Denied, again.

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KWT
Posts: 3214
Joined: Thu Jul 11, 2013 7:22 pm

Denied, again.

Postby KWT » Mon Feb 16, 2015 12:13 pm

How is it possible for some ins company's to find a procedure "medically necessary" and others to not? Seems ridiculous.my RFA request was denied they say it's experimental. Our government says we now have to have ins which I agree with but in return these company's should have to cover treatments. I'm not asking for them to pay for the baking soda lemon peel pineapple cure!

Teddi
Posts: 241
Joined: Thu Jul 31, 2014 1:44 pm
Facebook Username: teddimcfarland

Re: Denied, again.

Postby Teddi » Mon Feb 16, 2015 12:24 pm

I am so sorry the insurance company is wasting your time and energy. Who is next on the chain to appeal to? The insurance company again? Maybe the state insurance board. Possibly the local media? When I did it, it sure got action when I elevated it to the state board. It's a stressful f'n hassle, though. Makes me mad we have to beg for what should be given. Get your irate citizen pen and go to work. They count on you giving up.


Teddi
47 at diagnosis
Colonoscopy, biopsy, CT, PET 6/14
Rectal cancer (tentatively) Stage III-b, MSS
Xeloda and radiation 25x finished 8/14
FOLFOX 5 cycles
Surgery 1/23/14 ~ T1N0MX ~ temp illeostomy
FOLFOX 3 cycles = total of 8
Illeostomy reversal 4/8/15
Clean scans x2, clear colonoscopy 9/15

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Bev G
Posts: 5856
Joined: Thu Jan 07, 2010 11:19 pm
Facebook Username: Bev Golde
Location: Quechee, VT

Re: Denied, again.

Postby Bev G » Mon Feb 16, 2015 12:32 pm

Hi Kenny,

May I suggest you write to the Insurance Commissioner of your State? Better still call them. Give them a citation for a peer-reviewed paper about the efficacy of the procedure. Call your insurance company and tell them you are filing a complaint with the commissioner. I think that might move things along. Insurance companies don't like complaints to the State.

I hope this might work!

Bev
58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo

9/13 ^17th clean PET/CT NED for now

KWT
Posts: 3214
Joined: Thu Jul 11, 2013 7:22 pm

Re: Denied, again.

Postby KWT » Mon Feb 16, 2015 12:39 pm

We are appealing now, we'll see how it goes I have some documents to send along. It's just ridiculous to have to go through this. They will approve chemo at the drop of a hat. Is that not just a shot in the dark? Really?

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Bev G
Posts: 5856
Joined: Thu Jan 07, 2010 11:19 pm
Facebook Username: Bev Golde
Location: Quechee, VT

Re: Denied, again.

Postby Bev G » Mon Feb 16, 2015 12:42 pm

Yeah, it's total crap.
58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo

9/13 ^17th clean PET/CT NED for now

jillbugs4110
Posts: 266
Joined: Thu Jul 31, 2014 3:36 pm

Re: Denied, again.

Postby jillbugs4110 » Mon Feb 16, 2015 1:35 pm

Sorry kenny fight to deny this. I will ask the big man haha....hope you are enjoying the sun. I hate this kind of shit it is wrong I hope they make it right.
Live One Day At A Time
I Abandon myself to God
46 6 yo.....9yo...
stage 1V liver mets :-(
my one prayer to got to sustain me to raise my two babies this is my only wish then take me out if needed.

cathy123
Posts: 665
Joined: Sat Nov 08, 2014 3:36 pm

Re: Denied, again.

Postby cathy123 » Mon Feb 16, 2015 1:48 pm

That stinks. Good luck with your appeal.
Cathy

Diagnosed 10/14 low rectal cancer age 43
Clinical T2NXMX
Radiation/xeloda 12/14-1/15
LAR with temp Ileo 3/15
pT2N0M0, lymphatic invasion 0/37 nodes
4 xelox, 1 xeloda only
Reversal 9/15
Mom to 9&11 year olds

janderson
Posts: 679
Joined: Tue Mar 27, 2012 11:46 am

Re: Denied, again.

Postby janderson » Mon Feb 16, 2015 1:56 pm

That's bullshit Kenny. You know I have been down that road before. I think it is criminal. I hate insurance companies and the laws that protect them.
DX 10-05 stage IV
liver resection 12-05 Folfox1-05 to 7-06
Liver resection 8-07 Folfiri 9-07 to 3-08
Liver resection 12-11
Recurrence 2/7/2014, liver, chestwall mets, 16 rounds chemo
7/3/14, y90 radioembolization, steady shrinkage
12/8/14, cryoablation to liver and chest wall
6/1 to 6/26 SBRT radio surgery
7/2 more cryo ablation to right lung
7/16 lung infection drain tube installed
9/4 chest wall resection to remove 2 ribs

Coppercent
Posts: 262
Joined: Thu Feb 23, 2012 4:00 pm

Re: Denied, again.

Postby Coppercent » Mon Feb 16, 2015 2:16 pm

Sorry to hear you were denied. We should not have to work so hard for treatment.

Can't believe they did not cover it! My insurance covered my "baking soda lemon peel pineapple cure treatment plan". Sorry! Could not resist that treatment to cure me!
07/15/11 Stage III Rectal, 08/11 - 09/11 Chemo/rad 11/11 LAR - Whole rectum gone, ostomy, hysterectomy
01/12 Port placed, 01/12 thru 06/12 Folfox, Xelox 10/03/12 Reversal, Clear scan
And then the story continues.
Currently, remission round two!

lauragb
Posts: 899
Joined: Sun Aug 28, 2011 5:25 pm

Re: Denied, again.

Postby lauragb » Mon Feb 16, 2015 2:18 pm

This infuriates me! You should not have to be dealing with this bullshit. I hope to hear soon that your appeal goes through.
RC 3B 7/2011 @ 53
Chemoradiation 5 weeks 8/11
LAR-Hysterect-temp ileo
pCR, 0/23 nodes
Folfox 1/12, Xeloda 2/12 to 5/12
Reversal 5/12
SBO,lysis of adhesions 12/12
NED 11/12, 11/13, 6/16

KWT
Posts: 3214
Joined: Thu Jul 11, 2013 7:22 pm

Re: Denied, again.

Postby KWT » Mon Feb 16, 2015 2:23 pm

I really read somewhere about the pineapple core treatment and cure. I'm pretty sure it was instigated by the dole corporation as a way to profit from all those pineapple waste products.

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singingholly
Posts: 1133
Joined: Thu Feb 27, 2014 3:37 am
Location: Northern Italy

Re: Denied, again.

Postby singingholly » Mon Feb 16, 2015 2:25 pm

Just hate and can't understand it.
Olivia
Dec2011 sigm IIIst res T3N1(2/18)M0 Xelox
Oct2012 5liv.mets Dec 2012 liv.res
Jan2013 1liv.met Folfiri+avastin
Jul2013 liv.res Folfiri+/av
Feb2014 10+2lu.mets & 1abd node Folfoxiri+SBRT
Sep2014 Res rx l. BUT spot on diaph:SBRT
Dec2014 3+6lu.mets.Immuno

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meatie
Posts: 419
Joined: Wed Aug 20, 2014 8:13 am
Location: San Jose, CA

Re: Denied, again.

Postby meatie » Mon Feb 16, 2015 2:31 pm

The worst of all is that we are just past the 2/15 deadline to change insurance...
Mother DX @59 8/14
cln+lvr res 9/14, stage 4
FOLOX+Avs 12-rd 10/14 to 4/15
Reoccurrence, KRAS mutant 11/15
Folfiri 18-rds 11/15-8/16
FOLFIRI with Ramicirumab 28-rds 8/17-9/18
Regorafenib 10/18-10/19
Lonsurf 10/19 onward
Folfox rechallenge 05/20
Regonivo (Opdivo+Stivarga) 08/20
External Peace 09/12/2022

KWT
Posts: 3214
Joined: Thu Jul 11, 2013 7:22 pm

Re: Denied, again.

Postby KWT » Mon Feb 16, 2015 2:58 pm

meatie wrote:The worst of all is that we are just past the 2/15 deadline to change insurance...


I don't think it would matter as it seems to be a state thing. I could be wrong.

weisssoccermom
Posts: 5988
Joined: Thu May 10, 2007 2:32 pm
Location: Pacific NW

Re: Denied, again.

Postby weisssoccermom » Mon Feb 16, 2015 3:29 pm

I don't know how many lung mets you have that you want to have zapped but, when I was helping Carolyn with the same 'approval', she ran into a snag when it was more than THREE mets. We were able to find almost the exact same wording in three or four different insurance company's benefit booklets. In addition, it appears that most insurance companies base their decisions on another company (I wish I could remember the name of that place) that has a board of doctors who make these decisions. I wonder if this is the same reason that you are being denied....btw, in Carolyn's case, with more than three lung mets (total...both lungs), it was also considered 'experimental'. I remember that even when she wanted RFA on only one lung that had less than the three mets, it didn't matter. What mattered was the total number of mets. My guess is that the insurance companies don't feel that the 'treatment' itself is experimental but deem it that (again, based on this other company's decision) it is 'experimental' only if there are more than three. Hope that all makes sense. You may also want to dig a little deeper and see if this is the reason why they denied the treatment. As far as it being a 'state' thing.....nope, since Carolyn isn't in Oregon and the other insurance companies are in numerous states....not just one.
Dx 6/22/2006 IIA rectal cancer
6 wks rad/Xeloda -finished 9/06
1st attempt transanal excision 11/06
11/17/06 XELOX 1 cycle
5 months Xeloda only Dec '06 - April '07
10+ blood clots, 1 DVT 1/07
transanal excision 4/20/07 path-NO CANCER CELLS!
NED now and forever!
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