Another wall

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rkolo
Posts: 71
Joined: Sun Mar 23, 2014 11:13 am

Another wall

Postby rkolo » Tue Mar 31, 2015 2:03 pm

Hi all,

Haven't been about in sometime, my dad had been keeping well, about 3 weeks ago his oncology team noted his LFT's becomining elevated, then had some further symptoms darker urine, creamish stools, LFT 'deranged' , ct showed significant growth to liver tumours whilst on folfiri, oncologist predicted previously this day might happen 'cancer gets smarter', referral to palliative team and meeting next Tuesday to discuss 'options', further bloods needed, in the blink of an eye it all changes, not sure what lays ahead, but then again who does.
Dad Stage IV 15/03/14
r heimocolectomy blockage
liver+peri mets
17/06 folfori/cetuximab for 24 weeks
Oct 14, ct partial response, all else clear
Dec 14, chemo break and ct 17/12
Jan 15 folfiri 4 on/2 off x 2
March cancer progression+jaundice
Treatment stopped, near liver failure, pallative f/u
At rest 26/04 angel of heaven

Nik Colon

Re: Another wall

Postby Nik Colon » Tue Mar 31, 2015 6:36 pm

Sorry :( hugs and best wishes.

momof3
Posts: 213
Joined: Thu Sep 13, 2012 8:52 pm

Re: Another wall

Postby momof3 » Tue Mar 31, 2015 7:12 pm

I'm sorry. I hoping they can come up with a plan to turn things around.
Husband was 46 when diagnosed stage 4 aug 2012
folfox and avastin ... then surgery april 2013
mets only to paraaortic nodes
Mets to femurs and spine found Nov 2013

pfCml73183
Posts: 653
Joined: Sat Jun 22, 2013 7:49 pm
Facebook Username: Celeste Marie Comeau
Location: FL

Re: Another wall

Postby pfCml73183 » Tue Mar 31, 2015 11:23 pm

I am sorry you and your dad are going through this.
I hope that his medical team can keep him pain free. That is always my biggest concern. I hope he will be comfy wherever this road leads him.
Celeste
Wife and BF to Peter, 54
mCRC/IV/BRAF+
Erbitux and Urelumab trial @MSKCC 3/15
went home 5/8/15

rkolo
Posts: 71
Joined: Sun Mar 23, 2014 11:13 am

Re: Another wall

Postby rkolo » Wed Apr 01, 2015 3:40 pm

Hi,

Thanks all, I'm not sure if treatment will be an option as LFT as are unstable, GGT 1869, ALT 450, it's so disheartening to hear of progression whilst on 5FU
Dad Stage IV 15/03/14
r heimocolectomy blockage
liver+peri mets
17/06 folfori/cetuximab for 24 weeks
Oct 14, ct partial response, all else clear
Dec 14, chemo break and ct 17/12
Jan 15 folfiri 4 on/2 off x 2
March cancer progression+jaundice
Treatment stopped, near liver failure, pallative f/u
At rest 26/04 angel of heaven

rkolo
Posts: 71
Joined: Sun Mar 23, 2014 11:13 am

Re: Another wall

Postby rkolo » Sun Apr 05, 2015 4:47 pm

Dad extensively jaundiced, meeting oncologist on Tuesday to discuss 'options', I fear his time is near up, I would think no treatment given jaundice, it's so sad to see and sooooo hard to take , I hate this disease.
Dad Stage IV 15/03/14
r heimocolectomy blockage
liver+peri mets
17/06 folfori/cetuximab for 24 weeks
Oct 14, ct partial response, all else clear
Dec 14, chemo break and ct 17/12
Jan 15 folfiri 4 on/2 off x 2
March cancer progression+jaundice
Treatment stopped, near liver failure, pallative f/u
At rest 26/04 angel of heaven

mackswife
Posts: 263
Joined: Fri Aug 17, 2012 7:11 pm
Location: Atlanta, Ga.

Re: Another wall

Postby mackswife » Sun Apr 05, 2015 10:10 pm

I'm so very sorry that you, your family, and your dad are having to deal with all of this. I hope the "options" that are made available will allow your dad to be as comfortable as possible. My thoughts are with you.
Husband IIIC;
7/12 - resection; 12 rounds folfox
CT/PET scans 4/13, 9/13 - NED
CT scan 3/14 - liver/LN mets
5/2/14- failed liver resection - peri. mets.
6 rounds of iri/avastin
8/26/14 - failed liver resect/HIPEC. dse. progression
9/14 - 3/15 - progression on chemo
3/23/15 - treatment stopped; working the bucket list

rkolo
Posts: 71
Joined: Sun Mar 23, 2014 11:13 am

Re: Another wall

Postby rkolo » Wed Apr 08, 2015 1:24 pm

Had oncology review, attempting one last trial of chemo to try and slow down the deterioration, not really sure if it will work, given the number of liver mets (extensive) no drugs that are metabolised in the liver can be administered, very jaundiced, time not on his side, quite an open and honest consult, in very dangerous terrority with liver failure not far away this treatment is only a stab in the dark, I've asked dad about qualify of life and what he wants, will to give chemo another shot, however, should his bloods go off or awful side effects will stop chemo, after giving about previously about the consultant I admired her honesty and dealing with raw emotions in an open/honest and transperant fashion.

So I apologise to anyone new reading this, your journey is unique, you will have ups and downs, I wish you have more ups, don't look at survival stats, live each day as it comes, enjoy each other's company. In a selfish way I've learned a lot about myself.

I hope the next few weeks go ok, that someone looks down and gives us the strength to get by, if I've ever offended anyone on here, I apologise.
Dad Stage IV 15/03/14
r heimocolectomy blockage
liver+peri mets
17/06 folfori/cetuximab for 24 weeks
Oct 14, ct partial response, all else clear
Dec 14, chemo break and ct 17/12
Jan 15 folfiri 4 on/2 off x 2
March cancer progression+jaundice
Treatment stopped, near liver failure, pallative f/u
At rest 26/04 angel of heaven


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