Oncologist appointment Monday

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DarknessEmbraced
Posts: 3817
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Oncologist appointment Monday

Postby DarknessEmbraced » Fri Apr 17, 2015 10:10 am

I'm so glad that I see my oncologist Monday. I get my CEA tested the same day and they get the results back that day. I'm going to tell my oncologist about all of the symptoms I've been experiencing. The bowel issues, the cramping pain, the extreme tiredness/low energy, low grade temperatures, sometimes cold sweats/weakness/nausea,foggy mind, bloating. It's hard not to worry that the cancer will come back or that it's not really gone at all.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)
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Valorie
Posts: 365
Joined: Mon May 05, 2014 6:33 am

Re: Oncologist appointment Monday

Postby Valorie » Fri Apr 17, 2015 10:29 am

Im so sorry you're having such a rough time right now. I hope you will get the answers you need to help squelch your fear of recurrence. I know it's hard not to worry - I do too - every time there is an unexpected pain somewhere in the abdomen - and there have been many. I have to make an effort to tell myself that worrying won't change anything and if I let worry take over, I'll lose out on enjoying life.

I hope the Onc will be able to give you relief from your symptoms and answers that will give you peace of mind. Sending you a hug.

Valorie
Age 53 dx 2a CC 0/21 LN Oncotypedx score: 11
Sigmoidectomy 5/8/14
MSS No lymphovasular involvement,
6/14 PET - NED, 12/14 CT NED, 7/15 CT - NED
6/14-12/9/14 Xeloda 8 cycles
2/12/15 incisional hernia repair - Boooo!
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DarknessEmbraced
Posts: 3817
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Oncologist appointment Monday

Postby DarknessEmbraced » Fri Apr 17, 2015 10:48 am

Thanks Valorie! Sending you a hug back! I hope I get some answers too. I also have other health conditions that make it hard as well.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)
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cathy123
Posts: 665
Joined: Sat Nov 08, 2014 3:36 pm

Re: Oncologist appointment Monday

Postby cathy123 » Fri Apr 17, 2015 11:20 am

I hope it goes well and they can help you out with your symptoms. Feel better soon!
Cathy

Diagnosed 10/14 low rectal cancer age 43
Clinical T2NXMX
Radiation/xeloda 12/14-1/15
LAR with temp Ileo 3/15
pT2N0M0, lymphatic invasion 0/37 nodes
4 xelox, 1 xeloda only
Reversal 9/15
Mom to 9&11 year olds
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Danieljt
Posts: 309
Joined: Sun Aug 10, 2014 10:32 pm

Re: Oncologist appointment Monday

Postby Danieljt » Fri Apr 17, 2015 12:09 pm

Monday can't come soon enough right? Stay positive. I'm sure everything is ok.
Hugs
Jackie wife of dan
70 male stage 3b cc
Dx 5/9/14
Resection 7/1/14
dx 9/14
65 yr wife DLCl
Sct 3/21/19 Ned last 8 mo.
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DarknessEmbraced
Posts: 3817
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Oncologist appointment Monday

Postby DarknessEmbraced » Fri Apr 17, 2015 12:46 pm

Thanks everyone. :D
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)
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lpas
Posts: 1010
Joined: Wed Nov 19, 2014 11:11 pm

Re: Oncologist appointment Monday

Postby lpas » Fri Apr 17, 2015 1:04 pm

DE--don't forget that your tumor tested positive for microsatellite instability, which means your cancer was less aggressive than most and considerably less likely to metastasize. Try not to worry!
11/14 Dx sigmoid CC @ 45yo
12/14 Colectomy + hysterectomy
Stage IIIB, T3N1bM0, 2/20 nodes, MSS, G2, KRAS(A146T), TP53, SMAD4, ERBB2, CEA 1.0
2/15-7/15 XELOX & celecoxib
2/19 clean scope
11/19 clean CT
Ongoing cimetidine & other targeted supplements
Mom to a 6 & 8yo
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DarknessEmbraced
Posts: 3817
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Oncologist appointment Monday

Postby DarknessEmbraced » Fri Apr 17, 2015 1:29 pm

True Ipas, I didn't think of that. Thanks.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)
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MamaN
Posts: 666
Joined: Tue Dec 30, 2014 2:34 am

Re: Oncologist appointment Monday

Postby MamaN » Fri Apr 17, 2015 7:25 pm

De
Good luck with your apptiontment on Monday. So sorry your still not feeling well.
Dx@45 stage t3 n1b m unknown IIIB
Resected in 8/2010 rectosigmoid
5.5 tumor with 3 /26 lymph nodes
Lymph vascular invasion
Folfox sept 2010 to feb 2011
10 tx only stopped due to low wbc
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Delinda2
Posts: 483
Joined: Fri Jan 16, 2015 6:28 pm
Location: Washington state

Re: Oncologist appointment Monday

Postby Delinda2 » Fri Apr 17, 2015 7:42 pm

I have an appointment Monday too! My first blood work since completing chemo & inital scan. I've been having pains in my belly too, but that could be from something else too. I was very nervous about it but have mellowed out for some reason. It is what it is & I can't change or control any of it. Good luck to you, hope your numbers are great. I'll get my blood results when I see the onc. We should compare notes Monday night. Try not to worry. XXOXO, Delinda
63 yrs,wife & mom
4/14 dx colon cancer,3C,9/22 nodes
Lymphatic,venous,&perineural invasion
<1cm margin,poorly differentiated
6/14 colostomy take down
7/14 FOLFOX w/9 Nulasta shots
2/16 dx new primary of sigmoid colon
6/16 surgery-rescection on sigmoid, total hysterectomy, temp ileo, stage 4
"I AM the storm."
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Delinda2
Posts: 483
Joined: Fri Jan 16, 2015 6:28 pm
Location: Washington state

Re: Oncologist appointment Monday

Postby Delinda2 » Fri Apr 17, 2015 7:42 pm

I have an appointment Monday too! My first blood work since completing chemo & inital scan. I've been having pains in my belly too, but that could be from something else too. I was very nervous about it but have mellowed out for some reason. It is what it is & I can't change or control any of it. Good luck to you, hope your numbers are great. I'll get my blood results when I see the onc. We should compare notes Monday night. Try not to worry. XXOXO, Delinda
63 yrs,wife & mom
4/14 dx colon cancer,3C,9/22 nodes
Lymphatic,venous,&perineural invasion
<1cm margin,poorly differentiated
6/14 colostomy take down
7/14 FOLFOX w/9 Nulasta shots
2/16 dx new primary of sigmoid colon
6/16 surgery-rescection on sigmoid, total hysterectomy, temp ileo, stage 4
"I AM the storm."
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DarknessEmbraced
Posts: 3817
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Oncologist appointment Monday

Postby DarknessEmbraced » Fri Apr 17, 2015 10:41 pm

Good luck with your appointment Monday Delinda! We should compare notes Monday night! :D
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)
Top
Leeloo
Posts: 58
Joined: Sat Oct 04, 2014 5:02 pm
Location: Glasgow, Scotland, UK

Re: Oncologist appointment Monday

Postby Leeloo » Sat Apr 18, 2015 3:09 am

Hang in there, not long now til Monday. Thinking of you (((hugs)))
(R) hemicolectomy 13/08/13
Stage IIB T4N0(0/6)M0
Xelox x 4 (Scot trial)
NED
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DarknessEmbraced
Posts: 3817
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Oncologist appointment Monday

Postby DarknessEmbraced » Sat Apr 18, 2015 11:48 am

I will Leeloo. Thanks!*hugs* Not too long now!
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)
Top
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