Saying goodbye

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alphagam
Posts: 203
Joined: Tue Jun 14, 2011 10:48 am
Facebook Username: Kathy Maine Ruess

Saying goodbye

Postby alphagam » Fri Feb 20, 2015 2:14 pm

Almost 4 years ago, I came here to learn as I had a wacko diagnosis... See my sig for that if you are interested. I was one of the fortunate ones. I was Stage 0. At that time, I kept very quiet because Stage 0's weren't exactly welcomed. Belle told me to continue to spread the word about screening, which I have. I'm so sorry to hear if her passing.
In just about 2 weeks, I'll have another colonoscopy. That will tell me how to move forward.
Thus board is a wonderful resource for people, but not for all people. Based on other's comments, I'm rich, greedy and horrible for supporting other causes rather than colon cancer. We are not rich or greedy. My husband is retired military and has a great job in aerospace engineering. I spend about 50 hours a week in a totally volunteer posistion for my college sorority and their philanthropy, diabetes. Two if my four daughters have a chromosome abnormality. We support that organization as well. We also tithe to our church, which in turn gives the money to the needy in our community, international relief and the Soutbern Baptist Men. Look them up sometime. They are there in disasters well before the Red Cross and stay longer. I'm a conservative, evangelical Christian with a good chunk of money set aside for retirement. We've also spent well over 70,000.00 for the two aforementioned daughters for adoption expenses. Can't even begin to list the things we have done for the other two daughters.
I'm hoping and praying that my upcoming colonoscopy tells me I continue to be NED. I hope that I won't need the info here, because I'm not accepted, I'm rich and I'm greedy. And I am certainly on the opposite of most of this board because I'm an evangelical Christian.

Thank you all for the knowledge I have gleaned from you and there are any who I will miss.
Dx Feb 2010 4 cm tumor, just inside rectum
EUS stated T3 tumor
2nd opinion, need better path
Mar 2010 transanal surgery. Surgery by board certified CRS found tumor only in lining
6 exams of surg site, 3 PET, 3 scopes laterNED.
Scope in Mar2015, clean colon
Next scope/test in 3 years

jillbugs4110
Posts: 266
Joined: Thu Jul 31, 2014 3:36 pm

Re: Saying goodbye

Postby jillbugs4110 » Fri Feb 20, 2015 2:28 pm

This is a very arrogant weird post this is what generally turns others off to knowing GOD. Shameful.
Live One Day At A Time
I Abandon myself to God
46 6 yo.....9yo...
stage 1V liver mets :-(
my one prayer to got to sustain me to raise my two babies this is my only wish then take me out if needed.

peanut_8
Posts: 2340
Joined: Sun May 25, 2014 1:31 pm

Re: Saying goodbye

Postby peanut_8 » Fri Feb 20, 2015 2:32 pm

alphagram, I think it's possible that you may be just a tiny bit too sensitive. Sometimes threads take unexpected directions, and not everyone has the same opinion, but for the most part everyone is kind and sympathetic. Valerie said something a while back that stuck in my mind. She said that everyone here has something valuable to contribute. I really agree with her about that, and hope you change your mind about leaving.
peanut
female, diagnosed Jan 14, RC stage 2a, age 56
MSS
April 14, 28 chemo/rad with Xeloda
June 14 adjuvant Xeloda 6 rounds
currently NED

Don.in.Dallas
Posts: 179
Joined: Sun Aug 31, 2014 10:43 pm
Location: Dallas, Texas USA

Re: Saying goodbye

Postby Don.in.Dallas » Fri Feb 20, 2015 2:34 pm

I have never seen an ugly post on this board before. Hopefully this is the last.
Male 56 at DX 05/14
05/14 Resection, 3.2cm sigmoid CRC Stage IIIb, 2/17 nodes, T3N1M0
06/14 PET scan clear, portacath install
06/14 Begin FOLFOX6 12x, End 01/15
09/20 Still NED!
----
Previous: Laryngeal cancer
33 x rad
NED since 12/09

User avatar
NZJay
Posts: 640
Joined: Mon Dec 16, 2013 3:00 pm
Location: NZ

Re: Saying goodbye

Postby NZJay » Fri Feb 20, 2015 2:37 pm

Cool story, bro.
11-13 Dx CC
SPS T4b(touched stomach organ),N1(3/23),M0(Stage 3B)
11-13: resect + partial gastrect
2-14: 1 Tx Cape + Oxy; renal failure, colitis
4-14: 7 Tx Capecitabine
1-15: clear CT
7-15: clear scope
1-16: clear CT
3-17: clear CT
10-17: clear scope (5 year gap now!)
CEA@dx: 8.4 / 6-15: 4.0 / 10-15: 4.2 / 2-16: 4.9 / 7-16: 4.9 / 11-16: 5.0 / 6-17: 4.5
NED since resection

Delinda2
Posts: 483
Joined: Fri Jan 16, 2015 6:28 pm
Location: Washington state

Re: Saying goodbye

Postby Delinda2 » Fri Feb 20, 2015 2:50 pm

I've never seen a post where anyone was made to feel "less than" because of their staging, their religious beliefs, or the size of their wallet. Odd...
63 yrs,wife & mom
4/14 dx colon cancer,3C,9/22 nodes
Lymphatic,venous,&perineural invasion
<1cm margin,poorly differentiated
6/14 colostomy take down
7/14 FOLFOX w/9 Nulasta shots
2/16 dx new primary of sigmoid colon
6/16 surgery-rescection on sigmoid, total hysterectomy, temp ileo, stage 4
"I AM the storm."

Valorie
Posts: 365
Joined: Mon May 05, 2014 6:33 am

Re: Saying goodbye

Postby Valorie » Fri Feb 20, 2015 2:50 pm

Alpha- I am so sorry that you don't feel accepted here. I am also lower staged and a Christian, but have never been made to feel unwelcome. A forum like this is going to be very diverse. There are going to be people with all stages of this disease, different ethnicities, religions or no religion at all, economic status, political viewpoints. When you get all that in the mix, there are going to be glaring differences that show up at times. The trick is to accept that people will not always agree with your point of view but hopefully respect your right to have it whether they agree or not. One of the best friends I've made on this board is athiest/leftie/MSNBC completely contrary to my Christian/conservative/Fox News. You know what? I may not always agree with that person or they with me, but when I needed their support going through a pretty tough time with my hernia surgery recovery they were there for me. Even graciously overlooked a very grumpy day I was having. I hope I return that same support and care. That's what this forum is about - support and care for each other. I hope you will stick around as each member is valued and has something to contribute.

You are more than welcome to PM me if you feel you need to talk to someone.

I wish you well,

Valorie
Age 53 dx 2a CC 0/21 LN Oncotypedx score: 11
Sigmoidectomy 5/8/14
MSS No lymphovasular involvement,
6/14 PET - NED, 12/14 CT NED, 7/15 CT - NED
6/14-12/9/14 Xeloda 8 cycles
2/12/15 incisional hernia repair - Boooo!

Valorie
Posts: 365
Joined: Mon May 05, 2014 6:33 am

Re: Saying goodbye

Postby Valorie » Fri Feb 20, 2015 2:52 pm

Peanut - just read your post and giggled - I repeated myself. Thanks for remembering my words as they are sincerely meant.

Valorie
Age 53 dx 2a CC 0/21 LN Oncotypedx score: 11
Sigmoidectomy 5/8/14
MSS No lymphovasular involvement,
6/14 PET - NED, 12/14 CT NED, 7/15 CT - NED
6/14-12/9/14 Xeloda 8 cycles
2/12/15 incisional hernia repair - Boooo!

User avatar
Voxx66
Posts: 1844
Joined: Wed Jul 24, 2013 10:22 pm
Facebook Username: Michael Void Ward

Re: Saying goodbye

Postby Voxx66 » Fri Feb 20, 2015 3:07 pm

I think that it's best to cut others slack. I will certainly cut you slack as I understand being frustrated and overly sensitive but may I suggest you return the favor to others? In fact, there are likely many people here who share your world view and yes some who do not. I share part of it though I am absolutely not an evangelical Christian. I find value in dealing with others who have different beliefs from mine - after all it's not the healthy that need a doctor yes? Ha.

At any rate, I wish you the best and good health to you and yours.

V
DX and resect 10/2012 age 46
Stage IIa CRC
liver mets both lobes 8/2013
CEA 28
FOLFOX + Avastin 8/26/13 3 rounds
Folfox only 3 rds + rd 8
platelets low round 7,9,10 5FU only
1/14 CEA 1.0 y90
5fu
10/14 mets lung and peri
1/15 Folfiri

skypup
Posts: 2598
Joined: Mon Dec 17, 2012 12:12 pm

Re: Saying goodbye

Postby skypup » Fri Feb 20, 2015 3:18 pm

As a not-conservative, not-evangelical person, I can tell you there have been many past posts that would envelop you like a warm, fuzzy blanket. That you don't remember those but react so strongly to a few that don't line up with your beliefs may indicate you are not able to accept those of different beliefs, not the other way around. Where is your love and forgiveness and charity when others may need it?


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