The Grim Reaper took another swipe at me !!

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canadiandaughter
Posts: 674
Joined: Sun Aug 17, 2014 11:19 am

Re: The Grim Reaper took another swipe at me !!

Postby canadiandaughter » Sat Jun 10, 2017 1:53 pm

Come here anytime you need to rant, chat or whatever!! That is what this place is for. Frenchie was so good to so many and has been an inspiration with his positive attitude all along that he has given many hope. So sorry about the bladder infection, they are VERY nasty. My dad had one that really screwed him over. I hope Frenchie can get some help and that he enjoys that banana split!! Remember to take care of yourself Dianne, this cancer bullshit is hard on the caregivers as well as the patient, just in a different way.
DD to 81 year old father
dx 24/07/14 iv cc mets liver/lung
folifiri started 19/07/14
shrinkage of all mets
growth in the liver,started folfox/avastin 80% 13/01/16
reduced to 70% due to side effects 27/01/16
First scan on folfox shows shrinkage in lungs, but liver just stable
6 rounds of vectibix-fail. 3cm growth and new spots showing Waiting for panel recommendations
At peace January 8, 2017

Lee
Posts: 5256
Joined: Sun Apr 16, 2006 4:09 pm

Re: The Grim Reaper took another swipe at me !!

Postby Lee » Sat Jun 10, 2017 5:18 pm

Frenchie wrote: . . . Hope you don't mind my writing on here, I'm rambling away on here where my intention was an update.
Diane aka Mrs. Frenchie



Thank you for the update on Frenchie. Hope he's doing as well as can be expected. Tell him we are all saying hi to him and Happy Birthday. And do enjoy that banana split.

Feel free to vent here anytime. Believe me we do get it here.

All the best to you Diane, and Ron aka Frenchie.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

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Maia
Posts: 2443
Joined: Fri Aug 24, 2012 8:00 am

Re: The Grim Reaper took another swipe at me !!

Postby Maia » Sun Jun 11, 2017 6:20 pm

Just adding my voice to the fellows here, Diane: you're welcome to come here and think out loud, vent, reflect... whatever you need.
Much love to you and Ron.

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Sharon Brent
Posts: 288
Joined: Mon Oct 06, 2014 5:19 am
Location: London England

Re: The Grim Reaper took another swipe at me !!

Postby Sharon Brent » Mon Jun 12, 2017 3:28 pm

Hey Diane,

Let me just say that this is the one place I feel we can all come to vent, I've done it on many occasions and still intend to do so even though I lost my Husband nearly 3 years ago.

So keep writing, keep venting, I for one am glad to hear from you.
Love Piyagarn
DH, 47yo, Dx Stg IV, mCRC, lvr, lng 1/14, Tx Capeciabine 9 rnds
Children 5 & 1
DH 48th Birthday 6 November in Hospital
Home palliative care on 12 November 2014
Called back to Jesus 4pm 15 November 2014
Life Celebration in Nigeria 8 January 2015

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bitchslapped
Posts: 1344
Joined: Tue Sep 09, 2014 3:23 pm
Location: PNW/USA

Re: The Grim Reaper took another swipe at me !!

Postby bitchslapped » Tue Jun 13, 2017 1:14 pm

Frenchie wrote: Hope you don't mind my writing on here, I'm rambling away on here where my intention was an update.


Hi Diane...No such thing as rambling on this forum. You are a member through association as far as we're concerned & updates on "Our Frenchie" are very much appreciated as well as your thoughts, questions, feelings etc. are welcomed.
We understand Ron's world is growing smaller, this forum furthest from his mind, so appreciate your time to report in.
No doubt his brother being there is a help to you as well as Ron.

Seems like Frenchie always looks forward to summer weather. Hoping the sun shines on the both of you.

Best Wishes
BS
DSS,35YO,unresect mCRC DX 7/'14,lvr,LN,peri,rib
FOLFOX+Avstn 4 Rnds d/c 10/'14
Stent 9/'14
FOLFIRI+Avstn 10/'14
Gone From My Sight 2/20/15
Me:garden variety polyps + precancerous polyp
Carergver x2 DH,DM dbl occupancy,'03-'10
DH dx 47YO mCRC,'04-'07 fried x HAI
DM dx CC 85YO,CC,CHF,stroke,dementia,aphasia

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CRguy
Posts: 9282
Joined: Sun Feb 10, 2008 6:00 pm

Re: The Grim Reaper took another swipe at me !!

Postby CRguy » Tue Jun 13, 2017 8:00 pm

Hey Frenchie !

My big rig is coding again ( Ford F53 chassis Triton V-10 ..... ECM speed sensor issues )

I need you buddy :shock:
taking back to Ford dealer tomorrow BUTT would rather bug YOU for your inputs
at least these guys have read the TSB for this issue ... not like the last place :twisted:

Cheers and Harmony bro'
CRguy on the Journey with you and Diane
Caregiver x 3
Stage IV A rectal cancer/lung met
10 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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Frenchie's Wife
Posts: 947
Joined: Sat May 04, 2013 1:01 pm
Location: Alberta, Canada

Re: The Grim Reaper took another swipe at me !!

Postby Frenchie's Wife » Thu Jun 15, 2017 10:10 pm

Hello Everyone,

Well hopefully Ron will be out of the hospital either tomorrow or Saturday.

They finally found pain relief for him in the form of fentanyl in a 72 hour patch. I am hoping that the bladder infection is all cleared up but Ron will have to pay attention
to pain in urination again and catch it sooner rather than later. They put him on heparin again in case of blood clots which was a big mistake, it resulted in bloody stools again.

Then he received 2 units of blood yesterday as his hemoglobin was 70. One doctor said he would have to come back in two weeks to have another transfusion. Not sure Ron is keen about that as he hates those damn needles....lol It is a surprise that the transfusion did not make him feel any better. I thought it would.

Ron is now going to give up his little room in the back of the house and come back to our bedroom. He is finding the hospital bed not comfortable anymore and he needs to be closer to the bathroom.

Diane
Caregiver to DH 59 yr, male, Stage IV at Dx
Dx Sept 2009
Liver,bladder mets, 5 surgeries
Lots of chemo
Inoperable lung mets nov 2013
Stopped all treatments in February 2014 due to QOL issues
I am in God's hands now !!
Feb 2015 - too many new mets to count !
At peace July 9, 2017

Lee
Posts: 5256
Joined: Sun Apr 16, 2006 4:09 pm

Re: The Grim Reaper took another swipe at me !!

Postby Lee » Thu Jun 15, 2017 10:37 pm

Thank you Diane for the update on Mr. Frenchie.

Please give him a big hug from me and tell him "glad he is home and get out there and enjoy some of that wonderful summer weather".

The warmest wishes to you both,

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

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Sharon Brent
Posts: 288
Joined: Mon Oct 06, 2014 5:19 am
Location: London England

Re: The Grim Reaper took another swipe at me !!

Postby Sharon Brent » Fri Jun 16, 2017 7:45 pm

Hi Diane,

Thank you for the update, like Lee said I too am glad Ron is home.

I would have thought Ron would have felt a bit better after the blood transfusion too, but as long as it helps in some way that's still good.

Please extend my greetings to Ron, and tell him my Girls still sleep with the Teddies he sent and I use my Canadian Kitchen towel he sent all the time.

Sending you love and kisses as well as Gods Blessings to keep you strong.

Love always
Piyagarn
DH, 47yo, Dx Stg IV, mCRC, lvr, lng 1/14, Tx Capeciabine 9 rnds
Children 5 & 1
DH 48th Birthday 6 November in Hospital
Home palliative care on 12 November 2014
Called back to Jesus 4pm 15 November 2014
Life Celebration in Nigeria 8 January 2015

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ktwmn
Posts: 336
Joined: Tue Aug 02, 2011 9:41 am

Re: The Grim Reaper took another swipe at me !!

Postby ktwmn » Fri Jun 16, 2017 8:33 pm

Ron and Diane, Hugs to both of you!!! Thank you for the updates!
Dx 7/11, Stage IIIc CC
12 txs Folfox 8/2011-2/2012
MSS, KRAS-mut G12D
NED until 3/2015, mets to liver and peritoneum
April-December 2015: 15 txs folfiri+avastin
Liver mets resolved; pelvic met remains
January-May 2016: folfox+avastin; allergic rxn to oxi
June-August 2016: 5FU+avastin
October 2016: looking into immuno trial
January 2017: maintenance chemo xeloda + avastin

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Frenchie's Wife
Posts: 947
Joined: Sat May 04, 2013 1:01 pm
Location: Alberta, Canada

Re: The Grim Reaper took another swipe at me !!

Postby Frenchie's Wife » Fri Jun 16, 2017 9:10 pm

CRguy wrote:Hey Frenchie !

My big rig is coding again ( Ford F53 chassis Triton V-10 ..... ECM speed sensor issues )

I need you buddy :shock:
taking back to Ford dealer tomorrow BUTT would rather bug YOU for your inputs
at least these guys have read the TSB for this issue ... not like the last place :twisted:

Cheers and Harmony bro'
CRguy on the Journey with you and Diane


Hi CRguy,

I read this post to Ron and he told me that his brain no longer functions well enough to help you with this kind of thing :(

He use to be my walking calculator BUTT that smart brain has slowed down a lot.

Diane
Caregiver to DH 59 yr, male, Stage IV at Dx
Dx Sept 2009
Liver,bladder mets, 5 surgeries
Lots of chemo
Inoperable lung mets nov 2013
Stopped all treatments in February 2014 due to QOL issues
I am in God's hands now !!
Feb 2015 - too many new mets to count !
At peace July 9, 2017

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CRguy
Posts: 9282
Joined: Sun Feb 10, 2008 6:00 pm

Re: The Grim Reaper took another swipe at me !!

Postby CRguy » Fri Jun 16, 2017 9:26 pm

Well you tell HIM ....he probably still knows more than the last 5 service techs and Ford dealers I have been to since 2014 !!!!!
AND still NO SOLUTION to my problem ... cleared the codes
drove it home, jockeyed to repark it and THEN
The TCIL "OFF" flashing light came on.... :twisted: :twisted: :twisted:

so Ron, I'd still rather have you on my side

Cheers and Harmony buddy ( and Mrs. )
all my best to you both
CRguy
Caregiver x 3
Stage IV A rectal cancer/lung met
10 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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Frenchie's Wife
Posts: 947
Joined: Sat May 04, 2013 1:01 pm
Location: Alberta, Canada

Re: The Grim Reaper took another swipe at me !!

Postby Frenchie's Wife » Thu Jun 22, 2017 9:12 am

So....another appointment with the Palative care doctor yesterday.

First thing to address was his bathroom issues. With his other pain meds they constipated him, with this fentanyl thing this does not so they may be giving him diarrhea. Considering all the stool softening meds on top of that his BUTT is pretty sore. Took and X-ray to see if full or not.

Second thing she address is going to Palative care. I understand her talking about this as Ron needs to hear about this. She knows the signs of when it is time to move there even when she knows his wish to die at home BUTT he seems to have changed his mind about that as well.

He has always wanted to getting "another summer" and when September comes he does not care anymore. I left that meeting with a sense from the doctor that she is not sure that this is possible for him. It was nothing that she said but it was what she won't say. This was an emotional conversation for Ron as he does not usually tear up at these meetings

Ron and I talked about it later and he agreed, he got the same sense as I did BUTT he is going to fight for his summer.

Only a few months ago he could walk about 4 km with the dogs and I, now just to get to the appointment yesterday he had to stop twice. He says his legs feel like rubber - all rubbery. The cancer is finally getting the best of him he says.

Diane aka Mrs. Frenchie
Caregiver to DH 59 yr, male, Stage IV at Dx
Dx Sept 2009
Liver,bladder mets, 5 surgeries
Lots of chemo
Inoperable lung mets nov 2013
Stopped all treatments in February 2014 due to QOL issues
I am in God's hands now !!
Feb 2015 - too many new mets to count !
At peace July 9, 2017

User avatar
Sharon Brent
Posts: 288
Joined: Mon Oct 06, 2014 5:19 am
Location: London England

Re: The Grim Reaper took another swipe at me !!

Postby Sharon Brent » Thu Jun 22, 2017 6:42 pm

Hi Diane,

Thank you for the update, this is a very trying time for you and Ron I know, but just continue to be strong as you have done already.

Talking about Palative Care is always heart stopping and not what anyone wants, sorry, I don't know how your system works but Golden had Palative care at home with the kids and I, we had nurses come to house all day, if the Doctors wanted to see him they also made a house visit, at night we had a nurse stay so I could try and get some rest.

They helped with everything although I still bathed and gave Golden his medication as that is what he wanted, but they were there for help and backup if I needed it.

I had hospital bed, oxygen machine, needle machine for IV etc everything he needed in the house, can you do that? Or is it not possible in Canada or not what you guys want.

It's just an idea, it worked for us so I thought I should mention it.

Anyway you know best for Ron.

Sending you Strength, Love and Gods Blessings
Piyagarn
DH, 47yo, Dx Stg IV, mCRC, lvr, lng 1/14, Tx Capeciabine 9 rnds
Children 5 & 1
DH 48th Birthday 6 November in Hospital
Home palliative care on 12 November 2014
Called back to Jesus 4pm 15 November 2014
Life Celebration in Nigeria 8 January 2015

Lee
Posts: 5256
Joined: Sun Apr 16, 2006 4:09 pm

Re: The Grim Reaper took another swipe at me !!

Postby Lee » Thu Jun 22, 2017 7:02 pm

Hi Diane,

Yes thank you for the update on our Frenchie. I'm sorry it was a difficult visit. I hope and pray he is able to enjoy this last summer. He is the "energizer bunny" and he just might do it especially when he puts his mind to do something. He has beat the cancer odds over & over again. I can see him beating this odd too.

I also hope he can get one more day in at the casino.

Diane, take care of yourself, know that we are all here for you. Feel free to vent here anytime you want or need to.

All the best to you and Mr. Frenchie (I know his name is Ron, butt he will always be Mr. Frenchie to me).

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!


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