Typing through tears....our belle Belle

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Staci's team
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Joined: Fri Sep 25, 2009 9:43 am
Location: Canfield, Ohio
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Typing through tears....our belle Belle

Postby Staci's team » Wed Feb 18, 2015 9:23 pm

Friends, it is with great sadness that I share a post from about an hour ago from Belle's Facebook page..

"With greatest sorrow, unimaginable pain, I want to let everybody know Belle passed at 5:20 p.m. pst. she was surrounded by family and friends and more love than I can explain. (with permission from her husband, Stephen Piazza. Henry "Hank" Cummings - brother) Belle always said "Cancer was a Marathon, she has reached her finish line."

I'm privileged to have called her a friend in both virtual and real life, and will cherish the time Staci and I were able to spend with her. Rest easy, my friend....



cw
Husband to Staci, diagnosed at age 32
Clinical dx Stage II/III rectal cancer, 7/2009
APR surgery 11/09 leading to...
Pathological dx Stage IIIB, ypT3N1M0, 11/2009
http://www.caringbridge.org/visit/staciwills
Member of The Colon Club's Board of Directors

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elise
Posts: 1519
Joined: Fri Apr 27, 2012 5:09 pm
Location: Ontario (Canada)

Re: Typing through tears....our belle Belle

Postby elise » Wed Feb 18, 2015 9:26 pm

My heart and thoughts are with Belle's family <3

The world has lost an amazing soul.

Elise
2012
Feb - Stage 2 (T3 N0 M0) CC @ 30
Mar - R hemicolectomy, 18 LN
May-Nov 6 - Chemo (8 Xeloda)
2013
Feb - NED
2014
Feb - NED
May - Stage 4 - 1 liver met @ 32
Jun - Liver resection
Oct - CLEAN SCAN
Aug-Jan - FOLFOX 5 rounds, 5FU X 6
2015
Ap, Oct - NED
2016
Mar - NED

ams5796
Posts: 2298
Joined: Fri Feb 06, 2009 10:07 am

Re: Typing through tears....our belle Belle

Postby ams5796 » Wed Feb 18, 2015 9:31 pm

Such a shining star...she will be missed by many.
Stage 3C (or 4?) Rectal Cancer 01/07
2/10 lung mets
3/11 VATS
6/11 VATS
7/13 lung met
2/14 SBRT
NED 8/14
5/17 scan and MRI found treated spine met

KWT
Posts: 3214
Joined: Thu Jul 11, 2013 7:22 pm

Re: Typing through tears....our belle Belle

Postby KWT » Wed Feb 18, 2015 9:32 pm

I'm so fricken sad right now. I can't imagine what Stephen and their kids are going through right now. Peace be with them.

SoConfused
Posts: 1026
Joined: Mon Jan 30, 2012 2:40 pm

Re: Typing through tears....our belle Belle

Postby SoConfused » Wed Feb 18, 2015 9:33 pm

heartbreaking - she was a great advocate and so full of life. I fucking hate this disease. Praying for her kiddos during this sad time.
Stage IV CC

Steph20021
Posts: 553
Joined: Sat Dec 27, 2014 4:58 pm
Location: Ontario, Canada

Re: Typing through tears....our belle Belle

Postby Steph20021 » Wed Feb 18, 2015 9:38 pm

I have no words, just sad. I never 'met' her on the forum but I know how much she will be missed here. Sending love to all of you.
DX 1/31/14 @ 33- SPS-T4a(invades visceral peri), N2a(6/106 LN), M1a(ovary) (Stage 4a) MSS; BRAF V600E
2/1/14-subtotal col, lost R ovary, temp ileo
3/14-9/14- folfox; sepsis
11/14-CT/PET: L ovary met, pelvic met, (?)ghost liver met(?)
12/14-folfiri -13 rds kept me stable from 3/15-6/15
8/15-HIPEC, NED
09/15- cea 0.9
05/16- recurrence in abdo wall and lymph nodes
01/17- pulmonary embolism
02/17- 1 wk radiation to abdo wall
08/16- on folfiri
01/18-folfox
11/18- Beacon trial-encorafenib & cetuximab

Nik Colon

Re: Typing through tears....our belle Belle

Postby Nik Colon » Wed Feb 18, 2015 9:40 pm

Very sorry to hear. Hugs to her family and friends

alphagam
Posts: 203
Joined: Tue Jun 14, 2011 10:48 am
Facebook Username: Kathy Maine Ruess

Re: Typing through tears....our belle Belle

Postby alphagam » Wed Feb 18, 2015 9:41 pm

Just no words.
Dx Feb 2010 4 cm tumor, just inside rectum
EUS stated T3 tumor
2nd opinion, need better path
Mar 2010 transanal surgery. Surgery by board certified CRS found tumor only in lining
6 exams of surg site, 3 PET, 3 scopes laterNED.
Scope in Mar2015, clean colon
Next scope/test in 3 years

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MamaN
Posts: 666
Joined: Tue Dec 30, 2014 2:34 am

Re: Typing through tears....our belle Belle

Postby MamaN » Wed Feb 18, 2015 9:45 pm

So sorry , I have no words heartbreaking.
Dx@45 stage t3 n1b m unknown IIIB
Resected in 8/2010 rectosigmoid
5.5 tumor with 3 /26 lymph nodes
Lymph vascular invasion
Folfox sept 2010 to feb 2011
10 tx only stopped due to low wbc

Kathy
Posts: 114
Joined: Sat Mar 14, 2009 8:28 pm
Location: New Jersey

Re: Typing through tears....our belle Belle

Postby Kathy » Wed Feb 18, 2015 9:47 pm

I had the privilege of meeting Belle and her children last March at the Call on Congress. Belle's beauty will live on in her remarkable children. Blessings and strength to Belle's family and all those she has touched.
Stage 1- resection 9/ 05
Recurrence-2/ 2008 chemo/radiation 5 FU/oxi
APR surgery 7/ 2008- Found spread to liver-Margins not clean
chemo between surgeries
Liver resection and HAI pump-11/ 08 Chemo 6 months
NED 11/08

NED since 11/2008

janklo
Posts: 1567
Joined: Wed Mar 03, 2010 11:10 pm
Facebook Username: JanetKlostermann

Re: Typing through tears....our belle Belle

Postby janklo » Wed Feb 18, 2015 9:55 pm

Oh no! I have been afraid every day to see this message. I emailed back and forth with Belle, she is one of our heroes. I know there is discussion here lately on "why do we get cancer?". I dont know why cancer exists, but having the privilege of "meeting" people like Belle online is certainly one of the good aspects of it. I so appreciate her friendship, advice and knowledge. Rest in peace my dear Belle, you are one of a kind.

And I look forward to your message to the CC from beyond.
Mom to 28 yo daughter
colectomy 2/22/10, stage 3C, signet cell
7/2011 peritoneal mets
HIPEC September 2012, difficult recovery
Hospice 10/31/2012, Died 11/16/2012

bitchslapped
Posts: 1534
Joined: Tue Sep 09, 2014 3:23 pm
Location: PNW/USA

Re: Typing through tears....our belle Belle

Postby bitchslapped » Wed Feb 18, 2015 10:13 pm

I would like to express my most sincere condolences to Belle's husband, children, family, friends. Her courage, her spirit...so admired... will be missed by so many here.



Slapped
DSS,35YO,unresect mCRC DX 7/'14,lvr,LN,peri,rib
FOLFOX+Avstn 4 Rnds d/c 10/'14
Stent 9/'14
FOLFIRI+Avstn 10/'14
Gone From My Sight 2/20/15
Me:garden variety polyps + precancerous polyp, diverticulitis
Carergver x2 DH,DM dbl occupancy,'03-'10
DH dx 47YO mCRC,'04-'07 fried x HAI
DM dx CC 85YO,CC,CHF,stroke,dementia,aphasia

lauragb
Posts: 899
Joined: Sun Aug 28, 2011 5:25 pm

Re: Typing through tears....our belle Belle

Postby lauragb » Wed Feb 18, 2015 10:14 pm

To me Belle was bigger than life and I had hoped she would have more time with her family while off treatments. This is too sad........Soar in sweet peace, Belle.
RC 3B 7/2011 @ 53
Chemoradiation 5 weeks 8/11
LAR-Hysterect-temp ileo
pCR, 0/23 nodes
Folfox 1/12, Xeloda 2/12 to 5/12
Reversal 5/12
SBO,lysis of adhesions 12/12
NED 11/12, 11/13, 6/16

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chrissyrice
Posts: 1171
Joined: Thu Sep 23, 2010 8:44 am
Location: Atlanta, Georgia

Re: Typing through tears....our belle Belle

Postby chrissyrice » Wed Feb 18, 2015 10:15 pm

dear sweet Belle... no words.
so sad to let you go...

Peace and comfort to your family.
DX 10-31-09 Surgery 12-1-09 Sigmoid Colon
Stage IIIb T3,N2,MX; Chemo Feb 2010-Aug 2010; 4 rounds Folfox; 8 rounds 5FU +LV
12/2010 PET/CT Scan, Cancer Free
7/2012 CT Scan NED 2 years
10/2013 NED 3 years
8/2014 NED 4 years
Recurrence 6/2015: iliac lymph node(s)
8/2015 Surgery: 3 cm tumor removed+iliac artery graft
3/2016 CT Scan Stable
6/2016 Stable
9/2016 Stable
12/2016 Stable
3/2017 Stable
Recurrence 6/2017
12/2017 Surgery removed all cancer w/ clean margins
07-27-2018 Cancer-free for 7 months

DarknessEmbraced
Posts: 3576
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Typing through tears....our belle Belle

Postby DarknessEmbraced » Wed Feb 18, 2015 10:19 pm

So very heartbreaking. Sending my condolences to Belle's family.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)


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