Maia..

Please feel free to read, share your thoughts, your stories and connect with others!
Post Reply
jvaime21
Posts: 308
Joined: Sat Sep 14, 2013 5:35 am
Facebook Username: alpha21_2003

Maia..

Postby jvaime21 » Wed Apr 29, 2015 5:34 pm

I am missing you.. And I am sure I am not alone.

Much(")
Retchel
wife of Stg 4 SRC
Diag.'12-2013(rd+Xeloda+oxi)
04/16/14 Clear CT-
8/25/14Kidney blockd nepro.
Rec. lung 1 enlrg. Abdomen
Inoperable/incurable /Chemo for life
11/21/14 Xeloda+Irinetocan 6x
hoping for a bright sunny day
Top
Maddielolo
Posts: 140
Joined: Tue Apr 08, 2014 4:57 pm

Re: Maia..

Postby Maddielolo » Wed Apr 29, 2015 9:21 pm

You are not alone. Maia we miss you and hope you're well
Top
gator.girl
Posts: 37
Joined: Thu Sep 05, 2013 1:05 pm

Re: Maia..

Postby gator.girl » Fri May 01, 2015 8:45 pm

Yes you are very missed...
I hope you are faring well, you have supported us here so much, know that you are in our thoughts... I wish there was something I could do to support you through this tough time...

Rachel
Dx 8/13 @ 40
Stage IV - innumerable mets to liver
12 rounds of Folfox + Avastin
8 months on maintenance
11/14 Y90 to right side of liver
01/15 Gallbladder removal and colon resection
02/15 Mets to lungs
Now on Folfiri
Top
User avatar
DK37
Posts: 510
Joined: Tue Sep 17, 2013 8:31 am
Location: San Diego

Re: Maia..

Postby DK37 » Sat May 02, 2015 9:39 am

Me too! I think after Belle, Maia was the second person to contact me & welcome me to the club!
-DK
6/4/2012 Dx Stage 3C CRC @ 40 yo. MSS, KRAS-WT, BRAF-WT, p53-mut
7/12 FOLFOX/FOLFIRI
2/13 NED!
8/13 Enlarged lymphs - Stable
10/14 Stage IV. Lung & Lymph mets. 5-FU+bev
3/15 Cetuximab
11/15 FOLFIRI + bev
11/16 Signs of FOLFIRI resistance (Lymph mets)
1/17 Palliative radiation for resistant mets
2/17 FOLFIRI + bev + Maraviroc (off-label)
3/17 FOLFIRI + Erbitux + Maraviroc (off-label)
MSS-CRC Clinical Trial Finder: http://trialfinder.fightcrc.org/
2016 Colondar 2.0 Model
DK37 Science Posts List
Top
skypup
Posts: 2598
Joined: Mon Dec 17, 2012 12:12 pm

Re: Maia..

Postby skypup » Sat May 02, 2015 11:06 am

Maia has been so generous with us, and she has lost so many dear to her. Maia, if you read this, I understand and support you walking another path. I am hoping your dear daughter is doing GREAT and you are getting some rest!
Much love to you!
Top
iitg.ritesh
Posts: 174
Joined: Mon Aug 25, 2014 7:11 am
Location: WA

Re: Maia..

Postby iitg.ritesh » Sat May 02, 2015 11:25 am

I am missing you Maia on this board. hope you are doing good.
32yo Dx@rectal cancer 05/10/13, CEA 3.4
chemoradiation, xeloda finished on 02/12/13
LAR surgery 22/01/14, pT3N0, 0/3 nodes, folfox 02/14--06/14 , 8 cycles folfox, 4 cycles of xeloda
Stricture due to radiation, diversion colitis
Reversal 14/10/14
NED
Top
User avatar
Maia
Posts: 2443
Joined: Fri Aug 24, 2012 8:00 am

Re: Maia..

Postby Maia » Sat May 30, 2015 9:02 am

Ahhh... you're all so thoughtful! How is that people who go through so much find the time and energy...
I read the post about Bev's scare (!) and saw she mentioned me and I thought 'oh, who else I have let down...', so, egotistically, I did a search for my username and found this post : )

I've been dealing with some personal situations and, please, believe me, I wouldn't have been of any, any help to anyone -even worse, I would have been a burden to have around. I was not even checking the forum. Plus, I momentarily lost access to the email account which is related to this forum so I haven't been getting emails, notifications, etc. I'm just trying to get up-to-date. So I very, very much apologize for my lack of proper replies :(

I'm reading now and seeing how much I missed it, ups and downs. I'm really sorry if I made someone feel that I didn't care -I do, just was not able to care even for myself.
Be back soon, I hope : ) Love you all.
Top
User avatar
Bev G
Posts: 5856
Joined: Thu Jan 07, 2010 11:19 pm
Facebook Username: Bev Golde
Location: Quechee, VT

Re: Maia..

Postby Bev G » Sat May 30, 2015 9:54 am

Maia wrote:Ahhh... you're all so thoughtful! How is that people who go through so much find the time and energy...
I read the post about Bev's scare (!) and saw she mentioned me and I thought 'oh, who else I have let down...', so, egotistically, I did a search for my username and found this post : )

I've been dealing with some personal situations and, please, believe me, I wouldn't have been of any, any help to anyone -even worse, I would have been a burden to have around. I was not even checking the forum. Plus, I momentarily lost access to the email account which is related to this forum so I haven't been getting emails, notifications, etc. I'm just trying to get up-to-date. So I very, very much apologize for my lack of proper replies :(

I'm reading now and seeing how much I missed it, ups and downs. I'm really sorry if I made someone feel that I didn't care -I do, just was not able to care even for myself.
Be back soon, I hope : ) Love you all.


Maia, I was able to take a very deep, relaxing, comforting breath when I saw you had posted. You are so dearly loved here. I am so sorry to know you have been going through such a rough time. I think you know if you think any of us could help in any way, we are here for you. I hope things are easing up.

I love you, my dear friend!
58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo
9/13 ^17th clean PET/CT NED for now
Top
User avatar
CRguy
Posts: 10476
Joined: Sun Feb 10, 2008 6:00 pm

Re: Maia..

Postby CRguy » Sat May 30, 2015 10:00 am

Maia,

So very happy to see you back posting.
Sometimes it is necessary to take a break and take care of yourself BUTT please know you have lotsa friends and lotsa love coming your way from everyone here.

Love Peace and Harmony my friend
be with us when you can

CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far
Top
skypup
Posts: 2598
Joined: Mon Dec 17, 2012 12:12 pm

Re: Maia..

Postby skypup » Sat May 30, 2015 10:04 am

Maia, I am very glad that you have been taking care of yourself, and sorry to read that challenges have been present for you. You take care of you, we will wait -- with love. So good to see you again, though!!
Top
bitchslapped
Posts: 1538
Joined: Tue Sep 09, 2014 3:23 pm
Location: PNW/USA

Re: Maia..

Postby bitchslapped » Sat May 30, 2015 10:20 am

Hi Maia, Sometimes we have to pull from within & stew in our own juices for awhile to sort things out. Though we always want to help, I have a great appreciation for this process...as I use it myself. So many of us do & understand it 100%.

Take Care, Best Wishes
Bitchslapped
DSS,35YO,unresect mCRC DX 7/'14,lvr,LN,peri,rib
FOLFOX+Avstn 4 Rnds d/c 10/'14
Stent 9/'14
FOLFIRI+Avstn 10/'14
Gone From My Sight 2/20/15
Me:garden variety polyps + precancerous polyp, diverticulitis
Carergver x2 DH,DM dbl occupancy,'03-'10
DH dx 47YO mCRC,'04-'07, lvr, billiary tree fried x HAI
DM dx CC 85YO,CC,CHF,stroke,dementia,aphasia
Top
Cb75
Posts: 1216
Joined: Sun Apr 22, 2012 3:52 pm
Location: Ontario, Canada

Re: Maia..

Postby Cb75 » Sat May 30, 2015 12:46 pm

Maia, it made my day to see you here :) xo

cb <3
39y female Stage IV
diagnosed April 2012
sigmoid resect May 2012
liver resect Aug 2012
Folfox Oct 2012
lungs Sep 2013
R and L laser lung resection Nov 2013/Feb 2014
FOLFIRI and Avastin Apr 2014 ongoing...
Top
Maddielolo
Posts: 140
Joined: Tue Apr 08, 2014 4:57 pm

Re: Maia..

Postby Maddielolo » Sat May 30, 2015 2:08 pm

What Cb75 said :)
Top
User avatar
vilca11
Posts: 730
Joined: Fri Feb 14, 2014 11:19 am
Location: Moscow, Russia; Baltimore, USA 1992; Vilcabamba, Ecuador 2012

Re: Maia..

Postby vilca11 » Sat May 30, 2015 2:13 pm

Mine too, ditto, Carm - you are sooooo welcome back, we missed you tremendously and this forum is not the same without you.... When you are here, people have hopes - you probably do not realize that... you are such a gift for all of us, do not disappear, our wonderful Maia.... But I am also very happy that you took time to deal with your own life.... It is impossible for big hearted people to live an easy life. Therefore, I am not hoping for impossible, I know your life will never be easy. I am just asking Universe to make less occasions for your tears and heart breaks, my angel...

Lots of love and huge hug! I think, I might have some accidently left good tequila from duty free, I will have some for your "homecoming" tonight... The only not so good thing about Ecuador is that their liquor truly sucks....well, good CT scanner and PET, along with some cancer skills (this country just does not have cancer - Equator!) would be a good improvement too :) Vilca
11/2005 CC stage 1, F,50yo@dx
Mod dif adenocar, MSS, APC, TP53, CEAs1.6-4.8
1/12 1met liver@Vena Cava, RFA, 3oxi,11 5FU
8/13 2 mets same place,SBRT
4/14 2 Xeliri+Avastin
5/14 Nano Knife liver same 2 mets
6/14 2 Xeliri, ADAPT
4/15 PET, 2 same mets,Cryo Liver
5/15 MJ Oil, Herbs, Suppl, ADAPT
10/15 PET, same area, doubled in size, high SUV
10/15 RH, HAI, visceral involv., no LN
2/16 red FF, 50% red dose FUDR, CEA trends up
3/16 CT, PET, MRI L.Lobe all in small tumors
4/16 No acceptable options, going home
Top
Stanfordmom
Posts: 612
Joined: Wed May 14, 2014 1:32 am

Re: Maia..

Postby Stanfordmom » Sun May 31, 2015 3:28 am

So glad you are back, Maia. You are sorely missed!
DX 4/2/2014 at 44, stage 4, mets liver and ovaries
Mom to 2 boys
Three surgeries, HAI pump and lots of chemo
fighting!
Top
Post Reply

Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: Google [Bot] and 376 guests

Powered by phpBB® Forum Software © phpBB Limited