How do you choose a trial?

[gator.girl]

It seems like there is so much out there -

RRX-001
XilonixTM
ICG-001
ID01 inhibitors
TIL
Fruit fly study

How does one choose???

[Sleen]

Consider this a jumping off point:
Make a list of all the trials you're interested in.
Eliminate any for which you do not meet the criteria.
Then consider:
side-effects (are they permanent?) or risks?
how long will the protocol take?
where you need to go (distance) to receive the treatment(s)
costs both in $ and time away from family/work
reputation of the organization backing the trial
whether it's potentially curative or not
how likely is the hoped-for outcome
are you healthy enough NOW to withstand the protocol
have you got anything to lose? anything to gain?
will participating in this trial preclude you from a future treatment you might want to try if this one doesn't work?

These were some of the things I considered.

Celine

[Ceebo]

That is such excellent advice. It really helps others who are just beginning to look at trials!!

[gator.girl]

Thanks Celine!

These are very good questions!

I am in the midst of compiling all the trials I can find. Maybe a should post the list here so that others who might know of trials I have missed can include them… I'll try to do that in the next few days! Maaaan being a patient is a full time job lol!!!

Thanks for the input!