I have been MIA due to this first Folfri infusion. I have been having to get fluids several times and they think I may be having radiation inflammation causing severe diarrhea. I have been down since the 16th.This has been a mess. Irrotecan is not my friend this time around. Anyone out there stop the Iri and what did you do next?
Have only done folfox and folfri with erbiux so far. thanks for your help.
Hi
Hi
DX March 2011 stg 3 cc
Kidney cancer May 2011
Folfox 6months (12 rnds)
It's Back! October 2012 colon resection, kidney removed.FOLFIRI/Erbitux starts Jan.2013
Completed FOLFIRI June 2013, Erbitux continues
March 2015 Met to spine. Radiation 15 treatments
Folfri, 5fu dropped after 3x, Erbitux and Iri continued CEA rising. Moved to
Folfox, Xeloda,Avastin until Feb. 2016 oxilap. Neuropathy returns.
Xeloda,Avastin continues.
Kidney cancer May 2011
Folfox 6months (12 rnds)
It's Back! October 2012 colon resection, kidney removed.FOLFIRI/Erbitux starts Jan.2013
Completed FOLFIRI June 2013, Erbitux continues
March 2015 Met to spine. Radiation 15 treatments
Folfri, 5fu dropped after 3x, Erbitux and Iri continued CEA rising. Moved to
Folfox, Xeloda,Avastin until Feb. 2016 oxilap. Neuropathy returns.
Xeloda,Avastin continues.
Re: Hi
I feel your misery. Folfiri was not a friend to me either. It turned out the I was lacking the enzyme to break it down so I needed a much smaller dose than normally prescribed. I tried Tincture of Opium (drops) and self injections of Sandostatin (they worked for a little while).
Good luck to you. Even though it was hell, it bought me more time and I'm still here. I hope it gets easier for you.
Good luck to you. Even though it was hell, it bought me more time and I'm still here. I hope it gets easier for you.
Dx Stage 4 8/10 age 38 (mom of 2)
LH 9/10
5FU/Folfox
SBO surgery 8/11
HIPEC#1 6/12
8 rounds of FOLFIRI
HIPEC#2 5/13
VATS for 3 lung nodules 1/14
Xeloda & Avastin
SBRT 8/14
Fistula 4/15
Radiation to pelvic tumor 7/15
Liver/Peri mets 11/15
LH 9/10
5FU/Folfox
SBO surgery 8/11
HIPEC#1 6/12
8 rounds of FOLFIRI
HIPEC#2 5/13
VATS for 3 lung nodules 1/14
Xeloda & Avastin
SBRT 8/14
Fistula 4/15
Radiation to pelvic tumor 7/15
Liver/Peri mets 11/15
Re: Hi
Ugh - sorry to hear that it is giving you so much trouble. Did they give you atropine? I found the atropine shot + lomotil as needed (has atropine in it) worked much better to control the diarrhea. Good luck - dehydration has been my problem with chemo since I got the ileostomy. And I was on FOLFOX during that time.
42 year old Mom of two
7/14 Stage IV rectal cancer; CEA 70
4 rounds FOLFIRI/Avastin; 5 days radiation
11/14 TME, Liver resection, Temp Ileo - cPR
6 rounds FOLFOX
4/15 CT = NED
5/15 Ileo reversal
7/15 CEA = 2.1
7/14 Stage IV rectal cancer; CEA 70
4 rounds FOLFIRI/Avastin; 5 days radiation
11/14 TME, Liver resection, Temp Ileo - cPR
6 rounds FOLFOX
4/15 CT = NED
5/15 Ileo reversal
7/15 CEA = 2.1
Re: Hi
I have been on atropine and Imodium for the last 8 days.i have also been on the brat diet. The big d finally has slowed down. This has been quite a trial. I had done this regime in 2012 and did not have these problems. I am feeling more like myself. Thanks for the responses!
Kpjpmom
Kpjpmom
DX March 2011 stg 3 cc
Kidney cancer May 2011
Folfox 6months (12 rnds)
It's Back! October 2012 colon resection, kidney removed.FOLFIRI/Erbitux starts Jan.2013
Completed FOLFIRI June 2013, Erbitux continues
March 2015 Met to spine. Radiation 15 treatments
Folfri, 5fu dropped after 3x, Erbitux and Iri continued CEA rising. Moved to
Folfox, Xeloda,Avastin until Feb. 2016 oxilap. Neuropathy returns.
Xeloda,Avastin continues.
Kidney cancer May 2011
Folfox 6months (12 rnds)
It's Back! October 2012 colon resection, kidney removed.FOLFIRI/Erbitux starts Jan.2013
Completed FOLFIRI June 2013, Erbitux continues
March 2015 Met to spine. Radiation 15 treatments
Folfri, 5fu dropped after 3x, Erbitux and Iri continued CEA rising. Moved to
Folfox, Xeloda,Avastin until Feb. 2016 oxilap. Neuropathy returns.
Xeloda,Avastin continues.
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