 n1b m unknown IIIB
Resected in 8/2010 rectosigmoid
5.5 tumor with 3 /26 lymph nodes
Lymph vascular invasion
Folfox sept 2010 to feb 2011
10 tx only stopped due to low wbc
Resected in 8/2010 rectosigmoid
5.5 tumor with 3 /26 lymph nodes
Lymph vascular invasion
Folfox sept 2010 to feb 2011
10 tx only stopped due to low wbc
Re: Really??!!??
Hi Bev,
Thinking about you this evening. Hope your day has gone a little better today than yesterday, and you are starting to gather details of a plan of action to deal with your situation. You have been so generous here on the Colon Club, helping so many. I wish there was something I could do to make things easier for you, and i know that's how everyone else feels as well.
peanut
Thinking about you this evening. Hope your day has gone a little better today than yesterday, and you are starting to gather details of a plan of action to deal with your situation. You have been so generous here on the Colon Club, helping so many. I wish there was something I could do to make things easier for you, and i know that's how everyone else feels as well.
peanut
female, diagnosed Jan 14, RC stage 2a, age 56
MSS
April 14, 28 chemo/rad with Xeloda
June 14 adjuvant Xeloda 6 rounds
currently NED
MSS
April 14, 28 chemo/rad with Xeloda
June 14 adjuvant Xeloda 6 rounds
currently NED
Re: Really??!!??
So sorry to read this, Bev. I wish you didn't have to deal with this again It sucks, big time.
I hear you on the dissociating thing. Were it not for an iPhone recording or a husband recounting the entire meeting, I'd never remember ANYTHING. If you've got a phone that will do it, I recommend hitting "RECORD" before they even walk into the room.
Celine
It sucks, big time.I hear you on the dissociating thing. Were it not for an iPhone recording or a husband recounting the entire meeting, I'd never remember ANYTHING. If you've got a phone that will do it, I recommend hitting "RECORD" before they even walk into the room.
Celine
my blog: Cancer Riot
NED since April 2016!
April 2016: lower left lung lobectomy. NED
8 mo. f/u: 1 of 7 tumors progressed.
6 mo. f/u PR confirmed (Jan 2016)
Jul 2015: NIH TIL trial NCT01174121 NCI/NIH Surgery Branch FAQ
Dec 2014 confirmed stage IV w/bilateral lung mets
FOLFOX + Radiation (bladder)
KRAS G12D :: MSS
dx Sep 2013 @47yo: IIIc T4b N2b MX [bladder invasion, 17/21 lymph nodes]
Married 34 yrs. kids: 28, 25, 21, 16, 14
SE Michigan home schooler, unemployed mechanical engineer, and programmer.
NED since April 2016!
April 2016: lower left lung lobectomy. NED
8 mo. f/u: 1 of 7 tumors progressed.
6 mo. f/u PR confirmed (Jan 2016)
Jul 2015: NIH TIL trial NCT01174121 NCI/NIH Surgery Branch FAQ
Dec 2014 confirmed stage IV w/bilateral lung mets
FOLFOX + Radiation (bladder)
KRAS G12D :: MSS
dx Sep 2013 @47yo: IIIc T4b N2b MX [bladder invasion, 17/21 lymph nodes]
Married 34 yrs. kids: 28, 25, 21, 16, 14
SE Michigan home schooler, unemployed mechanical engineer, and programmer.
Re: Really??!!??
Bev, Your post was the first I ever read on this board. I can't add much to what else has been said. I just hope against hope you get some good news and a good plan going forward. Always thinking of you. Lois
63 yo F
Colon resection Sept. 2010
pT3N0M0 Stage 2A
Medullary Tumor 6.5cm long
Lymphovascular invasion
Lynch negative
12 FOLFOX 11/2010 to 5/2011 8 w/Oxi
NED so far
Colon resection Sept. 2010
pT3N0M0 Stage 2A
Medullary Tumor 6.5cm long
Lymphovascular invasion
Lynch negative
12 FOLFOX 11/2010 to 5/2011 8 w/Oxi
NED so far
Re: Really??!!??
Life can be so UNFAIR. I am swinging chickens for you.
Vicki
DH Dx 1/2012 @ age 52
stage IV CC
transverse colon,omentum, cecum,liver,lungs,L5
9 rounds of Folfox, Avastin,
5FU/Leucovorin/Avastin
radiation tx to L5 and hips
Folfiri/Zaltrap
12/13/13 Folfox/Avastin
1/4/2014 passed away @ Hospice House- age 54
DH Dx 1/2012 @ age 52
stage IV CC
transverse colon,omentum, cecum,liver,lungs,L5
9 rounds of Folfox, Avastin,
5FU/Leucovorin/Avastin
radiation tx to L5 and hips
Folfiri/Zaltrap
12/13/13 Folfox/Avastin
1/4/2014 passed away @ Hospice House- age 54
Re: Really??!!??
Bev I hope it's benign. Thinking of you and swinging chickens. When is your next appointment? I'll be sending positive vibes your way.
Hugs,
Russian
Hugs,
Russian
Dx at 39(12/2008), Stage IV, omentum mets,
0/16 lymph nodes positive,
right colectomy 1/2009,
FOLFOX + avastin 2/2009-7/2009
Thank You Colonclub! 2015
0/16 lymph nodes positive,
right colectomy 1/2009,
FOLFOX + avastin 2/2009-7/2009
Thank You Colonclub! 2015
-
Val*pal
- Posts: 860
- Joined: Sun Feb 10, 2013 1:24 pm
- Facebook Username: Valerie Barkus Kantner
- Location: Metro Detroit, Michigan
Re: Really??!!??
Bev, I am truly sorry to know that you are going through hell emotionally right now. You are in my thoughts.
All of this is SO unfair.
Just remember not to take any sh-- from your husband. You need kind and supportive care/love.
As an eternal optimist, I'm hoping you'll find the eventual complete news is not as bad as you assume.
(((HUGS)))
All of this is SO unfair.
Just remember not to take any sh-- from your husband. You need kind and supportive care/love.
As an eternal optimist, I'm hoping you'll find the eventual complete news is not as bad as you assume.
(((HUGS)))
DH dx'ed May '11, age 62
Jul '11: resection Stage IV
10/11: 6 mo Folfox
8/12:thyr canc, surg/tx
2/13: peri mets
2/13: Firi/Avas
6/13: Ok
8/13: break
10/13: Lung, peri, mets
10/13: Firi/Erb
1/14: Erb Fail; spread
5/14: Tx stopped
6/20/14: At rest
Jul '11: resection Stage IV
10/11: 6 mo Folfox
8/12:thyr canc, surg/tx
2/13: peri mets
2/13: Firi/Avas
6/13: Ok
8/13: break
10/13: Lung, peri, mets
10/13: Firi/Erb
1/14: Erb Fail; spread
5/14: Tx stopped
6/20/14: At rest
Re: Really??!!??
I too am swing chickens in hopes this an nothing serious. You will be in my thoughts and prayers.
Lee
Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!
-
behconsult
- Posts: 264
- Joined: Fri Jul 04, 2014 4:53 pm
Re: Really??!!??
Bev, I'm sorry your have to journey into limbo again with your health. You are on target in taking it one day at a time, one moment at a time, and staying in the present. I will keep you in prayer and put your name in our parish book of prayer requests. Bob
Stage 4 Age 56 BrafV660E 5/14
spot on perit/ Right side tumor
Resctn 6/9/2014
Folfox strt 7/2014. 6 of 12 tx
Chemo induced DM2
Pet 4 mets to lung (1 cm, 6 mm) Xeloda/Avastin 9/16 to present.
Cryo-ablation to four spots- Collapsed lung/chest tube 2x
Possible local recurrence in a spot or two on PET. Stable CT
spot on perit/ Right side tumor
Resctn 6/9/2014
Folfox strt 7/2014. 6 of 12 tx
Chemo induced DM2
Pet 4 mets to lung (1 cm, 6 mm) Xeloda/Avastin 9/16 to present.
Cryo-ablation to four spots- Collapsed lung/chest tube 2x
Possible local recurrence in a spot or two on PET. Stable CT
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