My treatment ongoing-start 1/20/15
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Nik Colon
Re: My treatment ongoing-start 1/20/14
Messaged my onc, will be reducing oxy by 50% and have me stay an extra hour to monitor my symptoms next infusion.
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Nik Colon
Re: My treatment ongoing-start 1/20/14
Still not doing great. Ended up at ER on Friday after my disco nurse called with concern that the one side of my face was droopy and right arm weak and tense. Anyhoo, got cleared to go home. AST/ALT numbers were both over 200. Sent onc a message, waiting to hear back. It really took a toll on me, pretty much been in bed since. It's making me really depressed and for the first time scared.
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Nik Colon
Re: My treatment ongoing-start 1/20/14
Also got raw sores on my ass now, could it be from chemo? I didn't shower for a couple days, anyway, now I'm going to make sure I wash my ass after I go to the bathroom. Never had that before. Another fun thing I guess.
Re: My treatment ongoing-start 1/20/14
ritz75 wrote:Also got raw sores on my ass now, could it be from chemo? I didn't shower for a couple days, anyway, now I'm going to make sure I wash my ass after I go to the bathroom. Never had that before. Another fun thing I guess.
That's the first time I've heard of that side effect Ritz. You might want to mention that to your medical team (disco nurse et al). Hope you feel better soon.
peanut
female, diagnosed Jan 14, RC stage 2a, age 56
MSS
April 14, 28 chemo/rad with Xeloda
June 14 adjuvant Xeloda 6 rounds
currently NED
MSS
April 14, 28 chemo/rad with Xeloda
June 14 adjuvant Xeloda 6 rounds
currently NED
Re: My treatment ongoing-start 1/20/14
Hi nik,
So sorry your not feeling well. Trust me we have all been there. Chemo was never a breeze for me . Like I said I had the oxi lowered after second tx . It helped ! Hope you can bounce back! And a good cry helps get it out. <3
Ronni
So sorry your not feeling well. Trust me we have all been there. Chemo was never a breeze for me . Like I said I had the oxi lowered after second tx . It helped ! Hope you can bounce back! And a good cry helps get it out. <3
Ronni
Dx@45 stage t3 n1b m unknown IIIB
Resected in 8/2010 rectosigmoid
5.5 tumor with 3 /26 lymph nodes
Lymph vascular invasion
Folfox sept 2010 to feb 2011
10 tx only stopped due to low wbc
Resected in 8/2010 rectosigmoid
5.5 tumor with 3 /26 lymph nodes
Lymph vascular invasion
Folfox sept 2010 to feb 2011
10 tx only stopped due to low wbc
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DarknessEmbraced
- Posts: 3817
- Joined: Sat Nov 01, 2014 4:54 pm
- Facebook Username: Riann Fletcher
- Location: New Brunswick, Canada
Re: My treatment ongoing-start 1/20/14
I hope you feel better soon ritz!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured!
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured!
Re: My treatment ongoing-start 1/20/14
So sorry you're having such a hard time with chemo. (FOLFOX, right?) I had my surgery first, went to ER thinking I had appendicitis & discovered a tumor & that a large section of my colon was so distended and inflamed that surgeon said it was coming apart in her hands. Anyway, had to heal from surgery & temporary colostomy, then colostomy take down before I could start chemo. It was 3 months before I could start chemo & I had 11 rounds. It was really hard but I did it and learned a lot. Some tips you may want to ask your onc about:
Reduced the dosage to 80% because the first round knocked me on my a$$. Still effective, less side effects.
Had the calcium & magnesium from day one - no twitches, cramps, etc.
Onc added 2 hours of hydration at disconnect, then later added another 2 hours before infusion. Helps reduce side effects & I felt much better. They said IV hydro beats drinking fluids hands down.
At first the steroids kept me awake for 48 hours; that got better with each tx & by the fifth round it was gone.
If your white count goes down you may need shots to raise it. I had Neulasta (1 shot at disco) & thank goodness Bev told me to take Claratin D to prevent bone pain. It works!! My first onc didn't know anything about it, my current onc had recently heard of it & said go ahead. Has to be the "D", not plain Claratin.
My energy level went down with each round until I couldn't even get dressed or bathe. They gave me Ritalin to help because my quality of life was impacted so much. It helped but not in a huge way.
They cancelled my 12th round completely because chemo was so hard on me. Onc said the dosage level and the number of rounds are a range and not written in stone.
Hope you can use some of this info & I wish you the best of luck. I had to keep telling myself that it wasn't forever & that I could do anything 12 times. Let's hope I never need chemo again!! I see people who are on chemo for life & wonder how they do it. Stay strong and lean on the group here. You are not alone. Hugs, XXOXO, Delinda
Reduced the dosage to 80% because the first round knocked me on my a$$. Still effective, less side effects.
Had the calcium & magnesium from day one - no twitches, cramps, etc.
Onc added 2 hours of hydration at disconnect, then later added another 2 hours before infusion. Helps reduce side effects & I felt much better. They said IV hydro beats drinking fluids hands down.
At first the steroids kept me awake for 48 hours; that got better with each tx & by the fifth round it was gone.
If your white count goes down you may need shots to raise it. I had Neulasta (1 shot at disco) & thank goodness Bev told me to take Claratin D to prevent bone pain. It works!! My first onc didn't know anything about it, my current onc had recently heard of it & said go ahead. Has to be the "D", not plain Claratin.
My energy level went down with each round until I couldn't even get dressed or bathe. They gave me Ritalin to help because my quality of life was impacted so much. It helped but not in a huge way.
They cancelled my 12th round completely because chemo was so hard on me. Onc said the dosage level and the number of rounds are a range and not written in stone.
Hope you can use some of this info & I wish you the best of luck. I had to keep telling myself that it wasn't forever & that I could do anything 12 times. Let's hope I never need chemo again!! I see people who are on chemo for life & wonder how they do it. Stay strong and lean on the group here. You are not alone. Hugs, XXOXO, Delinda
63 yrs,wife & mom
4/14 dx colon cancer,3C,9/22 nodes
Lymphatic,venous,&perineural invasion
<1cm margin,poorly differentiated
6/14 colostomy take down
7/14 FOLFOX w/9 Nulasta shots
2/16 dx new primary of sigmoid colon
6/16 surgery-rescection on sigmoid, total hysterectomy, temp ileo, stage 4
"I AM the storm."
4/14 dx colon cancer,3C,9/22 nodes
Lymphatic,venous,&perineural invasion
<1cm margin,poorly differentiated
6/14 colostomy take down
7/14 FOLFOX w/9 Nulasta shots
2/16 dx new primary of sigmoid colon
6/16 surgery-rescection on sigmoid, total hysterectomy, temp ileo, stage 4
"I AM the storm."
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Nik Colon
Re: My treatment ongoing-start 1/20/14
Just wanted to add, me and my hub started dating 17 years ago today yes we are married, but we go by when we started dating.
yes we are married, but we go by when we started dating.-
DarknessEmbraced
- Posts: 3817
- Joined: Sat Nov 01, 2014 4:54 pm
- Facebook Username: Riann Fletcher
- Location: New Brunswick, Canada
Re: My treatment ongoing-start 1/20/14
Congratulations on your 17 year anniversary Ritz! 
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured!
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured!
Re: My treatment ongoing-start 1/20/14
Then Happy Anniversary !
TBH ... I actually kinda have to think about the wedding date
... BUTT the date we first met ..... is always right there !
(46 years this coming September 26)
Yes I really AM that old
TBH ... I actually kinda have to think about the wedding date
... BUTT the date we first met ..... is always right there !(46 years this coming September 26)
Yes I really AM that old
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far
Re: My treatment ongoing-start 1/20/14
Congrats ritz! Long marriages are becoming more and more rare, so good for you. We celebrated our 29th wedding anniversary + 3 more years dating last week. (This journey would be so much harder without my wonderful hubby.) I was feeing pretty smug until I saw CRGuy has 46 years coming up. Impressive!
63 yrs,wife & mom
4/14 dx colon cancer,3C,9/22 nodes
Lymphatic,venous,&perineural invasion
<1cm margin,poorly differentiated
6/14 colostomy take down
7/14 FOLFOX w/9 Nulasta shots
2/16 dx new primary of sigmoid colon
6/16 surgery-rescection on sigmoid, total hysterectomy, temp ileo, stage 4
"I AM the storm."
4/14 dx colon cancer,3C,9/22 nodes
Lymphatic,venous,&perineural invasion
<1cm margin,poorly differentiated
6/14 colostomy take down
7/14 FOLFOX w/9 Nulasta shots
2/16 dx new primary of sigmoid colon
6/16 surgery-rescection on sigmoid, total hysterectomy, temp ileo, stage 4
"I AM the storm."
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