The Colon Club

Hi Ray,

I know I speak for many (very many) when I say I'd love to hear from you. Wishing you good days!

the pup

I see an occasional post from Ray or his wife on F.B. he seems to be getting out and about with friends.

Thanks Kenny!

I started writing an update this morning but got sidetracked. I've not been having the best of times. I am still working full-time and getting out when I can though it takes its toll. I have two billiary drains to deal with blocked bile ducts. I've also been fighting an ESBL E coli infection which I just can't seem to shake so that has been landing me in the hospital here and there due to bacteria in my blood. I have a PICC line and do home antibiotic via IV. I just am having a hard time dealing with the fatigue that has come over me. I also am experiencing some fluid retention that I've never had before. I was hoping for more quality of life time but I guess last year WAS the QOL. I'm glad my wife and I did a lot of fun things during that time.

I'm not on any active chemo treatment. 1) I have/had an infection and 2) Srivarga is tough on the liver and that's already being taxed. As well I can't deal with being even more run down than I am now.

I know some are in worse shape than me but, I really have a hard time dealing with this. I can't do anything much. No hot tub due to liver drains; not a lot of fitness due to no energy; no vacation plans (not sure how long I have to live as well as I don't want to be far away in case I need treatment), I use to cook dinners but even that become too much after working all day)

For several months I was in a bad way mentally and just didn't feel like posting but that has gotten better.

Thanks for the concern!!!

Thanks for checking in Ray even though you've been through a bit of a ringer yourself.
Sending POSI+++ vibes your way.

In Harmony
CRguy

Ray:
My heart is with your struggle. You need to try to get rest to help your body. There are more good times to come....you just need to get through the infections, etc. Do you have any sort of plan for moving forward? Can you meet with othe dcotors to get ideas for some unconventional ideas or courses of action? I'll be praying for you!
Cynthia

Ray, it is so good to hear from you. I am about to say one of the things we patients often complain about hearing, and am just hoping it will be okay since it is coming from another inoperable stage IV. I love your love of life -- have ever since you changed your avatar to that smiling guy enjoying the pleasure of a glass of red wine. I'm wishing you simple pleasures as you can find them.

Ray... so good to hear from you. ((Ray))

Hi ray, I have been thinking about you. Everyday is a gift that we need to enjoy. I hope you have many many more.
Jackie and dan

So glad to see a post from you Ray. You have been in my thoughts. Sorry that you are having so much fatigue and QOL issues. Thinking of you and hoping that you have days of sunshine and laughter. Thank you for all you have shared with us here! Take care.
KPJPMOM

Stenght and good vibes your way.
Olivia

bump

Hi Ray,

Nice to hear from you - thank you for the update. Wow...still working full time, no wonder you are tired Glad to hear that you are feeling better emotionally - may you enjoy the simple joys in life with your loved ones. Thinking of you and sending you strength and warm wishes across the miles.

Have thought of you so often, sorry things are tough for you right now. We understand that it's sometimes hard to post, just know that we all care & send you good wishes. (If wishes were horses beggers would ride, right?) Anyway, take care & get lots of rest. XXOXO, Delinda

Hi Ray,
I have been having a hard time both mentally and physically for the past couple of months, it was good to see your post.
I hope you get better, as soon as you can....

Best Regards
Nick