Polyp was benign and still having cramping/pain

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DarknessEmbraced
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Location: New Brunswick, Canada

Polyp was benign and still having cramping/pain

Postby DarknessEmbraced » Mon Feb 09, 2015 11:22 am

My surgeon said to wait a week and if I'm still having problems to do the stretching again and that we may have to do it several times! I don't want to go through that again especially without any type of sedation! When I have my colonoscopy because of the sedation I have to have someone with me or they won't do it. My boyfriend works and can't keep taking time off of work! The lax-a-day is working and I'm having less bloating and having bowel movements. After most bowel movements I have cramping even if they're softer. The good news is the polyp was benign. My surgeon said to drink lots of fluids, try to keep my stools soft.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

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MamaN
Posts: 666
Joined: Tue Dec 30, 2014 2:34 am

Re: Polyp was benign and still having cramping/pain

Postby MamaN » Mon Feb 09, 2015 11:39 am

Hi de
I hate that your still suffering with theses symptoms. I was wondering what your diet it like? After my surgery I was told no fruits or veggies for at least a month after the sugery to rough on digestive system. Also maybe seeing gi dr could help you too . Mine gave me the fodmap diet and a lot of my digestive problems went away. The thing that was causing all my gas was certain fruits apples, peaches ,cherries, watermelon. Broccoli and cauliflower causes extreme gas pains....for me any way. This has changed my digestive issues no more severe gas pains! You could look up the fodmap diet on line.
Dx@45 stage t3 n1b m unknown IIIB
Resected in 8/2010 rectosigmoid
5.5 tumor with 3 /26 lymph nodes
Lymph vascular invasion
Folfox sept 2010 to feb 2011
10 tx only stopped due to low wbc

DarknessEmbraced
Posts: 3576
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Polyp was benign and still having cramping/pain

Postby DarknessEmbraced » Mon Feb 09, 2015 11:48 am

I will definitely look up the fodmap diet. I don't eat much fruit or lots of vegetables. Lately, it's vegetables in pureed soups. I haven't eaten any of the foods you mentioned. I will look at the fodmap to see if any of the foods I am eating are causing issues. It's either, the narrowing, the foods I'm eating or still after effects from surgery. I do drink lactose free milk. For the foods you avoid what do you replace them with?
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

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MamaN
Posts: 666
Joined: Tue Dec 30, 2014 2:34 am

Re: Polyp was benign and still having cramping/pain

Postby MamaN » Mon Feb 09, 2015 11:56 am

I hope things get better for you soon! I had the worst gas pains for along time extremely painful too. It's is no fun . I'm finally feeling pretty normal after seeing that gi dr. Butt I have to tell you that was the third gi dr I had seen! She finally was the only one to help me!
I can do grapes, blueberries , strawberries, bananas , green squash, carrot , sweet potato. And more
Oh yeah onions raw are bad for me to! It was funny because the only fruit I was eating were the ones I shouldn't have.
Dx@45 stage t3 n1b m unknown IIIB
Resected in 8/2010 rectosigmoid
5.5 tumor with 3 /26 lymph nodes
Lymph vascular invasion
Folfox sept 2010 to feb 2011
10 tx only stopped due to low wbc

DarknessEmbraced
Posts: 3576
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Polyp was benign and still having cramping/pain

Postby DarknessEmbraced » Mon Feb 09, 2015 12:04 pm

I have gas pains, cramping and just general soreness especially if I overdo things. The pain is worse if I do things where I'm bending a lot.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

User avatar
MamaN
Posts: 666
Joined: Tue Dec 30, 2014 2:34 am

Re: Polyp was benign and still having cramping/pain

Postby MamaN » Mon Feb 09, 2015 12:05 pm

I just saw good news on the polyp. That report came back a lot faster! Just keep going to drs some one will hopefully be able to help you.
Dx@45 stage t3 n1b m unknown IIIB
Resected in 8/2010 rectosigmoid
5.5 tumor with 3 /26 lymph nodes
Lymph vascular invasion
Folfox sept 2010 to feb 2011
10 tx only stopped due to low wbc

alphagam
Posts: 203
Joined: Tue Jun 14, 2011 10:48 am
Facebook Username: Kathy Maine Ruess

Re: Polyp was benign and still having cramping/pain

Postby alphagam » Mon Feb 09, 2015 12:44 pm

Great news on the polyp!!! I also kinda wonder if you wouldn't benefit a lot from just plain exercise as in walking. Sometimes a sedentary lifestyle is our own worst enemy. I think your surgery was long enough ago that it would be hard for you to overdo.
Dx Feb 2010 4 cm tumor, just inside rectum
EUS stated T3 tumor
2nd opinion, need better path
Mar 2010 transanal surgery. Surgery by board certified CRS found tumor only in lining
6 exams of surg site, 3 PET, 3 scopes laterNED.
Scope in Mar2015, clean colon
Next scope/test in 3 years

DarknessEmbraced
Posts: 3576
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Polyp was benign and still having cramping/pain

Postby DarknessEmbraced » Mon Feb 09, 2015 1:06 pm

I still get sore. Everyone is different after surgery. I am trying. I have other health issues that are going to be dealt with once the referral to my endocrinologist goes through.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

cathy123
Posts: 665
Joined: Sat Nov 08, 2014 3:36 pm

Re: Polyp was benign and still having cramping/pain

Postby cathy123 » Mon Feb 09, 2015 1:31 pm

Well, glad the polyp was benign! That is great news at least. So sorry you are continuing to feel so bad. From what you said I wouldn't want to go through that procedure without anasthesia either!

Maybe it will be easier to get out when spring comes and it is nicer for walking outside?
Cathy

Diagnosed 10/14 low rectal cancer age 43
Clinical T2NXMX
Radiation/xeloda 12/14-1/15
LAR with temp Ileo 3/15
pT2N0M0, lymphatic invasion 0/37 nodes
4 xelox, 1 xeloda only
Reversal 9/15
Mom to 9&11 year olds

DarknessEmbraced
Posts: 3576
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Polyp was benign and still having cramping/pain

Postby DarknessEmbraced » Mon Feb 09, 2015 1:37 pm

Yes it will get easier to walk outside in the spring and summer.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)


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