Belle's last blog

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Leighann Sturgin
Posts: 54
Joined: Sat Jan 25, 2014 9:35 am

Belle's last blog

Postby Leighann Sturgin » Mon Apr 13, 2015 9:59 am

FYI I posted Belle last blog last night.
F 44 yo
3/04 dxd colon cancer stage IV (Lynch)
4/04 colectomy
chemo
8/04 hyserectomy
1/05 debulking, HIPEC, ileostomy
short bowel syndrome- TPN and IV fluid dependent
1/06 HIPEC
07 splenectomy
Vaccine trail
12 right nephrectomy
NED since 07
2015 Colondar 2.0 Miss May
2016 Kidney disease
2016 permanent left nephrostomy


The Kimberly Fund Director
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weisssoccermom
Posts: 5988
Joined: Thu May 10, 2007 2:32 pm
Location: Pacific NW

Re: Belle's last blog

Postby weisssoccermom » Mon Apr 13, 2015 10:24 am

Here is a link to it.

http://colonclub.com/the-last-blog/
Dx 6/22/2006 IIA rectal cancer
6 wks rad/Xeloda -finished 9/06
1st attempt transanal excision 11/06
11/17/06 XELOX 1 cycle
5 months Xeloda only Dec '06 - April '07
10+ blood clots, 1 DVT 1/07
transanal excision 4/20/07 path-NO CANCER CELLS!
NED now and forever!
Perform random acts of kindness
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Jack&KatiesMommy
Posts: 640
Joined: Wed Dec 21, 2011 1:08 pm
Location: Columbus, OH

Re: Belle's last blog

Postby Jack&KatiesMommy » Mon Apr 13, 2015 11:00 am

I can't. stop. crying.

Belle....I hope you are okay. Stephen...you also.
Cynthia
Cynthia
Mommy to Jack (8) now (18) and Katie (4) now (14)
(My Most Precious Things)
Dx 8/11 Stage IV CRC (liver mets) CEA 2,600+
9/11 Folfiri 2/12: Failed Liver Resection
5/12 HAI pump/removed primary
4/13 Liver Resection
8/13-12/15 (10) RFAs lungs
5/17: Upper Left Lobe of lung resected.
02/18: 3 new lymph mets lung
05/18: Keytruda (MSS w/Intermediate TMB): NED CEA: 66.4, 39.2, 23.8, 13, 3.5 1.8, 1.0, 2.8 3.9, 5.0, 5.6, 1.5, .8,
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CRguy
Posts: 10476
Joined: Sun Feb 10, 2008 6:00 pm

Re: Belle's last blog

Postby CRguy » Mon Apr 13, 2015 11:07 am

Thanks Leighann, I have also added it to our own Blog post archive above.

So typical of Belle and her "voice."
While it is all about her, in fact it is never really all about her, ever.
It is about who she is and what she means to folks.

Love, Peace and Harmony to her family
moving forward without her here.

We will miss you and your "voice"
always on a Journey
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far
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ams5796
Posts: 2298
Joined: Fri Feb 06, 2009 10:07 am

Re: Belle's last blog

Postby ams5796 » Mon Apr 13, 2015 11:42 am

She had such a knack for writing so eloquently what we all feel with this disease. Beautiful post written by a beautiful person. I hope Stephen and their kids are getting through this. :cry:





Ann
Stage 3C (or 4?) Rectal Cancer 01/07
2/10 lung mets
3/11 VATS
6/11 VATS
7/13 lung met
2/14 SBRT
NED 8/14
5/17 scan and MRI found treated spine met
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teachpdx
Posts: 634
Joined: Wed Jan 16, 2013 12:29 am
Location: Portland, OR

Re: Belle's last blog

Postby teachpdx » Mon Apr 13, 2015 11:46 am

Holding back the tears. I'm at work so I can't cry, but God bless Belle and her husband and children.
4/24/12 RC T3N1M0 age 53
5/23-7/2 - 26 chemorad - Xeloda
7/16 Lynch- MSH2
8/28 LAR w/ temp ileo, CR, 0/11,M0, hysterectomy
10/13 6 cycles Xeloda - completed only 1 1/2 due to HFS
3/12/13 - reversal
8/13 NED
6/15 - HFS gone!
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janderson
Posts: 679
Joined: Tue Mar 27, 2012 11:46 am

Re: Belle's last blog

Postby janderson » Mon Apr 13, 2015 12:13 pm

I had to really hold back the tears as well.
DX 10-05 stage IV
liver resection 12-05 Folfox1-05 to 7-06
Liver resection 8-07 Folfiri 9-07 to 3-08
Liver resection 12-11
Recurrence 2/7/2014, liver, chestwall mets, 16 rounds chemo
7/3/14, y90 radioembolization, steady shrinkage
12/8/14, cryoablation to liver and chest wall
6/1 to 6/26 SBRT radio surgery
7/2 more cryo ablation to right lung
7/16 lung infection drain tube installed
9/4 chest wall resection to remove 2 ribs
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Cb75
Posts: 1216
Joined: Sun Apr 22, 2012 3:52 pm
Location: Ontario, Canada

Re: Belle's last blog

Postby Cb75 » Mon Apr 13, 2015 1:34 pm

So beautiful, on so many different levels, thank you Belle.

cb <3
39y female Stage IV
diagnosed April 2012
sigmoid resect May 2012
liver resect Aug 2012
Folfox Oct 2012
lungs Sep 2013
R and L laser lung resection Nov 2013/Feb 2014
FOLFIRI and Avastin Apr 2014 ongoing...
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orcasres
Posts: 836
Joined: Mon Jul 01, 2013 10:23 pm
Location: Orcas Island, WA

Re: Belle's last blog

Postby orcasres » Mon Apr 13, 2015 2:22 pm

Sounds like a pretty perfect family to me. My prayers and thoughts for Stephen and the family left behind. And thanks that Belle is at peace and pain free.

Lois
63 yo F
Colon resection Sept. 2010
pT3N0M0 Stage 2A
Medullary Tumor 6.5cm long
Lymphovascular invasion
Lynch negative
12 FOLFOX 11/2010 to 5/2011 8 w/Oxi
NED so far
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elise
Posts: 1519
Joined: Fri Apr 27, 2012 5:09 pm
Location: Ontario (Canada)

Re: Belle's last blog

Postby elise » Mon Apr 13, 2015 5:04 pm

XOX

Elise
2012
Feb - Stage 2 (T3 N0 M0) CC @ 30
Mar - R hemicolectomy, 18 LN
May-Nov 6 - Chemo (8 Xeloda)
2013
Feb - NED
2014
Feb - NED
May - Stage 4 - 1 liver met @ 32
Jun - Liver resection
Oct - CLEAN SCAN
Aug-Jan - FOLFOX 5 rounds, 5FU X 6
2015
Ap, Oct - NED
2016
Mar - NED
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Lee
Posts: 6207
Joined: Sun Apr 16, 2006 4:09 pm

Re: Belle's last blog

Postby Lee » Mon Apr 13, 2015 5:06 pm

I miss you Belle.

Love and hugs to your husband and kids.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!
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tammylayne
Posts: 2177
Joined: Fri Jul 16, 2010 9:24 am

Re: Belle's last blog

Postby tammylayne » Mon Apr 13, 2015 7:05 pm

I hope everyone that "reads' Belle's words...really "hears" Belle's words....hears her message.

Sometimes perfection....is when it isn't perfection at all.
Thank you Belle....xoxoxox
51 F
'06 Stage 1 CC,
'10 Stage 3 Rectal

"You never know how strong you are until you have to become your own hero."
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ANDRETEXAS
Posts: 662
Joined: Fri Feb 14, 2014 11:01 am
Location: Austin, Texas (University of Tennessee alumnus)

Re: Belle's last blog

Postby ANDRETEXAS » Mon Apr 13, 2015 7:20 pm

Beautifully written by a beautiful person. An eloquent tribute not only to her husband, but to Belle herself. Love and peace.
2/10/14 - Colon resect
2/13 - DX- Stage IIIb
6 of 18 lymph nodes cancerous
3/7 - Port placed
3/11 - FOLFOX (12 rds w/full oxi)
8/14 - Chemo finish
8/25 - CT- Inc
9/5 - clean PET
12/10- clean CT

3/2/15 - Clean colonoscopy & port removed
3/4 - clean CT
9/21- clean CT

3/23/16 - clean CT

2/22/17- clean CT

3/21/18 - clean CT
4/1 - clean colonoscopy

3/11/19 - clean CT
9/23 - Five-year release - Annual visits now !

4/13/23 - clean colonoscopy

ONE DAY AT A TIME !
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Rheaeliza
Posts: 421
Joined: Fri Dec 14, 2012 4:42 pm
Location: New York, New York

Re: Belle's last blog

Postby Rheaeliza » Tue Apr 14, 2015 1:38 pm

I aspire to write like her, to live like her, I'm sad to not have known her. She left her mark on many. So beautiful.
12/7/12: 30 yrs. old, Dx stage 4b.mets to liver, ovary, nodes, ommentum.
7 months chemo, shrinkage!
8/26/13 HIPEC, colon resection,hysterectomy, appndx, gallbladder out.
9/12/13:leak in colon, temp. loop ileost, home 9/18
11/3/13: liver resect.
1/2014 Ostomy reversal, one week later, abcess surg., fistula, tpn.
No more chemo, NED since 11/13
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