Postby Annemiek » Sat Apr 25, 2015 1:43 pm
Okay, this is a moan topic, I'm sure this has been covered in the past, but yesterday, someone was able to say #1 to #5 all in 1 conversation!! i'm thinking of starting a bullshit bingo sheet and yell BINGO!! Everytime this happends.
#1 "but you look so healthy and well". ( yeeah, I rot from the inside out)
#2 "you look so thin, I wish I could loose so much weight so fast" ( no you wouldn't)
#3 "Do you think you will ever return to work, if I was you I'd chuck it and keep on enjoying the quiet life" ( errrrrm duh!)
#4 "my neighbour had chemo and she said it wasn't bothering her much, she was only a bit tired "(I bet she was)
#5 they can do so much these days, I'm sure you'll be fine ( eeeh)
#6 call me when you need anything ( Except I can't help on any of those days except monday morning from 8 to 10)
#7 dokter: don't you worry about your cea, that's for us to think about ( who's body are we talking about????)
# 8 scan technitian at my very first ct scan, before being diagnosed but after the colonscopy wow, you are so young for what you have! ( I don't know what I have, please tell me, I'm freaking out)
#9 "i can not look at scars, it makes me sick" ( yeah, wait until you get some of your own girl!)
funny thing is, I don't really know how I'd react if a friend of familymember came up to me and told me my story. I only realise now that some things that seem perfectly ok to say are really awful if you're on the other side.
Usually the response is lovely and well meant, but sometimes...... Ugh I just want to strangle people!
43 yr mum of a girl aged 7
10/2014 coloncancer stage IIIc
11/2014 HIPEC, tumor removed + 12 positive out of 60 ln
hysterectomy, abdominal lining partly removed
Peridonitus, stoma fitted, 6 abcesses drained in abdomen
MSS, kras
3/2015 Folfox, someones playing kill Bill inside me
9/2015 finished 12 rounds,
First scan results: NED!!!!!!!!!
4/2016 ct scan: NED!!!
7/2016 ultrasound: NED
10/2016 cr scan: NED
5/2017 ultrasound: NED 2,5 yrs!
CEA 8/2017 1.8 stable.
CT scan 11/2017 NED! 3 yrs
CEA 1.9