Surgery Monday UPDATE

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cathy123
Posts: 665
Joined: Sat Nov 08, 2014 3:36 pm

Surgery Monday UPDATE

Postby cathy123 » Sat Mar 07, 2015 7:58 am

So the big day is almost here and I am getting nervous. I have read to try to walk as soon as I can, and chew gum and am taking cimetidine. Any other advice for me going in? Also is there anything helpful to have with me at the hospital other than books, ipod etc to keep me occupied. The surgeon said I will be in for 4 days or so, but I keep reading about peopke in for over a week. My only hospital stays before were for my c sections and although the reason was good I really hated being in there.

I could use some prayers, chickens, positive thoughts (whatever you got :D ) that the surgery goes according to plan and they get all the cancer out and I don't end up with a permanent bag. Thanks!
Last edited by cathy123 on Wed Mar 11, 2015 2:29 pm, edited 1 time in total.
Cathy

Diagnosed 10/14 low rectal cancer age 43
Clinical T2NXMX
Radiation/xeloda 12/14-1/15
LAR with temp Ileo 3/15
pT2N0M0, lymphatic invasion 0/37 nodes
4 xelox, 1 xeloda only
Reversal 9/15
Mom to 9&11 year olds

User avatar
Nik Colon
Posts: 5210
Joined: Thu Jan 08, 2015 3:35 pm
Location: MN

Re: Surgery Monday

Postby Nik Colon » Sat Mar 07, 2015 8:13 am

cathy123 wrote:So the big day is almost here and I am getting nervous. I have read to try to walk as soon as I can, and chew gum and am taking cimetidine. Any other advice for me going in? Also is there anything helpful to have with me at the hospital other than books, ipod etc to keep me occupied. The surgeon said I will be in for 4 days or so, but I keep reading about peopke in for over a week. My only hospital stays before were for my c sections and although the reason was good I really hated being in there.

I could use some prayers, chickens, positive thoughts (whatever you got :D ) that the surgery goes according to plan and they get all the cancer out and I don't end up with a permanent bag. Thanks!

Best wishes! (((hugs))) I'm sooo looking forward to getting mine.
Last edited by Nik Colon on Sat Mar 07, 2015 9:46 am, edited 1 time in total.
KRAS-mut G12V,MSS
Stage IVa Sig CC 2 lvr mets 1/12 Ln
(3, =<3 lng spots at dx til 5/16)
=T3N1aM1a 4cmX4mm (lng not included)
dx 12/2014 at age 39
CEA 1/15-4.9, 12/16-4.9 again
neoadj FOLFOX 1/15-3/15 (4tx, 3w/1wo oxi)
Col/Lvr surg 4/23/15 NED
adj FOLFIRI start 6/15-9/15 (8tx, 5w/3wo iri)
1 sml lvr spot/cyst
12/6/16 multi lung spots/mets?
No longer NED :(
My tx ongoing-start 1/20/15
Adding your SIGNATURE, etc

Regan
Posts: 249
Joined: Sun Mar 02, 2014 11:58 pm

Re: Surgery Monday

Postby Regan » Sat Mar 07, 2015 9:14 am

I have a hospital list on my phone.
Additions for him that help his comfort after surgery are:

1. heating pad (back pain)
2. small fan that clips to IV pole
3. Charmin (they typically have very rough paper)
4. Flushable wipes (he likes cottonelle)
5. Soft mints--nurses appreciate those too
6. Puffs--their tissues are rough
7. Air freshener for bathroom
8. Small hair dryer (for me as well as him)
DH dx 7/12
Stg IV RC liver mets
11/12 Hrt Attk by Folfox
1/13 Liver resct
4/13 LAR-Temp
NED
1/14 revrsal
4/14 Hrnia surg 4/14
1/15 local recur, liver, lung, aortocaval region of retroperitoneum, anterior wall of distal abdominal aorta
2/15 Irinotecan
1/16 Lonsurf (fail--just zapped. Strength)
Aug 10, 2016 at rest

Kathy
Posts: 113
Joined: Sat Mar 14, 2009 8:28 pm
Location: New Jersey

Re: Surgery Monday

Postby Kathy » Sat Mar 07, 2015 9:33 am

Small extension cord for cell phone and my own soft blanket were lifesavers suggested by fellow clubbers. Just be sure to wash the blanket in hot water after you get home. Good Luck.

Kathy
Stage 1- resection 9/ 05
Recurrence-2/ 2008 chemo/radiation 5 FU/oxi
APR surgery 7/ 2008- Found spread to liver-Margins not clean
chemo between surgeries
Liver resection and HAI pump-11/ 08 Chemo 6 months
NED 11/08

NED since 11/2008

midlifemom
Posts: 1358
Joined: Wed Jan 15, 2014 10:58 am
Location: NJ

Re: Surgery Monday

Postby midlifemom » Sat Mar 07, 2015 9:36 am

Notebook or paper and pen - so you can write down questions.
Good luck!
Stage 3 cc - dx Jan '14 age 53, cea 2.9
t2n2m0, KRAS mutant, MSS
Folfox Feb - Aug '14
Nov '14 cea 27.7 -2 liver masses
Dec '14 left lobectomy and HAI
Jan '15 FUDR and FOLFIRI
Aug '15 fudr done, liver clear, add avastin for lungs. Cea 4.3
Feb '16 CEA rising
May '16 2 wk break then drop Iri for 6 weeks.
Jul '16 cancer grew, constricted main bile duct. Stent inserted. On break till jaundice clears. CEA climbing. Doing reduced Folfox. Allergic to Oxali.
Sep'16 chemo failed. Trial or hospice?

DarknessEmbraced
Posts: 3308
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Surgery Monday

Postby DarknessEmbraced » Sat Mar 07, 2015 10:22 am

Good luck with your surgery Monday! I found a robe and slippers very helpful while in the hospital because they helped me feel more comfortable walking around the ward. Please let us know how it goes. Sending positive thoughts your way!
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18

lpas
Posts: 1009
Joined: Wed Nov 19, 2014 11:11 pm

Re: Surgery Monday

Postby lpas » Sat Mar 07, 2015 10:52 am

Congrats on finally making it to surgery! I actually found mine to be less difficult than expected. I hated being in the hospital for childbirth too, but it's easier when you have only yourself to worry about. My best advice is to bring your comfy pillow from home so you can get some decent sleep. Hospital pillows suck.

Swinging lots of chickens for you!
11/14 Dx sigmoid CC @ 45yo
12/14 Colectomy + hysterectomy
Stage IIIB, T3N1bM0, 2/20 nodes, MSS, G2, KRAS(A146T), TP53, SMAD4, ERBB2, CEA 1.0
2/15-7/15 XELOX & Celebrex
2/19 clean scope
5/19 clean-ish CT (watching a new 4mm lung thingie--likely mucus plug)
Ongoing celecoxib, cimetidine & other targeted supplements
Mom to a 5 & 7yo

peanut_8
Posts: 2320
Joined: Sun May 25, 2014 1:31 pm

Re: Surgery Monday

Postby peanut_8 » Sat Mar 07, 2015 10:55 am

Good luck with the surgery Cathy. You sound very prepared. Hopefully you will not have any complications that cause you to have a longer stay.

Image

I'll be swinging poultry in your honor right about dinnertime tonight.
peanut
female, diagnosed Jan 14, RC stage 2a, age 56
MSS
April 14, 28 chemo/rad with Xeloda
June 14 adjuvant Xeloda 6 rounds
currently NED

HannaandJuliansMom
Posts: 31
Joined: Sat Feb 28, 2015 6:46 pm
Location: Los Angeles, CA

Re: Surgery Monday

Postby HannaandJuliansMom » Sat Mar 07, 2015 11:59 am

Cathy,
I'll be thinking of you. Can't give any advice since I haven't been there yet, but you seem pretty well prepared.
Good luck on Monday!

Joanna
47 y/o female
two kids (12 and 4)
11/2014 Rectal Ca St. 2a
Chemoradiation (28 days) finished on Jan 30, 2015
LAR 3/27/15

Lee
Posts: 5938
Joined: Sun Apr 16, 2006 4:09 pm

Re: Surgery Monday

Postby Lee » Sat Mar 07, 2015 1:53 pm

DarknessEmbraced wrote: I found a robe and slippers very helpful while in the hospital because they helped me feel more comfortable walking around the ward. !


Agree. I brought a long thin bathrobe (Arizona heat) and good pair (padded) slippers. In my hospital, if you didn't bring your own robe you walked the halls with the back door open.

Good luck Monday, post when you can and yes walk walk those halls.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

Val*pal
Posts: 860
Joined: Sun Feb 10, 2013 1:24 pm
Facebook Username: Valerie Barkus Kantner
Location: Metro Detroit, Michigan

Re: Surgery Monday

Postby Val*pal » Sat Mar 07, 2015 2:24 pm

I'm sending many positive vibes your way for a quick and effortless recovery! And DO walk as much as possible.
DH dx'ed May '11, age 62
Jul '11: resection Stage IV
10/11: 6 mo Folfox
8/12:thyr canc, surg/tx
2/13: peri mets
2/13: Firi/Avas
6/13: Ok
8/13: break
10/13: Lung, peri, mets
10/13: Firi/Erb
1/14: Erb Fail; spread
5/14: Tx stopped
6/20/14: At rest

Steph20021
Posts: 553
Joined: Sat Dec 27, 2014 4:58 pm
Location: Ontario, Canada

Re: Surgery Monday

Postby Steph20021 » Sat Mar 07, 2015 2:40 pm

I love having my own flannel pillow case and my thin fleece little blanket. Best of luck Cathy, I'm sure it will go smoothly.
DX 1/31/14 @ 33- SPS-T4a(invades visceral peri), N2a(6/106 LN), M1a(ovary) (Stage 4a) MSS; BRAF V600E
2/1/14-subtotal col, lost R ovary, temp ileo
3/14-9/14- folfox; sepsis
11/14-CT/PET: L ovary met, pelvic met, (?)ghost liver met(?)
12/14-folfiri -13 rds kept me stable from 3/15-6/15
8/15-HIPEC, NED
09/15- cea 0.9
05/16- recurrence in abdo wall and lymph nodes
01/17- pulmonary embolism
02/17- 1 wk radiation to abdo wall
08/16- on folfiri
01/18-folfox
11/18- Beacon trial-encorafenib & cetuximab

User avatar
Nik Colon
Posts: 5210
Joined: Thu Jan 08, 2015 3:35 pm
Location: MN

Re: Surgery Monday

Postby Nik Colon » Sat Mar 07, 2015 4:08 pm

Can I ask what this chicken thing is about? Just curious
KRAS-mut G12V,MSS
Stage IVa Sig CC 2 lvr mets 1/12 Ln
(3, =<3 lng spots at dx til 5/16)
=T3N1aM1a 4cmX4mm (lng not included)
dx 12/2014 at age 39
CEA 1/15-4.9, 12/16-4.9 again
neoadj FOLFOX 1/15-3/15 (4tx, 3w/1wo oxi)
Col/Lvr surg 4/23/15 NED
adj FOLFIRI start 6/15-9/15 (8tx, 5w/3wo iri)
1 sml lvr spot/cyst
12/6/16 multi lung spots/mets?
No longer NED :(
My tx ongoing-start 1/20/15
Adding your SIGNATURE, etc

User avatar
MamaN
Posts: 666
Joined: Tue Dec 30, 2014 2:34 am

Re: Surgery Monday

Postby MamaN » Sat Mar 07, 2015 5:22 pm

Good luck with your surgery. I found chap stick helpful too. And yes walk , walk , walk that's all they want you to do. I also never seen people so happy that you pass gas ! Here is to a speedy recovery.

Rizt
there is a thread some where about the whole swinging chickens thing, somewhere . It explains everything butt I can't remember it so good!
Dx@45 stage t3 n1b m unknown IIIB
Resected in 8/2010 rectosigmoid
5.5 tumor with 3 /26 lymph nodes
Lymph vascular invasion
Folfox sept 2010 to feb 2011
10 tx only stopped due to low wbc

User avatar
Nik Colon
Posts: 5210
Joined: Thu Jan 08, 2015 3:35 pm
Location: MN

Re: Surgery Monday

Postby Nik Colon » Sat Mar 07, 2015 5:26 pm

MamaN wrote:Good luck with your surgery. I found chap stick helpful too. And yes walk , walk , walk that's all they want you to do. I also never seen people so happy that you pass gas ! Here is to a speedy recovery.

Rizt
there is a thread some where about the whole swinging chickens thing, somewhere . It explains everything butt I can't remember it so good!

I guess I'll try to search, thx :)
KRAS-mut G12V,MSS
Stage IVa Sig CC 2 lvr mets 1/12 Ln
(3, =<3 lng spots at dx til 5/16)
=T3N1aM1a 4cmX4mm (lng not included)
dx 12/2014 at age 39
CEA 1/15-4.9, 12/16-4.9 again
neoadj FOLFOX 1/15-3/15 (4tx, 3w/1wo oxi)
Col/Lvr surg 4/23/15 NED
adj FOLFIRI start 6/15-9/15 (8tx, 5w/3wo iri)
1 sml lvr spot/cyst
12/6/16 multi lung spots/mets?
No longer NED :(
My tx ongoing-start 1/20/15
Adding your SIGNATURE, etc


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