The Grim Reaper took another swipe at me !!

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Frenchie's Wife
Posts: 959
Joined: Sat May 04, 2013 1:01 pm
Location: Alberta, Canada

Re: The Grim Reaper took another swipe at me !!

Postby Frenchie's Wife » Fri May 15, 2015 10:51 am

Sharon, I will send your girls postcards
periodically so they have a few more
in their box. Others on here might want
to get in on this.

Sharon's girls are collecting post cards in a
little box. They would be thrilled to get
more.
Caregiver to DH 59 yr, male, Stage IV at Dx
Dx Sept 2009
Liver,bladder mets, 5 surgeries
Lots of chemo
Inoperable lung mets nov 2013
Stopped all treatments in February 2014 due to QOL issues
I am in God's hands now !!
Feb 2015 - too many new mets to count !
At peace July 9, 2017

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Sharon Brent
Posts: 288
Joined: Mon Oct 06, 2014 5:19 am
Location: London England

Re: The Grim Reaper took another swipe at me !!

Postby Sharon Brent » Fri May 15, 2015 1:28 pm

Thanks Frenchie, I will keep an eye out for them, if anyone want to send the girls a postcard or two just PM me and I will give you my Address. :)
DH, 47yo, Dx Stg IV, mCRC, lvr, lng 1/14, Tx Capeciabine 9 rnds
Children 5 & 1
DH 48th Birthday 6 November in Hospital
Home palliative care on 12 November 2014
Called back to Jesus 4pm 15 November 2014
Life Celebration in Nigeria 8 January 2015

User avatar
Frenchie's Wife
Posts: 959
Joined: Sat May 04, 2013 1:01 pm
Location: Alberta, Canada

Re: The Grim Reaper took another swipe at me !!

Postby Frenchie's Wife » Fri May 15, 2015 2:56 pm

Sharon, I think the girls would love to get
more postcards from others on this forum
I hope you get a good response. Let's
bring a little sunshine into their lives
for the price of a stamp !
Caregiver to DH 59 yr, male, Stage IV at Dx
Dx Sept 2009
Liver,bladder mets, 5 surgeries
Lots of chemo
Inoperable lung mets nov 2013
Stopped all treatments in February 2014 due to QOL issues
I am in God's hands now !!
Feb 2015 - too many new mets to count !
At peace July 9, 2017

peanut_8
Posts: 2340
Joined: Sun May 25, 2014 1:31 pm

Re: The Grim Reaper took another swipe at me !!

Postby peanut_8 » Fri May 15, 2015 9:32 pm

Hi Frenchie. Hope you don't have to much snow or rain there. Down in the Colorado foothills, we are getting lots of these guys, broadtail hummingbirds.

Image


I always like the fact that they are so fierce for being so small. By the end of May, the hummingbirds are going through more than 2 feeders per per day. Each feeder holds 4 cups of sugar mixture (4 cups water to 1 cup sugar) They can get grumpy with me when I don't fill their feeders quickly enough.


Image

Sometimes Mr. S and I discuss what particular bird we would be if we had to choose. I always go with some sort of hummingbird, and he always goes with hawk. What can you say. men..... :roll: :roll: :roll:

love, peanut
female, diagnosed Jan 14, RC stage 2a, age 56
MSS
April 14, 28 chemo/rad with Xeloda
June 14 adjuvant Xeloda 6 rounds
currently NED

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Frenchie's Wife
Posts: 959
Joined: Sat May 04, 2013 1:01 pm
Location: Alberta, Canada

Re: The Grim Reaper took another swipe at me !!

Postby Frenchie's Wife » Sat May 16, 2015 5:49 am

I am experiencing tremendous pain at the moment.
It is caused by the Dex.
I have been in pain like this since yesterday. It is almost unbearable.
My legs and knees won't support me at all. They just hurt like hell.
More troublesome and alarming still, I can't open my right eye at all.
It just leaks water and feels like someone poked me in the eye. That has been going on since
yesterday as well .

I am waiting for daylight. I will have to drive myself to the hospital. If I try to open
my eye, I get an instant migraine. I can't ignore that. This is now serious stuff that has
to be addressed immediately .

I may be in emergency for awhile. It is the long weekend here. Emergency will
Already have their hands full. I am just waiting for a lull in the pain so I can get
dressed and be ready. I can feel it getting worse by the hour.
Caregiver to DH 59 yr, male, Stage IV at Dx
Dx Sept 2009
Liver,bladder mets, 5 surgeries
Lots of chemo
Inoperable lung mets nov 2013
Stopped all treatments in February 2014 due to QOL issues
I am in God's hands now !!
Feb 2015 - too many new mets to count !
At peace July 9, 2017

kpjpmom
Posts: 197
Joined: Sat Nov 26, 2011 10:27 pm

Re: The Grim Reaper took another swipe at me !!

Postby kpjpmom » Sat May 16, 2015 9:42 am

Hope you get some relief Frenchie! I have been pulling for you and an so glad you are living your life your way! The dex makes me shaky and my left leg get so weak and I am sure that I am not on what you take. Keep us posted if you can, We care!
DX March 2011 stg 3 cc
Kidney cancer May 2011
Folfox 6months (12 rnds)
It's Back! October 2012 colon resection, kidney removed.FOLFIRI/Erbitux starts Jan.2013
Completed FOLFIRI June 2013, Erbitux continues
March 2015 Met to spine. Radiation 15 treatments
Folfri, 5fu dropped after 3x, Erbitux and Iri continued CEA rising. Moved to
Folfox, Xeloda,Avastin until Feb. 2016 oxilap. Neuropathy returns.
Xeloda,Avastin continues.

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Bev G
Posts: 5856
Joined: Thu Jan 07, 2010 11:19 pm
Facebook Username: Bev Golde
Location: Quechee, VT

Re: The Grim Reaper took another swipe at me !!

Postby Bev G » Sat May 16, 2015 9:53 am

Hi Frenchie,

I hope the people in the ER can figure out what is going on immediately and FIX IT!

Love you, Frenchie!
58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo

9/13 ^17th clean PET/CT NED for now

KWT
Posts: 3214
Joined: Thu Jul 11, 2013 7:22 pm

Re: The Grim Reaper took another swipe at me !!

Postby KWT » Sat May 16, 2015 9:56 am

Hey Frenchie, get down there and let them figure this out so you can get back on the road. I wonder if there's something that can be done about the nasal met? as that's probably what's causing the eye problem. Good luck and let us know.

skypup
Posts: 2598
Joined: Mon Dec 17, 2012 12:12 pm

Re: The Grim Reaper took another swipe at me !!

Postby skypup » Sat May 16, 2015 10:34 am

Sending best wishes your way, Frenchie!

peanut_8
Posts: 2340
Joined: Sun May 25, 2014 1:31 pm

Re: The Grim Reaper took another swipe at me !!

Postby peanut_8 » Sat May 16, 2015 10:57 am

Hope they can help you at the emergency room, Frenchie. Very sad to hear that you're in so much pain.
love peanut
female, diagnosed Jan 14, RC stage 2a, age 56
MSS
April 14, 28 chemo/rad with Xeloda
June 14 adjuvant Xeloda 6 rounds
currently NED

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exaussie
Posts: 618
Joined: Sun Jan 19, 2014 1:19 am
Location: Silverton OR
Contact:

Re: The Grim Reaper took another swipe at me !!

Postby exaussie » Sat May 16, 2015 1:23 pm

Hoping they can get that pain under control and find out what's causing the reaction in your eye. You are a warrior and I am glad to cyber know you!
DS 26 yrs old diagnosed 6/13 T3N2aM1b
Resection 6/13
6 rounds chemo folfax
12/13 Fissure
hernia surgery 12/13
5 months break
Maintenance chemo 3/14
Crazy growth. Liver failing. Folfox and vectibex 7-29-14
Chemo failure Hospice 8/26
Left us 8/28

User avatar
Frenchie's Wife
Posts: 959
Joined: Sat May 04, 2013 1:01 pm
Location: Alberta, Canada

Re: The Grim Reaper took another swipe at me !!

Postby Frenchie's Wife » Sat May 16, 2015 1:52 pm

Well, the pain is now under control.
I am now on Diladid. It is the only thing
that will touch this pain.
It is extremely strong medication. It is 100 times
stronger than morphine !!

The doctor thinks it's cancer progression and not
the Dex. I don't know what to think anymore. I just take it as it comes.

I spent a lot of money getting things to this point. Now I am determined to
enjoy the fruits of my labour.

I can not legally drive while on this medication. That really throws a wrench
into things.
I will have someone drive the car and the motorhome to the campground
and set things up.

I will get myself an electric scooter to drive around in while at the campground.
This is not going to stop me, but it will slow me down, no doubt.
Caregiver to DH 59 yr, male, Stage IV at Dx
Dx Sept 2009
Liver,bladder mets, 5 surgeries
Lots of chemo
Inoperable lung mets nov 2013
Stopped all treatments in February 2014 due to QOL issues
I am in God's hands now !!
Feb 2015 - too many new mets to count !
At peace July 9, 2017

skypup
Posts: 2598
Joined: Mon Dec 17, 2012 12:12 pm

Re: The Grim Reaper took another swipe at me !!

Postby skypup » Sat May 16, 2015 2:09 pm

Frenchie, mon ami, you are one of a kind. I am visualizing you zipping about the campground in your scooter with the majestic Canadian Rockies in the background and Peanut in your lap.

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Sharon Brent
Posts: 288
Joined: Mon Oct 06, 2014 5:19 am
Location: London England

Re: The Grim Reaper took another swipe at me !!

Postby Sharon Brent » Sat May 16, 2015 3:20 pm

Hi Frenchie,
glad the pain is under control, wow 100 times more powerful than Morphine.
I can understand why you can't legally drive on the stuff, not to worry, it's just a hiccup in the Travel plans, I know you will figure a way round things.
Sending you strength, Love and Kisses my Friend
DH, 47yo, Dx Stg IV, mCRC, lvr, lng 1/14, Tx Capeciabine 9 rnds
Children 5 & 1
DH 48th Birthday 6 November in Hospital
Home palliative care on 12 November 2014
Called back to Jesus 4pm 15 November 2014
Life Celebration in Nigeria 8 January 2015

Nik Colon

Re: The Grim Reaper took another swipe at me !!

Postby Nik Colon » Sun May 17, 2015 6:43 am

Just wanted to say hi and give you some hugs and kisses
XXXOOOXXX
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