First blog post in a long time.

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Rheaeliza
Posts: 421
Joined: Fri Dec 14, 2012 4:42 pm
Location: New York, New York

First blog post in a long time.

Postby Rheaeliza » Tue Apr 14, 2015 1:31 pm

I've been writing a bit here and there but not like I used to, and not publicly. This one has been mulling around in my head for a bit, not ready to put it on facebook but wanted to share it with you guys here.


http://thisisreallyhappeningtome.blogsp ... after.html
12/7/12: 30 yrs. old, Dx stage 4b.mets to liver, ovary, nodes, ommentum.
7 months chemo, shrinkage!
8/26/13 HIPEC, colon resection,hysterectomy, appndx, gallbladder out.
9/12/13:leak in colon, temp. loop ileost, home 9/18
11/3/13: liver resect.
1/2014 Ostomy reversal, one week later, abcess surg., fistula, tpn.
No more chemo, NED since 11/13

skypup
Posts: 2598
Joined: Mon Dec 17, 2012 12:12 pm

Re: First blog post in a long time.

Postby skypup » Tue Apr 14, 2015 2:45 pm

Thank you for posting -- you so exactly said what I have struggled with! I miss the life I had, too, and the stolen future.

Hugs!

p.s. I, too, still put on her clothes and makeup and many think I'm her, yet I never can forget that I am not.
Last edited by skypup on Tue Apr 14, 2015 11:22 pm, edited 1 time in total.

Rheaeliza
Posts: 421
Joined: Fri Dec 14, 2012 4:42 pm
Location: New York, New York

Re: First blog post in a long time.

Postby Rheaeliza » Tue Apr 14, 2015 2:49 pm

Thanks Skypup! And you nailed it too...the fact that we still do it, live in that life, wear the clothes, go through the motions, but we are not that person and everyone else thinks we are!
12/7/12: 30 yrs. old, Dx stage 4b.mets to liver, ovary, nodes, ommentum.
7 months chemo, shrinkage!
8/26/13 HIPEC, colon resection,hysterectomy, appndx, gallbladder out.
9/12/13:leak in colon, temp. loop ileost, home 9/18
11/3/13: liver resect.
1/2014 Ostomy reversal, one week later, abcess surg., fistula, tpn.
No more chemo, NED since 11/13

jillbugs4110
Posts: 266
Joined: Thu Jul 31, 2014 3:36 pm

Re: First blog post in a long time.

Postby jillbugs4110 » Tue Apr 14, 2015 3:09 pm

This is accurate I feel like I died before death it's hard to push on with a f'd up new normal huh....good job well said.
Live One Day At A Time
I Abandon myself to God
46 6 yo.....9yo...
stage 1V liver mets :-(
my one prayer to got to sustain me to raise my two babies this is my only wish then take me out if needed.

lpas
Posts: 1010
Joined: Wed Nov 19, 2014 11:11 pm

Re: First blog post in a long time.

Postby lpas » Tue Apr 14, 2015 3:22 pm

So true and well-written. You and Julie YW have that blogging gift.
11/14 Dx sigmoid CC @ 45yo
12/14 Colectomy + hysterectomy
Stage IIIB, T3N1bM0, 2/20 nodes, MSS, G2, KRAS(A146T), TP53, SMAD4, ERBB2, CEA 1.0
2/15-7/15 XELOX & celecoxib
2/19 clean scope
11/19 clean CT
Ongoing cimetidine & other targeted supplements
Mom to a 6 & 8yo

KWT
Posts: 3214
Joined: Thu Jul 11, 2013 7:22 pm

Re: First blog post in a long time.

Postby KWT » Tue Apr 14, 2015 3:23 pm

Very nice Rhea

jillbugs4110
Posts: 266
Joined: Thu Jul 31, 2014 3:36 pm

Re: First blog post in a long time.

Postby jillbugs4110 » Tue Apr 14, 2015 4:26 pm

Rhea

I had a question did you have any peri mets even microscopic prior to.your.liver resection??

Thanks jill
Live One Day At A Time
I Abandon myself to God
46 6 yo.....9yo...
stage 1V liver mets :-(
my one prayer to got to sustain me to raise my two babies this is my only wish then take me out if needed.

User avatar
juliej
Posts: 3114
Joined: Thu Aug 05, 2010 12:59 pm

Re: First blog post in a long time.

Postby juliej » Tue Apr 14, 2015 5:28 pm

Your blog post really resonated with me. I was afraid of relationships because of the posts on this forum. I don't know what scared me more - the couples who crashed and burned because the caregiver couldn't handle the situation, or the ones whose lives were destroyed because he/she loved the patient so much and couldn't save them in the end. I'm just now getting some sense of normality, but it isn't my old normality. In this one, I am stronger in some ways and weaker, or at least more fragile, in others. I agree with you about losing a part of yourself that will never return though. You hit the nail on the head with that one. Thanks for writing -- and keep it up!
Stage IVb, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/2011
LAR, liver resec, HAI pump 11/2011
Adjuvant Irinotecan + FUDR
Double lung surgery + ileo reversal 2/2012
Adjuvant FUDR + Xeloda
VATS rt. lung 12/2012 - benign granuloma!
VATS left lung 11/2013
NED 11/22/13 to 12/18/2019, CEA<1

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Frenchie's Wife
Posts: 959
Joined: Sat May 04, 2013 1:01 pm
Location: Alberta, Canada

Re: First blog post in a long time.

Postby Frenchie's Wife » Tue Apr 14, 2015 5:29 pm

Deep down I know you don't want to hear anymore feel good crap. That's for
those non believers, right.
Let me tell you something girl. Take a step back and lookat what you just wrote.
I will break it down in plain English for you:
I can never be the woman I was because the cancer MIGHT come back. I am wasting
these precious NED free moments worring about IF it will ever come back. I CANT be
Happy any more !! That is exactly what you just said in you blog, but in a nice way.

Try making a list. Divide it in two and try HARD to find some positives about
all this. It will surprise you ! Try it, what have you got to lose princes. KIDS !!
Caregiver to DH 59 yr, male, Stage IV at Dx
Dx Sept 2009
Liver,bladder mets, 5 surgeries
Lots of chemo
Inoperable lung mets nov 2013
Stopped all treatments in February 2014 due to QOL issues
I am in God's hands now !!
Feb 2015 - too many new mets to count !
At peace July 9, 2017

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vilca11
Posts: 730
Joined: Fri Feb 14, 2014 11:19 am
Location: Moscow, Russia; Baltimore, USA 1992; Vilcabamba, Ecuador 2012

Re: First blog post in a long time.

Postby vilca11 » Tue Apr 14, 2015 6:23 pm

Rhea, that was a beautifully written piece by a beautiful person... Nope, you are not her anymore, neither is anyone who went thru cancer, concentration camp, death of a child, war, etc... Or who just grew older... The difference is that it was a drastic, fast change, though... shocking one... But life is about that - the changes, the stages, the acceptance and adjustments.... Cancer did not steal the person you were - it is going to be always inside you, it is your "Self #1" on the first stage of your life, it is combined now with your "Self #2" that went thru the horrible experience... it will be a "Self #3", etc, like the onion or cabbage, they cover each other with the center being the CORE...

You had many wonderful years of life, you are so very lucky - say the gratitude to Universe for having a chance to become what your Self t#1 was, to live that kind of life in the past....And ask Universe to help you now.... to help to lose the Fear and refine your Self #2, to show you the right direction, to enable you to enjoy and be in piece every living day NOW, while never forgetting your fantastic past, your youth efforts, your successful adulthood...

You are going to have a long life, I see it from your blog and your signature, and your potential at having fantastic Self #3,4,5 etc is tremendous... Live it all to the fullest with your new attitude, new perception, new feelings... do not fight negative feelings and fears, just accept them and meditate on losing them, on transferring them into realization that the circle of Life was created by Universe and is sacred... Who are we to question 'why", to be angry or bitter or jealous, to claim life being unfair? We had a chance to have Earthy experience, to love, to enjoy, to cry, to go thru pains, and, yes, to die when our destiny says so... How many people die without having experience you had and without even hope that they might survive? You have even more than a chance for your long life, not just a hope... Cherish that, dear Rhea... You are a very intelligent, deep person, I know you will understand very well all what I said above... I am not consoling you with cheap wordings, I feel everything and cry with you... But I am twice older and perhaps more experienced in tragic parts of Life. I would be really sad, if what I wrote did not help you a bit...
Sending you hugs and love, Vilca
11/2005 CC stage 1, F,50yo@dx
Mod dif adenocar, MSS, APC, TP53, CEAs1.6-4.8
1/12 1met liver@Vena Cava, RFA, 3oxi,11 5FU
8/13 2 mets same place,SBRT
4/14 2 Xeliri+Avastin
5/14 Nano Knife liver same 2 mets
6/14 2 Xeliri, ADAPT
4/15 PET, 2 same mets,Cryo Liver
5/15 MJ Oil, Herbs, Suppl, ADAPT
10/15 PET, same area, doubled in size, high SUV
10/15 RH, HAI, visceral involv., no LN
2/16 red FF, 50% red dose FUDR, CEA trends up
3/16 CT, PET, MRI L.Lobe all in small tumors
4/16 No acceptable options, going home

User avatar
Frenchie's Wife
Posts: 959
Joined: Sat May 04, 2013 1:01 pm
Location: Alberta, Canada

Re: First blog post in a long time.

Postby Frenchie's Wife » Tue Apr 14, 2015 6:54 pm

See, she said that in English for you. You have to take a step back an LOOK AT THE
BIG PICTURE !! STEP BACK !!
I dare you to think of something funny about your situation !! Double Dare !!!
I hope you take me up on this.
Caregiver to DH 59 yr, male, Stage IV at Dx
Dx Sept 2009
Liver,bladder mets, 5 surgeries
Lots of chemo
Inoperable lung mets nov 2013
Stopped all treatments in February 2014 due to QOL issues
I am in God's hands now !!
Feb 2015 - too many new mets to count !
At peace July 9, 2017

skypup
Posts: 2598
Joined: Mon Dec 17, 2012 12:12 pm

Re: First blog post in a long time.

Postby skypup » Tue Apr 14, 2015 7:00 pm

I find that acknowledging the difficult aspects of cancer doesn't mean turning irrevocably to the dark side. We can do that and still embrace each day with joy and gratitude. I think Rhea expresses that.
Last edited by skypup on Tue Apr 14, 2015 11:21 pm, edited 1 time in total.

MSJC
Posts: 158
Joined: Sun Jan 26, 2014 10:31 am
Location: Ashland City, Tn.

Re: First blog post in a long time.

Postby MSJC » Tue Apr 14, 2015 8:49 pm

I'm grateful for all I still have, but must agree that I really miss the old "normal" me. Anyone that goes thru all the shit that it takes to get rid of this disease and says they haven't changed must be a lot tougher than I'am! I'll never be the same!!
Mike, 49 y/o at Dx 1/14 stage 3c
low rectal cancer 7 nodes positive
2/14 5 weeks chemo/rad. 5-fu
4/14 Lar gallbladder removed,
temp ileostomy
5/14 8 rds Folfox
10/14 reversal surgery
5/15 clean colonoscopy
6/15 clean ct scan

Delinda2
Posts: 483
Joined: Fri Jan 16, 2015 6:28 pm
Location: Washington state

Re: First blog post in a long time.

Postby Delinda2 » Wed Apr 15, 2015 3:42 am

Excellent Reah. Not only well written, but honest and insightful. For those full of advice on how to get past these feelings, I suggest you read the piece again and pay particular attention to the last sentence. This talented writer understands exactly what she needs to do. It's the same thing we all need to do in our own way. Read her last sentence again, it's all right there. Thank you Reah, I feel honored that you shared it with us first. Now I can't wait to read your other pieces. XXOXO, Delinda
63 yrs,wife & mom
4/14 dx colon cancer,3C,9/22 nodes
Lymphatic,venous,&perineural invasion
<1cm margin,poorly differentiated
6/14 colostomy take down
7/14 FOLFOX w/9 Nulasta shots
2/16 dx new primary of sigmoid colon
6/16 surgery-rescection on sigmoid, total hysterectomy, temp ileo, stage 4
"I AM the storm."

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Bev G
Posts: 5856
Joined: Thu Jan 07, 2010 11:19 pm
Facebook Username: Bev Golde
Location: Quechee, VT

Re: First blog post in a long time.

Postby Bev G » Wed Apr 15, 2015 7:56 am

Rhea, thanks for posting your eloquent, meaningful and beautifully written blog. It was moving and really insightful. I am way, way older than you, yet I hadn't been able to articulate the feelings engendered by the kidnapping. Thank you.

Love,

Bev
58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo

9/13 ^17th clean PET/CT NED for now


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