Blog

Please feel free to read, share your thoughts, your stories and connect with others!
Leighann Sturgin
Posts: 54
Joined: Sat Jan 25, 2014 9:35 am

Blog

Postby Leighann Sturgin » Mon Apr 27, 2015 7:22 pm

Latest blog post is up. Written by Belle's dear friend Maria.
F 44 yo
3/04 dxd colon cancer stage IV (Lynch)
4/04 colectomy
chemo
8/04 hyserectomy
1/05 debulking, HIPEC, ileostomy
short bowel syndrome- TPN and IV fluid dependent
1/06 HIPEC
07 splenectomy
Vaccine trail
12 right nephrectomy
NED since 07
2015 Colondar 2.0 Miss May
2016 Kidney disease
2016 permanent left nephrostomy


The Kimberly Fund Director

janklo
Posts: 1567
Joined: Wed Mar 03, 2010 11:10 pm
Facebook Username: JanetKlostermann

Re: Blog

Postby janklo » Mon Apr 27, 2015 8:10 pm

Maria-thanks for putting this into words. I know Belle appreciates it, she would want others to gain knowledge from her experience. I've been through the same situation and your detailed description is very accurate. I know it will help other clubbers.
Mom to 28 yo daughter
colectomy 2/22/10, stage 3C, signet cell
7/2011 peritoneal mets
HIPEC September 2012, difficult recovery
Hospice 10/31/2012, Died 11/16/2012

User avatar
CRguy
Posts: 10476
Joined: Sun Feb 10, 2008 6:00 pm

Re: Blog

Postby CRguy » Mon Apr 27, 2015 8:37 pm

Thanks Leighann and Maria
I have also updated our forum Blog post Archive with this recent post.

BELLE Strong
Lives ON !

I have not been able to finish reading just yet
I will ….

Harmony
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

michelle c
Posts: 1929
Joined: Wed Dec 02, 2009 3:58 am

Re: Blog

Postby michelle c » Tue Apr 28, 2015 4:08 am

Thank you Maria for sharing. I'm so sorry that you lost your precious friend but it's nice that you had each other. Belle was very generous and always thinking of others. RIP dear Belle - you will remain in the hearts of everyone who loved you. Sadly missed but never forgotten ❤️❤️❤️
May 25 2009 Dx with CC (sigmoid colon) 2 days after my 44th b'day
CEA prior to surgery 4.7
Jun 3 2009 LAR - Stage III 3/10 lymph nodes
Jul 6 - Dec 10 2009 - 12 cycles FOLFIRI
Genetic testing - inconclusive for Lynch
Jul 2012 port removed & hernia repair

Delinda2
Posts: 483
Joined: Fri Jan 16, 2015 6:28 pm
Location: Washington state

Re: Blog

Postby Delinda2 » Tue Apr 28, 2015 9:15 am

This takes my breath away. You are so missed sweet Belle.
63 yrs,wife & mom
4/14 dx colon cancer,3C,9/22 nodes
Lymphatic,venous,&perineural invasion
<1cm margin,poorly differentiated
6/14 colostomy take down
7/14 FOLFOX w/9 Nulasta shots
2/16 dx new primary of sigmoid colon
6/16 surgery-rescection on sigmoid, total hysterectomy, temp ileo, stage 4
"I AM the storm."

User avatar
Sleen
Posts: 319
Joined: Tue Jan 14, 2014 7:41 am
Location: Detroit
Contact:

Re: Blog

Postby Sleen » Tue Apr 28, 2015 11:02 am

That was hard to read, but I bet even more difficult to write.
Thanks for sharing it with us.

Celine
my blog: Cancer Riot

NED since April 2016!
April 2016: lower left lung lobectomy. NED
8 mo. f/u: 1 of 7 tumors progressed.
6 mo. f/u PR confirmed (Jan 2016)
Jul 2015: NIH TIL trial NCT01174121 NCI/NIH Surgery Branch FAQ
Dec 2014 confirmed stage IV w/bilateral lung mets
FOLFOX + Radiation (bladder)
KRAS G12D :: MSS
dx Sep 2013 @47yo: IIIc T4b N2b MX [bladder invasion, 17/21 lymph nodes]

Married 34 yrs. kids: 28, 25, 21, 16, 14
SE Michigan home schooler, unemployed mechanical engineer, and programmer.


Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: No registered users and 265 guests