So I am just going to start with my infusions and not talk about the past crap leading up to it.
First treatment 1/20/15:
Went better than I expected. First symptoms I noticed were the tingles. I also had a few odd eye twitches in the beginning and slight dizziness when I turned my head too fast. Some constipation in the first few days. Oh yeah, the steroids made me a jabber mouth the first Day which in turn made it hard to sleep. Some minor numbness in face in the cold, and the temp jaw pain with the first few bites. Most SE's went away within a day or 2, the tingles lasted a little longer. That's all I can think of right now.
2nd treatment 2/3/15:
Symptoms were a little worse, plus I was stuffy and soar throat from a cold I had for over a week but doc did blood, rapid strep, listened to lungs, etc, and said I should be ok. Infusion went well until right after they stopped it, put the pack on and ready to go. Went to bathroom and had a coughing fit, and not a normal one, hard to explain. Anywhoo I just figured it would get better. right after we left had a MAJOR one. I couldn't get it out, hard breathing, went on and so bad I literally started peeing myself (not just the little dribbles from an occasional cough or sneeze). That freaked me out. For a second I was thinking of going back but calmed myself down. Could barely talk! anywhoo, I have all the previous symptoms. Oh, one new, the drinking cold feeling like mini icicles poking your throat.
That's all I can think of for now, I will update this thread with new info or treatments in the future so it's all in one place.
Take care everyone,
Last edited by Nik Colon
on Sun Jun 07, 2015 4:22 am, edited 2 times in total.
Stage IVa Sig CC 2 lvr mets 1/12 Ln
(3, =<3 lng spots at dx til 5/16)
=T3N1aM1a 4cmX4mm (lng not included)dx 12/2014 at age 39
CEA 1/15-4.9, 12/16-4.9 again
1/15-3/15 (4tx, 3w/1wo oxi)
Col/Lvr surg 4/23/15 NED
start 6/15-9/15 (8tx, 5w/3wo iri)
1 sml lvr spot/cyst
12/6/16 multi lung spots/mets?
No longer NED My tx ongoing-start 1/20/15Adding your SIGNATURE, etc