Anyone else take Dicetel?

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DarknessEmbraced
Posts: 3576
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Anyone else take Dicetel?

Postby DarknessEmbraced » Thu Apr 30, 2015 4:28 pm

After my colonoscopy my surgeon prescribed an antispasmodic medication called Dicetel(pinaverium bromide). It's designed to relax the smooth muscles of the colon. I'm prescribed one 50mg tablet 3 times a day. I take it with food and lots of water. Because it can irritate the throat and esophagus I can't lay down for 10 minutes after taking it. Not that I lay down after eating anyway. So far it has really helped. No more cramping or spasms. I am still boated but I think that might be due to the metamucil. I'm trying one tablespoon a day for a while since I had so many problems with it the last time. I think the Dicetel may have made me a little sleepy. The earlier dose didn't but I'm tired all the time regardless. Has anyone else taken Dicetel? What are or were your experiences with it?
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

Badass
Posts: 1171
Joined: Sun Jan 15, 2012 11:42 am

Re: Anyone else take Dicetel?

Postby Badass » Fri May 01, 2015 6:17 am

Hi DE,

I don't take Dicetel but I wanted to tell you that I switched from metamucil to citronel caplets and that has made a huge difference in bloating and gas.
R.C. 12/23/11 at age 52 T3N0M0
3/1/12 completed Xeloda and radiation
5/4/12 LAR & Ileostomy
6/7/12-10/4/12 6 rounds Xelox
11/27/12 Reversal
7/13/13 1 liver met
8/13 Met resection /hai pump
4/14 Chemo completed (Irinotecan/5fu/fudr in pump)

DarknessEmbraced
Posts: 3576
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Anyone else take Dicetel?

Postby DarknessEmbraced » Fri May 01, 2015 9:23 am

Thanks badass. I will ask about that.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

Badass
Posts: 1171
Joined: Sun Jan 15, 2012 11:42 am

Re: Anyone else take Dicetel?

Postby Badass » Fri May 01, 2015 9:49 am

Oops! That was supposed to say CITRUCEL!
R.C. 12/23/11 at age 52 T3N0M0
3/1/12 completed Xeloda and radiation
5/4/12 LAR & Ileostomy
6/7/12-10/4/12 6 rounds Xelox
11/27/12 Reversal
7/13/13 1 liver met
8/13 Met resection /hai pump
4/14 Chemo completed (Irinotecan/5fu/fudr in pump)

DarknessEmbraced
Posts: 3576
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Anyone else take Dicetel?

Postby DarknessEmbraced » Fri May 01, 2015 10:05 am

I looked it up and it might not be available in Canada. Is Benefiber any good? So far the dicetel has been working. I haven't had a bowel movement since Tuesday my prep day but maybe that's normal.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

alphagam
Posts: 203
Joined: Tue Jun 14, 2011 10:48 am
Facebook Username: Kathy Maine Ruess

Re: Anyone else take Dicetel?

Postby alphagam » Fri May 01, 2015 10:48 am

Have you ever just tried plain old psyllium? Not been fiber or Metamucil, but the stuff that makes your drink or whatever get thick in about 5 seconds? I stir it into a cup of yogurt and then chew my way through. Works the best for me to bulk things up and for my husband who suffers from chronic constipation. He mixes his with OJ....
Dx Feb 2010 4 cm tumor, just inside rectum
EUS stated T3 tumor
2nd opinion, need better path
Mar 2010 transanal surgery. Surgery by board certified CRS found tumor only in lining
6 exams of surg site, 3 PET, 3 scopes laterNED.
Scope in Mar2015, clean colon
Next scope/test in 3 years

DarknessEmbraced
Posts: 3576
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Anyone else take Dicetel?

Postby DarknessEmbraced » Fri May 01, 2015 11:03 am

I've never tried just psyllium. I don't know where to get it?
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

alphagam
Posts: 203
Joined: Tue Jun 14, 2011 10:48 am
Facebook Username: Kathy Maine Ruess

Re: Anyone else take Dicetel?

Postby alphagam » Fri May 01, 2015 12:54 pm

We buy it at Walmart, but really, anyplace that sells Benefiber or Metamucil
Dx Feb 2010 4 cm tumor, just inside rectum
EUS stated T3 tumor
2nd opinion, need better path
Mar 2010 transanal surgery. Surgery by board certified CRS found tumor only in lining
6 exams of surg site, 3 PET, 3 scopes laterNED.
Scope in Mar2015, clean colon
Next scope/test in 3 years

Badass
Posts: 1171
Joined: Sun Jan 15, 2012 11:42 am

Re: Anyone else take Dicetel?

Postby Badass » Fri May 01, 2015 1:07 pm

Metamucil is psylium
R.C. 12/23/11 at age 52 T3N0M0
3/1/12 completed Xeloda and radiation
5/4/12 LAR & Ileostomy
6/7/12-10/4/12 6 rounds Xelox
11/27/12 Reversal
7/13/13 1 liver met
8/13 Met resection /hai pump
4/14 Chemo completed (Irinotecan/5fu/fudr in pump)

alphagam
Posts: 203
Joined: Tue Jun 14, 2011 10:48 am
Facebook Username: Kathy Maine Ruess

Re: Anyone else take Dicetel?

Postby alphagam » Fri May 01, 2015 2:18 pm

Yes it is, but in a different form and doesn't give me gas. Just a suggestion.
Dx Feb 2010 4 cm tumor, just inside rectum
EUS stated T3 tumor
2nd opinion, need better path
Mar 2010 transanal surgery. Surgery by board certified CRS found tumor only in lining
6 exams of surg site, 3 PET, 3 scopes laterNED.
Scope in Mar2015, clean colon
Next scope/test in 3 years

DarknessEmbraced
Posts: 3576
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Anyone else take Dicetel?

Postby DarknessEmbraced » Fri May 01, 2015 8:45 pm

Do you have to get it a specialty store?
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)


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