The Grim Reaper took another swipe at me !!

Please feel free to read, share your thoughts, your stories and connect with others!
canadiandaughter
Posts: 670
Joined: Sun Aug 17, 2014 11:19 am

Re: The Grim Reaper took another swipe at me !!

Postby canadiandaughter » Thu Jun 01, 2017 7:11 pm

Thinking of you Frenchie!! I sure hope that you and your brother are off on a tour somewhere together now that the nicer weather has arrived.
DD to 81 year old father
dx 24/07/14 iv cc mets liver/lung
folifiri started 19/07/14
shrinkage of all mets
growth in the liver,started folfox/avastin 80% 13/01/16
reduced to 70% due to side effects 27/01/16
First scan on folfox shows shrinkage in lungs, but liver just stable
6 rounds of vectibix-fail. 3cm growth and new spots showing Waiting for panel recommendations
At peace January 8, 2017

User avatar
peanut_8
Posts: 2090
Joined: Sun May 25, 2014 1:31 pm
Location: Capital of Texas

Re: The Grim Reaper took another swipe at me !!

Postby peanut_8 » Thu Jun 01, 2017 8:43 pm

I could be wrong, butt I think Frenchie has a birthday coming up the first part of June.

Hope it's a good one. Send us a note when you get a chance.
peanut
Terri aka peanut
diagnosed Jan 14, RC stage 2a, age 56
permanent colostomy
MSS
April 14, 28 chemo/rad with Xeloda
June 14 adjuvant Xeloda 6 rounds
currently NED

Lee
Posts: 4974
Joined: Sun Apr 16, 2006 4:09 pm

Re: The Grim Reaper took another swipe at me !!

Postby Lee » Sun Jun 04, 2017 4:51 pm

Hi Frenchie,

Hope you are doing well. Weather must be beautiful in your neck of the wood. Here in Arizona, it's hot and will only get hotter.

Post when you can, thinking of you,

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

User avatar
CRguy
Posts: 9124
Joined: Sun Feb 10, 2008 6:00 pm

Re: The Grim Reaper took another swipe at me !!

Postby CRguy » Sun Jun 04, 2017 5:36 pm

Hoping it is kind of time for an update myself, Frenchie

I was going to post a "joke" here to cheer you up
BUTT I am sure you have been reading all about the BC election results and where we are ...
and are NOT :shock:

SO even I cannot top that stupidity of EPIC proportions
... try tho' I may :mrgreen:

ALWAYS on the Journey witcha' bro'
ALWAYS here for you

Harmony to you and Mrs.
CR
Caregiver x 3
Stage IV A rectal cancer/lung met
10 Year survivor
my life is an ongoing NONrandomized UNcontrolled experiment with N=1 !
Review of my Journey so far

User avatar
Frenchie's Wife
Posts: 946
Joined: Sat May 04, 2013 1:01 pm
Location: Alberta, Canada

Re: The Grim Reaper took another swipe at me !!

Postby Frenchie's Wife » Sun Jun 04, 2017 6:43 pm

Hello everyone,

Mrs. Frenchie here. I have been thinking about all of you lately because I know that Frenchie has not been keeping up on this for a while.
I think it is time for an update.

The last 2 or 3 months have not been very good for Frenchie. He had been experiencing some new pain on his right side, so a CT scan was ordered. Palliative care doctor was thinking bone cancer. Turns out his right kidney was not working properly. So May 8th he went in for day surgery. The plan was replace the left stent (now they had difficulty removing and replacing this one in Nov 2016) and put a new stent in the right kidney. If worse came to worse there was the option of stents directly in the kidney through the back (can't remember what that was called at the moment). Frenchie was terrified about getting that.

Surgery was completed - left stent not replace (not even sure if it was removed), right stent put in place. While in the bladder the doc cleaned all the cancer growth that he saw which was later confirmed to be colon cancer growth not bladder cancer.

A few months ago he could still was the dogs with me and do 4 kms but now not so much. He has good intentions of going shopping with me like he use to but he has no stamina. Last doctor visit he told her that he wants to make it through the summer, after September he does not care. Truth be told I just can't see him being with us for Christmas this year. I have seen such a change in him these last few months that it breaks my heart.

He has fought the good fight for almost 8 years come September and I can see that he is tired right to the bone. His brother is out here now since the end of April. Ron has not been able to go out the campsite as the drive is to long for him. I bought us a hot air balloon ride for Christmas for our bucket list, we are trying hard to figure out how to get him to be able to do this. Most days he has to stay close to the bathroom. We know how to fix that but the whole excursion is about 4 hours from start to finish - that will just where him out completely. But we are still working on it :)

Well that is the update from us for now. You guys are on my mind as I watch Ron every day, I will be back with more when I get a chance.

Mrs. Frenchie
Caregiver to DH 59 yr, male, Stage IV at Dx
Dx Sept 2009
Liver,bladder mets, 5 surgeries
Lots of chemo
Inoperable lung mets nov 2013
Stopped all treatments in February 2014 due to QOL issues
I am in God's hands now !!
Feb 2015 - too many new mets to count !
At peace July 9, 2017

Lee
Posts: 4974
Joined: Sun Apr 16, 2006 4:09 pm

Re: The Grim Reaper took another swipe at me !!

Postby Lee » Sun Jun 04, 2017 6:53 pm

Thank you Mrs. Frenchie for the update.

I pray that Mr. Frenchie has more good days than bad and that maybe he can make that balloon ride.

You both are never far from my thoughts and prayers.

Frenchie, I hope you can have a good summer. I know how you love your summers.

All the best to both of you,

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

TXLiz
Posts: 179
Joined: Thu Sep 22, 2016 3:31 pm

Re: The Grim Reaper took another swipe at me !!

Postby TXLiz » Mon Jun 05, 2017 6:31 pm

I read the entire thread and it is inspirational.
Thank you for updating; I always hope to see an update. My best to both of you. Frenchie is a true warrior and so are you. May God bless hold and keep you both.
Vomiting and blockage 9/19/16 46 y F
R hemi colectomy 9/20/16
Stage 3 B CRC, located in cecum
3 out of 16 lymph nodes positive
perineural invasion/lymphovascular invasion
infiltrating, mod differentiated adenocarcinoma with a mucinous component
separate tumor nodules present in pericolonic adipose tissue
Baseline PET scan clear 9/16 CEA 0.5
FOLFOX 10/16- 3/17
April 16th, CT scan clear. CEA 1.1
Lynch "inconclusive"

User avatar
Sharon Brent
Posts: 284
Joined: Mon Oct 06, 2014 5:19 am
Location: London England

Re: The Grim Reaper took another swipe at me !!

Postby Sharon Brent » Mon Jun 05, 2017 7:53 pm

Hi Ron and Mrs Frenchie,

Thank you so much for the update, you are an inspiration to me Mrs Frenchie and a pillor of Strength for Ron.

What you are going through now, no one should have to do that, but with every step and each day you approach it with dignity, strength and courage that seems super human.

I hope you and Ron enjoy the Summer as much as you can and find some way to get Ron air born and tick another thing off his bucket list.

You remain as always in my thoughts and Prayers

Love always
Piyagarn
DH, 47yo, Dx Stg IV, mCRC, lvr, lng 1/14, Tx Capeciabine 9 rnds
Children 5 & 1
DH 48th Birthday 6 November in Hospital
Home palliative care on 12 November 2014
Called back to Jesus 4pm 15 November 2014
Life Celebration in Nigeria 8 January 2015

User avatar
LeonW
Posts: 290
Joined: Sun May 03, 2015 4:59 pm
Location: Amsterdam, Netherlands

Re: The Grim Reaper took another swipe at me !!

Postby LeonW » Tue Jun 06, 2017 2:46 pm

Thanks for the update and that you both may find strength for happiness the coming months.
You're on my mind. Best wishes, L
Dec 2012 - Dx CC; MM @ 65yrs, 2 unresect liver mets, CEA 41.8
Jan 2013 - colectomy @ spleen (IVa T3N1bM1a) 2/26 nodes, MSI-low
Feb-Aug - 1x Xelox-7x Xelox/Avastin, mets shrink from #3
Sept - nuclear liver scan, 2x failed Portal Vein embolization
Oct 2013 - R liver resect 28 hosp days (liver failure, bad delirium, emboli, encephalopathy) all cancer gone, pCR
2014/15 - recovery; benign polyp Apr '15
Apr 2016 - new house/town/life
clean CTs and 1.3/1.4 CEAs: 4x2014, 4x2015/16, May2017, next Nov 2017

User avatar
Maia
Posts: 2393
Joined: Fri Aug 24, 2012 8:00 am

Re: The Grim Reaper took another swipe at me !!

Postby Maia » Tue Jun 06, 2017 4:54 pm

Thank you, so much, Mrs Frenchie, for updating us! You're truly kind.
I'm sending much much love for Ron, you and his brother!!! He's always present --specially, when I hear a good twisted joke about oncologists, that we both appreciate : )
May our dear friend Frenchie --Ron-- be free from any suffering, and from the causes of suffering. May he feel love.

canadiandaughter
Posts: 670
Joined: Sun Aug 17, 2014 11:19 am

Re: The Grim Reaper took another swipe at me !!

Postby canadiandaughter » Tue Jun 06, 2017 5:52 pm

Thank you for the update. I sure hope you can figure out a way to get up in the balloon!! What an amazing trip that would be for Frenchie!
DD to 81 year old father
dx 24/07/14 iv cc mets liver/lung
folifiri started 19/07/14
shrinkage of all mets
growth in the liver,started folfox/avastin 80% 13/01/16
reduced to 70% due to side effects 27/01/16
First scan on folfox shows shrinkage in lungs, but liver just stable
6 rounds of vectibix-fail. 3cm growth and new spots showing Waiting for panel recommendations
At peace January 8, 2017

User avatar
Frenchie's Wife
Posts: 946
Joined: Sat May 04, 2013 1:01 pm
Location: Alberta, Canada

Re: The Grim Reaper took another swipe at me !!

Postby Frenchie's Wife » Fri Jun 09, 2017 11:32 pm

Hello everyone,

Mrs. Frenchie here again :D

Today is hubby's birthday (67) butt he is celebrating it in the hospital. :(

Took him to the ER yesterday as I have been having some concerns with him this last week. We went Monday for meds for yet another bladder infection. Over the next few days I saw changes in him like staggering when he walks or as he walks he will suddenly freeze for a few moments, mumbling instead of clear speaking, or seeing things that are not really there.

We have changed his pain meds from Oxy to hydromorphone (?) in the last 3 weeks or so, so between that and waiting to long to go to the doctor about the bladder infection - which is the cause? Or is it the damn cancer.

My brother in law was with him tonight when a doctor came to see Ron and told him so far the blood work looks pretty good as does the bladder. Well hells bells, that does not tell me anything!!!

I know his journey is coming to an end and I am ok with that. I have had 7.5 years to prepare for this. Up until January it was not that hard. He does chemo, we have a break, we live our lives. "Cancer" was just a word in our life. Ron was such a positive person, it just never stopped him until recently. He could not do the long walks with the dogs and I. Going shopping was ok but then he has to go lay down for the rest of the day. Everything now was an effort for him to do so instead of doing he would choose not to do it. Lately I could get him to go out with me and do something with the promise of a banana split afterwards. He does not eat much but he is Into banana splits right now.

I will have to take one to him tomorrow when I see him after work. Hope you don't mind my writing on here, I'm rambling away on here where my intention was an update.

Diane aka Mrs. Frenchie
Caregiver to DH 59 yr, male, Stage IV at Dx
Dx Sept 2009
Liver,bladder mets, 5 surgeries
Lots of chemo
Inoperable lung mets nov 2013
Stopped all treatments in February 2014 due to QOL issues
I am in God's hands now !!
Feb 2015 - too many new mets to count !
At peace July 9, 2017

User avatar
CRguy
Posts: 9124
Joined: Sun Feb 10, 2008 6:00 pm

Re: The Grim Reaper took another swipe at me !!

Postby CRguy » Fri Jun 09, 2017 11:41 pm

Hey sista'
you KNOW we are all ... yeah esp ME ... IN YO' space right now
WHATEVER you or Ron need Diane .. WE ARE HERE

BUTT just so you know ... YES kidney/bladder infections will totally EFF up patients
(esp those who may be of MY vintage :twisted: ..I am 66 :twisted: :twisted: :twisted: )
SO do not dismiss the infection issue ... GET THEM DOCS on board and on LINE to get it dealt with !!!

HARMONY AND MEGA VIBES ++++++++++++++++++
repost here or please email me ... anytime

FRENCHIE ... YOU ROCK buddy

ALWAYS on the Journey
CRguy
Caregiver x 3
Stage IV A rectal cancer/lung met
10 Year survivor
my life is an ongoing NONrandomized UNcontrolled experiment with N=1 !
Review of my Journey so far

User avatar
LeonW
Posts: 290
Joined: Sun May 03, 2015 4:59 pm
Location: Amsterdam, Netherlands

Re: The Grim Reaper took another swipe at me !!

Postby LeonW » Sat Jun 10, 2017 6:37 am

Hi Diana,

Thanks for the update, even bad new is better that no news on Frenchie at all.
Please say hello to Frenchie on behalf of all of us. You and Frenchie are in my heart.
Leon
Dec 2012 - Dx CC; MM @ 65yrs, 2 unresect liver mets, CEA 41.8
Jan 2013 - colectomy @ spleen (IVa T3N1bM1a) 2/26 nodes, MSI-low
Feb-Aug - 1x Xelox-7x Xelox/Avastin, mets shrink from #3
Sept - nuclear liver scan, 2x failed Portal Vein embolization
Oct 2013 - R liver resect 28 hosp days (liver failure, bad delirium, emboli, encephalopathy) all cancer gone, pCR
2014/15 - recovery; benign polyp Apr '15
Apr 2016 - new house/town/life
clean CTs and 1.3/1.4 CEAs: 4x2014, 4x2015/16, May2017, next Nov 2017

User avatar
peanut_8
Posts: 2090
Joined: Sun May 25, 2014 1:31 pm
Location: Capital of Texas

Re: The Grim Reaper took another swipe at me !!

Postby peanut_8 » Sat Jun 10, 2017 9:35 am

Diane,

Thanks so much for the update. I really appreciate it, and wish it was better news.
Please tell Frenchie we're thinking of him and hoping he is comfortable.

Best Wishes,
peanut
Terri aka peanut
diagnosed Jan 14, RC stage 2a, age 56
permanent colostomy
MSS
April 14, 28 chemo/rad with Xeloda
June 14 adjuvant Xeloda 6 rounds
currently NED


Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: bhall12, Bing [Bot], Bostonzj, Brearmstrong and 45 guests