RAYM, how are you?

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Joined: Sun Feb 08, 2009 12:49 am
Location: Hawaii

Re: RAYM, how are you? **UPDATE by RAY**

Postby Kathleen808 » Thu Feb 12, 2015 2:12 am

It is so good to hear from you Ray. Sending love and light your way. I am sorry it has been so very hard. We are with you.

DH 1/09 3c 51yr rsct
Folfx 3/09
1 l nd 9/09 Flfri Avstn
PET clr 6/10
Folfri Avstn 7/10
ND 10/10
1/11 lng mets Flfri Avastn
ND 2/12
9/12 Flfri Avastn
10/12 grwth lng mts Erbtx Avstn Irintcn
1/13 stabl
9/13 grwth
8/16/14 passed into eternal peace

Posts: 860
Joined: Sun Feb 10, 2013 1:24 pm
Facebook Username: Valerie Barkus Kantner
Location: Metro Detroit, Michigan

Re: RAYM, how are you? **UPDATE by RAY**

Postby Val*pal » Thu Feb 12, 2015 8:50 am

Thanks for letting us know how you are, Ray. I'm sorry you've had some rough times. Lack of energy can really take a toll emotionally. Please know that you are in our thoughts.
DH dx'ed May '11, age 62
Jul '11: resection Stage IV
10/11: 6 mo Folfox
8/12:thyr canc, surg/tx
2/13: peri mets
2/13: Firi/Avas
6/13: Ok
8/13: break
10/13: Lung, peri, mets
10/13: Firi/Erb
1/14: Erb Fail; spread
5/14: Tx stopped
6/20/14: At rest

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Re: RAYM, how are you? **UPDATE by RAY**

Postby Icesk8tr » Thu Feb 12, 2015 2:19 pm

Thinking of you Ray. Wishing you all the best.

Stage IV CC 2010

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Facebook Username: cherie
Location: New Zealand

Re: RAYM, how are you? **UPDATE by RAY**

Postby Cherie » Fri Feb 13, 2015 1:21 am

Wow Ray you are still working!! that's pretty hard core. I'm am going to work half time and try to do things I want. What do you do?
36Yo F
2000 UC
2013 Stage 4 CC 15/126 LN spread to the omentum
June Collectomy all visible cancer removed
July Folfox + Avastin
2/14 clean scan
8/14 Ileo-anal pouch surgery still NED
1/15 Emergency illeostomy spread to peritoneum and small bowel

Posts: 333
Joined: Wed Sep 26, 2012 1:51 am
Location: Brisbane, Australia

Re: RAYM, how are you? **UPDATE by RAY**

Postby Asterix » Sat Feb 14, 2015 5:25 pm

Sorry you are having QOL issues and fatigue. I am also suffering from bad fatigue, to the point that my doc has got me in hospital to have some blood. Hope it helps.
Stage IVb age 37 Nov11
FOLFOX+Avastin, Xeloda+Avastin
1 year NED
regorafenib Oct13-Feb14
lymph node, lung, spine, rib and liver mets
GNAQ Q209P mutation > Mekinist Jul14
Radiation bone mets Aug14
Pain>hospital Oct14
Home Xmas 14

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Joined: Sun Mar 02, 2014 11:58 pm

Re: RAYM, how are you?

Postby Regan » Fri Apr 17, 2015 7:00 am

Skypup wrote:Hi Ray,

I know I speak for many (very many) when I say I'd love to hear from you. Wishing you good days!

the pup

Repeat repeat repeat!
DH dx 7/12
Stg IV RC liver mets
11/12 Hrt Attk by Folfox
1/13 Liver resct
4/13 LAR-Temp
1/14 revrsal
4/14 Hrnia surg 4/14
1/15 local recur, liver, lung, aortocaval region of retroperitoneum, anterior wall of distal abdominal aorta
2/15 Irinotecan
1/16 Lonsurf (fail--just zapped. Strength)
Aug 10, 2016 at rest

Posts: 454
Joined: Mon Aug 06, 2012 2:54 am
Location: Honolulu, Seattle

Re: RAYM, how are you? **UPDATE by RAY**

Postby pukalania » Fri Apr 17, 2015 8:02 pm

How are you Ray!? yes lots of us thinking of you!!!
wife 34 dx DH stage IV
Feb10 col res
May10 12 x FOLFOX
Aug12 tumor in sig colon,mets in liver
Aug12 Xeliri Ava
Oct12 xel celebrx rad
Feb13 liver/colon res
Sep13 ill reversal, fistula,
Folfiri SBRT,ADAPT ava
Apr 15 continued growth liver and lungs

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