Bad news

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Jack&KatiesMommy
Posts: 640
Joined: Wed Dec 21, 2011 1:08 pm
Location: Columbus, OH

Re: Bad news

Postby Jack&KatiesMommy » Wed Feb 11, 2015 9:06 am

Holly:
Hoping for a good plan to move forward today! Thinking of you!
Cynthia
Cynthia
Mommy to Jack (8) now (18) and Katie (4) now (14)
(My Most Precious Things)
Dx 8/11 Stage IV CRC (liver mets) CEA 2,600+
9/11 Folfiri 2/12: Failed Liver Resection
5/12 HAI pump/removed primary
4/13 Liver Resection
8/13-12/15 (10) RFAs lungs
5/17: Upper Left Lobe of lung resected.
02/18: 3 new lymph mets lung
05/18: Keytruda (MSS w/Intermediate TMB): NED CEA: 66.4, 39.2, 23.8, 13, 3.5 1.8, 1.0, 2.8 3.9, 5.0, 5.6, 1.5, .8,

pfCml73183
Posts: 653
Joined: Sat Jun 22, 2013 7:49 pm
Facebook Username: Celeste Marie Comeau
Location: FL

Re: Bad news

Postby pfCml73183 » Wed Feb 11, 2015 9:24 am

Praying for your health,
Holly.
with peace, Celeste
Wife and BF to Peter, 54
mCRC/IV/BRAF+
Erbitux and Urelumab trial @MSKCC 3/15
went home 5/8/15

codyedwardwilliams
Posts: 1
Joined: Thu Jan 22, 2015 12:18 am

Re: Bad news

Postby codyedwardwilliams » Thu Feb 12, 2015 4:28 am

Get well really soon. Sorry to hear about this! :(

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singingholly
Posts: 1133
Joined: Thu Feb 27, 2014 3:37 am
Location: Northern Italy

Re: Bad news UP TO DATE

Postby singingholly » Thu Feb 12, 2015 9:12 am

Tomorrow I'm going to be admitted in hospital to start again with folfoxiri, which I quit seven months ago (still responding) to do surgery on my right lung.
Hope it will be effective this time too (I'll try and see if it's possible to add some Celebrex)... My goal is to freeze this damned disease, possibly reduce size and number of mets and allow some sbrt and or rfa, and try to keep clean this silly body... I think they are going to check in a couple of months how it goes and my oncs are stongly oriented in finding for me some pd-1 pdl-1 trial as a next phase... This is the plan for the moment. Wishing well.
Last edited by singingholly on Thu Feb 12, 2015 9:18 am, edited 1 time in total.
Dec2011 sigm IIIst res T3N1(2/18)M0 Xelox
Oct2012 5liv.mets Dec 2012 liv.res
Jan2013 1liv.met Folfiri+avastin
Jul2013 liv.res Folfiri+/av
Feb2014 10+2lu.mets & 1abd node Folfoxiri+SBRT
Sep2014 Res rx l. BUT spot on diaph:SBRT
Dec2014 3+6lu.mets.Immuno

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Maia
Posts: 2443
Joined: Fri Aug 24, 2012 8:00 am

Re: Bad news

Postby Maia » Thu Feb 12, 2015 9:15 am

Well, you have a plan.
Olivia, will you be doing something for the rib/ bone met, locally? Or is it thought that the systemic chemo will take care of it?

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singingholly
Posts: 1133
Joined: Thu Feb 27, 2014 3:37 am
Location: Northern Italy

Re: Bad news

Postby singingholly » Thu Feb 12, 2015 9:25 am

Ah yes, for the moment ordinary radiotherapy with anthalgic aim, then maybe something more definitive... But now it's the systemic approach that urges... and pain control, even because I need more exams but pain is an obstacle. These days I should have done an MRI to the whole spine but I could NO WAY stay still for the time necessary to get the images...
Dec2011 sigm IIIst res T3N1(2/18)M0 Xelox
Oct2012 5liv.mets Dec 2012 liv.res
Jan2013 1liv.met Folfiri+avastin
Jul2013 liv.res Folfiri+/av
Feb2014 10+2lu.mets & 1abd node Folfoxiri+SBRT
Sep2014 Res rx l. BUT spot on diaph:SBRT
Dec2014 3+6lu.mets.Immuno

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Maia
Posts: 2443
Joined: Fri Aug 24, 2012 8:00 am

Re: Bad news

Postby Maia » Thu Feb 12, 2015 9:28 am

Did you check on focused ultrasound instead of radiation (re: bone met)?

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singingholly
Posts: 1133
Joined: Thu Feb 27, 2014 3:37 am
Location: Northern Italy

Re: Bad news

Postby singingholly » Thu Feb 12, 2015 10:07 am

No, but tomorrow with the doc that will follow me while I'm admitted I 'm going to talk about it, AS about adding some celebrex AND the chance of having some sativex... She is very open minded and curious...
Dec2011 sigm IIIst res T3N1(2/18)M0 Xelox
Oct2012 5liv.mets Dec 2012 liv.res
Jan2013 1liv.met Folfiri+avastin
Jul2013 liv.res Folfiri+/av
Feb2014 10+2lu.mets & 1abd node Folfoxiri+SBRT
Sep2014 Res rx l. BUT spot on diaph:SBRT
Dec2014 3+6lu.mets.Immuno

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Bev G
Posts: 5856
Joined: Thu Jan 07, 2010 11:19 pm
Facebook Username: Bev Golde
Location: Quechee, VT

Re: Bad news

Postby Bev G » Thu Feb 12, 2015 10:11 am

Thinking of you all the time, Olivia. I hope and will pray that the new plans work quickly and well, and that they perfectly control your pain.

Much love to you,

Bev
58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo

9/13 ^17th clean PET/CT NED for now

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Icesk8tr
Posts: 1068
Joined: Sat Apr 30, 2011 11:37 am

Re: Bad news

Postby Icesk8tr » Thu Feb 12, 2015 1:35 pm

Wishing you all the best dear Olivia. Saying prayers for you.

Christine❤️
Stage IV CC 2010

pukalania
Posts: 454
Joined: Mon Aug 06, 2012 2:54 am
Location: Honolulu, Seattle

Re: Bad news

Postby pukalania » Thu Feb 12, 2015 8:44 pm

good luck sweet Olivia...thinking of you and sending lots of love your way
wife 34 dx DH stage IV
Feb10 col res
May10 12 x FOLFOX
Aug12 tumor in sig colon,mets in liver
Aug12 Xeliri Ava
Oct12 xel celebrx rad
Feb13 liver/colon res
Sep13 ill reversal, fistula,
Folfiri SBRT,ADAPT ava
Apr 15 continued growth liver and lungs

tammylayne
Posts: 2177
Joined: Fri Jul 16, 2010 9:24 am

Re: Bad news

Postby tammylayne » Thu Feb 12, 2015 9:38 pm

Send strongest thoughts to you Olivia....
51 F
'06 Stage 1 CC,
'10 Stage 3 Rectal

"You never know how strong you are until you have to become your own hero."

jvaime21
Posts: 308
Joined: Sat Sep 14, 2013 5:35 am
Facebook Username: alpha21_2003

Re: Bad news

Postby jvaime21 » Thu Feb 12, 2015 11:51 pm

Thinking of you Olivia always.. I'm not posted very Much but doesn't mean I'm not thinking of you.. Sending you love and prayers be strong my dear. When I look on your face I saw an angel .

Retchel
wife of Stg 4 SRC
Diag.'12-2013(rd+Xeloda+oxi)
04/16/14 Clear CT-
8/25/14Kidney blockd nepro.
Rec. lung 1 enlrg. Abdomen
Inoperable/incurable /Chemo for life
11/21/14 Xeloda+Irinetocan 6x
hoping for a bright sunny day

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Cherie
Posts: 590
Joined: Fri Jul 12, 2013 11:20 am
Facebook Username: cherie
Location: New Zealand

Re: Bad news

Postby Cherie » Fri Feb 13, 2015 12:49 am

Fuck this disease Olivia defiantly add the Celebrex....why not try the vitamin C makes me feel a lot better....what have you got to loose?
36Yo F
2000 UC
2013 Stage 4 CC 15/126 LN spread to the omentum
June Collectomy all visible cancer removed
July Folfox + Avastin
2/14 clean scan
8/14 Ileo-anal pouch surgery still NED
1/15 Emergency illeostomy spread to peritoneum and small bowel

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singingholly
Posts: 1133
Joined: Thu Feb 27, 2014 3:37 am
Location: Northern Italy

Re: Bad news

Postby singingholly » Fri Feb 13, 2015 1:15 am

Thank you Cherie, this of the vitamine C is a good reminder! Let's go on fighting together dear!
Olivia
Dec2011 sigm IIIst res T3N1(2/18)M0 Xelox
Oct2012 5liv.mets Dec 2012 liv.res
Jan2013 1liv.met Folfiri+avastin
Jul2013 liv.res Folfiri+/av
Feb2014 10+2lu.mets & 1abd node Folfoxiri+SBRT
Sep2014 Res rx l. BUT spot on diaph:SBRT
Dec2014 3+6lu.mets.Immuno


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