Ugh, I'm so sorry, Skypup. Was really hopeful your modified Adapt protocol would yield better results. I hope they can find some way to manage your pain that doesn't cause other issues. I know you said you tend not to feel very well on pain meds. Have you thought at all about acupuncture?
We're here for you! Sending you lots of positive thoughts and feel-better vibes.
Skypup, how are you?
Re: Skypup, how are you?
11/14 Dx sigmoid CC @ 45yo
12/14 Colectomy + hysterectomy
Stage IIIB, T3N1bM0, 2/20 nodes, MSS, G2, KRAS(A146T), TP53, SMAD4, ERBB2, CEA 1.0
2/15-7/15 XELOX & celecoxib
2/19 clean scope
11/19 clean CT
Ongoing cimetidine & other targeted supplements
Mom to a 6 & 8yo
12/14 Colectomy + hysterectomy
Stage IIIB, T3N1bM0, 2/20 nodes, MSS, G2, KRAS(A146T), TP53, SMAD4, ERBB2, CEA 1.0
2/15-7/15 XELOX & celecoxib
2/19 clean scope
11/19 clean CT
Ongoing cimetidine & other targeted supplements
Mom to a 6 & 8yo
Re: Skypup, how are you?
Thanks for checking in Skypup. I can understand needing a break, just know we all are thinking of you.
Acupuncture may be a good option to try! My husband has used it for back issues, way before cancer and it does work for him. My friends daughter has also been trying it for pain and so far it's working.
Acupuncture may be a good option to try! My husband has used it for back issues, way before cancer and it does work for him. My friends daughter has also been trying it for pain and so far it's working.
Husband was 46 when diagnosed stage 4 aug 2012
folfox and avastin ... then surgery april 2013
mets only to paraaortic nodes
Mets to femurs and spine found Nov 2013
folfox and avastin ... then surgery april 2013
mets only to paraaortic nodes
Mets to femurs and spine found Nov 2013
-
Jack&KatiesMommy
- Posts: 640
- Joined: Wed Dec 21, 2011 1:08 pm
- Location: Columbus, OH
Re: Skypup, how are you?
I watch for your posts, also, Skypup...and think about you all of the time.
Cynthia
Cynthia
Cynthia
Mommy to Jack (8) now (18) and Katie (4) now (14)
(My Most Precious Things)
Dx 8/11 Stage IV CRC (liver mets) CEA 2,600+
9/11 Folfiri 2/12: Failed Liver Resection
5/12 HAI pump/removed primary
4/13 Liver Resection
8/13-12/15 (10) RFAs lungs
5/17: Upper Left Lobe of lung resected.
02/18: 3 new lymph mets lung
05/18: Keytruda (MSS w/Intermediate TMB): NED CEA: 66.4, 39.2, 23.8, 13, 3.5 1.8, 1.0, 2.8 3.9, 5.0, 5.6, 1.5, .8,
Mommy to Jack (8) now (18) and Katie (4) now (14)
(My Most Precious Things)
Dx 8/11 Stage IV CRC (liver mets) CEA 2,600+
9/11 Folfiri 2/12: Failed Liver Resection
5/12 HAI pump/removed primary
4/13 Liver Resection
8/13-12/15 (10) RFAs lungs
5/17: Upper Left Lobe of lung resected.
02/18: 3 new lymph mets lung
05/18: Keytruda (MSS w/Intermediate TMB): NED CEA: 66.4, 39.2, 23.8, 13, 3.5 1.8, 1.0, 2.8 3.9, 5.0, 5.6, 1.5, .8,
Re: Skypup, how are you?
Theresa, I hope you can find a good balance between your qol and treatment. Sorry about that shitty news.
Nice to see your smile Cynthia.
Nice to see your smile Cynthia.
-
canadiandaughter
- Posts: 676
- Joined: Sun Aug 17, 2014 11:19 am
Re: Skypup, how are you?
Thinking of you skypup. I hope they can come up with a plan that can help with the problems you are having.
DD to 81 year old father
dx 24/07/14 iv cc mets liver/lung
folifiri started 19/07/14
shrinkage of all mets
growth in the liver,started folfox/avastin 80% 13/01/16
reduced to 70% due to side effects 27/01/16
First scan on folfox shows shrinkage in lungs, but liver just stable
6 rounds of vectibix-fail. 3cm growth and new spots showing Waiting for panel recommendations
At peace January 8, 2017
dx 24/07/14 iv cc mets liver/lung
folifiri started 19/07/14
shrinkage of all mets
growth in the liver,started folfox/avastin 80% 13/01/16
reduced to 70% due to side effects 27/01/16
First scan on folfox shows shrinkage in lungs, but liver just stable
6 rounds of vectibix-fail. 3cm growth and new spots showing Waiting for panel recommendations
At peace January 8, 2017
-
trillium50
- Posts: 40
- Joined: Thu Mar 26, 2015 10:51 pm
- Facebook Username: Trilly
Re: Skypup, how are you?
Sorry to hear this and hope you get some relief from the pain .
Sending hugs .. Sarah x
Sending hugs .. Sarah x
Re: Skypup, how are you?
Dan n I are thinking about you and hope you get some relief from your pain. No one should have to suffer ever and don't always understand this thing called cancer. Best wishes for you and your family.
Jackie
Jackie
70 male stage 3b cc
Dx 5/9/14
Resection 7/1/14
dx 9/14
65 yr wife DLCl
Sct 3/21/19 Ned last 8 mo.
Dx 5/9/14
Resection 7/1/14
dx 9/14
65 yr wife DLCl
Sct 3/21/19 Ned last 8 mo.
Re: Skypup, how are you?
I think about you, dear girl, every day. Always here for you.
Jean
Jean
Dx Rectal Cncr 5/12
Stage III
5 weeks Chemo (5FU) & Radiation completed
LAR with temporary ileostomy 9/12, complete response
Began FOLFOX 10/12. oxil reduced after tx 1, eliminated after tx 2. Now 5FU.
Finished 1/13
Ileostomy reversal 5/13
Stage III
5 weeks Chemo (5FU) & Radiation completed
LAR with temporary ileostomy 9/12, complete response
Began FOLFOX 10/12. oxil reduced after tx 1, eliminated after tx 2. Now 5FU.
Finished 1/13
Ileostomy reversal 5/13
Re: Skypup, how are you?
Totally understandable how you feel. Strength and positive thoughts coming from PA.
Rob
Rob
dx 11/07 crc IIIb @ 39
Xelox/Rad/ temp colostomy
LAR/J-pouch/ temp ileo
Folfox-8
Failed reversal
2/09 liver mets; liver resect/ileo reversal
Folfiri/Avastin - 12
2/11 5 lung mets
Folfiri/Avastin 2011
SBRT 3/12
Lung met 5/13/ said NO to more chemo
SBRT 8/13
2 lung mets 5/14, VATS 8/14, NED
Xelox/Rad/ temp colostomy
LAR/J-pouch/ temp ileo
Folfox-8
Failed reversal
2/09 liver mets; liver resect/ileo reversal
Folfiri/Avastin - 12
2/11 5 lung mets
Folfiri/Avastin 2011
SBRT 3/12
Lung met 5/13/ said NO to more chemo
SBRT 8/13
2 lung mets 5/14, VATS 8/14, NED
Re: Skypup, how are you?
Hi Skypup,
Sorry to read of the progression and pain-- as well as the isolation. I am thinking of you and hope you find some relief. Also, even though I am not so far down the road as you are, I can still relate and care about your experience and struggles.
Jane
Sorry to read of the progression and pain-- as well as the isolation. I am thinking of you and hope you find some relief. Also, even though I am not so far down the road as you are, I can still relate and care about your experience and struggles.
Jane
R.C. 12/23/11 at age 52 T3N0M0
3/1/12 completed Xeloda and radiation
5/4/12 LAR & Ileostomy
6/7/12-10/4/12 6 rounds Xelox
11/27/12 Reversal
7/13/13 1 liver met
8/13 Met resection /hai pump
4/14 Chemo completed (Irinotecan/5fu/fudr in pump)
3/1/12 completed Xeloda and radiation
5/4/12 LAR & Ileostomy
6/7/12-10/4/12 6 rounds Xelox
11/27/12 Reversal
7/13/13 1 liver met
8/13 Met resection /hai pump
4/14 Chemo completed (Irinotecan/5fu/fudr in pump)
Re: Skypup, how are you?
Skypup, do what you need to do. We love you. XXOXO, Delinda
63 yrs,wife & mom
4/14 dx colon cancer,3C,9/22 nodes
Lymphatic,venous,&perineural invasion
<1cm margin,poorly differentiated
6/14 colostomy take down
7/14 FOLFOX w/9 Nulasta shots
2/16 dx new primary of sigmoid colon
6/16 surgery-rescection on sigmoid, total hysterectomy, temp ileo, stage 4
"I AM the storm."
4/14 dx colon cancer,3C,9/22 nodes
Lymphatic,venous,&perineural invasion
<1cm margin,poorly differentiated
6/14 colostomy take down
7/14 FOLFOX w/9 Nulasta shots
2/16 dx new primary of sigmoid colon
6/16 surgery-rescection on sigmoid, total hysterectomy, temp ileo, stage 4
"I AM the storm."
Re: Skypup, how are you?
Much love...thinking of you!
12/7/12: 30 yrs. old, Dx stage 4b.mets to liver, ovary, nodes, ommentum.
7 months chemo, shrinkage!
8/26/13 HIPEC, colon resection,hysterectomy, appndx, gallbladder out.
9/12/13:leak in colon, temp. loop ileost, home 9/18
11/3/13: liver resect.
1/2014 Ostomy reversal, one week later, abcess surg., fistula, tpn.
No more chemo, NED since 11/13
7 months chemo, shrinkage!
8/26/13 HIPEC, colon resection,hysterectomy, appndx, gallbladder out.
9/12/13:leak in colon, temp. loop ileost, home 9/18
11/3/13: liver resect.
1/2014 Ostomy reversal, one week later, abcess surg., fistula, tpn.
No more chemo, NED since 11/13
Re: Skypup, how are you?
Theresa, AKA" Skypuppy!
We hope your having a beautiful, sunny day.
In Ct the temp rose to 79! Damn, it was 40 on Monday and now 79 today!?!
We LOVE YOU and just wanted to shout-it-out to the whole world!!!
Lots and lots of hugs.....Did you catch all of them??
Love,
Julie and Pete
We hope your having a beautiful, sunny day.
In Ct the temp rose to 79! Damn, it was 40 on Monday and now 79 today!?!
We LOVE YOU and just wanted to shout-it-out to the whole world!!!
Lots and lots of hugs.....Did you catch all of them??
Love,
Julie and Pete
Pete (hubby) Stage 3 VLRC - 11/11
Chemo/Rad/Ace Surgeon - 11/11 - 4/12
Oxi/Xeloda (Severe Toxicity to OXI) - 5/12 - 6/12
5Fu Only - 8/12 - 2/13
Liver Resection/Hai Pump/Folfiri/FUDR - 10/13 - 5/14
Lung Ablation (MSKCC) - 12/31/2014
Xeloda through 4/2015
NED - 1/2015 - 1/2024
Hai Pump/Port Removed - 1/2020
Chemo/Rad/Ace Surgeon - 11/11 - 4/12
Oxi/Xeloda (Severe Toxicity to OXI) - 5/12 - 6/12
5Fu Only - 8/12 - 2/13
Liver Resection/Hai Pump/Folfiri/FUDR - 10/13 - 5/14
Lung Ablation (MSKCC) - 12/31/2014
Xeloda through 4/2015
NED - 1/2015 - 1/2024
Hai Pump/Port Removed - 1/2020
Re: Skypup, how are you?
Hug u from a far.. Wish u pain free .. Do what you think its best and good for u. We are all here.
Retchel
Retchel
wife of Stg 4 SRC
Diag.'12-2013(rd+Xeloda+oxi)
04/16/14 Clear CT-
8/25/14Kidney blockd nepro.
Rec. lung 1 enlrg. Abdomen
Inoperable/incurable /Chemo for life
11/21/14 Xeloda+Irinetocan 6x
hoping for a bright sunny day
Diag.'12-2013(rd+Xeloda+oxi)
04/16/14 Clear CT-
8/25/14Kidney blockd nepro.
Rec. lung 1 enlrg. Abdomen
Inoperable/incurable /Chemo for life
11/21/14 Xeloda+Irinetocan 6x
hoping for a bright sunny day
-
jillbugs4110
- Posts: 266
- Joined: Thu Jul 31, 2014 3:36 pm
Re: Skypup, how are you?
I too think about you I'm new but I look to the seasoned vets for advice and your is so sound your a neat woman and my thoughts are with you. Thanks for being honest and giving here.
Live One Day At A Time
I Abandon myself to God
46 6 yo.....9yo...
stage 1V liver mets
my one prayer to got to sustain me to raise my two babies this is my only wish then take me out if needed.
I Abandon myself to God
46 6 yo.....9yo...
stage 1V liver mets
my one prayer to got to sustain me to raise my two babies this is my only wish then take me out if needed.
Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”
Who is online
Users browsing this forum: No registered users and 379 guests