The Grim Reaper took another swipe at me !!

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BrownBagger
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Joined: Fri Jul 24, 2009 2:56 pm
Location: Central NYS

Re: The Grim Reaper took another swipe at me !!

Postby BrownBagger » Tue May 19, 2015 10:38 am

Frenchie wrote:Someone said " Earth lost a soul but heaven gained an angle. "
I smirked, cleared my throat, and almost opened my big mouth, at the wake !


As I like to say, "While the rest of you are desperately clinging to precious, painful life as you decay into old age, I'll be comfortably dead."
Eric, 58
Dx: 3/09, Stage 4 RC
Recurrences: (ongoing, lung, bronchial cavity, ribs)
Major Ops: 6/ RFA: 3 /bronchoscopies: 8
Pelvic radiation: 5 wks. Bronchial radiation—brachytheray: 3 treatments
Chemo Rounds (career):136
Current Chemo Cocktail: Xeloda & Erbitux & Irinotecan biweekly
Current Cocktail; On the Wagon (mostly)
Bicycle miles post-dx 10,477
Motto: Live your life like it's going to be a long one, because it just might, and then you'll be glad you did.

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Frenchie's Wife
Posts: 959
Joined: Sat May 04, 2013 1:01 pm
Location: Alberta, Canada

Re: The Grim Reaper took another swipe at me !!

Postby Frenchie's Wife » Tue May 19, 2015 10:50 am

Since robbing banks and gas stations seems a bit risky, I have come up with a better plan.

I will become a spy like James Bond. That must pay pretty good. He is always well
dressed, drives fancy cars, loves beautiful woman. Yes, that's the job for me !

I will have to practice killing people. I thought I would start practicing on unsuspecting
campers first. Free up a few camping spots at the same time. Hell, I'd be doing a good
deed ! I already have an ax. Guns are so noisy.

Who would suspect me ?? I could always blame it on the Dex. Poor man, he went crazy
on his medication and knocked off a few campers. We won't let him come back next year.
He's harmless now, we took away his ax.
Caregiver to DH 59 yr, male, Stage IV at Dx
Dx Sept 2009
Liver,bladder mets, 5 surgeries
Lots of chemo
Inoperable lung mets nov 2013
Stopped all treatments in February 2014 due to QOL issues
I am in God's hands now !!
Feb 2015 - too many new mets to count !
At peace July 9, 2017

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exaussie
Posts: 618
Joined: Sun Jan 19, 2014 1:19 am
Location: Silverton OR
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Re: The Grim Reaper took another swipe at me !!

Postby exaussie » Tue May 19, 2015 10:52 am

Here ya go Frenchie

https://www.dropbox.com/s/nilz8kly7g4xj ... e.jpg?dl=0

And no I still can't figure out how to post pictures just the link....
DS 26 yrs old diagnosed 6/13 T3N2aM1b
Resection 6/13
6 rounds chemo folfax
12/13 Fissure
hernia surgery 12/13
5 months break
Maintenance chemo 3/14
Crazy growth. Liver failing. Folfox and vectibex 7-29-14
Chemo failure Hospice 8/26
Left us 8/28

peanut_8
Posts: 2340
Joined: Sun May 25, 2014 1:31 pm

Re: The Grim Reaper took another swipe at me !!

Postby peanut_8 » Tue May 19, 2015 11:09 am

Image
female, diagnosed Jan 14, RC stage 2a, age 56
MSS
April 14, 28 chemo/rad with Xeloda
June 14 adjuvant Xeloda 6 rounds
currently NED

peanut_8
Posts: 2340
Joined: Sun May 25, 2014 1:31 pm

Re: The Grim Reaper took another swipe at me !!

Postby peanut_8 » Tue May 19, 2015 11:58 am

Image
female, diagnosed Jan 14, RC stage 2a, age 56
MSS
April 14, 28 chemo/rad with Xeloda
June 14 adjuvant Xeloda 6 rounds
currently NED

peanut_8
Posts: 2340
Joined: Sun May 25, 2014 1:31 pm

Re: The Grim Reaper took another swipe at me !!

Postby peanut_8 » Tue May 19, 2015 11:59 am

Image
female, diagnosed Jan 14, RC stage 2a, age 56
MSS
April 14, 28 chemo/rad with Xeloda
June 14 adjuvant Xeloda 6 rounds
currently NED

peanut_8
Posts: 2340
Joined: Sun May 25, 2014 1:31 pm

Re: The Grim Reaper took another swipe at me !!

Postby peanut_8 » Tue May 19, 2015 12:01 pm

Image
female, diagnosed Jan 14, RC stage 2a, age 56
MSS
April 14, 28 chemo/rad with Xeloda
June 14 adjuvant Xeloda 6 rounds
currently NED

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Frenchie's Wife
Posts: 959
Joined: Sat May 04, 2013 1:01 pm
Location: Alberta, Canada

Re: The Grim Reaper took another swipe at me !!

Postby Frenchie's Wife » Wed May 20, 2015 10:37 am

Frenchie's new camping pix

Image
Image
Image
Image
Image

KWT
Posts: 3214
Joined: Thu Jul 11, 2013 7:22 pm

Re: The Grim Reaper took another swipe at me !!

Postby KWT » Wed May 20, 2015 11:27 am

Sweet spot.

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Frenchie's Wife
Posts: 959
Joined: Sat May 04, 2013 1:01 pm
Location: Alberta, Canada

Re: The Grim Reaper took another swipe at me !!

Postby Frenchie's Wife » Wed May 20, 2015 2:09 pm

Well, one mystery solved. Looks like I have
bone cancer in my left knee. That is what is
causing me so much grief in my left leg .

I also have steroid induced diabetis. I will know
tomorrow if I have to start injections..

My cancer is having another growth spurt.
It is going to my lower extremities which
Is unusual for colon cancer apparently .
Caregiver to DH 59 yr, male, Stage IV at Dx
Dx Sept 2009
Liver,bladder mets, 5 surgeries
Lots of chemo
Inoperable lung mets nov 2013
Stopped all treatments in February 2014 due to QOL issues
I am in God's hands now !!
Feb 2015 - too many new mets to count !
At peace July 9, 2017

Kiwi Debz
Posts: 167
Joined: Fri Aug 22, 2014 9:42 am
Facebook Username: Deb Goldby

Re: The Grim Reaper took another swipe at me !!

Postby Kiwi Debz » Wed May 20, 2015 2:16 pm

Frenchie, bummer about the Cancer in your knee .... Unusual but I guess you are not the model CC patient and if anyone will do things unexpected it is you :D Just another way for Frenchie to baffle them doctors!

I hope you are not in too much pain and discomfort and are getting to enjoy your beautiful camping spot .... Is it a lake in the background? Looks fab .....

Deb
6/14 DX mCrc stage 4
7/14 R. hemicolectomy; 4/17 LN; liver res. peri met; repair to illiac artery
8/14 FOLFOX
10/14 PET recurrence LN; liver ? Peri met Continue FOLFOX
12/14 PET: stable .Liver only! FOLFOX
02/15 Liver resection. NED
03/15 foundation One testing - BRAF mutant
05/15 progression; Hilum node; both lungs?
08/15 NED !!!!
Age 51 Mum to Tom (RIP) and Jose 18
KIA KAHA - Be strong!

bitchslapped
Posts: 1534
Joined: Tue Sep 09, 2014 3:23 pm
Location: PNW/USA

Re: The Grim Reaper took another swipe at me !!

Postby bitchslapped » Wed May 20, 2015 2:54 pm

You just keep on taking those "hits", don't you Frenchie. That's a lot for one day. Also sounds unusual to me for one to have in (nose) sinus as I recall you mentioning before. The things about those meds too, is they help in one aspect, problematic in another...a real Catch 22. I used to use those Bed Buddies that you heat up in the nuker on DH, legs, arms, back for bone pain, though he did not have cancer in the bones, they ached/bone pain from chemo. He used to say: "Oh, that hurts so good." I had all shapes & sizes...could have bought stock in the company. Even had a small one for the forehead. You can get them anywhere,Walmart, Walgreens, Amazon.com. My DSS had cancer in his rib, used one on him for the back pain, sent it home w/him. It helped, that the very next day he went & bought several more. May/may not help take the edge off for what the meds don't do. At the very least, the warmth may just feel comforting/soothing from the moist heat.

Image

Image

Image

As far as the campsite, it looks spacious! Kind of surprised @ the tire hanging from the tree. Is this national forest or privately maintained campgound? Anyway, looks like a nice, treed spot. Makes me want to go outside & light up the firepit, roast a hotdog & a marshmallow or two. :)

Best Wishes
bitchslapped
DSS,35YO,unresect mCRC DX 7/'14,lvr,LN,peri,rib
FOLFOX+Avstn 4 Rnds d/c 10/'14
Stent 9/'14
FOLFIRI+Avstn 10/'14
Gone From My Sight 2/20/15
Me:garden variety polyps + precancerous polyp, diverticulitis
Carergver x2 DH,DM dbl occupancy,'03-'10
DH dx 47YO mCRC,'04-'07 fried x HAI
DM dx CC 85YO,CC,CHF,stroke,dementia,aphasia

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Frenchie's Wife
Posts: 959
Joined: Sat May 04, 2013 1:01 pm
Location: Alberta, Canada

Re: The Grim Reaper took another swipe at me !!

Postby Frenchie's Wife » Thu May 21, 2015 10:04 am

My perfect record of being cancer pain free for 5 1/2 years has been broken.
My knee is the culprit.
Now that I know what the problem is, I can do things about it. I will buy a knee brace and a cane. The cane thing bugs me a bit. I will look disabled.I pride myself in not looking sick. No one can tell at the moment, I look perfectly normal.

I would be more upset about this if I had longer to live. After all, how bad can it get from
now until the fall ?
The doctors have to get it right sooner or later. Yesterday. My palative oncologist said it is highly likely that I will not be here this fall. I've heard this before.

She brought it up for a reason. My cancer seems to be spreading quickly these
days. I refuse to do anymore scans or tests of any kind. As long as I'm relatively pain free, I couldn't care less. I've been living on borrowed time for years now. Every day is a bonus to
me.

I may not be able to be as active as I planned this summer. I may have to do more
R&R. I don't want to disappoint my nephew. I will push myself to the max like I usually
do. The setting is perfect. He can still enjoy the mountains. He may have to explore
on his own.

I am presently at the foot of the Rockies, in a small town that has all the amenities that I need. The weather is warm compared to the mountains and there is zero chance of snow.
There is a hospital nearby if need be. I will move into camp within the next couple of
weeks. I can't afford to be stranded up there if there is an emergency. I have to be able
to access a hospital 24/7.

Now that my cancer is on the move, I never know what I'll wake up to in the mornings.
It happens quickly without much notice. I feel my whole body getting weaker as time
goes by. I can't do things I did a month ago. I am more determined than ever to spend
the rest of my time in the mountains now.
Caregiver to DH 59 yr, male, Stage IV at Dx
Dx Sept 2009
Liver,bladder mets, 5 surgeries
Lots of chemo
Inoperable lung mets nov 2013
Stopped all treatments in February 2014 due to QOL issues
I am in God's hands now !!
Feb 2015 - too many new mets to count !
At peace July 9, 2017

midlifemom
Posts: 1358
Joined: Wed Jan 15, 2014 10:58 am
Location: NJ

Re: The Grim Reaper took another swipe at me !!

Postby midlifemom » Thu May 21, 2015 11:51 am

Frenchie,
Regarding the cane, learn to spin it around on your fingertips and get a top hat. You'll look just like Fred astaire!
Stage 3 cc - dx Jan '14 age 53, cea 2.9
t2n2m0, KRAS mutant, MSS
Folfox Feb - Aug '14
Nov '14 cea 27.7 -2 liver masses
Dec '14 left lobectomy and HAI
Jan '15 FUDR and FOLFIRI
Aug '15 fudr done, liver clear, add avastin for lungs. Cea 4.3
Feb '16 CEA rising
May '16 2 wk break then drop Iri for 6 weeks.
Jul '16 cancer grew, constricted main bile duct. Stent inserted. On break till jaundice clears. CEA climbing. Doing reduced Folfox. Allergic to Oxali.
Sep'16 chemo failed. Trial or hospice?

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Frenchie's Wife
Posts: 959
Joined: Sat May 04, 2013 1:01 pm
Location: Alberta, Canada

Re: The Grim Reaper took another swipe at me !!

Postby Frenchie's Wife » Thu May 21, 2015 12:15 pm

You can bet that the cane will be unique.
The docs office called. My blood sugar
Is off the charts. That's why I am feeling
so lethargic. I am big time diabetic now.

I just can't catch a break these days. Every day
something new pops up. It is becoming quite a
challenge just to stay upright nowadays.
Caregiver to DH 59 yr, male, Stage IV at Dx
Dx Sept 2009
Liver,bladder mets, 5 surgeries
Lots of chemo
Inoperable lung mets nov 2013
Stopped all treatments in February 2014 due to QOL issues
I am in God's hands now !!
Feb 2015 - too many new mets to count !
At peace July 9, 2017


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