Typing through tears....our belle Belle

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lpas
Posts: 1010
Joined: Wed Nov 19, 2014 11:11 pm

Re: Typing through tears....our belle Belle

Postby lpas » Fri Feb 20, 2015 1:55 am

This saddens me so much. I didn't know Belle but her raw and beautiful blog posts made me feel as though I did. I knew she had chosen to stop treatment but had no idea the end would come so quickly. I even thought I might be lucky enough to meet the real Belle at this year's Call on Congress. She deserved more time with her family to enjoy a life free from chemo and clinical trials. Someone else said it first but I don't care. I hate this fucking disease.
11/14 Dx sigmoid CC @ 45yo
12/14 Colectomy + hysterectomy
Stage IIIB, T3N1bM0, 2/20 nodes, MSS, G2, KRAS(A146T), TP53, SMAD4, ERBB2, CEA 1.0
2/15-7/15 XELOX & celecoxib
2/19 clean scope
11/19 clean CT
Ongoing cimetidine & other targeted supplements
Mom to a 6 & 8yo

Regan
Posts: 249
Joined: Sun Mar 02, 2014 11:58 pm

Re: Typing through tears....our belle Belle

Postby Regan » Fri Feb 20, 2015 9:36 pm

I read thru my saved PMs today.....

To Belles children:

I hope you take the opportunity to read, share and hold onto the beauty in your mom.
I wish I could have met her in person...she was/is one of the bravest, strongest and helpful persons---as with many others on this board....but some--like your mom... Just stood up and apart.

I miss her so much...seems likes these past months have been tragic for some of our strongest. I can't imagine your pain.

Theresa
DH dx 7/12
Stg IV RC liver mets
11/12 Hrt Attk by Folfox
1/13 Liver resct
4/13 LAR-Temp
NED
1/14 revrsal
4/14 Hrnia surg 4/14
1/15 local recur, liver, lung, aortocaval region of retroperitoneum, anterior wall of distal abdominal aorta
2/15 Irinotecan
1/16 Lonsurf (fail--just zapped. Strength)
Aug 10, 2016 at rest

canadiandaughter
Posts: 676
Joined: Sun Aug 17, 2014 11:19 am

Re: Typing through tears....our belle Belle

Postby canadiandaughter » Fri Feb 20, 2015 9:37 pm

So so sorry to hear this news. I didn't know Belle well but enjoyed the blogs that I read of hers. I sat with tears reading her story from Christmas of her shake that her hubby made her right before his family came to visit. Such a sense of humor even when facing this damn disease at its worst. She will never be forgotten on this board!! Deepest condolences to her family and close friends here on colon talk.
DD to 81 year old father
dx 24/07/14 iv cc mets liver/lung
folifiri started 19/07/14
shrinkage of all mets
growth in the liver,started folfox/avastin 80% 13/01/16
reduced to 70% due to side effects 27/01/16
First scan on folfox shows shrinkage in lungs, but liver just stable
6 rounds of vectibix-fail. 3cm growth and new spots showing Waiting for panel recommendations
At peace January 8, 2017

Lee
Posts: 6207
Joined: Sun Apr 16, 2006 4:09 pm

Re: Typing through tears....our belle Belle

Postby Lee » Sat Feb 21, 2015 12:52 pm

I am so sorry to read this.

While I never met Belle, I felt I knew her through her blogs and writing. What a beautiful writer she was. She will be sorely missed by many people here including me.

To her husband and kids, I am so sorry for your loss. May you find strength in the days ahead surround by the love she had for you all.

Belle, rest in peace.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!


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