I'm Back! Thanks for all the support!!

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Cherie
Posts: 590
Joined: Fri Jul 12, 2013 11:20 am
Facebook Username: cherie
Location: New Zealand

I'm Back! Thanks for all the support!!

Postby Cherie » Fri Feb 13, 2015 12:46 am

Hey Everyone,

You guys are awesome and give me more support than I could ever give. I'm slowing going through my emails trying to return all of them. My computer decided to have a break and has been in the shop. I also needed just to stop talking about cancer for a minute and just think. I have been doing some counselling and some family counselling with my hubby and daughter. Although i'm not going to drop dead tomorrow the weight of my own death is overwhelming. I want to control everything yet control very little.

I am continuing with vitamin C and some B vitamins intravenously to help with energy. I notice a big difference the next day and feel pretty good. My oncologist doesn't want me to do chemo yet and keeps putting it off, so no ADAPT yet. I may just just do Vitamin C. There are so few of you, if any....who have gone the no chemo root. I can't find anyone who has done long term high dose vitamin C here. Yet I sit in a room full of people doing it here in New Zealand. I'm hopeful I'm have a few years left. My CEA is down to 1 but as we all know that means nothing and my cancer does not show up on any scans....yet I have seen the photos of the surgery and know it's in there....I want to keep you all informed of my "alternative" treatment so you can decide if it is an option for you. I take it just because if it doesn't get the caner I feel a hell of a lot better the day after and that makes it worth it. Some of the other cancer people I chat with say it makes them feel better while others don't notice much difference. I feel a little hot/flushed and sick while its going in while others feel nothing. this is a small inconvenience for the difference it is making. My GP is organising the treatment in my home town at a much more reasonable price. So I'm happy about that. Bring on the vitamin C I need a cure!!!

Here is the story that is spurring on all the vitamin c hype in New Zealand
http://www.nzherald.co.nz/northern-advo ... d=11250323

Just wanted to let you all know I'm still here finding my feet with being "incurable." I plan to make it to my daughters 10th birthday she is 6 right now. I'm going to live in the moment and plan holiday and trips in the near future to always have something to look forward to. We are off to Fiji in easter.

Thanks for all you love and support.
cherie xoxo
36Yo F
2000 UC
2013 Stage 4 CC 15/126 LN spread to the omentum
June Collectomy all visible cancer removed
July Folfox + Avastin
2/14 clean scan
8/14 Ileo-anal pouch surgery still NED
1/15 Emergency illeostomy spread to peritoneum and small bowel

orcasres
Posts: 836
Joined: Mon Jul 01, 2013 10:23 pm
Location: Orcas Island, WA

Re: I'm Back! Thanks for all the support!!

Postby orcasres » Fri Feb 13, 2015 12:52 am

It is soooooooo good to hear from you Cherie. I wanted to ask, but I respected your need for time to think things through. To your daughter's 10th birthday and beyond. Lois
63 yo F
Colon resection Sept. 2010
pT3N0M0 Stage 2A
Medullary Tumor 6.5cm long
Lymphovascular invasion
Lynch negative
12 FOLFOX 11/2010 to 5/2011 8 w/Oxi
NED so far

Delinda2
Posts: 483
Joined: Fri Jan 16, 2015 6:28 pm
Location: Washington state

Re: I'm Back! Thanks for all the support!!

Postby Delinda2 » Fri Feb 13, 2015 1:29 am

So good to hear from you! I get that sometimes you just can't talk/post one more word about cancer. Just know that we are here for you, no matter what. If you want to talk about gardening, kids, music, whatever - you set the pace, okay? Our world doesn't have to revolve around cancer. Big hug. XXOXO, Delinda
63 yrs,wife & mom
4/14 dx colon cancer,3C,9/22 nodes
Lymphatic,venous,&perineural invasion
<1cm margin,poorly differentiated
6/14 colostomy take down
7/14 FOLFOX w/9 Nulasta shots
2/16 dx new primary of sigmoid colon
6/16 surgery-rescection on sigmoid, total hysterectomy, temp ileo, stage 4
"I AM the storm."

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Maia
Posts: 2443
Joined: Fri Aug 24, 2012 8:00 am

Re: I'm Back! Thanks for all the support!!

Postby Maia » Fri Feb 13, 2015 7:37 am

So happy to hear you like this, Cherie : )
xoxoo

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MamaN
Posts: 666
Joined: Tue Dec 30, 2014 2:34 am

Re: I'm Back! Thanks for all the support!!

Postby MamaN » Fri Feb 13, 2015 7:42 am

Those sound like great goals. So go to hear from you!
Dx@45 stage t3 n1b m unknown IIIB
Resected in 8/2010 rectosigmoid
5.5 tumor with 3 /26 lymph nodes
Lymph vascular invasion
Folfox sept 2010 to feb 2011
10 tx only stopped due to low wbc

tammylayne
Posts: 2177
Joined: Fri Jul 16, 2010 9:24 am

Re: I'm Back! Thanks for all the support!!

Postby tammylayne » Fri Feb 13, 2015 8:01 am

Nice to hear from you Cherie,,,,so glad to hear the Vitamin C is making you feel better!!! 10th birthday parties....12th birthday parties....16th, 18th ++++++++++ May you have so much time with your family to make quality memories together!!!!!!
51 F
'06 Stage 1 CC,
'10 Stage 3 Rectal

"You never know how strong you are until you have to become your own hero."

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singingholly
Posts: 1133
Joined: Thu Feb 27, 2014 3:37 am
Location: Northern Italy

Re: I'm Back! Thanks for all the support!!

Postby singingholly » Fri Feb 13, 2015 8:51 am

Cherie it's such a great thing to hear your spirit so high and bright... You're amazing.
Olivia
Dec2011 sigm IIIst res T3N1(2/18)M0 Xelox
Oct2012 5liv.mets Dec 2012 liv.res
Jan2013 1liv.met Folfiri+avastin
Jul2013 liv.res Folfiri+/av
Feb2014 10+2lu.mets & 1abd node Folfoxiri+SBRT
Sep2014 Res rx l. BUT spot on diaph:SBRT
Dec2014 3+6lu.mets.Immuno

rp1954
Posts: 1855
Joined: Mon Jun 13, 2011 1:13 am

Re: I'm Back! Thanks for all the support!!

Postby rp1954 » Fri Feb 13, 2015 9:09 am

The megavitamin C topics have been, sometimes, the unwanted stepchild here with unlettered criticism. Some of us have seen better IV vitamin C discussions elsewhere. The forums' total experience base is pretty thin. There have been very favorable experiences using lower dose, metronomic 5FU based drugs or Folfiri backbones and IV vitamin C, combined with celecoxib, Apatone and/or LEF related adjuncts, with less side effects.

Standalone vitamin C has important supportive benefits, just like Cherie is experiencing. Selective combos make better biological sense to get additive tumorstatic or -cidal benefits, like with ADAPT. In some cases, these combos may be just as tumorcidal as Folfox/Folfiri, or more.
watchful, active researcher and caregiver for stage IVb/c CC. surgeries 4/10 sigmoid etc & 5/11 para-aortic LN cluster; 8 yrs immuno-Chemo for mCRC; now no chemo
most of 2010 Life Extension recommendations and possibilities + more, some (much) higher, peaking ~2011-12, taper chemo to almost nothing mid 2018, IV C-->2021. Now supplements

Don.in.Dallas
Posts: 179
Joined: Sun Aug 31, 2014 10:43 pm
Location: Dallas, Texas USA

Re: I'm Back! Thanks for all the support!!

Postby Don.in.Dallas » Fri Feb 13, 2015 1:12 pm

It is good to see you back, Cherie! Know that halfway around the world another CRC patient fervently wishes that you are able to enjoy your daughter's 10th birthday and that your days between now and then are reasonably comfortable. You are too young for this.

Best wishes to you! Keep us informed when time permits.

Don
Male 56 at DX 05/14
05/14 Resection, 3.2cm sigmoid CRC Stage IIIb, 2/17 nodes, T3N1M0
06/14 PET scan clear, portacath install
06/14 Begin FOLFOX6 12x, End 01/15
09/20 Still NED!
----
Previous: Laryngeal cancer
33 x rad
NED since 12/09

jillbugs4110
Posts: 266
Joined: Thu Jul 31, 2014 3:36 pm

Re: I'm Back! Thanks for all the support!!

Postby jillbugs4110 » Fri Feb 13, 2015 1:33 pm

Hi

I am a mom too they are 6 and 9 I also hope to sustain to see them not so little we will do this together!
Live One Day At A Time
I Abandon myself to God
46 6 yo.....9yo...
stage 1V liver mets :-(
my one prayer to got to sustain me to raise my two babies this is my only wish then take me out if needed.

jvaime21
Posts: 308
Joined: Sat Sep 14, 2013 5:35 am
Facebook Username: alpha21_2003

Re: I'm Back! Thanks for all the support!!

Postby jvaime21 » Fri Feb 13, 2015 1:37 pm

Cherie.. I'm always thinking of you, despite of my own trouble . I'm glad this stuff make you feel better . I will send that link to my hubby Doctor. Thank you .

Hugs
Retchel
wife of Stg 4 SRC
Diag.'12-2013(rd+Xeloda+oxi)
04/16/14 Clear CT-
8/25/14Kidney blockd nepro.
Rec. lung 1 enlrg. Abdomen
Inoperable/incurable /Chemo for life
11/21/14 Xeloda+Irinetocan 6x
hoping for a bright sunny day

Ajane
Posts: 427
Joined: Tue Jul 23, 2013 3:03 am

Re: I'm Back! Thanks for all the support!!

Postby Ajane » Fri Feb 13, 2015 7:31 pm

Cherie, so great to see you're back and love you're mindset. My own Mom's goal was much less than the seven years she was blessed with (I was ten when she passed). Here's to you celebrating your daughter's tenth and many, many more!!!
Last edited by Ajane on Sun Feb 15, 2015 12:00 am, edited 2 times in total.
7/13, T2, G3, Ultra-low. CEA 5.7 KRAS Wild, MSS
8-9/13 6 wks Xeloda/radiation
12/13 TEM pCR NED
5/15 CEA 4.6 PET 1.5 cm met, UL Lobectomy
6-10/15: Rounds 1-2 Xelox+Avastin; 3-8 Folfox+Avastin
10/15-4/16: 12 rounds Avastin
9/2016 CEA 4.2, 12 mm AP node
11/2016 CEA 4.3. PET/CT. 16mm AP nodal met removed
4 wks chemorad
2/2017 NED CEA 2.4
Carafate to tx esophageal ulcers caused by rad
Avastin maintenance postponed

2 Corinthians 12:9

peanut_8
Posts: 2340
Joined: Sun May 25, 2014 1:31 pm

Re: I'm Back! Thanks for all the support!!

Postby peanut_8 » Fri Feb 13, 2015 8:31 pm

I'm glad to hear you are starting to feel a little better Cherie, and that you are considering returning to work part-time. Hope the vitamin C kicks those nasty (expletive deleted) cancer cells.
peanut
female, diagnosed Jan 14, RC stage 2a, age 56
MSS
April 14, 28 chemo/rad with Xeloda
June 14 adjuvant Xeloda 6 rounds
currently NED


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