justAfterTEM wrote:Sad news to hear. You may want your intentions made very clear to the oncologist. For ex, if you want to pursue aggressive treatment, make sure your doctor knows this, and ask them what it will take for you to be eligible to get liver surgery.
ritz75 wrote:Sorry for the news but glad you found this forum. Try not to think negative. Wait til you talk to the onc. Stage 4 does not mean terminal. I am stage 4 and there is a possibility I can be cured. Keep your head up and try to relax. It's a lot to take in but just take it one step at a time. Best wishes on your upcoming appointment.
lpas wrote:Hi Tiffany,
I'm so sorry you had to find us, but you've come to the right place. I agree that you need to find out if your liver is currently operable and, if not, whether chemo may be able to get you there. Chemo can help control cancer but it's generally the case that only surgery can provide hope for a cure. I would also ask your doctor's opinion about the HAI pump (a specialty of the renowned Dr. Nancy Kemeny at Memorial Sloan Kettering). There are many here with liver involvement who've done very, very well with the pump. In addition, consider asking for tissue testing to determine which mutations your tumor has. This can help in determining which chemotherapy agents will work best for you, and could be particularly helpful in identifying potential clinical trials. Good luck and please let us know how it goes!
Maddielolo wrote:Yes, get thorough genetic testing of tumor. Also, is it only in your liver, or elsewhere? If former, investigate hai pump. Iiver transplant is not an option, but a resection could be. You will likely start folfox or folfiri immediately upon recovering. But get tumor diagnosis and explore liver directed options (along with any potential surgical options). Have someone there with you writing down what oncologist says. Glad you found this forum!
atiffyfit wrote:...My appointment with an oncologist is tomorrow. And I can't come up with a damn question to ask. I'm kind of just in a haze. ...
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